DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 14 of 236
Blood clot worried
Posted by Sam
Last Reply December 29, 2016 at 05:26
Started December 29, 2016 at 05:26
So I started birth control (Nuvaring) about a month ago. The last week or so I
have been having leg pain. It started in my shin which isn't normal for day but
moved to my calf and now the pain is my calf shin knee and back of thigh. It's
worse sitting down. I'm a healthy 23 yo. My grandma had a dvt and pe from birth
control when she was in her twenties but hasn't had issues since. The pain has
gotten worse and seems to come in waves. No swelling but my foot is definitely
colder. I went to the hospital and they did d diner and said I was fine. The pain
has gotten worse since. I can't get into medical until tomorrow and I plan on
asking for an ultrasound which probably won't happen for awhile because
military medical sucks. My job is me sitting for 12 hrs. Idk what to do I'm scared!
And my mum keeps blowing it off saying it's nothing (I call her regularly lol) any
help? I don't want to end up with a pe because I live alone and that's a scary

0 replies...

May-Thurner's Syndrome
Posted by Jill
Last Reply December 28, 2016 at 02:10
Started December 28, 2007 at 20:30
Hi all,
I was wondering if anyone here has had experience with May-Thurner's Syndrome? I was diagnosed last month as they're still trying to determine the cause of my DVT 6 months ago (I'm still not running or doing stairs to any extent, though most other things are back to normal). I was told about a possible procedure that has been done in about 1000 patients involving putting a stent in the veins (for me, from my belly button to my knee) that May-Thurner's affects. Has anyone here undergone this (or a similar) surgery and can you give me the basics of your procedure/recovery?
Thanks so much!
Happy holidays all!

221 replies...

IVC filter not retrievable
Posted by Melanie S
Last Reply December 27, 2016 at 21:41
Started January 28, 2015 at 19:13
I had a dvt 3 weeks postpartum with my 7th child. Damaged vein required stents
and the clot was 20 cm long. IVF filter was attempted to be removed yesterday as
clot is completely gone. Vascular surgeon spent 3 hours trying to get it out. It had
migrated and tilted and despite his efforts was not able to get it. I will be on
xarelto for one more month. I currently plan to leave the filter in. Has anyone kept
it successfully? What at the risks for me given this was a unique situation and I
don't expect more clots. I am 42 years old and otherwise in good health.

4 replies...

If blood clot might have dislodged?
Posted by RS
Last Reply December 26, 2016 at 11:12
Started December 26, 2016 at 11:12
Hi... After an Achilles ruptured, I noticed pain in my mid calf. Went to surgery and
pain an swelling when standing up lsted for 7 days... Now it is totally gone. Did I
have a blood clot? If so, what to do now and prevent it from moving to other parts
of the body and creating complications?

Thank you in advance

0 replies...

Unbearable pain from blood clots
Posted by Brian
Last Reply December 23, 2016 at 18:30
Started December 20, 2016 at 11:56
On Dec 1, 2016 I was diagnosed with ankle
to groin DVT in my right leg, it is now
December 20 and I can't tolerate any more
torture. Dr's, nurses say to walk on it,
well that's no easy task, at best I can
stand for about 30 seconds. With pain
killers I can maybe get a few minutes, but
not enough to shower. I am wearing 30 - 40
mmhg thigh high compression stockings all
the time, if I take them off its even
worse, some people say don't wear them to
bed, I've found that I have to! I'm
currently taking 15 mgs of Warfarin daily,
since I am bed ridden, I Can't leave the
house, a phlebotomist comes out weekly to
check INR, last check it was 1.59. I feel
like I'm dying and that the pain will
never go away. I've also had an ankle to
groin blood clot in my left leg, but the
pain was not as intense as this. The
doctors don't return my calls and do not
seem to understand the severity of the
pain, I had a total left hip replacement
and my pain was be... read more

1 replies...

return to work after dvt
Posted by sharon
Last Reply December 23, 2016 at 03:11
Started January 27, 2011 at 12:12
I was diagnosed with a dvt in my right calf 7 days ago. No idea why and
I can't seem to get any answers. I am on warfarin was on clexane and off
and now on again, due to drop in INR! I am told I will know more when I
attend my first anticoagulation clinic next week. I am currently lying
around with my leg up feeling very tired and anxious with daily nurse
visits and blood tests. Please can someone let me know when they went
back to work, drove the car and became 'normal' thank you

11 replies...

Warfarin v Apixoban
Posted by Lesley D
Last Reply December 21, 2016 at 17:17
Started December 21, 2016 at 17:17
Anyone moved from Warfarin to Apixoban? Ive been on Warfarin for 3 years
and doctor has spoke to me about switching medication. Wary of changing
as doing ok on Warfarin but fed up of INR checks.
Many thanks
Edinburgh UK

0 replies...

