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stopping warfarin
Started by suzanne
Posted: October 27, 2009 at 18:19
Im going to be coming off warfarin next week,i have been on it a year.Im feeling nervous about it and scared i will get another clot,im going to be worrying if im sitting too long etc,did anyone else feel the same when they stopped?Im going to be having a blood test a month later to see what my blood is like when off warfarin,i have factor v leiden,depending what my blood is like will determine weather i will have to be back on the warfarin.Im only 27 so the doctor doesnt like the sound of me been on it for life.Has anyone had side effects when stopping warfarin?
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Re: stopping warfarin
Reply #1 by Rita
Posted: October 27, 2009 at 18:49
I have been off warfarin for about a month now. I didn't have any side affects either while taking the medication or when I stopped. It just interferred with other meds I could take safely.


Good luck to you~
Rita
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Re: stopping warfarin
Reply #2 by Anne
Posted: October 27, 2009 at 19:24
Hey Suzanne!

I stopped Warfarin the 25th of september and I was, just like you, very scared about how it would be.
I must say it has been a lot better than expected. Instead of being scared I have just felt this weird freedom feeling. I suddenly realised what pressure it had been for me to be on Warfarin. If I hurt myself now and get a cut or something, then its fine..it doesnt matter at all! What a feeling ;)
I listen carefully to my body for any DVT signs but so far I feel good. Going to the hospital tomorrow for blood tests, of course very nervous about how its gonna turn out. I so do hope that they are not gonna put me back on Warfarin, but at the same time I really hope they find some sort of answer for these clots. Im 25, so like you (and most others in here!) way to young for this shit!

Anyway try to stay positive and be alert. Listen to the signals from your body and dont take any chances. Rather one trip too much to the ER than one too little.
Good luck with it all!
(and if you get scared, just post it in here.. there is a lot of people, who knows what you are going through, and they are always ready to comfort you :) )

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Re: stopping warfarin
Reply #3 by suzanne
Posted: November 1, 2009 at 14:42
thank u for your advice,does warfarin stay in your system for a while after you stop it,just wondering if i can go back to normal eating more vit k etc straight away!
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Re: stopping warfarin
Reply #4 by kb
Posted: November 2, 2009 at 23:27
I have been off since July...no issues getting off...maybe even the slight forgetfulness I had while on the drug is gone. As for your comment on staying in your system...it probably takes 3-5 days to get completely out of your system, however your INR will bounce back to normal range pretty fast. You can eat V-K to your hearts content. Try not to worry about a re-occurance...keep positive...good luck! kb
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Re: stopping warfarin
Reply #5 by Ginger
Posted: October 10, 2010 at 21:16
I went off warfarin 3 days ago and am wondering how long I will be having the side effects from it. the itching on my body ..especially my head has abated a lot. The palpitations that have gradually gotten worse to the point that I couldn't sleep much at night are a little better. I still have the numbness in the ends of my fingers.
I read on another blog that a doc said it takes 6 to 8 weeks to leave your body. Anyone have a comment?

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Re: stopping warfarin
Reply #6 by Ginger
Posted: October 10, 2010 at 21:19
I went off warfarin 3 days ago and am wondering how long I will be having the side effects from it. the itching on my body ..especially my head has abated a lot. The palpitations that have gradually gotten worse to the point that I couldn't sleep much at night are a little better. I still have the numbness in the ends of my fingers.
I read on another blog that a doc said it takes 6 to 8 weeks to leave your body. Anyone have a comment?

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Re: stopping warfarin
Reply #7 by Ginger
Posted: October 10, 2010 at 21:20
I went off warfarin 3 days ago and am wondering how long I will be having the side effects from it. the itching on my body ..especially my head has abated a lot. The palpitations that have gradually gotten worse to the point that I couldn't sleep much at night are a little better. I still have the numbness in the ends of my fingers.
I read on another blog that a doc said it takes 6 to 8 weeks to leave your body. Anyone have a comment?

