DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 161 of 236
worried stopping fragmin too soon?
Posted by Helen
Last Reply May 10, 2010 at 17:09
Started May 10, 2010 at 12:12
Hello would welcome some advice.

2 DVTs left leg diagnosed Wed last week. Previous DVT 20 years ago.

Have been told by hospital now on warfarin for life (aargghh) but also on Fragmin
(low molecular weight heparin) injections - was told needed Fragmin until INR >2.0.

Now been looked after in the community and had INR friday 1.7, INR today Monday is
1.6. Nurse gave me Fragmin today but not getting any tomorrow. Next appointment
Wed.

Should I be pushing for them to keep my heparin cover going until inr up or am I just
panicking??

Any advice appreciated!

8 replies...

worried stopping fragmin too soon?
Posted by Helen
Last Reply May 10, 2010 at 12:11
Started May 10, 2010 at 12:11
Hello would welcome some advice.

2 DVTs left leg diagnosed Wed last week. Previous DVT 20 years ago.

Have been told by hospital now on warfarin for life (aargghh) but also on Fragmin
(low molecular weight heparin) injections - was told needed Fragmin until INR >2.0.

Now been looked after in the community and had INR friday 1.7, INR today Monday is
1.6. Nurse gave me Fragmin today but not getting any tomorrow. Next appointment
Wed.

Should I be pushing for them to keep my heparin cover going until inr up or am I just
panicking??

Any advice appreciated!

0 replies...

Warming sensation in foot
Posted by Krissy
Last Reply May 10, 2010 at 08:06
Started May 7, 2010 at 20:37
In the leg that I have a blood clot I keep getting this warming sensation. As though someone is pouring warm water of it. It happens quite randomly and several times a day. It never lasts long but is kind of annoying. I was wondering if anyone else has been experiencing this? I am still on coumadin.

4 replies...

frustration
Posted by AB
Last Reply May 10, 2010 at 07:50
Started May 9, 2010 at 15:45
In the big picture, I fully understand that this is petty (I am very thankful that my DVT was discovered before it became deadly), but I wanted to share this with people that would understand my frustration. To all of the women on warfarin: how do you shave your legs? I have knicked one of my varicose veins again, and it bleeds profusely. I'm supposed to come off of the warfarin in 2 months and counting. If, by chance, I end up having to go back on it for life, I'm seriously considering having laser hair removal. I've tried using very fine waterproof sand paper. It worked okay, but it was a long and tedious task. Any thoughts or comments are appreciated.

5 replies...

Any new DVT treatments? Desperate situation..
Posted by Sam
Last Reply May 9, 2010 at 20:56
Started May 9, 2010 at 20:56
My brother (26) received a peritonectomy (removal of major organs in peritoneal
cavity) for a cancer treatment and eventually developed a humongous DVT from his
left groin down to several inches below his knee. We took him to the hospital where
doctors put him on the Heparin and the Coumadin and the Lovenox and NONE of it
helped.

So we began considering non-invasive blood clot busting treatments (which honestly
needed to be done immediately due to the ultrasound showing how massive the DVT
was). Unfortunately, my brother was having fevers which could be a symptom of the
DVT or an actual infection. The problem is, the doctors blindly kept pushing for an
infection, and would not do the non-invasive procedure until the infection cleared up.
So they prescribed him antibiotics...and waited...and waited...and waited. No change. A
radiolabelling of White blood cell scan showed no infection and after 3 weeks of
having a DVT, they FINALLY ruled out an infection... read more

0 replies...

Guess what!...Motivational.
Posted by Chris Jones
Last Reply May 8, 2010 at 21:08
Started May 25, 2009 at 20:34


Evening all.

Just got to say how its been for the last few months.

I have just ran my first 10K since my DVT in one hour. The feeling of elation is so great as i now have felt that i am nearly back to normal after two years post DVT.

May seem trivial to some but i have worked bloody hard to motivate and get my self off my backside and stop feeling sorry for myself and actually get out there and worked and worked at it and now its reaping its rewards.

I cant emphasise enought for the us people with this dreadfull condition to think positive. if anyone wants to read this and try it and i will say, its painfull and it hurts but it feels great just now, Please try, make the effort.

I still take the warfarin and diet well and eat well.

I hope we are all ok and i wish you all well.

Be safe, From a somewhat warm Bonnie Scotland

Chris Jones

12 replies...

how much pain is normal with DVT?
Posted by Stephanie
Last Reply May 8, 2010 at 11:48
Started March 27, 2010 at 16:37
Hi there. I was wondering what people's experiences are with pain management and DVTs.

