DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 129 of 236
should i worry so much?
Posted by vea
Last Reply April 10, 2011 at 01:14
Started April 3, 2011 at 18:51
hi everyone. just wondering what peoples expierences were with dvt in thigh? i
started having left calf pain a few days ago and now its gone into my left thigh.
its a tingly feeling down the left side with some soreness down the front. last
week i had a negative d dimer test and last year i had four negative doppler
ultrasounds

also i went dancing thursday night with the calf pain.

so im i letting my mind wander to much?

im 22 and not on bc pills

14 replies...

To exercise or not???
Posted by Christine
Last Reply April 10, 2011 at 01:04
Started April 9, 2011 at 02:48
A little backround....I was diagnosed with a dvt from groin to calf right around a month and a half ago. The first month was incredibly painful and I spend much of my time on the couch with my leg in the air. Fast forward to today. I am doing MUCH better. Pain is almost non exsistant. My INR is at a thereputic level. I am sick of sitting on the couch! When I stand or walk too much I swell pretty bad. I am wearing stockings but that doesn't help to much with the swelling. I am wanting to start walking on the treadmill again. Good idea or not? I pretty much know if I do I will swell but it isn't accompanied with pain is it ok? Any advice would be appreciated! Thanks!

4 replies...

Post - DVT leg pain
Posted by Adam
Last Reply April 10, 2011
Started April 9, 2011 at 17:23
I am 23 years old and I have had a dvt within the past year. Doctors misdiagnosed it as a pulled muscle since I am so young. They sent me home after just checking me out with just leg cramps. 2 weeks later, the cramps were unbearable and I went to get it checked out again. (No swelling or discoloration was involved) They decided to do an ultrasound and it appeared that I had a huge dvt in my lower thigh. I am currently taking Plavix and wear thigh high/waist high stockings almost everyday. I still have quite a bit of pain in my leg from it still and it has been close to 7 months since the dvt. Is it supposed to hurt like this even after the clot is gone? At night, when I take off my compression stockings right before I go to bed, the pain is almost unbearable. -Sometimes I can't even go to sleep because of this. The leg definitely doesnt hurt when I wear the stockings though. -only when I take them off or don't wear them. Should I wear the stockings at night? Someone told m... read more

1 replies...

Mental Trauma
Posted by Bill
Last Reply April 8, 2011 at 07:56
Started April 7, 2011 at 19:23
I was diagnosed 9 weeks ago and have since researched the subject thoroughly
to the point where I am now depressed with it all. I guess ae all just have to be
grateful to still be alive and accept that outcomes will be what they will be.

1 replies...

Mental Trauma
Posted by Bill
Last Reply April 7, 2011 at 19:15
Started April 7, 2011 at 19:15
I was diagnosed 9 weeks ago and have since researched the subject thoroughly
to the point where I am now depressed with it all. I guess ae all just have to be
grateful to still be alive and accept that outcomes will be what they will be.

0 replies...

Mental Trauma
Posted by Bill
Last Reply April 7, 2011 at 19:14
Started April 7, 2011 at 19:14
I was diagnosed 9 weeks ago and have since researched the subject thoroughly
to the point where I am now depressed with it all. I guess ae all just have to be
grateful to still be alive and accept that outcomes will be what they will be.

0 replies...

How long will swelling last?
Posted by Heather
Last Reply April 7, 2011 at 18:47
Started November 24, 2009 at 19:11
I had a dvt in my groin just over 2months ago.
The affected leg is still significantly swollen (-
about 3inches bigger in circumference around
my thigh than the other leg) and i have aching
pains and tenderness in the leg every day. It is
a little different in colour to the other leg but
no worse than it has ever been post diagnosis.
I would like to know how long it typically takes
for the swelling to go down, or if it is likely to
be permanent?

3 replies...

clots still there after 6 mths on Warfarin
Posted by Anita
Last Reply April 7, 2011 at 17:49
Started July 4, 2009 at 03:54
Hi. I am 38 yrs and diagnozed with extensive DVT in my left leg after having an accident and being in hospital in a cast for 3 days. I have been taking Warfarin for over mths now and my INR is great. Always between 2 and 3. I recently went back to hospital for a check, they sent me for a ultrasound scan as worried the leg was still swollen. The scan picked up lots of big clots and up in my ilicac vein stomach, right through the whole leg. No better at all then my scan back in January. They now want me to go for a MRI scan as worried that the clots may also be in a new vein as well. I just can't understand after having such good INR results how this could happen, has anyone else had anything like this? Thanks!

