DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 169 of 236
plz help really worried
Posted by bev
Last Reply January 16, 2010 at 10:09
Started January 16, 2010 at 10:09
For the past month or so been getting awful pains started in my knees where i couldnt kneel walking down stairs was painful and couldnt stand when sat. Had some steriods and this settled down now for past 3 weeks hd awful pans in my calfs mainly in left one right one feels weak and i have cramp in it at night. My doc referred me for ultra sound a week ago came back negative still scared a clot is there any advice?

0 replies...

CLOTS WHEN ON WARFARIN
Posted by Rachael
Last Reply January 15, 2010 at 09:34
Started January 14, 2010 at 20:45
I had 3 dvt's in my left leg in july 2009, 5 1/2 weeks after having my second son, i have protein s deficiency and was put on enoxaparin injections at 16 weeks pregnant which didn't work as i still had the clots.
I was put on warfarin soon after having the dvts so thats been almost 6 months.
my INR levels have never been stable and the moment 1.9.
I woke this morning with the same swelling and pain the my right leg as i had in my left so i went to my doctor which is 110% sure its another clot, im having the scan tomorrow to confirm it.
I was wondering if this has happened to any one else, having a dvt on warfarin and whats the next step im really worried as im only 31 and now both legs hurt.
kind regards Rachael.

4 replies...

Dvt?
Posted by Bev fox
Last Reply January 14, 2010 at 21:10
Started January 10, 2010 at 20:20
I have had severe constant pain in my left calf for a week now even lying in bed at night. My doc said its slightly swollen and im having a scan 2moz been given blood thinner incase there is one. My other leg feels really weak any advice?

7 replies...

Help
Posted by Hayley
Last Reply January 14, 2010 at 18:57
Started January 10, 2010 at 09:35
Hiya
for the last few days I have had really bad pain in my left calf I rang the doctor
yesturday as I'm 23 weeks pregnant
my doctor told me to go to the nearest a+e for a blood test I didn't go but was
goin to go in the morning I have woken up and my leg feels better what do u
think was it just pain coz I'm pregnant or do u still think it may be dvt
thanks

4 replies...

INR Frustration.
Posted by Angela
Last Reply January 14, 2010 at 18:27
Started January 13, 2010 at 08:20
12/4/09 I had a lateral meniscus repair. 12/8/09 I was diagnosed with a DVT (Right
Calf) in the Emergency Room. I started out on the standard treatment of 5mg
Coumadin and twice a day x 7 days lovenox. My INR at my follow up visit was 1.3
(around 12/11/09). It's obviously been a month now and my doctor has escalated my
coumadin dose to 10 mg/day and I've repeated the Lovenox once for 5 days and once
for 2 days. My INR has finally gotten up to 1.6. In the mean time I have developed
TWO new DVT's; one behind the right knee one in right thighd (confirmed by doppler
ultrasound) and possibly 1 more (unconfirmed...just symptomatic).

Why on earth won't my INR get up above 1.6? I have been very careful with my diet.
At first I just tried to keep my vitamin K intake consistent...now I've cut out ALL green
leafy veggies and other produce high in Vit. K. I'm desperate to get my INR up so I
can quit clotting.

My father had clotting issues but, he also had... read more

3 replies...

Could MS by caused by blocked veins?
Posted by N
Last Reply January 12, 2010 at 16:20
Started January 12, 2010 at 14:00
Could multiple sclerosis by caused by blocked veins?

New dawn? A theory suggests doctors can reverse multiple sclerosis by unblocking the veins to the brain

Some doctors believe MS is a disease of the blood vessels, specifically the veins. The blocked blood vessels allow iron to leak into and damage the brain.

Read more: http://www.dailymail.co.uk/health/article-1242441/Could-multiple-sclerosis-caused-blocked-veins.html#ixzz0cPFr8NVg





1 replies...

What now ?
Posted by Claire
Last Reply January 11, 2010 at 20:29
Started January 8, 2010 at 16:51
I was diagnosed as having a dvt on my right leg & a small one on my left groin
back in august 09, I've been on coumadin since. My gp said coumadin for 8
months as did the hematologist ( twice). Some blood tests were done & came
back negative for clotting disorders , anyway I returned to the hema dr for a 3
month check to find he'd left the office & saw a lady hematologist & she says
there were acute & chronic blood clots judging by the doppler report & I'd need
to stay on coumadin for life . What or who do I believe ?? I'm confused as 2
people are saying one thing & someone else is saying another .

16 replies...

DVT or just unworked muscle?
Posted by Heather Mac
Last Reply January 10, 2010 at 19:13
Started January 6, 2010 at 07:29

Hi there,

Apologies for the length in advance!!

I'm wondering if someone has had a similar experience to mine. I am 25 years old and
about 5 months ago I managed to aggrevate an old knee condition (actually, it's one
related to ischemia/bone death).

