DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Seasonal Greetings.
Posted by Chris Jones
Last Reply December 26, 2009 at 08:05
Started December 14, 2009 at 17:46

Hello.

This is a quick post just to wish ALL of the users of this fantastic usefull informative site a Very very erry Christmas and all the best for the New Year and into 2010.

Lets all add to this and keep it going.

I will be having a single malt or two on Hogmanay!!

Medicinal of course!

Be Safe.

Chris in Bonnie Scotland.

10 replies...

Colds, etc
Posted by Tim
Last Reply December 26, 2009 at 04:51
Started December 22, 2009 at 16:00
Diagnosed with DVT in July of this year.....upper thigh to ankle...extensive. However, the DVT seems to be resolving itself quite well with ultrasounds showing increased blood flow through the affected veins. Still have plenty of discoloration, but am wearing the compression socks religiously. I also have been walking extensively (1 hour a day) and am doing light weight training 3 days per week. Potentially diagnosed with Lupus Anticoagulent. Question: Does anyone find themselves more succeptable to colds, flu, etc.? I had a horrible cold like one I had never had before that took 3 weeks to get over. Been well for a couple of weeks, but now feel like I am getting sick again. Swollen lyphe nodes, etc. Just wondering if others find themselves getting sick more often than normal with DVT. Frustrating. Maybe I'm pushing myself too hard?

8 replies...

Misinformation & Panic
Posted by JoeR
Last Reply December 23, 2009 at 17:09
Started December 18, 2009 at 03:03
First I'd like to say I am a lifer on coumadin. No side effects. Relatively low dose of 2.5 mg keeps me at 2.5 on INR...
Coumadin was first found on mouldy silage, and is present in many plants. It occurs naturally so you could get ORGANIC coumadin.
While the anti-coagulation effects were and are used for rodent control, the DIFFERENCE between a poison and a medicine is the dosage. Did you know you could overdose on WATER, by drinking too much. You can also drown in it if it goes above your head, but we swim in it all the time.
And the bleeding to death thing... I have cut myself MANY times and the wound bleeds a little more, but STOPS... I shave with a razor... Legs and face... Nicks all over the place but no pools of blood.
If you feel coumadin is causing bad side effects, I would bet that most of it is caused by your nerves and paranoia...

For me coumadin is like taking an asparin every day... Not much of a variation in my INR... And eating greens does NOT affe... read more

6 replies...

flying and injections
Posted by SUZANNE
Last Reply December 22, 2009 at 15:29
Started December 18, 2009 at 15:46
I was told today by the doctor that i wouldnt need heparin injection when flying unless i was going as far as new zealand,im in the uk!Has anyone else been told the same thing?I was on warfarin for a year.

3 replies...

Just Diagnosed with DVT
Posted by Vicki
Last Reply December 21, 2009 at 20:22
Started December 20, 2009 at 18:31
Hi I am 36 years old and was diagnosed on monday having DVT in my left leg, in the groin area and behind my knee. I was devasted, its such a scary experience. This resulted from a torn calf muscle injury, that happened 4 weeks ago. When I saw my physio she told me there was nothing wrong with me, thank goodness I went to my doctor. I have been told to wear the Teds the hospital gave me which I have been doing and I receive daily injections and take warfren. The doctors think I need treatment for 3 months or maybe 6. My leg was only slighty bigger and a bit red, it was uncomfortable, but I wasnt in agony. Has anyone had a similar experience. Do you ever fully get back to normal, Im not as bad as a lot of people on this site, but I am very confused about this condition, I dont really know what to expect. Should you always wear the support stockings even after your treatment finsishes? and can the warfren make your hair thin in the 3 to 6 month period? is a clot more dangerous ... read more

4 replies...

Word of encouragement
Posted by Karl
Last Reply December 21, 2009 at 06:13
Started December 21, 2009 at 06:13
A month and a half ago I got my filter taken out and went of Coumadin a few weeks later. It took about 2 weeks for all the side effect to go away and I am feeling very healed and you will too.

I had a massive clot behind the knee and to PE's and was able to get off Coumadin after only 4 months.

I think My DVT and PE's healed so fast because I was taking Natto the whole time.

Good luck fellow DVT'ers

0 replies...

I have a list of questions...random ones
Posted by imateacherofmusic
Last Reply December 20, 2009 at 04:23
Started December 13, 2009 at 03:57
1. Shoes?! What is recommended for shoes that are not going to make me look 80, not hurt the h*ll out of my foot after I've walked four steps? I need casual and dress shoes.

