DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 198 of 236
walking
Posted by suzanne
Last Reply December 1, 2008 at 03:54
Started November 27, 2008 at 18:18
im a 26 year old woman,who came out of hospital 3 weeks ago,ive got a very big clott at the top of my leg.i am having to use crutches as can not yet walk on my left leg,is their anyone in the same position as me?the doc said to me that has not seen many people who have dvt that have had to use crutches.

3 replies...

To Alan in Australia
Posted by Joe USA
Last Reply November 30, 2008 at 18:01
Started November 30, 2008 at 18:01
Alan in Australia Posted: November 29, 2008 at 15:41

A week and a half ago I suffered severe pain and swelling in my right leg over about three days. I have had other injuries and gout before so I took some anti-inflammatories and the pain went away by the weekend. Then on Sunday I experienced severe chest pain, which I assumed at first was pericarditis (I've had an effusion once before) and took some naproxen. I also had bad pain in my left lower back above the kidneys - didn't realise it was the bottom of my lung at the time, so bad I couldn't lie down in any position. By about 2am Monday morning I couldn't take it any more and went to hospital. After blood tests, ultrasound, X-Ray, and finally a CT Scan I was diagnosed with multiple PE's in both lungs plus a chest infection and the doctor told me if I hadn't gone to hospital I would quite probably have died by Monday night.

Alan - Im curions specifically about your experience with GOUT... I too suffer from GOUT and fee... read more

0 replies...

uk sites
Posted by ellieuk
Last Reply November 29, 2008 at 18:20
Started November 7, 2008 at 21:19
Can anyone advise me as to good uk forums - used this one and very useful but US/other countries experiences/meds quite different. Have lost touch thro comp glitches with group who were going to do thro MSM (which I still dont have despite trying). Am in West/South Yorks area (if that helps NHS wise) but interested in anyones experiences (mine have not been particularly good or perhaps I ask the wrong questions).

8 replies...

:) Happy Thanksgiving!! :) 2008
Posted by Joe
Last Reply November 28, 2008 at 17:44
Started November 26, 2008 at 17:04
TO the DVT family on this forum.

Let us give thanks for this forum and the great people that lend an ear, give comfort with their words.

I have found great advise here and have learned so much...

THank you Char, John In Dallas, Tom in CT, Michelle, Sharon, dero, and others for all your kind and informative Words!

And thank you Rob, our moderator!

6 replies...

HOPE YOU'RE OK
Posted by ellieUK
Last Reply November 28, 2008 at 17:38
Started November 28, 2008 at 16:12
Rachael -
i've tried to reach you - but not possible (whatever). Hope you are ok!

2 replies...

Warfarin for life
Posted by Joe
Last Reply November 28, 2008 at 13:49
Started November 26, 2008 at 16:54
I am a two timer for DVT's and suffered my first diagnosed PE, although I believe I have had undiagnosed PE's before...

I would consider myself a canidate for life long coumadin... However my doctor said that I only need to be on warfarin for 6-9 months...
And I seem to recall that he WAS an advocate of life long coumadin, but has changed his opinion... Has the Medical community changed their position on prescribing Warfarin "life long"?

My INR is stable at 3.5 mgs per day...

At this point I WANT to be on coumadin permanently... Opinions Please?
And
At some point decrease the dose to 2mgs per day as a low dose prevent strategy? Opinions?



3 replies...

Anyone concerned about ulcers?
Posted by Sarah
Last Reply November 27, 2008
Started November 22, 2008 at 06:05
hi,
just wondering if anyone is having issues with ulcers? My leg seems to be doing pretty good but I was told by my vascular surgeon that my veins are incompetent and I have valve damage. I wear the support hose religiously and have very little swelling, but I still worry that down the road I'll get venous ulcers. Anyone have info or experiences to share? I've been much more optimistic lately but I can't help but get scared about what the future holds.
thanks, Sarah

2 replies...

D-Dimer Question
Posted by Rui
Last Reply November 26, 2008 at 23:28
Started November 26, 2008 at 10:24
If a D-Dimer is normal, doe sthat mean that clotting or further clottting can't be occuring??? I ask because i am over 2 years past the intial diagnosis and the ultrasound still "shows something" and apparently, it was "more" last time, as opposed to previous time , but blood is flowing freely and i have been off coumadin for months! D-Dimer has been ok and I think that the doc feels that it's "just" post DVT syndorm. I feel fine aside from at end of day my left leg being a bit bigger.

