DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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stopping warfarin
Posted by suzanne
Last Reply July 21, 2017 at 12:14
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

162 replies...

Did Your Doctor Warn You About These?
Posted by Ed Barker
Last Reply July 21, 2017 at 12:10
Started July 8, 2017 at 04:47
I'm doing some research.

Could you help me out with two questions,
please?

I'd be very interested to know how many
members of this forum

(1) are on warfarin

(2) were first told by their doctor about the
deadly side effects of warfarin.

Just type "me, yes" or "me, no" below.

Thanks! :)

2 replies...

contraception after dvt
Posted by wendy
Last Reply July 17, 2017 at 21:38
Started July 3, 2007 at 16:00
Hi,I've had advt in my lower calf for 6 months now and am on warferin. I knew that i shouldnt be on birth control pills but was shocked when my doctor told me today that my main options were having my tubes tied or my husband having a vacectomy. We are currently using condoms and not happy to continue with these for ever. Does anyone know of any other safe methods of contraception as im only 34 and too young for sterilization.

50 replies...

Blood clot in pelvis
Posted by Wiffle
Last Reply July 16, 2017 at 22:19
Started January 11, 2011 at 03:20
Has anyone had this?? I have a clot in the illiac vein extending into the vena cava discovered via CT scan for an unrelated issue a few weeks ago. I was on lovenox shots and now just warfarin. I'm going to a hematologist in a couple weeks but so far all the doctors I've talked to rarely heard of this?? It would be nice to know I'm not the only one with this :( I also have factor v leiden, heterogygeous. (I just had a baby 6 weeks ago so the ER doctor said this was most likely the cause of the clot)
Also, last night and today I started having pain in my left abdomen/ hip area. Has anyone had this? It's very bothersome and I am using a heating pad all day today. I talked with a nurse who thought it could be residual from the clot healing but who knows??
Trying to get out of this "woe-is-me" attitude...

31 replies...

Unprovoked occlusive DVT in 8 year okd
Posted by Mia's mom
Last Reply July 16, 2017 at 20:09
Started June 24, 2017 at 16:09
Hello, I am looking to share my daughter's story in hopes of conversing with
someone that has experienced it. I have a very active, healthy 8 year old daughter
that presented with a swollen leg from hip to foot. After some persistence she has
been diagnosed with DVT in her left femoral vein. The vein is occluded by the
clot. She has no risk factors, no family history, did not travel, no surgery or
catheter, etc. She is a competitive gymnast that trains 12 hours a week and is
very active and fit. She has been put on enoxaparin injections for 3 months while
they do the work up to research if she has a disorder. It has been expressed to us
by every single nurse, paediatrician, specialist and haematologist that they have
never seen an unprovoked clot in someone this young and healthy. Has anyone
else found themself in this situation? What was your outcome?

1 replies...

new blood clots on Eliquis
Posted by Jay
Last Reply July 15, 2017 at 23:57
Started July 10, 2017 at 17:17
Can you form new blood clots while taking Eliquis?

1 replies...

Push up
Posted by Robison Katyer
Last Reply July 13, 2017 at 06:19
Started July 13, 2017 at 06:19
How do you do push up

0 replies...

May -Thurner Syndrome surgery
Posted by Ann M Kennedy
Last Reply July 12, 2017 at 11:20
Started July 12, 2017 at 11:20
I am a 59 year old woman that was diagnosed with May-Thurner. I had surgery to fix
this situation and had 2 stints place in the Iliac artery back in May 2016. In October I
developed a DVT in my right leg. The P.A. told me that the reason I developed a DVT in
the right leg was because they should of put me on anticoagulant instead of an aspirin
a day after this surgery. The doctor admitted that too to my husband and I in a visit to
his office. They are now walking that back and sying that they followed correct proticol
for this post surgery. I am sure he did, but I am a patient that has had a DVT and
pulmonary embolism before---I do not think that was factored in with his post medical
care after this surgery....anyone else have this happen to them ?

0 replies...

exercises
Posted by Jose Hansen
Last Reply July 12, 2017 at 06:12
Started July 12, 2017 at 06:12
How about starting the day with exercises?

