DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4665) - Page 1 of 234
Posted by Rosie
Last Reply April 28, 2017
Started October 3, 2011 at 20:48
I was diagnosed with a DVT last year in my upper leg, i came off
wolverin about 6 months ago and one leg is still visibly bigger than the
other one. Will it take time to go back to normal or will it forever be
this way? Also if I lose weight will it still be the same size?

2 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply April 27, 2017 at 23:57
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

93 replies...

foods to avoid
Posted by laura vincent
Last Reply April 27, 2017
Started November 8, 2006 at 19:44
My brother has dvt in right calf. They can't seem to get his levels to anything higher than 1.9. He's been in the hospital for 15 days (46 yrs. old - healthy, dvt caused by trauma - he fell of his bike and bumped his leg). Part of diet in the hospital includes fruit. Should he be avoiding fruit? He said he has been told to avoid green leafy vegetables but that's all. Any info would be appreciated.
Thanks so much.

67 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply April 27, 2017
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

108 replies...

Worried about new DVT
Posted by Gemma
Last Reply April 26, 2017 at 15:05
Started September 2, 2012 at 13:55
Hey everyone, I'm hoping you guys on here can give me a big of reassurance, I'm
a 23 year old female who has been diagnosed with a DVT and superficial
thrombosis about a month ago. I was On Heparin injections twice a day a 7mg of
Coumadin. My first inr was 1.7 My INR stabilized at 2.3 for one INR test so was
taken of Heparin, but since my INR has varied between 1.7 and 2, I'm now on
10mg of Coumadin and am yet to see a stable result. Im follwing everytging the
doctors told me about my diet and Vitamin K My first question is, how long
should it take to be stabilized? Secondly should I be put back on Heparin since
my results aren't staying in the therapeutic range? my last question is, since
being on Coumadin I have develope a pain in my right leg the same as the pain I
got with the DVT in my left leg, could I have developed another blood clot while
taking the medication?
Thanks, I hope someone can help me out, I don't really understand what my dr
tells me.

5 replies...

how soon can I fly after a dvt
Posted by marie hall
Last Reply April 26, 2017 at 07:28
Started April 4, 2006 at 15:57
I am taking doxium 500mg 2 a day and 1 aspirin a day, have been on clexane injections for 8 days 2 to go and I have finished

thankinf you in advance

76 replies...

Skydiving on Warfarin
Posted by Janine
Last Reply April 24, 2017 at 13:03
Started August 19, 2008 at 17:17
My boyfriend recently bought me a tandem sky diving adverture for my birthday and wants me to go at the end of Sept.

Even though this petrifies me, I was wondering if it is actually safe for me to do this whilst I am on warfarin?

30 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply April 24, 2017 at 11:41
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

144 replies...

WHERE ARE WE FROM (New thread Nov 28-08)
Posted by Diane
Last Reply April 24, 2017 at 02:41
Started November 28, 2008 at 18:11
Here is my latest attempt to remove the corruption from this thread. Anyone who added on after #100 will have to redo their name at the bottom of the list. Sorry, but the spammers seem to have control here.

1.) Diane, Victoria, BC, Canada (ME) May-Thurner Syndrome
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA (DVT, PCD, May-Thurner)
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorks UK prothrombin 20210 mutation
10.) Crystal, Baton Rouge, Louisiana, USA, May-Thurner
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA (Factor V Leiden & Antiphospholipid Syndrome)
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada (Idiopathic DVT
17.) Pamela, Milton Keynes, UK
18.) Cate, Surrey, En... read more

30 replies...

going off blood thinners for surgery
Posted by Steve
Last Reply April 22, 2017 at 12:22
Started April 19, 2017 at 16:54
What precautions should you take?

