DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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My blood level is 225
Posted by clare
Last Reply May 20, 2011 at 23:32
Started May 20, 2011 at 10:48
Hi
I went to hospital on Thursday as my left leg is swollen i had blood
test done the Dr said i was fine to go home however he said my blood
level is at 225 and a blood cot is at 275
What should i do i am over weight ( 15 stone & 5'10 )

1 replies...

How long did it take for your clot to dissolve
Posted by Peggy
Last Reply May 20, 2011 at 05:44
Started December 23, 2010 at 16:32
I am 3 months post-dvt; a clot from my groin to my ankle. I am on Coumandin and have a filter. I just got a scan on my leg today and there are no new clots. Still have some clots left in the leg. How long did it take for your clot to dissolve? I am not sure what to expect and don't want to have unrealistic expectations.

12 replies...

Dissolve time 3 months??
Posted by Jenny
Last Reply May 19, 2011 at 20:48
Started May 19, 2011 at 20:48
I was diagnosed with a DVT in Feb...I went today for a follow up ultrasound. She said there was no clot, the walls of my veins were thicker which she said is normal after a clot, but she didn't see a clot? I haven't had my appointment with my doctor yet, but has this happened to anyone else? Or do you think she just didn't find it this time because of the coumadin? I want to be excited but I'm not sure if I should be yet.

0 replies...

DVT- stent & Balloon- Back Pain
Posted by Alisia
Last Reply May 19, 2011 at 16:03
Started May 18, 2011 at 02:53
I was diagnosed with dvt in left leg from knee to groin. It gradually started to go into stomach area. Had surgery to place 2 stents and a balloon. Surgery went well hardly felt a thing until the very end when a severe lower back pain came on fast and furious. I am home now with upped warfarin and luvanox shots twice a day. Leg still seems to be fine however the back pain has not went away. I cannot lay down at all and to sit is miserable. However, after I manage to stand the wwalking is fine. Anyone know why I may have this pain that I never had before. Asked the nurses several times and they were convinced it was from being in the bed for so long. Please help if you can.

4 replies...

DVT in my calf
Posted by Sarah
Last Reply May 19, 2011 at 13:00
Started September 8, 2007 at 05:11
I did a road trip with my kids this summer.. 8 hours of driving and it was in the mid 30s Celcius.. my right leg was very swollen at the end of the day, I chalked it up to the heat.
The pain never went away.. and it gradually got worse over the weeks.. my doctor said it was water retention not to worry. Well it got worse. The edema started.. my leg was about to burst.. she put me on Tinzaparin and the leg was back to normal in a matter of 4 hours. This after 4 weeks of pain and questions. One day of Tinzaparin, an injection in my stomach.. and the next day an ultra sound which showed no clot. So we did not continue with the Tinzaparin. The leg got bad again.. worse.. huge blisters weeping now.
So they ran the Venography which was painful, but catches that one percent that show a negative on the ultra sound... Back on Tinzaparin, which is costly and not covered by my medical plan.
Well.. we are playing with meds right now. I am on the Walfarin which is less costly than... read more

1 replies...

Vascular or Haematologist ?
Posted by MummyNic
Last Reply May 19, 2011 at 12:50
Started June 15, 2010 at 11:15
Hi

I have a small calf DVT that was unexplained. Good old NHS have said that I should be able to see a consultant at some point after the warfarin has stopped ....

I'm fortunate enough to have private medical insurance through my job, am I better to be referred to a vascular expert or a haematologist to do a follow up to try and find the possible cause ?

Would appreciate your experienced views on this ....


6 replies...

Nattokinase (natural blood thinner)
Posted by Ken
Last Reply May 18, 2011 at 22:45
Started May 14, 2011 at 23:10
I am horrified at having to be a "lifer" on Warfarin

I came across this article on how sitting (in my case computer) can kill. I now know with certainty how I got a DVT in my calf. In addition, I provided the perfect conditions to incubate a DVT by dehydrating myself riding my mountain bike. I am thinking about stopping the Warfarin and taking the Nattokinase mixed in with lots of exercise so that my blood won't pool again. Just in case I happen to develop another blood clot I have a week supply of Lovenox injections by my side. What do ya think?