0 replies...

DVT Caused MY Above Knee Amputation
Posted by Freddy
Last Reply July 11, 2017 at 18:43
Started August 30, 2010 at 03:30
On September 21, 1979 while sitting at home watching The Roper's on TV I got this pulled groin feeling in my left leg when I got up to get a beer. I was alone at the time. It did not seem like a big deal at first then about 10 minutes later I noticed my jeans getting tighter.

I went upstairs to change them when I noticed my swollen and blue/purple thigh as my toes began to lose feeling. I made it back downstairs to the phone and called an EMT friend of my father. When he saw the leg his eyes almost bulged out of their sockets. He simply said what hospital do you want to go to?

It took about 30 minutes to get to the UMASS Medical Center. By this time I could not feel anything below my knee. The doctors in the ER were residents and interns who asked the same set of stupid questions.
Finally, one asked me what I thought was wrong and I said, "I have blood clot in my leg." Their response was, "twenty-four year-olds do not have blood clots." Brilliant!

By this time the pain was... read more

5 replies...

What's worked with my DVT PAIN
Posted by Fobiazero
Last Reply July 10, 2017 at 22:56
Started July 10, 2017 at 01:09
Hello All,

I was recently diagnosed with DVT in my right calf 2 weeks ago following my ACL
Orthoscopic Surgery. I am a 35 yrs old male from Los Angeles. I have done a lot
of research on DVT and VET since being diagnosed. I am glad these forums exist
to at the very least, provide some peace of mind and offer some sort of hope to
over anxious individuals like myself.

DVT pain is definitely one of the worst and most debilitating pain I have ever felt
in my life. Days after I went home from Surgery (Outpatient Procedure) I noticed
something was not right. I was feeling a heavy aching pain isolated in the back of
my right calf (same leg that was operated on) and not so much the knee area. My
foot was red colored as if blood was not quite circulating to it. My calf area
seemed to be swollen and definelty tender to the touch. Anyway, after doing some
research on-line I realized I was experiencing DVT symptoms. So I called my
surgeon's office and they had me... read more

4 replies...

Garlic prevents blood clots
Posted by Bob Anderson
Last Reply July 10, 2017 at 15:31
Started July 1, 2011 at 20:36
Garlic is a natural treatment that is very effective, inexpensive and has no real unpleasant side effects. Garlic is probably the best of all foods at inhibiting platelet aggregation; that is, preventing blood clots from forming.

People who eat garlic every day develop a natural ability to inhibit the formation of blood clots as long as the garlic is in their systems. When they quit eating the garlic, it takes a few days for the effects to wear off and then the blood clots normally again.

If one is taking Warfarin or any other anticoagulant, it is wise to inform your doctor you are eating garlic, especially if you eat a lot of garlic and that your prescription may need to be adjusted downward some to compensate. Your doctor can do a prothrombin time (INR) test to adjust your prescription. Same thing if you are taking garlic pills. Most doctors don't really understand how garlic works because herbal medicine is not taught in med school.

Garlic is not approved by the FDA for... read more

19 replies...

Iliac vein stents
Posted by Rachel
Last Reply July 10, 2017 at 14:27
Started June 30, 2009 at 18:02
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?


31 replies...

Subacute DVT advice
Posted by bog
Last Reply July 8, 2017 at 14:57
Started July 8, 2017 at 14:57
Hi I was diagnosed with a subacute DVT in the peroneal vein (calf) 2 days ago.
They sent me home with a Xarelto prescription and told me to put on
compression socks. However, I am in so much pain I can't even elevate the leg
properly because the pillows put pressure on the calf, much less get the socks
on.
Currently taking an acetaminofen/codeine (325mg/30mg) combo tablet every
4h and as long as I don't move, I'm fine. But if I dare to get out of bed the pain
is unbearable even with the pain meds. Any advice on pain management or
sleeping positions would be appreciated. Preferably nothing too strenuous on
the hip since I had hip surgery a few weeks ago.

0 replies...

