DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Chronic Fatigue, Warfarin
Posted by Liz
Last Reply April 30, 2011 at 02:43
Started March 3, 2010 at 07:39
Hi everyone, I started taking warfarin 5 months ago due to blod clotting in my leg in pregnancy. I am feeling so exhausted from the minute I get up in the morning. I can barely function throughout the day and trying to look after a baby is horrendous. My baby is great!! so it's not tiredness from her, she sleeps all night. I was wondering if anyone else has or is experiencing this? Also, my feet and ache so much, when I get out of bed in the morning, i'm hobbling like an invalid. It's just terrible. Any thoughts? Thanks

Liz

1 replies...

low inr
Posted by jess
Last Reply April 29, 2011 at 21:06
Started April 29, 2011 at 21:06
I have been on Warfarin for 6 months and my inr levels have been up and down but not too out of range. The last 2 months they have been consistanly low, the highest I got was 2.1 and that was only for 12 hrs! I have been on enoxaparin constantly now and my inr was checked wednesday and was 0.9 this was after a week off as I have been going to clinic 3 times a week with warfarin being increased but no effect. I have felt rubbish and put it down to my clots (Had large pe's) but after the weeks break and the end of it I felt not too bad but after going back on it feel pants again! I am worried about going on Monday to see what is happening, it was only 0.7 when diagnosed so what if it drops below 0.9 am I at risk even though taking heparin?

0 replies...

Lifeblood Charity
Posted by Ian
Last Reply April 29, 2011 at 18:44
Started February 10, 2011 at 07:34
I live in the UK and have located a charity called Lifeblood. Has anyone else come across this charity and is there much that can be learned of developed?

2 replies...

Leggings or footless tights
Posted by Vanya
Last Reply April 29, 2011 at 07:40
Started April 14, 2011 at 22:36
I was diagnosed with DVT in Oct last year, a day or so before giving birth to my twin girls. I've been prescribed with class 2 30-40 mm hg tights to be worn every day for 2 years, but find them unbearable in the hot weather. I'd love to find footless tights or stockings and will pay shipping costs to the uk for them. The only ones I have come across aren't the right class, they seem to be mainly class I. Has anyone found any? I feel like I've searched everywhere! Thanks

3 replies...

purple 'Marbling' of foot
Posted by DanainSeattle
Last Reply April 29, 2011 at 07:33
Started April 20, 2011 at 16:49
Hello again, I am currently being treated for 4 blood clots in my left leg that were diagnosed after a month or more of me thinking it was a muscle/joint problem.

I'm about 2 months into my coumadin now, and my left foot is showing a lot of purple 'marbling', like the blood vessels close to the surface are much more visible than they used to be. Is this normal?

3 replies...

why?
Posted by Caroline
Last Reply April 28, 2011 at 19:46
Started April 27, 2011 at 09:26
Hi, I developed a DVT high in my thigh/groin area last Sept whilst on holiday in Turkey. Luckily no pain just swelling and no PE. I have been on Warfarin for over 6 months now but at a scan last week was told there is still significant clotting and it is unlikely it will go! I wear them horrible tights and am now worried I will be on warfarin for ever, and wear the tights forever. I exercise a lot, never smoked, only a little overweight. It seems so unfair. They say I am doing everything right, why hasn't it gone. Has anyone got any advice or kind words for me. I feel like this thing rules my life, its always there in my head.

4 replies...

could this be dvt
Posted by shell4375
Last Reply April 28, 2011 at 19:32
Started April 27, 2011 at 19:44
I've had a pain in my leg for 3 days it started in the back of my thigh and has moved down to my calf. It is painful when touched and when i stand or walk. I also have factor v leiden heterozygous.

2 replies...

Chronic dvt
Posted by Kim
Last Reply April 27, 2011 at 19:06
Started April 26, 2011 at 02:51
I had my first DVT and multiple large PE's in September 2010. After being hospitalized, I started my coumadin therapy which persisted for 6 months. After the 6 month timeframe, the radiologist told my hematologist that the clots had dissolved. After a trip to Florida my left leg had started to swell again. The hematologist ordered a D Dimer test which came back over. Due to the swelling, they ordered a doppler ultrasound. They found several clots in my calf and another clot at the sight of the original DVt. The tech referred to it as a "chronic" clot. Now I am back on Arixtra and coumadin for another 6 months. Has anyone else had this issue or can explain to me "chronic clot"? The hematologist is referring me back to the pulmonologist after my INR is theraputic again. Right now my INR is at 4.5. I just want to know what to expect when I get back to the pulmonologist. Any advice would be appreciated!