http://www.healthiertalk.com/sitting-too-long-can-cause-rogue-blood-clots-and-more-1606

http://en.wikipedia.org/wiki/Nattokinase



4 replies...

clots in lungs
Posted by hayley
Last Reply May 18, 2011 at 18:59
Started May 18, 2011 at 18:59
well it all begane when i was pregnant and put on clexaine injections 40mg then at 25 weeks pregnant was rushed in for a section as i had a placenta abruption sadly lost my baby girl then carried on with the clexaine injections then a week before i was just about to come off them felt abit short of breath and had a cough got checked had a ct scan found out i had alot of little clots in my lungs what i dont get is why i had them when i was on the clexaine injections now on warfrin and my levels have to be inbetween 2.5 3.5 at min there 3.8 can i still get more clots then

0 replies...

Want leg back to original size!
Posted by Sassy
Last Reply May 18, 2011 at 14:46
Started May 18, 2011 at 11:28
Hi everyone...I developed a blood clot in my left leg after pregnancy with my first baby. It was more in my thigh going up towards my tummy. This happened nearly 8 years ago and I have been left with one leg being bigger then the other. The doctor says the clot is covering a valve in the vien which prevents the blood flowing back which is why it continues to be swollen. It really gets me depressed having one leg bigger then the other. I am desperate to have it normal again. Does anybody know of anything that can get my leg back to its original size???

3 replies...

Treated and forgotten?
Posted by Rob, UK
Last Reply May 18, 2011 at 03:00
Started May 16, 2011 at 15:09
Hi to you all. The DVT behind my right knee was diagnosed back in January 2010, and I have been on warfarin ever since. My haematologist was excellent and, thankfully, there are no underlying genetic causes for this clot. But....I feel as if I have now been pushed to one side and forgotten. The PTS is quite severe and is a constant annoyance- I am unable to sit still for more than an hour at most, and as my job involves driving up to 1000 miles per week this is troublesome to say the least. My company have been rubbish and still do not grasp the seriousness of this condition, refusing to accommodate me in any way.
I have asked my doctor whether it is worthwhile seeing a vascular surgeon to see if anything can be done to improve the blood flow through my leg (the blood still seems to be pooling at the bottom of the leg), but was met by a 'just live with what you have'attitude. I am so grateful that I found this site about 12 months ago, it's been of great value. But, from the exper... read more

3 replies...

DVY/PE RETURNING TO SPORTS
Posted by Ctown
Last Reply May 17, 2011 at 21:24
Started May 16, 2011 at 20:46
I just had an DVT/PE two weeks ago and then took a week off work so I am trying to figure out what time period I should took off from playing sport[Ultimate Frisbee]which consist of a lot of running and Jumping so if anybody has in advice please pass it along.
Thanks

2 replies...

I'm freaking out - help :-(
Posted by Linda
Last Reply May 17, 2011 at 18:08
Started May 17, 2011 at 06:13
I know I'm at a higher risk of DVT. Sedentary job, overweight, over 40 and on
birth control pills. But, does that mean I'm definitely going to get a clot?

I've had several cases of cellulitis on my calf the past year. I also have what
appears to be slight venous insufficiency in that leg - it just tends to stay red in
the front of the calf. And, every time I go to a doctor, they immediately jump to
"It could be a clot!!!!" No. It's just the cellulitis. We can treat that.

But, they've totally freaked me out that I'm going to suddenly get a clot, it's
going to break free, and I'm going to be dead within seconds.

So, now I'm constantly feeling little aches and pains in my leg and have
convinced myself it MUST be a clot. And tonight, the back of my thigh is sore.
Looked that up on the Internet. That kind of clot is even more dearly than the
calf would be.

It's to the point that I'm obsessing about getting a DVT. It's on my mind
constantly. Someone help me r... read more

4 replies...

Plavix as an alternative to Coumadin
Posted by Adam
Last Reply May 16, 2011 at 16:04
Started May 16, 2011 at 07:33
Hey everybody, I know most of you guys on this forum are taking Coumadin/Warfarin as a treatment for their DVT's/PE's. But I am one of those people who is taking Plavix as an alternative. Certain reasons include: I am young (24) -and full time student and I do not have time to go and get my INR checked every 2 weeks. (I however did this for about 6 months after my first DVT and it was horrible...each time!) -And another (kind of stupid) reason is that since I am still so young, I have this fear that I will eventually die from internal bleeding with being on coumadin than dieing from another DVT (that has traveled).

