DVT deep vein thrombosis forum

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Blood clots & filter
Started by REN
Posted: December 10, 2009 at 04:19
Hi... i ruptured my archillies tendon 3 weeks ago & was unable to have surgery for a week. A routine ultra sound was done a week after the injury and an extensive DVT was found above my knee. 5 days later a scan was done to my chest and blood clots were found in the base of both lungs. I have been on warfarin for 2 weeks now. They want to operate on my leg but can only do so if a filter is placed into my stomach via my groin. The filter is attached to string that dissolves after 6 weeks and the filter remains inside the stomach indefinately. Apparently this is a new trial and hasn't been done before at this particular hospital. Once the procedure is done, they can operate on my archillies and i will be on warfarin for 3-4 weeks as opposed to the 6 months as first thought. I was wondering if anyone has had this filter put in and had any pros/cons about the procedure. Any information would be awesome. Thanks.
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Re: Blood clots & filter
Reply #1 by Khalid
Posted: December 10, 2009 at 11:25
Hi

I have a filter placed in MArch 2008 but it was not placed the way you describe. It was inserted using the catherer tube which comes out after delivering the filetr to its place.
I have never heard about this technic, possibly a new trial as you mentioned.

Khalid
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Re: Blood clots & filter
Reply #2 by REN
Posted: December 12, 2009 at 05:23
Hi

The filter is going in on monday... same process as they usually do it but it a new design.
I found out it is a trial and i will be the first to get this new filter put in. Fingers crossed but it looks alot more refined and practical than the older type of filters... alot more safer too.
Chances of it dislodging/tilting are alomost nil due to its design.
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Re: Blood clots & filter
Reply #3 by Khalid
Posted: December 14, 2009 at 10:53
All the best REN

Please let us know how it goes, and some more education on this new technic and design.

Khalid
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Re: Blood clots & filter
Reply #4 by aj
Posted: December 20, 2009
hey, i have had the filter fitted in 1995 at the age if 20 after forming clot on my lung and dvt, at that time as i was on life threating situation, i was not aware what was going on. many times i have asked my consultant to have my filter removed, but since my filter is fitted i am not allowed to get off warfarin and the fitler is embeded in my veins. therefore i have a forein part in my body and on warfarin for life. i am experiencing a lot of side effects that i feel are related to warfarin, i really wish i go get of warafing.

my consultant adviced me that if the filter was removed straight away after or even after 6 months of implanting it, but when i contacted my consultand it was too late.
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Re: Blood clots & filter
Reply #5 by ren
Posted: January 10, 2010 at 12:03
Hey...

Filter was put in and everything has gone to plan.
I dont feel any different and i havent had any side effects.
I have to get checks through out the year just for monitoring purposes which i guess will do me no harm.
I think having a foreign object in your body isn't something to be worried about especially if its purpose is to stabilise your health situation.
The filter will basically be covered by the vein wall lining and become part of the vein so im confident it will be ok.
This filter is designed different to older filters such as the umbrella shaped.
After 60 days its core springs open (its held together by a stitch which dissolves after 60 days) and in due time the metal becomes integrated into te vein wall.
I was told that after this period of 60 days, i most likely would be taken off warfarin.
I hope this filter becomes readily available to others soon... i think it is far superior to what has been used in the past.
Will keep you all updated!
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Re: Blood clots & filter
Reply #6 by Khalid
Posted: January 12, 2010 at 06:58
Hi Ren

Is it possible to get some more info like filter brand name etc?

Thanks
Khalid
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Re: Blood clots & filter
Reply #7 by john
Posted: January 20, 2011 at 10:39
I have a clot in my leg why do they wait till it gets into your lungs before they operate Wouldn't it be easyer to get it out of the leg
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Re: Blood clots & filter
Reply #8 by Taylor
Posted: March 12, 2011 at 18:31
Clot in my leg for over a year put me on warfaren Why cant they clear the clot before it enters the lungs or other parts of the body
Wouldnt it be easyier to operate on a leg before the clot moves to the lung I hear it could become cancerous if clot left for too long How long can you stay on warfaren[rat poison]
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Re: Blood clots & filter
Reply #9 by Khalid
Posted: March 13, 2011 at 06:20
Hi Taylor,

The clot becoming cancerous is not true. The clot generally does not
move if it is there for almost a year. About Wafarin, your doctor knows
best, or talk to some other doc for another opinion.

Khalid
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Re: Blood clots & filter
Reply #10 by Ren
Posted: March 14, 2011 at 11:41
Khalid, i am still the only one who has this experimental filter and so far there have been no other successful candidates who have accepted the filter. I know nothing more about the filter than what i was told from the beggining, but i am told that some hospitals here in Sydney Australia will be putting them through a trial phase. I have been told that the company that designed and produced the filter have lost alot of money due to its not so popular nature.
John & Taylor... i was told that if the clot is below the knee its deemed as "ok" but if a clot is found above the knee then it becomes a little more serious. A clot can travel to your lungs in a very short amount of time and then from there it could possibly travel to your brain causing a stroke. Why they dont treat it at the leg beats me, its probably because doctors follow the same routine and cant be bothered to change their ways. There is light at the end of the tunnel so keep your chin up.
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