3 replies...

Possible PTS
Posted by melissa
Last Reply April 26, 2011 at 18:48
Started June 5, 2010 at 07:37
I had a blood clot 11 years ago, with no problems since. 3 weeks ago I was hopsitalized with another DVT. It was 3 inches or so below the knee to mid thigh. They performed a thrombectomy and my leg felt so much better. The day after I came home, the pain started getting worse instead of better. I will see the DR. in 2 more weeks. I am going on vacation tomorrow and am releived to see that the pain I am experiencing sounds like PTS. I an not happy about it, but releived that it's not the clot reformed. I do find that it feels better while wearing the stockings, however if I stand or walk for say 30 to 45 minutes (grocery shopping,etc), it starts to hurt. I can't wait to ask my dr about this. I just assumed after the removal my leg would be 100% fine. The dr said there was some damage where the first DVT was years ago and this clot was stuck to that area and he could not get it all out. I guess now I can go on vacation and not be stressed about something bad happening to m... read more

3 replies...

Weird head numbness
Posted by Bk
Last Reply April 26, 2011 at 01:08
Started January 11, 2009 at 06:57
About 5 weeks into my DVT treatment (left calf DVT/mid thigh and 2 PE's). 40 and active male. I am on warfarin of dosage rotation of 5mg and 7.5mg every other day. My INR is roughly 2.4-2.5 and has been roughly stable the last couple of weeks which put me on a weekly check.
I just came back from my first airplane trip. I was nervous going out of course...but had my stockings on and did my stretches...all was good. About 2-3 days into my business trip, I was getting a weird numbness in my head. More surface level, like you get when you hand falls asleep. No pins and needles, but definitely felt like the skin on my head (under my hair - still have that) was a bit numb. Not 100%.

I don't know if this is a side affect of coumadin or maybe my INR spiked or something as my diet was irratic. I was on business, out late, and had a glass or two of wine (no more than that knowing my risks on coumadin).

I am back home now and it doesn't seem to be there, but I will be watching it. Be... read more

8 replies...

NHS Apathy
Posted by David Smith
Last Reply April 25, 2011 at 13:44
Started April 25, 2011 at 13:44
Dear Annya,
Following cellulitis in my leg in August 2010. It appears that I have been left with a Post-Phlebitic limb. This is subject to a venous duplex scan however I am cerain the symptoms match. What I find hard to comprehend is the lack of urgency/apathy in the NHS. Albeit I have the problems I have owing to the GP not even considering I have suffered a DVT. I also find it frustrating that the medical profession fail to grasp how it seriously effects my life/mobility as to the naked eye I have a bit of swelling. I am amazed that the policy is merely to say wear a compression stocking for the remainder of your life "that's it". We live in an age where hearts are transplanted and hands reconnected through micro surgery. So why cannot a damaged valve in a leg be operated on as rountinely as a torn cartiledge. Considering the effect it has on peoples lives I am at a loss. Just a 30minutes browse on the internet there are people like Suresh Vedantham, MD
based at Washington Un... read more

0 replies...

Natural Supplements for Heart Failure with
Posted by jessiejiang
Last Reply April 25, 2011 at 02:18
Started October 24, 2008 at 04:05
Hey ,as i know taking natural herbs like Vitamin C,Vitamin E, CoQ10, L-Carnitine, Thiamin, Taurine, Magnesium, Amino Acid Mix is good for helping remedy for Heart Failure in an effective and natural way.

Antioxidants, including Vitamin C, Vitamin E and CoQ10, play a role in reducing damage from free radicals, which can injure the heart and other organs. CoQ10 is also thought to help increase energy levels. L-Carnitine is involved in the transportation of oxygen to the cells. Thiamin promotes carbohydrate metabolism and energy production. Hawthorn is traditionally used to normalize blood pressure, lower cholesterol and has been shown to help early stage heart failure. Taurine is found in high concentrations in the heart and it may lower blood pressure. Magnesium is known to help regulate blood pressure and heart rhythm, reducing the risk of serious cardiovascular events. Ginkgo Biloba helps maintain peripheral circulation. Amino Acid Mix contains the building blocks for bot... read more

5 replies...