I fell downb the stairs 5 weeks ago today and went to the urgent care place and got an xray. I had a 'spiral fracture' in my fibula and the doc gave me hydrocodone, an air splint, crutches and a referral to the ortho on Monday.

I saw the orth two days later and he did another xray and said there was no 'displacement' and no need for surgery but said these fractures are very painful and would take 4-6 weeks to heal and that I should take the pain medicine every 4-6 hours and stay ahead of the pain. I went back two weeks later, taking my medicine as I should for a recheck. He xrayed again and said there was no change but that he was concerned about the swelling and tenderness and sent me straight over to the vascualr place for an ultrasound. I ended up spending about 4 hours there.

They diagnosed a dvt in my left leg, proximal to distal, fully occluded and started coumadin and the stomach... read more

3 replies...

on wafarin
Posted by beth
Last Reply May 8, 2010 at 07:28
Started May 8, 2010 at 07:28
Hi everyone i am 35 yr old woman who had my first below the knee dvt may 2009, was on wafarin for 3 mnths, although the swelling in my leg never went away a year past and low and behold may again another dvt in the same leg i have been told i will now be on wafarin for life anyone else had this at this age i also have ahd a kidney transplant can anyone offer me advice pls on self care for patients with dvt thanku all xx

0 replies...

still struggling
Posted by andrea
Last Reply May 7, 2010 at 14:42
Started May 6, 2010 at 22:46
Hi everyone, just need a bit of reassurance from you. I had a small dvt 2 years ago following an injury, and since then have been struggling with anxiety something awful. Doc put me on ante depressents as i had also lost my dad which was a terrible blow and then this on top.Am trying to get out and about but i cant stop all this worry,perhaps im on the wrong forum for advice but this has helped me so much in the past.Many thanks.

4 replies...

"Fitted" Compression Stockings?
Posted by Dan
Last Reply May 7, 2010 at 09:10
Started May 7, 2010 at 04:15
Hello,
I have a simple (I think question). I have read that it's recommended to wear fitted compression stockings post-DVT and for airline travel to help prevent a new occurence.

What is meant by "fitted"? Does that mean custom made for your foot? I did go to a medical supply store and they measured by ankle, calf, etc and recommended some off the shelf brand name hose. Are these considered fitted, or do you folks get yours custom made for your leg?

Thanks a lot!

1 replies...

Preparing for Stent-Questions
Posted by K
Last Reply May 5, 2010 at 17:47
Started May 5, 2010 at 17:47
I am due to have a stent placed for May-Thurner's. Just waiting for a date. All is a bit overwhelming, after many years before diagnosis and now things are moving so quickly. Wondering about the procedure, especially what it was like? Did it hurt? Were you totally awake or sedated? Do I need to worry that there will be no sedation, or is it always with? And local anesthestic at the side where they put the catheter is that right, like a Venogram? The doctor said the expansion of the stent (balloon) would be painful perhaps and the back pain in recovery. How long did your procedure take? I am supposed to stay in the hospital for a few days (history of heart defect etc) and to monitor blood thinners. Would really appreciate hearing your experiences with the stent procedure. Also, wondering about blood thinners which I am supposed to take for 3-6 months afterwards. Oral medication and many trips to the lab or the injections done by myself, that is the decision. Wondering ab... read more

0 replies...

extra leg room when flying?
Posted by suzanne
Last Reply May 5, 2010 at 11:45
Started May 4, 2010 at 16:31
Im due for going on holiday for the first time since i got a dvt 15 months ago,just wondering if i will need extra leg room for 3 hour 4 hour flight?Also will health insurance be expensive?

2 replies...

Walking after DVT
Posted by Faye Grosvenor
Last Reply May 5, 2010 at 07:36
Started March 10, 2010 at 19:01
My Dad had hip replacement surgery in Dec. He felt great after the surgery and was walking around with the help of a walker. 2weeks later he developed a DVT in his groin amd lost all use of his leg from the knee down. he has been on coumiden for 3 months now and still can't walk...Is this normal??/Some doctors say it is and that it could take months before he has feeling yet others say no. He says it feels like his leg is in a vice from the knee down.

4 replies...

how much pain is normal?
Posted by Stephanie
Last Reply May 5, 2010 at 05:02
Started April 16, 2010
I'm in my 6th week post accident- falling down the stairs- broken fibula and "spft tissue damage". Two weeks later, diagnosed a "fairly large", right calf, DVT, and started the injections and coumadin.

I was rescanned 7 days later and the clot was the same- ie not growing or moving. My INR continues to be fairly stable, and I'm contining to ace bandage wrap everyday under my air splint. (can't beqar the compression stocking yet- can't bend my ankle to get it on) I also try to elevate every day just to give myself a break.

