DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Portal Vein Thrombosis
Posted by Dana
Last Reply February 20, 2017 at 13:50
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

107 replies...

Posted by Larkin Winn
Last Reply February 19, 2017 at 15:27
Started February 15, 2017 at 20:49
I am glad I found this fourm. I was in a car wreck on 9-2013. Went through P.T. for 3 months. A 1 1/2 weeks before Christmas I was in real bad leg pain. I couldn't even walk 100ft w/out crying. i had no clue what was going on. Well my wife told me we are going to see a Dr. Boom, I was admitted. Went to 3 different hospitals. The last which is Carle Hospital in Champaign,Il. It was so bad that the head of the Vasculer dept couldn't believe I was still alive. Well 2 weeks later and 5 trips to the O.R. the DVT was gone. It was so bad that the Dr. said on a followup visit that he had 3 Drs. fly in to Chicago. If he couldn't get it done they were going to drain my blood and clean it. He went through my left leg and my right neck. Today i still have pain and trouble walking sometimes. The good news is I do 5k races. I don't run but speed walk. My first one was in 2015. I did 3 that year. Last year I did 6. I am going to the 10k in the Illinois Marthon. I am saying this because there is li... read more

3 replies...

New blood clot on warfarin possible?
Posted by Karen
Last Reply February 19, 2017 at 14:04
Started January 2, 2012 at 03:20
Okay so what would I do without this forum? Ha, I don't know!
I do have a question though, and I hope it's not just paranoia as this
blood clot has for sure scared me. I have had a few tinges and pains
in my right calf now, and throughout for the last 2 weeks or so. My
clot is in my left upper thigh and I've been on warfarin for over a
month now with that one. Never really stable on my meds, been 2.5 and
2.92 for one or two times, the rest of them 1.7 or around there.
My question is can i have another blood clot in my right leg while i'm
on warfarin? It is so achey, but I keep thinking that maybe I have
just used that leg so much for weight balance since my left one feels
heavy that I;m just pulling and using muscles...but god it feels odd.
Anyway I'm babbling and I'm nervous. So can you get another blood clot
in the opposite leg while on warfarin? thanks.

52 replies...

Was your clot pain constant or intermittent?
Posted by Holly
Last Reply February 18, 2017 at 08:39
Started June 4, 2013 at 09:14
Hi everyone. I've been having intermittent pain in my leg for about a
month and a half and the doctors don't really have an explanation.

I would say it's there about 75% of the time, but in different points
in my leg i.e. the calf, the shin, groin and top of instep/foot. Which
is weird. Because I don't know if clot pain would be there all the
time, or come and go.

It feels like a stabbing or shooting point and is about 8/10 for pain.
Walking around actually helps it, but sitting on a hard chair,
crossing my legs or doing anything which alters the circulation brings
on the pain.

I am quite worried I could have a clot. But I have had two normal d
dimers in the past month (recent one was lower than the first) and had
an ultrasound about 2 months ago (before the pain started) that came
back clear. I have heard of people having negative tests but I don't
really have any risk factors apart from working at a pc 8 hours a day,
which is a biggie i guess. I don... read more

8 replies...

Too much Coumadin Warm feeling?
Posted by Mike L.
Last Reply February 17, 2017 at 20:27
Started September 14, 2008 at 05:38
Hi I was wondering if any of you when your INR or coumadin level is too high do you get the same warm flush then a slightly eratic heartbeat that I get every other day or so?

15 replies...

Posted by JB
Last Reply February 17, 2017 at 11:49
Started February 17, 2017 at 11:49

I woke up 5 days ago with pain on my inner left thigh - I'd been out partying the night
before and assumed that I'd bruised it somehow when I was drunk and didn't think too
much of it. The pain is quite intense, especially if I've been sat for a while. The area is
tender to touch but there doesn't seem to be much swelling. I think it's starting to
slowly turn slightly purple. It's a little warmer than the other leg but not 'hot'. I can feel
something more present under the skin in this leg than my other but I don't know if it's
a vein or a muscle. It's not itchy.

I'm 30, male, my maternal uncle has varicose veins (but I don't know if he has DVT?) but
other than that theres no family history that I know of. I smoke, but have only smoked
for a couple of years and not always regularly.

I'm currently abroad and my travel insurance just expired. I'm pretty much broke and the
money I have is just enough money to get me a flight home so I'm torn on whether to... read more

0 replies...