Whats an average size of a dvt ?
Posted by Hayden
Last Reply December 21, 2016 at 09:18
Started December 21, 2016 at 09:18
Hi :)
What's considered to be an average size of a dvt ?
What is classed as being a small DVT compared to a large one ?
And how big does a DVT have to be to cause damage to the lungs ?

0 replies...

Posted by JACOB
Last Reply December 19, 2016 at 12:30
Started March 28, 2012 at 22:30
Hi everyone. Im Jacob, age 29. After the last DVT in January 2012 (4th
in my life) I was put on warfarin for a life-time. I was also advised
to wear those bloody compression stockings. Everyone says they are a
must, and they do the job. But I just cannot wear them.

I got one in Poland and I could not wear it at all. It caused a pain.
The skin around my ankle is already very soft and I felt very
uncomfortable after 20 minutes of wearing that bloody sock !

And now Im living in the UK... they gave me another sock. The leg was
measured etc. but unfortunately it is the same thing. Pain and pain.
It makes more pain than it is without that stocking.

Has anyone experienced that as well ? What should I do? If I don't
wear that stocking, is it gonna be more harmful for me ?

Pls help !

42 replies...

Coming off Warfarin
Posted by Donna
Last Reply December 19, 2016 at 10:54
Started September 13, 2007 at 17:09
Hi there, my husband has been on Warfarin for just over 6 months and is on 10mg - INR now at 2.8.

Do you come off it cold turkey or do you gradually come off it? The doctor also told him to stop wearing his stocking.

I would appreciate any advice from anyone who has come off the Warfarin and what to expect! Kind Regards, Donna Robertson

52 replies...

Anxiety over DVT
Posted by Mike
Last Reply December 17, 2016 at 23:04
Started November 18, 2008 at 22:44
It's normal to have anxiety while coping with DVT. Check out this
extensive list of anxiety systems.
Common anxiety symptoms include:
Body (anxiety symptoms commonly associated with the body in general):
Allergy problems, increase in allergies (number, sensitivity, reactions, lengthier reactions)
Back pain, stiffness, tension, pressure, soreness, spasms, immobility in the back or back muscles
Blanching (looking pale, loss of color in the face or skin)
Blushing, turning red, flushed face, flushed skin, blushing, red face or skin
Body jolts, body zaps, electric jolt feeling in body, intense body tremor or “body shake”
Body temperature increase or decrease, change in body temperature
Burning skin, itchy, “crawly,” prickly or other skin sensations, skin sensitivity, numbness on the skin
Burning skin sensation on the face, neck, ears, scalp, or shoulders
Chest pain, chest tightness
Chronic Fatigue, exhaustion, super tired, worn out
Clumsiness, feeling cl... read more

35 replies...

Medial gastrocnemius vein
Posted by Hayden
Last Reply December 17, 2016 at 04:13
Started December 17, 2016 at 04:13
Has anyone had a clot in their medial gastrocnemius veins ?
Did it resolve for u if so and did u ever have any more issues ?

0 replies...

Xarelto and mild anemia
Posted by Hayden
Last Reply December 17, 2016 at 04:06
Started December 17, 2016 at 04:06
Hi there :)
I'm a 42 male who had a distal dvt .
My doctor has been monitoring my bloods every week .
The week I found out I had a dvt my hemoglobin was fine , but every weeks it
went down .
Now I have mild Anemia , has anyone else developed that while taking Xarelto ?

0 replies...

Compression Stockings - wear to sleep?
Posted by Ian T
Last Reply December 15, 2016 at 22:39
Started September 8, 2009 at 02:38
I was prescribed grade 1 compression stockings because of the DVT I had in May. The doctor told me to make sure I put them on first thing in the morning, after my shower, and that I can take them off when I go to bed, or otherwise if I'm laying down and can keep my legs elevated.

My question: Can I wear them while I sleep? Or are there negative side effects from wearing compression stockings 24 hours a day?

I only ask because a couple of times I was just too tired at night to take them off before sleeping.. you know how difficult those things are to put on and take off. When I wake up in the morning my legs and ankles feel stiff, but on those nights where I didn't bother removing my stockings, I woke up with my legs feeling a little itchy at the top of the stockings, but otherwise fine and free of stiffness.

56 replies...