Get this: Ever since then I have been on crutches. Waiting for surgery. Yes, I am on the
'fast tracked list' Thank you Canadian health care. Also have been off work, keeping
leg up.

I'm also on Yaz (bc pill), and because I have pcos, have slightly elevated triglycerides.

I don't know if I am overreacting to this or not, but here's the situation... My foot has
been swelling and turning purple since I injured my leg, so that's nothing new...and I
had been going to regular physiotherapy up until Christmas...

Ever since I have taken these couple weeks off (leg up, not moving much), my entire
calf and halfway up my thigh has been turning purple with these white blotches, and
swelling slightly. M... read more

12 replies...

recent extensive dvt diagnosis
Posted by Amy
Last Reply January 10, 2010 at 19:00
Started January 10, 2010 at 15:56
I am 33 years old, was taking contraceptive pill and am diabetic. Apart from that, was
completely healthy and active. I developed a bad pain in my leg which continued to
large amount of swelling. After an ultrasound I was diagnosed as having extensive
below and above knee dvt with one at groin. This was last week. Since then I am
injecting 0.55 Heparin and taking 5mg warfarin. I feel no pain when lying down or
sitting very still, but in agony when i stand or walk even a few feet.

I understand everyone is different, but what can I expect? Will the pain subside soon,
how long will the swelling take to go, will i be able to walk again soon? Is there hope
of full recovery from this?

Any advice appreciated

1 replies...

Lowest, Safe INR and Flying
Posted by Brittany
Last Reply January 10, 2010 at 18:13
Started January 10, 2010 at 17:24
Anyone have any idea on what is a safe INR level to fly with?

I am supposed to be between 2 and 3. Getting blood checked tomorrow and then doing about 15 hours (London to Chicago- the long haul, plus two other shorter flights) on Wednesday.

If my INR turns out to be low...do I keep my plans and still fly out?

PS: work for an airline, so I can be flexible about travel dates.

Thanks all.

1 replies...

wafarin / alcohol
Posted by girls night out
Last Reply January 10, 2010 at 16:10
Started May 8, 2008 at 14:23
On wafarin due to blood clotting. Got out of hospital asked my doctor if I am able to go to my girls night out party at the bar. The doctor told me it would be fine to do that.My family freaked and wants me to not have any alcohol. Any remarks on what anyone else was told. My family thinks my doctor is out of his mind to tell me that it would be fine.

15 replies...

recent extensive dvt diagnosis
Posted by Amy
Last Reply January 10, 2010 at 15:54
Started January 10, 2010 at 15:54
I am 33 years old, was taking contraceptive pill and am diabetic. Apart from that, was
completely healthy and active. I developed a bad pain in my leg which continued to
large amount of swelling. After an ultrasound I was diagnosed as having extensive
below and above knee dvt with one at groin. This was last week. Since then I am
injecting 0.55 Heparin and taking 5mg warfarin. I feel no pain when lying down or
sitting very still, but in agony when i stand or walk even a few feet.

I understand everyone is different, but what can I expect? Will the pain subside soon,
how long will the swelling take to go, will i be able to walk again soon? Is there hope
of full recovery from this?

Any advice appreciated

0 replies...

Comfort
Posted by Shaun
Last Reply January 9, 2010 at 20:27
Started January 7, 2010 at 07:40
Hi All,

After 18 months suffering DVT's it is very comforting to come across this forum.
In a nutshell, I developed a DVT from my right ankle to just below my navel 4 weeks after a somewhat botched angiogram.
I was immediately anticoagulated with Clexance injections and Warfrin.
Four weeks of injections and that was it other than trying to keep my INR betwwen 2.5 and 3.5.
8 weeks ago I went for a doppler to confirm no residual DVT and to come off Warfrin...at last.
Unfortunately things didnt go so well. I have residual clot in the popiteal....then the fun starts. Iliac right and left leg completely occluded right through to above the liver including renal veins.
The thing is the extent of this clot has never been identified with previous dopplers and other ultrasounds completed and yet the vascular surgeon says there is no way to identify this as a "warfrin fail". Thank God for the superficial collateral veins otherwise I would be in a bit more strife!
The thing is, they... read more

3 replies...

Genetic Testing for hyperclotting?
Posted by Carolina
Last Reply January 9, 2010 at 10:21
Started January 7, 2010 at 23:02
I was diagnosed with a small clot in my left leg a month ago. At the time of diagnosis the doctor asked me the regular questions: do you smoke? do you use birth control pills? have you been inactive for a while? etc. Most of the answers to these questions were "no", so the doctor asked if there was any history of clotting in my family. I said yes, both my mom and sister had clotting issues (my mom died of a pulmonary embolism and my sister had a stroke that paralyzed the right side of her body).
My doctor says he wants to do some genetic testing to verify hyperclotting running in the family. Have you or any member of your family have been tested for it? If so, what should I expect in terms of testing? If the test(s) come back positive, what was the treatment that your doctor ordered?