Sex drive and warfarin
Posted by Lucy
Last Reply February 15, 2017 at 17:31
Started January 14, 2010 at 01:12
I have been on warfarin for about 8 months and have had zero sex drive since. Has anyone else had this side effect, and did you get your sex drive back after you came off warfarin?

Sorry, this is a more risque topic for this forum, but I want to know I am not alone, and want to know if it is going to come back! I am only 26!

Looking forward to any answers,

91 replies...

Stent in Iliac Vein
Posted by Diane
Last Reply February 15, 2017 at 09:45
Started October 24, 2007 at 05:26
Has anyone had a venous stent inserted into their Iliac vein following a DVT. This was done to keep the vein open and relieve pressure on it from an adjoining artery. My question is for those who have a Wallstent. Do you still have pain in that stented vein? I continue to have pain three years after the DVT.

21 replies...

Pain in non DVT leg
Posted by Vickie
Last Reply February 14, 2017 at 22:56
Started February 15, 2008 at 20:23
Was diagnosed with DVT in right leg on 1/8 after having surgery on the right knee on 1/3. Was on crutches for six weeks due to the knee surgery and have been off for 3 days now.

About 10 days ago I started having pretty severe pain in the opposite calf. Was tested for a DVT in that calf that was negative. I've been therapeutic for 5 weeks with Coumadin/Lovenox. Has anybody else experienced pain like this in an opposite calf? It hurts worse than the DVT leg.

4 replies...

back/abdominal pain IVC Filter failed removal
Posted by DFWSarah
Last Reply February 14, 2017 at 17:18
Started November 13, 2010 at 17:06
Hi guys. I've been reading this forum since I had my dvt in late July. I'm 27 and
everything has been fine after I went through 2 thrombolisis procedures, and have
full function of my right leg again. I also found out I have the Factor Five Leiden

My question today is about extreme back pain after a IVC filter retrieval. My
vascular surgeon attempted to remove my IVC filter yesterday morning - what
should have taken 45 minutes took 3 hours, and he even brought in another
surgeon to try to remove the filter, with no success. So my vas. surgeon said with
my factor five history it's more likely that I'll clot again, so he thought it better that
they just leave it in since they couldn't get it out. I have been in extreme back and
abdominal pain since my procedure yesterday - I called my vas. surgeon and his
nurse said it was normal and to take motrin and it should subside. I can't even walk
for any length of time without wanting to fall on the floo... read more

17 replies...

Medical Alert Tattoo
Posted by Bill
Last Reply February 14, 2017 at 16:05
Started January 18, 2011 at 13:57
I certainly don't want to bring up the subject of tattooing while on coumadin, that's been beaten to death here. I did have a medical alert bracelet that was made of stainless steel and was great looking jewelry as well. I lost it this week hiking with the dog. Maybe I'll find it when the snow melts in April. Anyway, I was thinking about getting a Medical Alert Tattoo. I did my homework and it appears that the tattoos are more common than I thought. Does anyway out here have one?

7 replies...

Warfarin headaches
Posted by Claire
Last Reply February 14, 2017 at 14:18
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

99 replies...

Healing from DVT/PE
Posted by Radboy
Last Reply February 14, 2017 at 10:41
Started February 2, 2017 at 20:04
I was diagnosed with blood clots 3 months ago. My hematologist
said my last CT scan and Ultrasound came up clean, I'm cured. The
Ultrasound tech however said he couldn't actually see clots, only
that blood was now flowing. That would be great but I still have
burning and tingling in both legs, and pain behind my left knee.
So far Doctors have no idea why I got the clots. Genetic testing
was negative, so they plan to take me off Eliquis and run Protein
C & S + Lupus anticoagulant blood tests.

My question is does anybody else have symptoms after being told
their clots are completely gone?

Thanks in Advance

4 replies...

May Thurners Syndrome 32 weeks pregnant
Posted by Veronica
Last Reply February 13, 2017 at 22:28
Started February 13, 2017 at 22:28
I was just diagnosed with May Thurners Syndrome and I am 30 years old. I was 32
weeks pregnant walking 6 miles a day as well as doing Pure Barre. I went to the
hospital because my upper thigh was swollen and discolored. They did MRI and
ultra sound. They said it was nothing and to keep moving. Overnight my leg
tripled in size. I went to Emergency next morning. They did another ultrasound
and found the blood clot. They did thrombocytopenia while I was pregnant and
cleared 300cc of clot. The next day my leg ached they did another ultrasound and
the clot was back. They put a filter in and induced me. I gave birth to healthy baby
but she had to stay in nicu for a few weeks. After I delivered I had to wait 5 days
to get my leg worked on in icu. They did tpa drip, balloons and finally put 4 stents
in. It's been 2 weeks post surgery. My leg is still swollen but not as bad and
tingles at my foot. I can't walk long until it starts to cramp. Do you know what the
recove... read more

0 replies...

