DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Garlic prevents blood clots
Posted by Bob Anderson
Last Reply August 17, 2017 at 09:38
Started July 1, 2011 at 20:36
Garlic is a natural treatment that is very effective, inexpensive and has no real unpleasant side effects. Garlic is probably the best of all foods at inhibiting platelet aggregation; that is, preventing blood clots from forming.

People who eat garlic every day develop a natural ability to inhibit the formation of blood clots as long as the garlic is in their systems. When they quit eating the garlic, it takes a few days for the effects to wear off and then the blood clots normally again.

If one is taking Warfarin or any other anticoagulant, it is wise to inform your doctor you are eating garlic, especially if you eat a lot of garlic and that your prescription may need to be adjusted downward some to compensate. Your doctor can do a prothrombin time (INR) test to adjust your prescription. Same thing if you are taking garlic pills. Most doctors don't really understand how garlic works because herbal medicine is not taught in med school.

Garlic is not approved by the FDA for... read more

20 replies...

ultra sound test would it show blood clot?
Posted by bev
Last Reply August 17, 2017 at 02:33
Started January 23, 2010 at 13:49
Plz help at my wits end had severe calf pain for 3 weeks now had an ultra sound 10 days ago and came bk negative no clot. Should i b reassured by this?

47 replies...

work accommodations w/DVT
Posted by JK
Last Reply August 16, 2017 at 19:43
Started August 14, 2017 at 16:39
Hi all,

I am new to this forum. I was diagnosed with DVT in May. (It
developed either right after I injured my knee or after the
resulting knee surgery.) After 3 months on Xarelto, the latest
ultrasound has revealed no change. I see a hematologist and am in
the process of scheduling with a vascular specialist, as I am only
in my mid 30's and find it difficult to accept the prognosis of
blood thinners for life!

Anyway, I am an elementary school teacher preparing to return to
the classroom in just a few weeks. I plan on asking my doctor for
a note to excuse sneakers and to allow for time to sit and rest
throughout the day, both due to continued issues with swelling.
(Some administrators NEVER want to see an elementary teacher in
their chair!) I am wondering if I should also request air
conditioning, since my classroom reaches 80-95 degrees on hot days
and tends to get really humid, too.

Does anyone have advice or experience regarding requesting
acc... read more

1 replies...

Does exercise increase inr?
Posted by Kerri
Last Reply August 15, 2017 at 08:33
Started March 3, 2011 at 06:11
I have finally started exercising again but now my inr has shot up from 1.9 to
3.7. Could this be from the exercise?? Nothing else has changed??? Thanks :)

17 replies...

Increased heart rate on Xarelto
Posted by DeeDee
Last Reply August 15, 2017 at 06:42
Started May 11, 2014 at 08:22
Need some advice please cause now getting a bit scared. Was
diagnosed with PE March of this and have been put on Xaŗelto
for treatment. The problem I'm having is my racing heart beat.
I can't even walk up the stairs without being out of breath
and my heart thumping and feeling like it wants to come out my
chest. Before my PE i was very active but now I do nothing in
fear of having a heart attack. My last visit to my DVT clinic
I told them how I was feeling and was told it was nothing to
worry about but now I'm scared my hearts gonna stop. Has
anybody else had this experience. I just want to get back to
some form of normality as possible. At present I'm om 20mgs of
Xarelto a day and be up till about June this year but don't
know i can take these meds for that long and even more so if I
have to take them for longer.

Many thanks

5 replies...

3 mos. Xarelto enough?
Posted by Island_time
Last Reply August 14, 2017 at 16:56
Started May 21, 2016 at 07:59
I'm 56 and had surgery to remove my
prostate in Nov. 2014. In December,
complications from the surgery landed
me back in the hospital for a week. I
was unable to move around much and
developed a clot from left calf to
behind the left knee. I was put on
Xerelto in mid - December. In mid
March my PCP took me off of Xarelto
saying 3 mos. Was long enough. I
wasn't convinced so I got a second
opinion from a vascular surgeon. He
said 6 mos. minimum. So I got back on
the Xerelto...(I was off of it for 4
weeks). I took it until mid May when I
had to come off it again for another
proceedure last week. The specialist
told me to quit the Xerelto 5 days
prior to the proceedure then resume
again "after few days afterwards".
Well...I'm "after few days afterward"
now and I can't decide whether to go
back on it (per the specialist
recommendation) or to just stay off of
it (per my PCP's opinion).

So I was on it 3 mos. Off it 1 month. ... read more

1 replies...