4 replies...

Possibl;e reversal!
Posted by Rui
Last Reply November 25, 2008 at 15:34
Started November 25, 2008 at 13:54
In August, after an ultrasound, I was told that there was so little clot that it was "gone", now, in Nove., the tech told me that there is a bit more ( I have not seen the doc yet ). I have beem off Coumadin for about 6 months and the DDimer ( if that is how it's spelled ) is normal. Anyone have any thoughts on this?? Are Ultrasounds an "exact science"??? I feel the same as I did 4 months ago!

3 replies...

Health stories from around the world this week
Posted by N
Last Reply November 25, 2008 at 04:26
Started November 13, 2008 at 21:51
1. How apples takes years off your arteries

A rare breed of English apple has been found to increase blood flow and relax the arteries, making them ten years younger.

Evesse apples are a rich source of polyphenols, which increase blood flow and relax the arteries.

Just a tumbler full of Evesse juice is the equivalent of eating 30 of the red-fleshed apples, and makes the arteries ten years younger than their actual age.

An ingredient made from the apples will be used as a liquid and powder supplement and added to food to help people maintain a healthy circulation.

Studies by the Institute of Food Research in Norwich show that this ingredient, also known as Evesse, works on arterial stiffness within 30 minutes, with the relaxing effect lasting for up to eight hours.

Evesse is at present available only in a fruit juice called RDA, on sale at Waitrose stores.
read more

9 replies...

Consumer Electronic SuperStore!
Posted by RachelRose
Last Reply November 25, 2008
Started November 25, 2008
After doing multiple searches on a cheap http://www.compubizusa.com - laptop, i could not find a perfect match on a specific site that has good deals and service. After entering the site compubizusa i had found great deals on so much more then only laptops. Every computer accessory i could imagine was there. Everything i needed for a great christmas present for my son, if you need anything computer related you should visit them for great deals!

0 replies...

Previous DVT off Meds
Posted by gsl5343
Last Reply November 24, 2008 at 22:58
Started November 24, 2008 at 22:58
I have just recently finished off my coumadin therapy after 6 months. I need to have
surgery and will automtically be put back on coumadin. Anyone have any idea the length
of time I will need to stay on it after surgery? I am having a hysterectomy.

0 replies...

6 weeks Lovenox postpartum
Posted by Eli
Last Reply November 23, 2008 at 02:31
Started October 23, 2008 at 19:45
I have been taking baby aspirin and a high dose of folic acid as well as fish oil, and am
now 35 weeks pregnant. The dr.s say they want me to inject myself with Lovenox for 6
weeks postpartum because the postpartum period puts women with clotting issues at an
even higher risk than during pregnancy. I have never had a clot, and no one in my family
has either but I was diagnosed with prothrombin gene mutation and MTHFR after having
one miscarriage. Have any of you done the postpartum injections? I am afraid of taking
this medicine in case I don't really need it... I really don't know what to do, and can't
seem to find a hematologist or high risk OB in NYC who is up to date on the research
and is willing to take the time to go over all this and come up with a plan of action for
me. My OB says that since the baby has been growing well, it is unlikely that I have an
issue with clotting at this point, but to be 'safe' (and to cover his liability...) he
recommends the... read more

3 replies...

inr
Posted by jayne
Last Reply November 22, 2008 at 22:39
Started November 22, 2008 at 22:39
had small dvt 3 months ago, behind my knee, caused by an injury and being immobile. Last 3 blood tests were 1.9 so didnt have to have another inr test for 4 weeks as they were stable.(Even though the dose of warfarin was increased they stayed the same) Had result back this morning and my inr had gone down to 1.7. I just done know whats going on. I get my bloods done at the docs and they send it off to the inr path lab at the hospital, so its being done properly. Im so scared that something will happen or am i just panicking. Any reassureance will be greatly recieved. Thanks.