Not listening to patient's complaints
Posted by Cathie
Last Reply April 23, 2011 at 04:41
Started April 23, 2011 at 04:41
My husband had surgery just this past Monday on his lumbar spine. 2 fusions and one laminectomy. 7 1/2 hour surgery. He was out of bed the next day and was fitted with compression (scd's) leggings. He complained of pain in his left leg. The doctor changed his pain medication. This only made him sleepier. They continued the ambulation and compression leggings but the pain in my husband's leg became worse. The 4th day the nurse on duty felt my husband may have been experiencing dvt discomfort and notified the doctor for an order for an ultrasound. The doctor refused to have it done. My husband's left leg within 2 hours has ballooned up to twice the size of the right leg and is hot red. There was no prophylactic anticoagulant therapy done or offered. They did after the swelling put him on a heparin drip and subsequently stopped it the next morning and he is now on lovenox injections. I believe this dvt could have been prevented had the doctor listed to my husband's complaints the 2nd p... read more

0 replies...

Dad with clot
Posted by Jesse
Last Reply April 22, 2011 at 05:47
Started April 22, 2011 at 05:47
My father recently had a couple clots in one of his legs he has taken coumedin
and his doctor took him off of it. Is it normal to still have swelling around his
ankle where he also had a surgery about a year ago. Also is a second scan
recommended after you finish coumadin?


0 replies...

Dad with clot
Posted by Jesse
Last Reply April 22, 2011 at 05:45
Started April 22, 2011 at 05:45
My father recently had a couple clots in one of his legs he has taken coumedin
and his doctor took him off of it. Is it normal to still have swelling around his
ankle where he also had a surgery about a year ago. Also is a second scan
recommended after you finish coumadin?


0 replies...

Twins both with dvt
Posted by Len
Last Reply April 22, 2011
Started April 19, 2011 at 11:28
I was diagnosed with dvt right calf in January this year.Just as I was discharged from hospital my twin brother was also diagnosed with dvt left calf.This was my 2nd dvt same leg 1st one was caused by foot surgery.We are aged 54 and I was wondering if anybody thought our dvt was simply coincidence or could there be an hereditary condition involved?

3 replies...

bruise 3months after dvt at the site of the cl
Posted by dotty25
Last Reply April 21, 2011 at 12:09
Started April 20, 2011 at 22:19
hi all, im 30 yr female , finally diagnosed with a clot in my calf after pestering docs
and bein told it was nothing back in january.
iv been on warfarin for 3 months so far inr was 2.4 at last check but have now got
pain an swelling and a long bruise appearing yellow in colour exaclty where they said
the clot was?? little scared it may be another but docs dont seem to be bothered am
frightened as they didnt beleive me last time i had to pester so much??? any help or
thoughts what if its another clot in the same place??? jo xx


1 replies...

muscle spasms with DVT
Posted by Linda
Last Reply April 21, 2011 at 08:14
Started March 7, 2008 at 17:25
does anyone else suffer from constant
muscle spasms in their legs....they are
so bad that they wake me up at night....in early
stages of treatment of 3rd. DVT...

4 replies...

Warfrin
Posted by Donna - Edinburgh
Last Reply April 19, 2011 at 20:40
Started January 5, 2008 at 13:57
Hi

I had a DVT lower right leg behind my knee in Septmeber I am due to come of Warfrin 20th March I was wondering if anyone can tell me do you just stop on that day or do you come of it gradually, I am looking forward not having to take Warfrin but on the other hand I am feeling a bit scared coming off it, I look forward to anyone's comments.
Thanks Donna



23 replies...

stoppage of warfrian before surgery
Posted by asad
Last Reply April 18, 2011 at 14:21
Started April 18, 2011 at 14:21
Hi every body,
i m regular reader of this forum when ever i come to this forum i feel satisfaction tht i m not only in this world who is on warfrian now i would say i have been on warfrain( 5 mg daily ) since 2004 and for life time .
my problem is tht i have to undergo ear surgery and its postponed 2 time coz warfrian finally with consultation of hematologist i hope it will be done but my additional problem is that when ever i stop warfrain for short time ( for surgery) i get sickness severe gastic and constipation as well for period as long as i discontiue it ,my body coz of all above reason above become so panic that totally beyond my control and particularly this has impact on success of ear surgery .
my surgery is due shortly but i am very upset how to handle this situation this happened with me 3 times when ever I stopped it.
Any body has exp like can you please advice so that I may cope the situation properly.

tx

asad




0 replies...

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