6 replies...

6 month follow up sonogram showed DVT is gone
Posted by MaryAnn
Last Reply January 9, 2010 at 06:41
Started January 3, 2010 at 07:32
Now that the DVT is gone ( it was in my right calf) what is the next step? I am going to the pro time clinic to check inr level next week.
Once I tell them the results of the sonogram are they going to take me off of coumadin? At first, I was so afraid to be on it but now I feel as though it's my lifeline. Keeping me safe from blood clots. Will they tell me to stop at once or wean me off?? This has been a very traumatic experience for me and I started taking Zoloft for anxiety (panic attacks) and depression. I am happy the blood clot is gone but what now? I know I am not alone and I wish everyone here a speedy recovery and good health . Thank you in advance for your comments.

5 replies...

Stocking questions
Posted by pamela
Last Reply January 9, 2010 at 02:04
Started January 6, 2010 at 06:18
I bought 1 pair of the Mediven Pluses... I've been working out only 3-4 days a week,
so I've staggered the wearing and the washing the two on my affected leg over the
week. I clearly need another pair to step up the workouts and not have to kill myself
with laundry. I've been washing gentle cold, air drying, etc.

When you spend in the 55-70 dollar range (Medivan, Jobst, or similar) for a pair,
about how long do they last?

Do you notice any difference between toe and toeless when it comes to your comfort
doing a lot of walking, esp. when you are wearing socks over your stocking? I need
petite length, so I can't do the socks or other options I might otherwise pursue for
working out, they just aren't small enough.

And ladies, I have nails and I'm not giving them up.. so far I haven't needed to. But are
the sheer ones different- is there a greater risk of sticking a fingernail through one?

Much thanks, I have to weigh whether I just get one more pair or t... read more

1 replies...

Other Warfarin Affects
Posted by Tim
Last Reply January 8, 2010 at 20:50
Started January 8, 2010 at 20:50
All:

Decided to start a new post even though there are others with Warfarin Side Affects. Thought it might be helpful to get "fresh".

I have been on Warfarin for 6 months now for a massive DVT in my left leg, ankle to upper thigh. I live in Minnesota where, as many of you know, it gets a little cold. I have noticed over the last couple or few months that both legs are now showing discoloration (pink to red to purple) when I stand without moving for any length of time. At first this was only with the affected leg, but has now moved to the good (right) leg. This has seemed to develop as a worse condition as the weather as gotten colder and I've been wondering if it's a combination of cold weather and the Warfarin. Another note: I walk for an hour or so daily always outside which as been tough as the tempatures have dropped to sub-zero, and that also seems to bother both legs. Any thoughts or ideas from the community?

0 replies...

Pinching feeling infront of knee
Posted by cquesada
Last Reply January 5, 2010 at 21:18
Started January 5, 2010 at 21:18
Hello everyone,
I was diganosed with a small blood clot in my left leg about a month ago. I've been in warfarin ever since and feeling all kinds of funny things (the fluttering, a mild pain that only lasts 1 min. and it goes away, etc). Today I woke up with a pinching feeling in my right knee, but it is in the front, not in the back. Could that be another clot? I only feel it when I flex the knee or when I walk, and it is very localized. I was wondering if someone had that kind of pinching pain too. Thank you all in advance!

0 replies...

I'm worried I'm on the wrong drugs for my dvt
Posted by Dorothy
Last Reply January 5, 2010 at 15:16
Started January 5, 2010 at 15:01
I have recently been diagnosed with deep vein thrombosis. After a two-week spell in hospital, I was prescribed aspirin and simvastatins twice a day.

I have since been informed that this is a lifethreatening condition and I should be taking warfarin or the equivalent. I need some advice!


3 replies...

Activity questions
Posted by Bill
Last Reply January 4, 2010 at 21:34
Started December 29, 2009 at 03:53
Hello All,

First I am very grateful to have found this forum. I was diagnosed 10 days ago with an extensive thrombosis, groin to mid-calf, left side. No discoloration, minor swelling and now very little pain (had a lot of pain for several days before diagnosis).

I have several questions: Is it okay to exercise (I like to do brisk walking several times a week). What about sexual activity? Any chance to exacerbate my condition? How much alcohol (if any) is acceptable?

Finally, I'm taking coudamin and still adjusting the levels but in the meantime, I'd like to start some alternative treatments (natto, butcher's broom, homeopathic remedies, etc). Does anyone know if this is a bad or good idea? Should I only be taking the coudamin or is it okay to begin some alternative treatments?

Thanks so much for your help!

10 replies...

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