Cayenne and molasses for bleeding
Posted by Jenn
Last Reply December 11, 2016 at 17:55
Started December 11, 2016 at 17:55
I just posted about this but it seems to have disappeared. I was terrified to take blood thinners (xarelto) because of the reading I did here at this forum. I wanted to tell everyone and encourage everyone to try what I have been doing. I was on my period when I started the blood thinners but by taking 3 cayenne capsules daily and 2 Tablespoons of black strap molasses every morning, I have not bled once while on the blood thinners. I have only been on them for about a week now but already, my leg has stopped hurting and no menstrual bleeding. I took cayenne after the birth of several babies (gave birth at home) to keep from bleeding out and it always worked very quickly to stop heavy bleeding. I believe that, in combination with the black strap molasses, is why I have stopped bleeding. Plus black strap molasses has potassium and iron, which is good for us who are anemic anyway (like me). I thought I would tell everyone here because some of you seem so desperate to stop your lengthy ... read more

0 replies...

cancer treatment
Posted by patricia
Last Reply December 11, 2016 at 08:54
Started December 11, 2016 at 08:54
A great testimony i must share to all cancer patient in the world!
I never knew CANNABIS OIL could cure cancer, i thought it was only
meant to eliminate leukemia and Illinois paralyses, until 2 months
ago, When i got a bottle of the oil, I bought them pretty
expensive though, but had no option and didn’t want to loose my
life just because of money..It turned out to be what i was looking
for over 17 months, a week after buying the CANNABIS OIL it was
like a reborn for me. Even my doctors were so amazed by its
potency. I seriously advise that you also get yours, I am a living
testimony of the wonder works of the cannabis oil and avoid going
through life risking surgery. its 100% potent i swear..
i am so happy for sharing this testimony, my advice to you people
that think that their is no cure for cancer,just contact and get
the oil treatment from Rick Simpson try it and you will not regret
it because it truly works and her... read more

0 replies...

Thrombosis but no swelling??
Posted by Allie
Last Reply December 10, 2016 at 17:30
Started December 1, 2016 at 06:45

I know this might seem kind of stupid, I've only had symptoms for like 36 hours, but I have exams coming up and I won't be able to deal with any of that from then on so i'd like to get this clear.

I'm 20, don't smoke, don't take the pill... But my great grandmother had thrombosis (don't know much about that)

Anyway, I haven't left the house for 5 days, been revising, mostly in bed...
Woke up yesterday morning with a sore calf, which I thought was a little odd.
Anyway, as the pain was still there today I checked it out and saw it might be thrombosis...

Basically, here are my only symtoms:
- small bump on the inner side of my calf / hurts to touch
- can't point my toes up
- can't cross my legs
- hurts when i walk
- pain comes from that bump, goes up to under my knee
- my leg sometimes feels weird, it goes up my thigh too sometimes
- i can feel it when my leg is at rest

that's about it.. no redness, not swollen.. and honesly the pain isn't that bad.

W... read more

1 replies...

Cannabis oil cured my cancer
Posted by Viljoen
Last Reply December 7, 2016 at 07:32
Started December 7, 2016 at 07:32
“It continuously amazes me how much RSO cannabis oil fought my cancer – with no side effects or risks. Alongside the killing of my cancer cells, which is the most important factor to me, RSO cannabis oil also helped with pain and nausea. Indeed, the quality of my life improved all around. Thanks to Rick Simpson Oil which i procured And, with my growing experience along side expanding clinical trial data, I find myself more and more confident in RSO cannabis oil and I'm now CANCER FREE and thus sharing this statement. Contact him via email: ricksimpsoncancerresearchcure@gmail.com for your own cure God bless you Rick”

Yours in cancer survival
Viljoen Naudina

0 replies...

Posted by MountainDove from Colorado
Last Reply December 6, 2016 at 20:26
Started December 6, 2016 at 20:26
If you are a victim of severe cramping, legs, hands, etc., carry a
bottle and spoon with French's Mustard. When cramp starts, take a
couple spoonfuls of Mustard. Drink a couple swigs of water, the cramp
will stop in a little over 60 seconds. Try it. Doesn't taste real
good, but saves the pain.
I think it is the Organic Turmeric, organic paprika, organic Mustard
seed and organic vinegar.
The Amish use a combination of Vinegar, Garlic and Turmeric.

0 replies...

What is an "Old Blood Clot"??
Posted by Mike from Pacifica, CA
Last Reply December 6, 2016 at 20:13
Started October 12, 2010 at 01:59
Im 27, I've had 2 Pulminary Embolisms or P.E.'s about 8 or so years ago, they did a scan of my legs to see if they could find a DVT to explain the P.E. however at the time they didn't find anything, after a few blood tests and a few days later they determined I had a clotting disorder called a Factor 5 Diffeciency or something to that effect. A few weeks ago I got a bruise on my leg from doing something maybe a little foolish but I'm a carpenter and I get bruises all the time, the bruise seemed to be getting better, didn't hurt very much and then 3 days ago my calf swelled up and was really painful....as a result of that I went to the Emergency Room having a history of blood clots I figured it would be a good idea to get check out, so they did an ultrasound of my calf and all the way up my leg etc...the ER Dr. told me that they didn't find any "new" clots however they did see a few "old" clots in my leg probably from my previous DVT/PE's.

My question is this:

What the heck is... read more

17 replies...

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