2. Am I bound to a life of not wearing shorts ever again? I feel freakish. I know many of you have assured me that the swelling "should" go down, but does that mean my leg will look relatively normal or still be big?

3. How purple are toes to be classified as "Purple Toe Syndrome?" I noticed my left foot looks a bit discolored. Does this mean both feet are affected?

4. Is Coumadin the MOST effective thinner? My current doc is planning that I am on it for a year. I have Factor V Leiden and he says one year is plenty of safeguard. I know I felt terrified on the last day of chemo, and I know I WILL feel terrified the last day of Coumadin. What do people do to safeguard themselves once treatment is complete? Baby aspirin? I read that Reservatrol is a thinner, do people use that? I am still un... read more

11 replies...

New Warfarin taker
Posted by olivia
Last Reply December 19, 2009 at 16:21
Started December 19, 2009 at 01:01
Hi everyone.
Just found this site. Bringing my 89 years old dad home on Monday.
Blood clots now dissed, on emphysemic lungs. He's been put onto
warfarin. My problem is ... he's anti tablet and plays with
when/where/if he takes 'em. He's 'heard' of a friend who died because of
warfarin yada yada etc ...I am trying to anticipate & learn side effects
to keep him taking them for his life's sake. Can any of you give me
positive reasons that will make sense to him as to why he must take
warfarin despite the side effects? Thanks in advance.

1 replies...

thank you for all the help
Posted by imateacherofmusic
Last Reply December 16, 2009 at 17:50
Started December 15, 2009 at 15:34
I hope you all don't mind I am doing a seperate thread, but I wanted to offer my sincere thanks and gratitude for the info you've all shared thus far. It's helping ease the anxiety quite a bit.

Now, that being said, can you free me of anxiety altogether? ; )

1 replies...

What do you do when you get a false negative?
Posted by imateacherofmusic
Last Reply December 15, 2009 at 13:17
Started December 9, 2009 at 23:17
I keep getting frustrated when I think about how I told doctors about the very same pain (now a DVT dx.).

Does anybody ever take legal action?

Not that I am inclined to be a person who will sue at the drop of a hat, but this clot business just has me floored.

With cancer, I fought it, treated it, and recovered.
This freaking clot will never leave me alone. I am forever changed by the stupid clot I tried to tell doctors about nearly a YEAR ago!!!!

And thus, I wonder if anyone else gets angry enough to take legal action. I know doctors/techs are only human, but so are we, and our human status is at risk because of an undiagnosed clot.

PS-does Coumadin make people incredibly grouchy?!?!?!

Thanks.

10 replies...

Compression Stocking Advice
Posted by Saj
Last Reply December 15, 2009 at 02:15
Started December 7, 2009 at 14:04
Hi

I need advise on compression stockings(full length) which have support around the waist to prevent them from slipping down.

It's quite a task to wear them all day long and constantly be aware of them slipping every now and then at work.

Regards

Saj

2 replies...

blue toenails
Posted by Laura
Last Reply December 14, 2009 at 19:45
Started November 26, 2009 at 16:25
Hi I have recently had a DVT and PE and was in hospital for 3 weeks. I am currently suffering from all the usual effects such as aching and painful leg. I am also awaiting a heart scab as my breathing is still not good. My INR is never stable and I have never had it to where they want it. Anyway my question is has anywhen else ever suffered from blue toenails, I have only noticed this in the last couple of weeks and am a bit confused about it. Thank

6 replies...

New drug option that could cut the risk of blo
Posted by N
Last Reply December 14, 2009 at 18:28
Started December 8, 2009 at 15:06
New drug option that could cut the risk of blood clots
By Daily Mail Reporter
Last updated at 1:21 AM on 08th December 2009

A blood-thinning drug could change the way thousands of patients are treated for blood clots.
Pradaxa is almost one-third more effective at reducing the risk of bleeding in at-risk patients than warfarin, which is based on rat poison.
Warfarin, which is also given to patients at risk from lung clots and heart attacks and is still used in large doses to kill vermin, has been used to prevent strokes since the 1950s.
But it is inconvenient for patients because careful monitoring and regular blood tests are needed to stop excessive bleeding from cuts or stomach ulcers, requiring frequent clinic visits.