Dvt in thigb and Zarelto
Posted by Aleta Riley
Last Reply August 13, 2017 at 15:46
Started August 13, 2017 at 15:46
Hi all three weeks ago I was very sick with
upper respiratory infection and couldn't get
out of bed for about two weeks after that I
developed a DVT in my calf the first
hospital ER did not find it two days later
the next ER hospital I went to found it in
my thigh my er doctor gave me zarelto to
take 15 mg twice a day for 3 weeks and then
drop down to one tablet a day. I have been
seeing so many advertisements about this
drug being so dangerous on TV I am a 58 year
old female with no serious health problems,
but this drug has me really concerned I am
on about nine other medications for
fibromyalgia and was wondering if I should
switch to warfarin but I don't know how it
would do with all my other medications.
Which is better Xarelto or warfarin? This is
got me pretty freaked out any advice is
appreciated. Ty.

0 replies...

Dvt in thigb and Zarelto
Posted by Aleta Riley
Last Reply August 13, 2017 at 15:44
Started August 13, 2017 at 15:44
Hi all three weeks ago I was very sick with upper respiratory infection
and couldn't get out of bed for about two weeks after that I developed a
DVT in my calf the first hospital ER did not find it two days later the
next ER hospital I went to found it in my thigh my er doctor gave me
zarelto to take 15 mg twice a day for 3 weeks and then drop down to one
tablet a day. I have been seeing so many advertisements about this drug
being so dangerous on TV I am a 58 year old female with no serious
health problems, but this drug has me really concerned I am on about
nine other medications for fibromyalgia and was wondering if I should
switch to warfarin but I don't know how it would do with all my other
medications. Which is better Xarelto or warfarin? This is got me pretty
freaked out any advice is appreciated. Ty.

0 replies...

IVC Filter
Posted by Khalid
Last Reply August 13, 2017 at 01:37
Started October 7, 2009 at 11:23
Hi All,

I have been in touch with this forum for more than a year now. I have sufffered 3 DVTs and PE twice, once it was extensive.
I have an IVC filter implanted on 29th March 2008.

I was wondering how many of us who visit this forum wear IVC filters.

I remember some times back one of the visitor had started a topic inviting all those who suffered DVT due APL syndrome.

Generally you don't get to meet people with IVC filter, is it OK to form a list of people who have IVC filter in this post?

If you think its OK, please mention your name, type of filter, when it was implanted and any special comment you want to share.

1.) Khalid - Gunther Tulip Retrievable filter, but now its permanent - 29th March 2008.

20 replies...

warfarin and alcohol
Posted by valerie
Last Reply August 13, 2017
Started June 15, 2007 at 16:52
Hi there,

I am new to warfarin and will be on it for life. I used to enjoy a couple of glasses of wine , and when I socialised with friends maybe a few more! I was told by doctor that I should only have 1 drink anymore as it reacts with warfrin and thins the blood too much. Needless to say I am finding it difficult to come to terms with fact that for rest of my life I will only be able to have 1 drink together. Dont get me wrong, I dont have drink proble, but at times eg parties, weddings, bbqs etc I would have more, and Im wondering what has your experience been with alcohol? How long did it take to get used to non drinking? As I said, I was never a heavy drinker, (except maybe a university!) but I do like to have glasss of wine with meal or sitting out in garden. Do I have to face drink free life??

37 replies...

when to go back to work with a PE?
Posted by peter
Last Reply August 12, 2017 at 18:02
Started September 24, 2008 at 18:06
Hi everyone, I work in the freight business … in the month of august I ve had an accident that occurred while I was unloading trailer’s , something came down on the back of my left knee and , in the meantime I was not doing bad , kept working I just had a few scratches nothing to be alarmed at, but after about a couple of weeks all of a sudden I ran out of breath… in the first place I thought it was a panick attack or something else like high cholesterol so I decided to check with my family doctor , I was told to go at the hospital immediately , get some blood tests, they made me do a Doppler for my leg and found out that I had a blood clot in the back of my knee and sinceI was having shortness of breath a ct scan was done to see if it had moved to the lungs.. the ct scan did reveal that I have several clots in my lungs…I got treated with 2 shots a day and 1 5mg coumadin pill …for a few days then after 6 days they stopped the shots and I resumed with 8mg for 2 days (inr 1,5) , n... read more

12 replies...

back pain from compression stockings
Posted by Louy
Last Reply August 12, 2017 at 15:51
Started November 14, 2014 at 09:11
every time I wear my compression stockings I get sharp pain in my lower back. Has anyone else ever experienced this? Is it coincidence or can the stockings be somehow affecting the nerves in my back?

1 replies...