8 replies...

was dianosed with a dvt
Posted by ivonne
Last Reply April 7, 2011 at 17:16
Started April 5, 2011
Hello my name is ivonne, I gave birth at 24
weeks on march 18, 2011 my son did not make
it. Days later on march 23 I started to feel my
leg swollen and heavy so in the morning I went
and called 911 went to the nearest hospital.
The only thing they did is x-rays and said
everything was fine. They told me to exercise
my leg that other was my joints. I got home
and did what they told me until I could not
stand the pain any more. My husband took to
another hospital. There as soon as they saw me
they immediately told me if I ever had a dvt. I
was like no. Well they did a sobogram on my
leg, took blood out. N Yup I had a dvt. They
told it was cause I gave birth. Pregnancy
causes it too. I was sent home four days later.
Doctor got me Ob coumodin. N pain killers
(narco). So what's next what gonna happen to
me now? I'm scared because I can't walk and
depressed because of my loss. I need someone
to talk to.

4 replies...

my post
Posted by Jamie
Last Reply April 6, 2011 at 23:56
Started April 6, 2011 at 23:56
test .. if admin is reading what happened to my post I made 2 days ago it said it would be up and its not here.. wtf?

0 replies...

Vein Valve Reconstruction
Posted by Peter
Last Reply April 6, 2011 at 14:33
Started February 1, 2011 at 22:20
Has anyone had an experience they can share or comment on Vein Valve Reconstruction?

I have noted some procedures
1-internal valvuloplasty
2-external valvuloplasty
3-prothetic sleeve in situ
4-axillary vein transfer

I have a referral from my hemotologist to a vascular surgeon.
My DVT occurred in the popiteal vein.



2 replies...

You know if that was my leg in the picture
Posted by Ken
Last Reply April 6, 2011 at 01:21
Started April 4, 2011 at 21:53
and my leg was swollen like that (elephant like) all the way up to the top (the entire leg), and there was no hope of getting it back to normal, I would promptly end my life, probably with my 9mm. But of course not before I took care of all my finances, and who they are allocated too. Now that I have DVT #2, I realize how much of a small thread I am clinging too. My life has to have certain requirements, and the first one is good health and a healthy body. If I don't have that I have nothing. Kudos to the people that have a stronger will to live than I do if they are massively physically impaired.

8 replies...

DVT and marijuana
Posted by Maximo
Last Reply April 5, 2011 at 20:44
Started April 5, 2011 at 20:44
Hello All,

I suffered a knee injury 4 months ago and developed a DVT in my calf.
Fortunately I managed to diagnose it and get to the hospital. I was
put on Warfarin and had stopped smoking weed 2 weeks before being
diagnosed. I have been taking Warfarin for about 3 months (and been
weed free for same amount of time) and they said I will need to be on
it for another 3 months. My INR is steady at 2.3.

On Sunday I ended up having a joint and although I feel bad it was
very relaxing for me. The question I have is, I am thinking of using a
vaporiser to inhale the marijuana and as its not smoking, is it a
safer that way?

Thanks for reading my post and any help or guidance will be much
appreciated.



0 replies...

Anyone in Manchester, UK with PTS using Venowa
Posted by Alan Butterworth
Last Reply April 5, 2011 at 20:40
Started January 13, 2011 at 12:57
Hi,

I developed a DVT in my right leg after a torn calf muscle in 2007. Like most people on this site, the medical advice I received was worse than useless. I'm in no doubt the ridiculous advice I received contributed fully to developing a DVT.

Since then I have worn a knee length stocking on my right leg (because I haven't a blood disorder history and don't expect to get a DVT in my good, left leg).

Last year I experienced more PTS than ever before so after researching the latest breakthroughs went back to my GP to discuss valvuloplasty and J Opie's work in the States and the Venowave. I didn't expect my GP to know anything about these (which she didn't) but she did arrange for me to see the consultant, Mr J Smythe at Manchester Royal Infirmary. I haven't seen him yet as he thought an exploratory ultrasound would be the best place to start. I obviously have venous insufficiency (without the stocking my leg veins at the ankle bulge and my lower leg (about 12 inches from the... read more

3 replies...