2 replies...

is there any spl diet for DVT patients?
Posted by bharati
Last Reply April 22, 2017 at 08:46
Started February 3, 2009 at 04:05
pls suggest me the proper diet. which vegetables i should avoid n fruits also. totally confusing and dont know what to take not to take my doctor told do not eat cauliflower n cabbage. like this any particular diet is there for dvt patients i have clot in my thighs. in treatment since one month. me at home only. pls friends if someone knows about the diet n do's n donts also for keeping me in safer side.
thanks in advance

16 replies...

Pain relief for d.v.t.
Posted by Marika
Last Reply April 22, 2017 at 04:13
Started April 15, 2008 at 23:53
My husband (68) has had a d.v.t. in his calf for 1 week. He is in agony if he does anything other than sitting with his leg elevated. He is taking Tramacet (Tramadol + paracetamol) but to be honest it only helps for a relatively short while. Is there anything else which might be more effective? And - will the pain lessen when his INR reaches the right level, or is it determined by something else? Please help...

55 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply April 22, 2017 at 03:30
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

539 replies...

I need to know.
Posted by Jaz
Last Reply April 21, 2017 at 16:00
Started April 21, 2017 at 16:00
Okay, last year I took a trip cross country, and when I got back I
developed DVT in my legs and PE in my lungs. After six months of
warfarin apparently I developed swelling in my legs, and as of a week
and a half ago I'm experiencing pain when I stand or walk. I have
compression socks, but the pain is still there. I'm wondering if I
have venous insufficiency. I was told I might have VI but they're not
sure. I'm not sure. I'm so lost right now. I never knew that my DVT
would cause me long-term damage.

0 replies...

Lovenox and fatigue?
Posted by zara
Last Reply April 21, 2017 at 15:57
Started January 11, 2007 at 23:53
I am wondering if others have found fatigue to be a side effect of Lovenox injections? This is my third time doing the Lovenox injections but the other times I stopped at 10 doses/shots. This time I am on about my 14th shot of a 20-shot course and I am SO TIRED. It's not like a sleepy, not enough rest tired, I just want to lie down all the time, almost like having a mild case of the flu. I was wondering if others have experienced this.

31 replies...

Very high D Dimer but not clot
Posted by Gracie
Last Reply April 21, 2017 at 13:51
Started April 18, 2017 at 19:42
Last Tuesday my ankle started to bother me, didn't think much of it but the next day the front of my leg ( shin area ) was hot and red and hurt to touch it. A neighbor passed away 2 weeks ago from a blood clot in her lung, so of course I freaked out and went to the ER...they did a d dimer that was over 5,000 normal is 250. They did a ultrasound of my leg and no clot. Just came back from the follow up with my family Dr. and he's sending me to a blood Dr. Now I'm scared out of my mind that I have some terrible illness. Anyone else have a high d dimer with no clot and everything turned out okay?

2 replies...

Posted by DANIELLE
Last Reply April 21, 2017 at 10:28
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

380 replies...

Posted by Adhikari Shailesh
Last Reply April 21, 2017 at 05:07
Started September 5, 2016 at 02:30
I have suffer from DVT about 1/2 month ago.At that time my inr was 1.1 but now my inr is 2.9 . I was using 5mg warfari so now my doctor reduce the dose from 5mg to 4mg.Can i am able to play football when my inr will be 2.5 . plz help me i cant live without football

3 replies...

How does Lumivol Serum work?
Posted by lumivol
Last Reply April 21, 2017 at 01:07
Started April 21, 2017 at 01:07
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0 replies...

How long have you been on Warfarin?
Posted by Tina
Last Reply April 20, 2017 at 20:18
Started May 18, 2010 at 21:00
Hi, I have just found this forum, can't believe I've not seen it before!

Anyway, I have just replied to another post and it occurred to me, who
has been on Warfarin the longest? I have been on it for 16 years, has
anyone else been on it this length of time?

I have recently been starting to worry about the long term side effects
but my doctor just says it's the side effects of not taking it that I
should be worried about ie getting another clot :-(

28 replies...

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