Does the clot return after treatment?
Posted by Carl
Last Reply August 11, 2017 at 15:31
Started January 4, 2011 at 20:18
I had a dvt extensive to mid thigh and had 6 months on Warfarin. I am very anxious after being off it for a month, I am getting tingling feelings from the start to the end of the supposably cured dvt, which isn't allowed to be re scanned after treatment - we are told that by the GPs that they assume it has gone and there is no need for further tests - so this is making me want to go to A&E to get assurance tests by way of scanning.
I am paranoid that the dvt could re develop in the same place from where it left off and travel upwards towards the groin. So this poses a few questions:
If there is a reoccurence can it be in the same place and follow extensively further from where it stopped?
Can a reoccurence happen this quickly after stopping medication?
How would I know if it is happening and going to my groin or pelvic vein?

Many Thanks in advance!

Carl, Bridlington, UK

13 replies...

DVT vs. muscle/nerve pain
Posted by Lindsay
Last Reply August 10, 2017 at 21:59
Started February 4, 2011 at 04:31
Is there a way to tell the difference between pulled muscle or pinched
nerve pain and DVT (no swelling, no heat)? Is it a different type of
pain? Specific location? Can you tell by palpation?

4 replies...

Pain after removing stockings
Posted by Nate
Last Reply August 10, 2017 at 18:59
Started December 8, 2011 at 23:33
Has anyone had pain in their leg after removing their stockings for the evening? Lately, when I remove my stockings before going to bed, I am having something "moving" around in my foot. It feels like it travels up my leg. I can feel it in my abdomen and then I get stabbing pains in my chest area. This all happens within 10 minutes after taking off the stockings and lying down to sleep. I am worried about the stabbing pains in my chest and wondered if these were "mini clots" moving after the stockings relieved pressure. Can the stockings actually cause blood flow to stop in the foot area?

Any help would be appreciated.

3 replies...

Vein diagnosis and treatment
Posted by Cee
Last Reply August 9, 2017 at 23:37
Started August 9, 2017 at 23:37
Is it true that medical schools teach about doctors everything about
arteries but do not teach everything about veins as a separate but
important?

0 replies...

Warfarin headaches
Posted by Claire
Last Reply August 9, 2017 at 02:43
Started September 15, 2009 at 10:45
This is by far the worst side effect for me, the low grade headaches. Does
anyone take anything for them ? My dr said Tylenol was fine but I only ever take
one, not everyday but occasionally. Someone told me yesterday that it takes
your body a month to get used to the warfarin then the side effects settle down.
I hope so cos I'm almost at that point( on Friday).

106 replies...

Pradaxa and memory loss
Posted by Nye
Last Reply August 8, 2017 at 10:49
Started August 8, 2011 at 20:46
My husband started on Pradaxa six weeks ago after being on Coumadin for years for A-fib. He is experiencing short term memory loss and extreme fatique. Is anyone experiencing these or similar symptoms such as mental fuzziness or slight confusion on this drug? Thanks..

11 replies...

Warfarin destroys your bones!
Posted by Ken
Last Reply August 7, 2017 at 17:48
Started April 12, 2011 at 18:50
Osteoporosis

Anyone having major problems out there with Warfarin destroying your bones? Any fractures? Vitamin K in necessary for the health of your bones and Warfarin blocks it out.

After initial reports that warfarin could reduce bone mineral density, several studies have demonstrated a link between warfarin use and osteoporosis-related fracture. A 1999 study in 572 women taking warfarin for deep venous thrombosis, risk of vertebral fracture and rib fracture was increased; other fracture types did not occur more commonly.[22] A 2002 study looking at a randomly selected selection of 1523 patients with osteoporotic fracture found no increased exposure to anticoagulants compared to controls, and neither did stratification of the duration of anticoagulation reveal a trend towards fracture.[23]
A 2006 retrospective study of 14,564 Medicare recipients showed that warfarin use for more than one year was linked with a 60% increased risk of osteoporosis-related fracture in men; ... read more

32 replies...

How can I safely come off Eliquis
Posted by Marianne
Last Reply August 6, 2017 at 11:14
Started August 6, 2017 at 11:14
I have been on Eliquis for 2 years. I got it for side effekts of
another medication. Also got betablocker in the same time. I think
the doctor in the acut clinic acted very sloppy and did not ask
any questions about if I had bleeding problems. Actually I had
because all started with stomac wound. Since half a year I have
gradually been off betablocker and that was a fight. Now has time
come for Eliquis, which is a new blood thinner. I will first go to
my doctor and ask for a investigation if I really have any risk
for thrombosis and if there are any problems with my heart. If the
results is ok I will then take the step and stop with Eliquis.
Wonder if there is any other persons eating Eliquis in this forum?
Want company on this trip. Sorry for my bad english but I am
swedish and do my best.

0 replies...

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