DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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0 replies...

ACL Injury Causes Clot
Posted by Scott
Last Reply August 28, 2016 at 06:36
Started February 13, 2009 at 21:06
I am 17 years old and I got a blood clot after I tore my ACL playing basketball. The clot that ranges from my calf to my groin has put my surgery on hold for 4 months. I am still waiting to get another ultra sound to see if the clot is still there, however, I still feel pain from time to time in my thigh. Has anyone else had this similar occurrence after a serious injury? Also, is the pain I am feeling due to the blood clot? This whole series of events has really been a downer on my life and I have lost a whole year of my life due to this. I cannot do the one thing I love which is playing basketball. :(
Has anyone else had a similar experience or any words that can help me cope with this?

24 replies...

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0 replies...

Xarelto and nightmares
Posted by Jane C
Last Reply August 25, 2016 at 17:12
Started January 4, 2014 at 16:36
I have been on Xarelto for 3 months and every time I wake up in a panic after a terrible
dream. The nightmares started the night I started taken the tablet (day 3 in hospital) and
have happened every day since. I am not on any other medication and when I mentioned it
to my Dr said it's not listed on the "side effect list." Has anyone else had side effect?

19 replies...

side effects of warfarin
Posted by Shaz uk
Last Reply August 25, 2016 at 08:55
Started May 26, 2008 at 23:55
Hi everyone. I have been on warfarin for about 10 days now after 3 long months of fragmin injections for an extensive dvt running from groin to ankle in both legs. I have read about the side effects of warfarin on many sites but they only seem to list pretty major effects and what i am wondering is what are peoples personal experience with side effects if any from warfarin. I am asking this as since i started taking this (my INR is 3.1 by the way) i have been pretty tired and grumpy with more aches in my legs and just generally lethargic, could this be down to warfarin or just a coincidence? All replies will be appreciated. thanks.

535 replies...

Dvt worries.
Posted by James
Last Reply August 24, 2016 at 23:03
Started August 24, 2016 at 23:03
So, for about the past six months or so, off and on, I've been getting
these pains in my leg,I get a sharp pain right behind my knee close to
the inside of the leg. I get a throbbed pain by the groin, and a burning
achy pain on the inside of the calf. Over the course of six months,
really spread out, I've had 3 ultrasounds, all normal, and a d dimer,
also normal. I have NEVER injured this leg, I'm fairly lazy so it isn't
exercise related. Anyways, did about the past week, the pain has been
building in this leg, to the point where today, the whole lower leg has
a very intense ache. I made a trip to the emergency room, the triage
doctor, poked and prodded the leg a bit, then stated that he didn't
want to do any tests because he didn't think it was anything dangerous.
Then he offered me some ibuprofen and told me i could leave.So I'm
terribly worried that it is dvt and is just being missed. Any advice
would be greatly appreciated. The leg has also had a ... read more

0 replies...

First Rib Resection Experiences Please
Posted by Becks
Last Reply August 24, 2016 at 15:38
Started August 16, 2012 at 08:35
Hello,

I am a 26 year old active and otherwise fit and healthy female that was admitted to
hospital in January with a very swollen right arm (there was a 4cm diameter difference
from the left arm), it was a distinct purple/grey colour and all of the veins that were
hidden deeper under the skin were visible and the normally visible green veins were
almost protruding.

Turns out I had a 20cm clot running through my shoulder and down my arm in the
subclavian vein. I had surgery straight away to dissolve then vacuum out the clot with
good results. The specialists all tried to put the cause down to being on the pill even
through I had been on it for 10 years, it wasn't until after a venogram that showed my
vein was compressed in my thoracic outlet by the collar bone and first rib that we knew
I had a mechanical issue.

I was on warfarin for 6 months, have now been off it for 2 weeks. The problem is that I
am constantly experiencing a dull ache generally along... read more

17 replies...

Vascular surgery to remove hardened blood clot
Posted by Jim
Last Reply August 24, 2016 at 14:20
Started May 9, 2012 at 20:47
I have DVT in the left leg, was given Warfarin as my only treatment. Three months later, I was discharged by a vascular surgeon, told to wear a sock and "handle it." WEll, I am not going to "handle it."

I will now get a second opinion and will not back down until I find a vascular doctor and an interventional radiologist to remove the hardened clots in my leg.

Could anyone share their success stories regarding surgery to remove hardened blood clots?

62 replies...

tattoo's on warfarin!
Posted by chir jones
Last Reply August 24, 2016 at 09:21
Started June 7, 2008 at 09:29
Morning all,,

Just a wee question for you all.

Has anyone actually been tatto'ed whilst on warfarin therapy?

I was wondering aboutgetting one and wondered what the stats were for post tattoo bleeding etc.