Clexane 40 mg long term??
Posted by Jonathan C
Last Reply July 8, 2017
Started July 8, 2017
Hello everyone,

I am nearing my one year anniversary since i had bilateral PEs i am 32 year old
male and after extensive blood testing doctors could not find the cause. I have 3
kids that i would love to see them grow old.. in the hospital i was put on clexane
60 mg for 3 days then started on xarelto.. after 6 days had trouble moving my legs
which doctor said was a very very rare side effect.. so i was put on clexane 60 mg
every 12 hours.. im nearing my year after my PE and doc said 40 mg clexane once
a day for prevention.. could be indefinite .. has anyone been in this situation?? is
Arixtra better than clexane?

TY !!1

Jon

0 replies...

xarelto and hair loss
Posted by Jessie
Last Reply July 7, 2017 at 14:42
Started October 17, 2014 at 05:08
I suffered bilateral pe's shortly after
the induction of anesthesia for a gall
bladder surgery. I was started on
coumadin in the hospital. The drs wanted
to switch me to Xarelto, selling it as a
wonder drug.

Since taking it, I've experienced terrible
hair loss. (I was at work the other day,
took out my pony tail and ran my fingers
through my hair. I threw away the
resulting clump. My friend came over to
talk, saw the hair and wanted to know why
I cut my hair at work).

Has anyone else had this issue? After a
discussion with my drs, we're switching
blood thinners. I hope the hair loss
improves.

35 replies...

foods to avoid
Posted by laura vincent
Last Reply July 6, 2017 at 02:19
Started November 8, 2006 at 19:44
My brother has dvt in right calf. They can't seem to get his levels to anything higher than 1.9. He's been in the hospital for 15 days (46 yrs. old - healthy, dvt caused by trauma - he fell of his bike and bumped his leg). Part of diet in the hospital includes fruit. Should he be avoiding fruit? He said he has been told to avoid green leafy vegetables but that's all. Any info would be appreciated.
Thanks so much.

67 replies...

Weight gain on Warfarin
Posted by Teresa Blackman
Last Reply July 5, 2017 at 07:00
Started January 14, 2007 at 17:12
Hi All'
My husband was diagnosed with a DVT in August. He is taking warfarin, however he has found that he has gained a stone and a half in weight. Has anyone else experienced this?

94 replies...

Anyone else taking Xarelto?
Posted by Ken
Last Reply July 5, 2017 at 06:53
Started June 6, 2012 at 09:38
Dear All
Basically, two months ago, I had a knee operation and ended up with a DVT from ankle to my thigh in my same leg as the knee operation
I have been put on the new drug Xarelto which my Vascular Specialist (referred to him after surgeon detected DVT a fewdaysafter the Operation) says it cuts out the need to monitor blood level continously etc. and is a much improved medication for DVT
Does anyone else take this drug? Your experiences would be most appreciated
For sure it will not help the pain, as it is still awful when standing and even sitting in office etc.
I wear full length stockings, still have a swollen leg and what look like fluid allaround my knee surgery area, which the surgeon says he might drain, but I am reluctant to let him near me again!
I assume from the sit I have perhaps years of pain to come
Feedback welcomed
PS I go to gym, do not smoke and al the rest, but have to fly long haul twice a month - frightended to death I have to say also

269 replies...

INR + Alcohol
Posted by Michelle
Last Reply July 5, 2017 at 03:48
Started July 4, 2009 at 08:46
Hey there--

Let me put it out there that I am not a big drinker, usually when I drink, it's socially, and maybe have a couple of glasses of wine a month...but it's sporadic...and not at all consistent which is what seems to be necessary to maintain a stable INR.

I am down to getting blood draws every 2 weeks and don't have my next draw until July 13th. Last time I went it was low at 1.7 (June 18)

I was told to limit my alcohol consumption to 1-2 glasses a night...I feel like that's a lot!

Anyways, tonight I had about three glasses of wine, not MONDO sized but still, three.

It was probably a poor decision, and now I am nervous about it!!

I just an not really sure yet how quickly things can affect Coumadin. My dose just got up'ed, and I accidentally switched a full dose day with a half dose, which means I've taken 3 full doses (5 mg each) in hour days. (It used to be that I only took this full doses on Monday and Friday)

Anyways. Kind of nervous about it.

I ... read more

12 replies...

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