Pradaxa works by reversing and inhibiting the effects of thrombin, which is the substance responsible for clotting

The results came from a 25,000-patient trial looking at those who need continuous blood thinning treatment for venous thromboembolism,... read more

5 replies...

aRE BETA BLOCKERS OK TO TAKE?
Posted by D
Last Reply December 13, 2009 at 04:28
Started December 12, 2009 at 02:05
i WAS WONDERING IF PROPRANALOL IS OK TO TAKE IF YOU HAVE CHRONIC DVT AND PTS? I have poor circulation especially blood being pumped back up my leg leading to swelling.

I used to be on these beta blockers before i had dvt for heart palpitations caused by anxiety. I read on the leaflet of propranolol that they can slow your heart down enough to make bad circulation worse

My GP will give me them and not have a clue probably so i need advice. I really am having bad anxiety related palpitations again and these tablets really do a great job for me. So i have to weigh up the pros and cons. Thanks in advance..

2 replies...

death from DVT & PE in pregnancy
Posted by susan
Last Reply December 12, 2009 at 20:13
Started December 10, 2009 at 14:10
My 29 yr. old daughter died 6 mts ago from DVT in her iliac vein & apulmonary embolism. She was nine mts. pregnant & her baby died the next day from lack of oxygen.(They took the bay form my daughter's dead body). Her dr. did not listen to her complaints & passed them off to "normal" pregnancy symptoms. She had a lot of pelvis pain & what seemed like muscle cramps in her hip--they passed this off to sciatic nerve. She had a few near fainting spells & rapid pulse & shortness of breath they passed off as normal or the bay pushing on the vena cava. Two days before she died I noticed her left ankle only was swollen. The dr. had seen her that morning & did not notice it. She had a bad cramp in her leg/hip the day she died, collapsed & died within a few minutes. I am thankful her husband was with her & she did not suffer, but we are so devastated she & her beautiful little girl are gone....

3 replies...

CIRCULATION BO0STER
Posted by NAT
Last Reply December 12, 2009 at 19:35
Started December 12, 2009 at 19:35
HI ALL. RECOVERED FROM DVT WANT TO KEEP HEALTHY JUST GOING TO SPEND ON A CIRCULATION JUST WONDERED HAS ANYONE TRIED CIRCULATION BOOSTER? IS IT WORTH THE MONEY?
NAT

0 replies...

herbal medication/alternative therapy
Posted by kt
Last Reply December 12, 2009 at 18:56
Started December 12, 2009 at 18:56
Hi does anyone take any herbal medication or use any alternative therapies to help with dvt or prevent them.
kt

0 replies...

can sweets bring yr inr up
Posted by donna
Last Reply December 12, 2009 at 09:25
Started December 11, 2009 at 19:36
can herbal sweets bring yr inp level up

2 replies...

Woman loses legs after getting so drunk she fe
Posted by N
Last Reply December 10, 2009 at 18:50
Started December 10, 2009 at 18:50
Woman loses legs after getting so drunk she fell asleep on her knees

Pa. woman who drank herself unconscious sues hospital for resulting leg amputations
Associated Press
Last update: December 9, 2009 - 9:35 AM

UNIONTOWN, Pa. - A western Pennsylvania woman who drank herself unconscious celebrating her 20th birthday says a hospital didn't properly treat her, resulting in partial amputations of both of her legs.

Shanna Hiles' medical malpractice suit against Uniontown Hospital and one of its emergency physicians says she passed out while sitting on the floor with her legs tucked under her in May. Hiles was in that position for more than 12 hours, and she claims hospital officials didn't properly diagnose her condition and work to restore circulation to her legs.

Instead, Hiles claims she was transferred to a Pittsburgh hospital several hours later where both legs were amputated at the knee.

A hospital spokeswoman has declined to comment on the suit filed Tuesday.

... read more

0 replies...

What's it like to get a filter? Better/worse?
Posted by imateacherofmusic
Last Reply December 10, 2009 at 14:27
Started December 9, 2009 at 23:01
As I progressively grow more irritated at Coumadin, DVT, swelling, numbness, belly aches that are impossible to describe, etc., I can't help but wonder about those filter thing-a-ma-bobs.

How is it put in? Is it "real" surgery where you are put to sleep?

Is there a threat of further clots?

Does it feel funky when you walk? I don't know if I can handle anything else synthetic inside of me (2 breast implants from breast cancer, a crapload of mesh in my belly from this last surgery).

Is it more effective? Less effective? Safe to do a year of Coumadin then do the filters?

Do I get them put in both legs?

Thanks for the help. This site is the best!

1 replies...

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