The Forgotten Aftermath
Posted by Bill
Last Reply February 13, 2017 at 20:22
Started April 3, 2011 at 21:56
I was diagnosed with an intensive proximal dvt from ankle to groin two months
ago and was duly prescribed warfarin for 6 months and was intriguingly
advised that my leg would not be rescanned at completion. My research has
since revealed that from the medical standpoint a rescan is a waste of their
time as there is practically nothing they can do if the clot remains unresolved
or there is evidence of veinous damage that is apparently very likely to result
in the cases of proximal dvt. We are then left with untreatable chronic Post
Thrombostic Syndrome. This explains why doctors and nurses are so often
vague about the prognosis questions we ask at the outset.

16 replies...

Who do I listen to?
Posted by Radboy
Last Reply February 13, 2017 at 19:10
Started February 13, 2017 at 19:10
DVT/PE sufferer. No direct cause was ever found. Based on CT scan
and ultrasound test, hematologist says after 3 months the clots
are gone. I can go off blood thinners and start on aspirin. My
cardiologist/vascular dude says stay on thinners for 6 months
since the cause is still unknown.

My question is who do I trust? I tend to believe the cardiologist
since I still have un-explained symptoms.

Any ideas???

0 replies...

Stopping Warfarin
Posted by Greg B
Last Reply February 12, 2017 at 21:42
Started February 12, 2017 at 21:42
When I started I had Shortness of breath but it went away after a
number of day. When tried to stop I had the same shortness of
breath. It worried me so I went back to my normal dose and breathing
went back to normal.

My question is if you experience on of the below issues how long did
it take to go away.
From what I can tell everyone has a different experience when they
stop taking warfarin. Some people don't experience anything other
have one or more of the following:
Servere chest pains
Short of breath
hair loss
Servere rash
pain in both legs
servere dizziness (like hes under water and going to faint)
always tired
pressure headaches
ears popping
cloudiness in the head
numbness in hands and lips
pain in both feet
feeling drained all of the time

0 replies...

Posted by SHAWNEE
Last Reply February 10, 2017 at 22:36
Started April 17, 2008
I am 30 yr old female, weight is 135,don't smoke and don't drink. My left legs hurts really bad. Started numbness and tingling in butt from sitting on chair at computer. Then pain was in the crease of bottom of left butt cheak. As time went on the pain went further down. It hurts now to sit on my butt on the chair and pain, tingling and soreness goes down my whole left leg now. Been happening for about 4days now. When i stretch out my calf it feels like the muscle been stretched too far already. I have not gotten hurt or did any thing to hurt my leg.
Sometimes i get sharp pains in my leg. There is no swelling,reddness or skin that feels hot. Although sometimes it feels warm on the inside. It hurts to push on certain areas on the back of my thigh and down. Skin feels very sensitive to touch. Like having the flu.
I was diagnosed w/3 leaky heart valves and i am taking propranolol for high heart racing. I was soooo scared that i had a blood clot in the leg that i rushed to the ER and ... read more

91 replies...

Compression Stocking Questions
Posted by Trevor
Last Reply February 7, 2017 at 22:58
Started October 10, 2009 at 21:35
After 2 DVTs and a recent change in my INR I have progressed to thigh high compression stockings on both legs. My INR went fron 2.8 -3.0 to a 1.5 then on follow up test 1.2 back to base line. No diet change just change in activity level. increase in movement. Have had me on Lovinox injection to bridge the gap until INR gets stabilized. Went from 5 mg to 7.5 daily of Wasfarin. Now getting rechecked in about 5 days. Have minor swelling in left leg no pain or DVT and moderate swelling in R leg Post DVT with discoloration. Told venious insuffiency. How long do they keep you in compression stockings. Being an active person, or try to be how can I make these things a little more comfortable. Told to put on before I get outta bed in the morning and take off last thing at night when possible, I have 20-30 comp with the silcone band at the thigh. For now i can deal with the silicone but the hair pulling drives me nuts. Do I have any choices besides the obvious one. I hope the lad... read more

14 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply February 7, 2017 at 18:09
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.


50 replies...

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