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Re: stopping warfarin
Reply #8 by Claire
Posted: October 10, 2010 at 22:00
I was told by my hematologist it takes around 5 days to leave your body which
is why you can just stop .
I hope to be able to stop one day :-( I live in hope x
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Re: stopping warfarin
Reply #9 by alison haynes-hearst
Posted: October 28, 2010
im 28 and i have been on warfarin for 7 months due to a bloodclot on my lung which developed from being in hospital after having our beautiful baby boy born sleeping at 32weeks it was all rather a big shock and having kidney failure at the same time well im now kind of on the mend ive only just recently stopped around 6days ago i was crying happy but sad tears but i dont have a follow up appointment either which im bit worried about but i have felt quite rough this week but i dont know if its because my body is adjusting to not having it or just a coincidence but i was also wondering too how long until its out of our systems cos i really want to get a tattoo in memory of our baby but cant until i know its safe feels like ive waited forever just hope things start looking up for us all :) x
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Re: stopping warfarin
Reply #10 by alison haynes-hearst
Posted: October 28, 2010 at 01:07
im 28 and i have been on warfarin for 7 months due to a bloodclot on my lung which developed from being in hospital after having our beautiful baby boy born sleeping at 32weeks it was all rather a big shock and having kidney failure at the same time well im now kind of on the mend ive only just recently stopped around 6days ago i was crying happy but sad tears but i dont have a follow up appointment either which im bit worried about but i have felt quite rough this week but i dont know if its because my body is adjusting to not having it or just a coincidence but i was also wondering too how long until its out of our systems cos i really want to get a tattoo in memory of our baby but cant until i know its safe feels like ive waited forever just hope things start looking up for us all :) x
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Re: stopping warfarin
Reply #11 by Eve
Posted: October 28, 2010 at 10:27

Hi Suzanne!

Turmeric (kurkuma) tablets: 3x3 per day.

Healthy, natural and great to avoid new clot.

kisses
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Re: stopping warfarin
Reply #12 by Rob-Uk
Posted: October 28, 2010 at 15:16
I have now been off warfarin for almost a month, and have just had my bloods taken for genetic tests etc.For the first 3 weeks, all went relatively well with the diminishing of the side effects that have been well logged on this site.I have been undertaking gentle exercise (walking/swimming) as advised, with no real problem- ok, my PTS is still there and may/may not improve with time. However, for the last 4/5 days, my right calf has been extremely 'cramped' and painful, and has even woken me up during the night. My calf does not feel hot or solid, and has not swollen.
Should this be something to worry about or is it just one of the consequences of stopping warfarin? Incidentally, I was on warfarin since January this year, following the diagnosis of the DVT behind my right knee.
Any advice would be very much appreciated. Many thanks.
Rob
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Re: stopping warfarin
Reply #13 by Charlotte Bourne
Posted: December 4, 2010 at 08:56
Hey while on warfarin did anyone drink? Im only 18 and i have just had a dvt. they have put me on warfarin and i hate it. its stopping me goig out and having a good time but they have also scared me about falling over while drunk! i cant see a light at the end of the tunnel because they said i have low protein c and will most likely be on aspirin long term. its really getting me down and i just wanted a bit of first hand experience. also is there a particualr process for coming off warfarin?
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Re: stopping warfarin
Reply #14 by Claire
Posted: December 4, 2010 at 11:16
Charlotte
Sorry to hear about that :-(
It's advisable not to drink so much as to get to that "falling down" stage, but
occasional drinking should be ok, just not binge drinking.
Having to be on warfarin or aspirin doesn't have to be so bad, you can still do
everything as before, just obviously be careful & avoid cutting yourself ( which
most people do anyway).
I've just stopped warfarin 2 days ago on the advice of my dr. My hematologist
never answered me when I asked him if I was going to be on it for life, just
shrugged his shoulders & said to talk it over with my gp.
I was told just to stop cos it takes 5 days to completely leave your system, and
start taking baby aspirin daily.
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Re: stopping warfarin
Reply #15 by Carl
Posted: December 18, 2010 at 19:45
My wife was on warfarin for 5 months. She experience hypersensitive feet, behind and
discomfort in the back of her neck and scalp. She has been off of it for two weeks
now, and the symptoms have only slightly lessened. How long does it take to get
back to "normal"?
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Re: stopping warfarin
Reply #16 by Claire
Posted: December 19, 2010
I noticed the side effects were gone after about 10 days, especially the shortness
of breath . I was on coumadin for 16 months x
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Re: stopping warfarin
Reply #17 by Margie
Posted: December 19, 2010 at 01:35
I just stopped. Thankfully!! I do take one aspirin per day just to help keep blood thin. A nurse at a hospital told me that little trick. So far it's working fabulously.
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Re: stopping warfarin
Reply #18 by Ex-Warfarin user
Posted: December 25, 2010 at 19:47
I had what I thought was a charley horse in my leg in 2008. Went to the doc and he
sent me directly to the ER where I was diagnosed with DVT in the leg as well as bi-
lateral pulmonary clots in my chest.