After my first treatment of coumadin and checking my INR, I finally asked my doctor to switch me to another med as I could not take it anymore.

I have been on plavix for about a year now and I was just wondering if somebody was having trouble paying for the med like me? I am on my father's health insurance plan from his work but I do not receive anything els... read more

1 replies...

Side effects after warfarin
Posted by Damien
Last Reply May 15, 2011 at 06:49
Started May 15, 2011 at 06:49
Hi all, now after my dvt clearing a few weeks ago, and being off warfarin for a week or so, i'm still having the leg pain side effects i was getting whilst on warfarin, no real pain whilst lying or walking around, just whilst sitting mainly. I'm also having the chesty type pains, but these mainly happen when i haven't drunk much.
any way does anyone know if this is common, and if so how long roughly do they last for.
Thanks Damien

0 replies...

Pain Killers
Posted by Kristen
Last Reply May 14, 2011 at 15:22
Started May 14, 2011
I have bi-lateral DVT in legs, diagnosed 10 months ago. The pain is excruciating and i have to admit to crying in pain occasionally. The pain relief i have been given is Co-codamol 30/500mg, and i take it every 4 hrs. It eases the pain a little, but i wondered if there is a better alternative?
I believe that warfarin interacts negatively with some analgesics, so what experiences do others have to share please?
Regards
Kris

1 replies...

tea
Posted by muthoni
Last Reply May 14, 2011 at 13:58
Started May 14, 2011 at 13:58
when itake tea i feel pain on the calf where i have Dvt i also feel pain on the left bottom side of my stomach i wonder how this is related.

0 replies...

Bilateral Blood Clots
Posted by Ventura
Last Reply May 14, 2011 at 03:11
Started May 12, 2011 at 15:42
Hi, my Mom was diagnosed last week with bilateral superficial blood
clots in her legs. She's been on coumandin for 8 days now. Her Vascular
specialist asked to see her in 2 weeks after he diagnosed the clots.
What could possibly have caused these bilateral clots in her legs? 4
years ago she had a DVT in her leg. Her lower legs do swell often and
she's supposed to wear compression stockings all the time but she never
does. Any thoughts?

2 replies...

DROP IN INP
Posted by DONNA
Last Reply May 13, 2011 at 11:02
Started November 24, 2009 at 17:35
I HAVE BEEN ON TREATMENT 4 A WEEK AND MY BLOOD RESULTS WERE GOING OK STARTED AT 1.0 THEN 1.1, 1.5 AND THEN JUMPED 2 2.2 SO DIDNT HAVE TO GO SUN MON BUT WENT TO DAY 4 MY BLOOD AND THEY PHONED ME MUCH LATER AND I HAD 2 GO BACK IN CUZ IT DROPED TO 1.4.
IS THIS NORMAL AND SHOULD I BE WORRIED

26 replies...

Homozygous Factor v
Posted by Nathan
Last Reply May 12, 2011 at 22:50
Started May 12, 2011 at 22:50
Hi,

well bascially i have ben diagnosed with the double gene of factor v leiden and im just after some facts after ive heard lots of horror stories from people.

i am 21 years old and i have a active job i cycle to work everyday now the bad things, i smoke about 10 cigarettes a week, i drink now and again probably 2/3 times a month and i do eat junk food once a week.

i have read about people having clots in their arms at my age and having a DVT, to be honest i am getting rather scared.

is there anyone out there who can shed some light and give me some guidance and advice

Many thanks

Nathan

0 replies...

FVL DVT & PE Warfarin lifelong
Posted by Lisa E (Warwickshire, UK)
Last Reply May 12, 2011 at 21:55
Started May 12, 2011 at 21:10
Hi, I have just been diagnosed with a number of clots lining the bottom of both lungs. I was also diagnosed in 2007 with an extensive proximal DVT. I was tested and have Factor V Leiden... I'm now on Warfarin for life @ the grand old age of 26 :(
Can anyone tell me if they have FVL and were confirmed on life long warfarin but also have had a baby since? I am worried that two clotting episodes both resulting in hospitalisation could result in putting mine or a baby at risk?!
If you have were there any complications and what were they....
Thanks all, Lisa

1 replies...

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