I'm not taking any pain meds now, though I was- hydrocodone for 5 weeks or so... but how much pain should I still be in? Last night, I had a PIERCING pain in my calf, deep, enough to really get my attention. But most days I just get late day pain, throbbing and swelling... is this normal?

I'm not scheduled to go back until first week of May for repeat xray for fracture and then re-scan clot at 3 mths. I can't help but wonder if there's something else go... read more

1 replies...

pain after getting home
Posted by sue
Last Reply May 5, 2010 at 05:00
Started June 28, 2008 at 08:48
as anyone else got severe pain like a week after coming home from hospital. i came home 20/6/08 with 2 clots 1 knee & 1 groin, the groin one being really sore. i have managed to hobble around but the pain as intensified after 5 days in the inner thigh area. so much so struggling to even hobble around and cannot put any weight on it. is this normal so fed up at the moment. from being a very active keep fit person to this.

8 replies...

DVT Symptoms
Posted by Machka
Last Reply May 4, 2010 at 18:48
Started January 26, 2010 at 01:39
What was it that made you think you might have DVT? What prompted you to make that visit to the Dr?


Mine started on a flight to Australia. In the last hour of the flight it felt like my left calf cramped badly. Oh well, I thought, I'll walk it off when I get off the plane. But the cramp persisted for the next 5 weeks or so ... and then went away. What relief! But at the same time, my entire left leg started really aching as though my ITB issues were acting up again, only much worse. And I started having trouble walking and breathing and generally doing things ... but I couldn't figure out why.

Then at about the 6 week point, I was sitting in the bath looking at my legs and I discovered two things. 1) My left leg was swollen, and my legs don't normally swell. 2) I had what looked like a little rash around my ankle. I figured I had been bitten by something.

A couple days later, I walked out to meet my husband coming home from work at the end of the day, like I u... read more

6 replies...

Am I safe for long Haul flights
Posted by Martin
Last Reply May 4, 2010 at 12:16
Started April 29, 2010 at 21:05
I had an aterial clot in 2007 then thigh length DVT and Double PE in Sep/Oct 2009 and have been diagnosed with Hughes syndrome (APS). On Warfarin for life now and this appears to have put a dampener on me and the wifes plans to go travelling around the world. Can anybody offer advice on whether I am safe to longhaul (probably 10-12 hours max) Doctor says no but i'm a great believer that they often put up the premature umbrella to avoid the possible fall out. If they tell me it WILL kill me i will probably give it a miss. If they're just covering their backs I may be persuaded to take a chance. What the worse that can happen!!!

3 replies...

had ultrasound month ago pains come back
Posted by svea
Last Reply May 3, 2010 at 11:03
Started May 2, 2010 at 21:28
So I had a ultrasound last month due to right thigh pain, came back clear, also
had a D-Dimer two weeks ago. The pain has come back, but its in my inner
thigh as to when i had the tests it was my inner thigh as to when i had the tests
it was on the ront of my thigh.... I have a phobia of getting a blood clot, doesnt
run in my family ect ect... just a weird phobia.. any ideas?? should I be okay?
getting a blood clot, doesnt run in my family ect ect... just a weird phobia.. any
ideas?? should I be okay? I also went and saw my GP she didnt do anything just
said if I had it checked out a month ago I should be fine, and to stop worrying!

1 replies...

TRAVEL INSURANCE
Posted by LYN WALKER
Last Reply May 3, 2010 at 09:35
Started May 2, 2010 at 20:21
My annual travel insurance was cancelled immediately the company were informed of my dvt.The dvt occured while I was abroad,so I had already been on wafarin & other medication for three months before before I flew home.My doctor has told me I am ok to fly particularly while I'm on wafarin but so far all insurance companies have declined me.Any ideas?

1 replies...

Chronic DVT's
Posted by K
Last Reply May 2, 2010 at 19:10
Started May 2, 2010 at 02:19
Recently diagnosed with 2 chronic DVT's on my right side, one very old in right femoral vein, and the other more recent (2-3 yrs) of right external iliac. Possible May-Thurner's. Bilateral edema, and significant pain which has impacted my quality of life very much. Possible stent suggested for M.Thurner's and treatment of chronic DVT's suggested via graft surgery. I have large engorged collateral veins criss-crossing my abdomen. They will always be there but with treatment they may thin down. Treating the chronic DVT's could really improve my swelling and pain. Waiting to see how things come together, and what the doctor will decide. Scared and hopeful all at once. More scared that I will be left like this than facing the surgery. As hard as it would be I am most afraid of having no hope of getting better. It's been a long journey to this point. Any information or support is most appreciated.

3 replies...

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