Any comment would help
Posted by frank
Last Reply April 5, 2011 at 18:33
Started April 5, 2011 at 16:25
Hello all. I was diagnosed with DVT on 1/12/11 after a long plane flight. I immediately began feeling pain in my calf,minor swelling and could not hardly walk around. I went to DRs would said i had a DVT in my calf but not in the main vain ( i think its in the Gastrokt vein). The Drs did not put me on thinners, but monitored me very closely. I took ultrasounds,mri, and radiation tests in both my legs and my chest. After 2 months they said the clot is still in my leg but has not moved any further and it would not move since it hasnt yet. I fell fine. No shortness of breath no pain in legs or lungs and no pain while breathing in deep. I am still worried as hell, its the only thing i can think about. Any thought?

2 replies...

After PE
Posted by tk29
Last Reply April 5, 2011 at 17:40
Started April 5, 2011 at 17:40
Has anyone experienced chest pains after recovering from a large PE. On no warfrin or klexane now but can still feel pain in chest

0 replies...

HELP PLEASE Spontaneous Jugular D.V.T
Posted by Louise
Last Reply April 5, 2011 at 16:15
Started April 5, 2011 at 16:15
I have been experiencing visual problems,headaches,hand numbness etc... for 7 months. I have been diagnosed with a left Jugular vein D.V.T cause unknown.Previous to this i was a very active 33yr old always on the go!!

I'm a British Citizen and have lived in Cyprus since 2005 The Doctors have never experienced this before and have basically told me that they cannot do anymore for me, other than monitoring my INR They do not recognise the relation this has to Cancer and do not have the know how to piece all information together.

I'm Desperate to get in contact with someone that can refer me or put me in contact with a specialist in the u.k regarding my Health.

Would really appreciate any help and direction anyone can give me.

Louise x

0 replies...

What were your warning signs of pe
Posted by slkchina
Last Reply April 4, 2011 at 17:02
Started March 27, 2011 at 11:13
I have read what the net says about the symptoms of pulmonary embolisms but I am wondering what your actual experiences have been. The reason I'm asking is that occasionally when I bend over or stretch, I get a sharp pain just under my rib cage that is like a charlie horse. When I straighten up, the pain lasts for a few minutes and there is a slight swelling, similar to a charlie horse. This pain happens once every two days or so. Since I have a dvt and am taking warfarin, I am a little worried that this pain might be symtomatic of pe. What do you think?

4 replies...

Question
Posted by Sue M.
Last Reply April 3, 2011 at 23:31
Started March 26, 2011 at 23:39
Hi! I have what I think is a swollen vein on the outside of my kneecap. It feels like a rope when I touch it and it will move. The pain travels up my upper leg when I touch it and it burns. I went to the doctor this week and he was more concerned about me stopping my cholesterol meds than the knee(Got to push those statins!) It's not discolored, swollen or the skin isn't hot to the touch-the thing that I think is a vein just hurts. Any ideas on what it could be?

5 replies...

Antipsychotic drugs lead to blood clots
Posted by N
Last Reply April 3, 2011 at 20:56
Started April 2, 2011 at 20:04
Antipsychotic drugs lead to blood clots
Saturday, April 02, 2011 by: Jonathan Benson, staff writer

(NaturalNews) New research out of the U.K. adds to the growing body of evidence highlighting the dangers of antipsychotic drugs. Data gathered from tens of thousands of patient records reveals that popular antipsychosis drugs like AstraZeneca's Seroquel, Eli Lilly's Zyprexa, Johnson & Johnson's Risperdal and Bristol-Myers Squibb's Abilify, can cause severe blood clots in patients.

After accounting for other risk factors, researchers determined that such drugs increase blood clot risk by an average of 32 percent. AstraZeneca's Seroquel, however, was found to be the worst of all, increasing blood clot risk by a whopping 300 percent. And in general, people taking atypical antipsychotic drugs are roughly 73 percent more likely to develop blood clots than people who do not.

"I would consider this an important, but modest increase in risk," explained Julia Hippisley-Cox, MD, from t... read more

1 replies...

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