Be safe you lot..

Chris in Bonnie Scotland.

105 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply August 23, 2016 at 16:28
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

139 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply August 23, 2016 at 12:26
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

61 replies...

Long standing calf pain
Posted by Vicky 47
Last Reply August 23, 2016 at 10:45
Started August 20, 2016 at 11:44
I started having calf pain last March, negative d dimer. Despite
numerous GP visits he would not refer me for ultrasound so I paid to see
a vascular surgeon who said I had thrombophlebitis and it would resolve.
He did a quick ultrasound while I was standing. That was mid April.
Slight improvement but saw NHS vascular surgeon in early June. He did
more thorough ultrasound and said no dvt. Inbthe meantime, due to a mix
up I got another NHS appointment for end July. Pain still there but not
as bad. So I went anyway. I think he was a bit peeved as I'd already
been cleared of dvt a month before but I had an ultrasound anyway, it
was clear and he more or less said don't come back!
Well now the pain in my calf is horrendous, I can hardly walk, there is
slight reddening and a large surface vein visible. It hurts all the time
-sitting, standing, walking, lying. Not realy swollen but my whole leg
feels warm inside, I'm very tired as well. Is it. Really possible that ... read more

3 replies...

stopping warfarin
Posted by suzanne
Last Reply August 23, 2016 at 09:09
Started October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?

154 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply August 23, 2016 at 04:54
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

358 replies...

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Last Reply August 22, 2016 at 05:57
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0 replies...

DVT and symtoms dizzy, out of breath
Posted by Wes
Last Reply August 21, 2016 at 15:16
Started September 12, 2006 at 10:17
Hi, I am looking for any information about having symtoms like being dizzy, out of breath, chest and arm pains.
If I do a minemum of work such as bending down and getting up I will be totally winded within 1 -2 min. I can be rested go up two flights of stairs I breath heavy and my legs feel like lead weights. I have had my heart checked wiht stress test, blood work and a angiogram.(I think thats what its called when the run the camera up your leg to the heart, and that was good. I had my DVT to my leg 2 years this Thanksgiving. The pain never left. They did not disolve it, just left it do what ever. If anyone has or knows anyone with this sort of symtoms and being related with DVT I would very much appreciate it. Thanks

21 replies...

May-Thurner's Syndrome
Posted by Jill
Last Reply August 19, 2016 at 19:06
Started December 28, 2007 at 20:30
Hi all,
I was wondering if anyone here has had experience with May-Thurner's Syndrome? I was diagnosed last month as they're still trying to determine the cause of my DVT 6 months ago (I'm still not running or doing stairs to any extent, though most other things are back to normal). I was told about a possible procedure that has been done in about 1000 patients involving putting a stent in the veins (for me, from my belly button to my knee) that May-Thurner's affects. Has anyone here undergone this (or a similar) surgery and can you give me the basics of your procedure/recovery?
Thanks so much!
Happy holidays all!

219 replies...

anyone heard of the new drug pradaxa??
Posted by sara
Last Reply August 19, 2016 at 02:51
Started April 8, 2010 at 12:43
been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it??
thanx. x

239 replies...

I gotta rip in my hose!
Posted by Brittany
Last Reply August 19, 2016 at 01:29
Started July 22, 2009 at 04:34
ARG!

I had my hose all of three weeks before I tore a nice hole in the knee of one of them. Thanks to an anklet.

Has anyone experienced this? What did you do to fix it? Anything? I soooo don't want to buy another pair for $100! I am using the other stocking right now...but...wanted to wear these for a while and am already down to one! Oops!

Have you fixed it yourself? I was thinking of trying that elastic thread...Or have you taken it in? Or just thrown it away?

Thanks!!

Abrazos.

5 replies...

Trading Warfarin for natural anticoagulants?
Posted by Ken
Last Reply August 18, 2016 at 20:06
Started June 27, 2011 at 14:11
Has anyone here had the courage to substitute their Warfarin prescription with fish oil or nattokinase, or any other natural blood anticoagulants with success? The only way to see if you don't get another blood clot is to actually quit taking the Warfarin and start on the natural thinners. And I suppose that if your calf starts to swell or hurt you can have 5 days worth of Lovenox immediately available by your side for your rescue. My hemotologist says "that's like playing Russian Roulette". I've tried going off Warfarin once albeit with no change in lifestyle and no blood thinners and I got a new blood clot in about 10 days. My calf started to swell and hurt, but I noticed it right away, verified it with the Ultrasound and immediately went to Lovenox and Warfarin. Now I'm thinking about quitting the Warfarin again, this time with lifestyle changes (more exercise and moving) and natural blood thinners. It didn't seem particulary risky last time I quit taking the Warfarin. Doe... read more

29 replies...

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