0 replies...

liveing with a DVT.
Posted by Rachael Hall
Last Reply November 22, 2008 at 05:19
Started November 20, 2008 at 01:56
hey guys, my names Rachael Hall and im only 16 and i was told i have
a DVT just over a month ago. I remember the morning of the 25th of
sep, i woke up and was walking around and i noticed my left leg was
abit stiff, and then later on that day i noticed it was alot purpler
then the other leg, i figured id been bitten by a spider or something
and just left it. Later that night aroud 9ish it was getting so bad
i couldent even walk it was that stiff and it hurt a little, so my
mum took me to hospital and they took me in straight away i was so
scared when they said it could be a clot.
They took me in for an ultrasound but had found nothing so the next
morning they took me to RBWH(royal brisbane and womans hospital)
there i was taken for a chest x-ray and another ultra sound but they
still found nothing.
i was told to stay over the weekend because monday i would have a mri
and a cat scan where they still found nothing. one more unltrasound
and they finally found it. It we... read more

2 replies...

Child DVT
Posted by Chantrelle
Last Reply November 22, 2008 at 04:27
Started September 15, 2008 at 16:29
My name is chantrelle and my daughter Chelsey of only 13 years of age has recently suffered from DVT all up her leg. On a monday morning she felt pains in her groin that were causing her a lot of pain but we thought it was a pulled groin. By wednesday there was no change in the pain and she was struggling to get around the house as she could not walk because the clot had spread down to her thigh area. On thursday we took her to the doctors who didnt know what it was herself but finally came to the conclusion that it was bowel problems but she was wrong. On friday morning she could not walk atal and was rushed to A&E as was admitted to hospital for 9 days and was then sent home on a 5mg dose of warfarin and colexaine. The clot had spread all down her leg and also her abdoman. The cause is unknown for the time being but her great auntie suffers from Thrombolia or the cause was a mixture of a 4hour flight 7 weeks ago before admittion to hospital and the contraception pill for acne. Her... read more

8 replies...

Blood tests if INR is high?
Posted by Steve
Last Reply November 21, 2008 at 20:47
Started November 21, 2008 at 02:20
I am new to DVTs having had it discovered about a week ago. I will be tested twice a week initially at a blood lab at the hospital. My conern is that if my INR eventually goes high (say 3+), what is to prevent me from excessive or untrollable bleeding when the person taking the blood at the lab for my tests to check the INR?

I realize there are places that can take samples via a finger, but at this point my doctor has told me to use this lab which extracts the blood into a small vial.

Thank you very much.

5 replies...

WHY SO MANY YOUNG/FIT?
Posted by ellieuk
Last Reply November 21, 2008 at 18:36
Started November 21, 2008 at 18:36
Thanks SJ!!!!

Just got this thread! Initally went on due to concerns over flying in Aug and (perhaps I realise in retrospect - not being overly happy with professional advice)

I was told by GP that I was breathless/useless as I was too fat. Honest - I'm not fat - well a lovely rounded figure - I like to think!!

I find it dreadful the advice being given by professionals. I'm 43, was fit/active walked, swam, physical job, busy - Now had umpteem DVTs (they really dont know do they how many as scans give poor results?) & Multiple PEs both lungs). Told by GP when reported problems to get fitter and go to gym/swim/walk (which I do and did anyway). In retrospect it was my problems that were causing a lot of my inactivity - I couldnt walk more than a few 100 yards without gasping for air or walk stairs etc! Swimming (which requires a lot of oxygen) was a joke! Job got really hard to do! I believe I lost a lot of my fitness because of illness and not as a consequence!

S... read more

0 replies...

swelling
Posted by Susan
Last Reply November 21, 2008 at 15:41
Started November 20, 2008 at 15:44
Hi It has been 4 weeks since my DVT and 2 PE I am back to work now which is alot of standing. When I get home my leg is huge and gets very itchy and red. My INR is 2.5 and I have no pain is this normal, and will it eventually get better, or is there something I can do to help prevent this???

11 replies...

any UK experience DVT/PEs
Posted by ellieuk
Last Reply November 20, 2008 at 18:02
Started November 9, 2008 at 22:07
Will try again - most of you from US (good luck to you all) but UK experiences vary widely from US - anyone out there with experience of ITP/DVTs/PEs (multiple)? I just seem to know nothing (and get no answers when I ask). Dont know where to go!

11 replies...

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