Spent 3 days in the ICU, Heparin IV, then Warfarin. I have a filter in my groin.

EVEN THOUGH I've followed my doctors orders religiously, and have been eating a
diet that pretty much excludes Vit K, I've had three more events since then
ANYWAY. Both legs have been affected. One at a time. They would blow up to twice
their size and be exceptionally painful to touch or walk on. Needed pain meds and a
hot water bottle to ease the pain and swelling. I don't have health insurance and
didn't want another 20k hospital bill so I didn't bother going to the doctor or
hospital for the other events. Just stayed home and waited for the swelling to go
away. Thank goodness they did.

I don't understand why because my INR was perfect. I was getting it checked once a
week right after I got out of the hospital and then once a month afterwards. I was
following my doctors orders to the T, so why did this happen again?

It makes me angry to be told to take RAT POISON but NOT eat healthful greens and
other foods that I would normally consume so I stopped taking warfarin in Sep.

Final straw was after I read that warfarin causes Osteopororis and blood vessel
calcification. I was already nervous about having an accident and having to worry
about bleeding to death and now I'm supposed to have yet ANOTHER disease to
purposely inflict on myself in the course of preventing one that hasn't/won't go
away?

NO THANKS. I'd rather try something (Natto, etc) that my doctor ISN'T paid to tell
me take (drug reps) than have to take another prescription to prevent the very
disease that could cripple me if I fall the wrong way later.

Medicine has become a giant lab experiment for pharma, doctors and other medical
entities to profit from while experimenting on humans for PROFIT.

Screw em. I'd rather take my chances and die of natural causes than not know which
RAT POISON it was that ultimately kills or cripples me.

Bless those people who shared their info about natural remedies with those who
thought they had no hope.
Bless those reseachers in OTHER countries who are testing natural substances that
can't be patented.

Thanks to this blog for allowing freedom of speech.

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Re: stopping warfarin
Reply #19 by sara
Posted: February 2, 2011 at 16:45
hi im looking for some advice please....im on warfarin following a massive PE 10 months ago. i had major abdominal surgery 2 months prior so they are not sure if its the surgery that has caused my clot or its genetic as i previously had a DVT at 21 ?due to the contraceptive pill, and my mother died of a PE.
some specialist (who i am not familiar with) has called me today and told me to stop takng my warfarin today, as i am getting genetic testing in 7 weeks time.
im very nervous about stopping it abruptly and 7 weeks seems such a long way away to be stopping it. im usually on a high dose of warfarin aswell which makes me even more anxious. plus she said i dont need to be getting my regular blood tests when i have stopped the warfarin. Is this all normal procedure?? has anyone else experianced this??, and should i be taking something else such as a natural remedy or aspirin just in case?
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