DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Upper Extremity DVT
Posted by Emma P
Last Reply March 18, 2016 at 17:36
Started December 10, 2006 at 18:23
I am 29, fit, non-smoker (quit about 2 years ago) and not on any oral contraception. In Sept I woke up with a very painful pink arm. I was very lucky and admitted to hospital by my GP that day. I have had a huge number of tests carried out and they are still unable to find out what has caused it. The docs told me that it should have gone within 3 months but I am still very aware that it is there.

There seems to be so little information about dvt in the arm (mine was found in the axillary vein) and I am finding it harder to deal with because the doctors seem to know even less. What I did find out on the internet the doctor even asked me for a copy of.

Does anyone know how you can be sure the clot has gone? I am so paranoid every time i get a slight twinge in my chest or my arm goes pink or starts hurting. I daren't go back to the gym or do anything strenuous. I feel like my doc fobs me off but if we don't look out for our own health who will?

What about having it surgica... read more

62 replies...

PE and Warfarin help
Posted by Kelly
Last Reply March 18, 2016 at 12:05
Started March 18, 2016 at 12:05
Hi. Last November I had bronchitis and had horrible pain when I
coughed. Not the normal pain you might get from coughing while sick,
but a very sharp pain. I ended up going to the ER, they did a CT and
said I had a small pulmonary embolism and put me on a blood thinner
and sent me home. Two days later I ended up back in ER, they did a
second CT which did NOT show a clot at all. Went to hematologist who
said I had to take Warfarin for six months, regardless of the second
scan that did not show a clot. I am four months in on Warfarin and
feel horrible. I have a lot of headaches and upset stomach most days.
I have also had a constant sore throat, but am not sick. The weirdest
thing is my face feels like it is on fire all day long. My face is so
hot and it makes me feel feverish, even though I don't have a fever. I
told my hematologist all of this and he seemed annoyed and told me
that none of these things would have anything to do with the Warfarin.
I did ha... read more

0 replies...

Posted by Tammy
Last Reply March 17, 2016 at 15:51
Started March 17, 2016 at 15:51
I have had a DVT for 10 years this year.. It starts in my knee and
goes all the way in to my stomach... I was on Vic 10s for years
well my back is injured and now they are waiting for surgery and
for some unknown reason Doctors believe everyone is out to get
DRUGS... I had to switch docs cause i moved oh my gosh i have been
at the hospital 2 times in a week the pain in my leg is so
bad....So im telling you PTS does not go away!! I have tried every
over the counter meds out there... I cant live a normal life
without Narcotics... Im scared of the stronger ones any ideas on
whats a little better than VICs but not gona make me an addict?

0 replies...

Right subclavian dvt
Posted by Barbara
Last Reply March 17, 2016 at 12:36
Started August 21, 2010 at 18:46
Does any1 have a chronic dvt in their subclavian area? If so how was it treated?
I am still on anticoagulant 1.3 yrs and my subclavian vein is completely
diseased? Can this spread or grow? Thanks for any info

63 replies...

Leiden Factor V
Posted by PAM
Last Reply March 17, 2016 at 10:40
Started July 18, 2009 at 15:38
I was wondering if anyone happens to have the genetic mutation Leiden Factor V? I had
multiple DVT's, and wanted to know if anyone who has this can give me some insight. I
only found this out last week, and I had my blood clots a few weeks ago. Thanks!!

6 replies...

Clot or not
Posted by Bob
Last Reply March 17, 2016 at 05:59
Started March 16, 2016 at 11:03
Hi, I have been struggling with breathlessness following illness earlier in the year.
Ddimer test at Drs showed level as 420. Before I got result I was rushed to
hospital struggling with breathing. Bloods that day showed level as 300, one
mark below a positive. Scan did not pick up a clot in lungs. Still not sure whether
to fly or not. Am I at risk? Any thoughts please? Thanks

2 replies...

Posted by Ryan
Last Reply March 16, 2016 at 21:47
Started March 14, 2016 at 13:54

2 replies...

Posted by Lyubasha, Russian
Last Reply March 16, 2016 at 05:05
Started March 16, 2016 at 05:05
Good afternoon! Can I ask you a question. They can form blood clots in patients receiving warfarin antikougalyanta?

0 replies...

Develop," the scientist Dr
Posted by omega kliften
Last Reply March 14, 2016 at 03:17
Started March 14, 2016 at 03:17
Develop," the scientist Dr. Len declared 't Hart of the University
Hospital of Leiden in the Netherlands probiotic America and Andreas
Fritsch from the German Center for Diabetes Research and the
University Tubingen. "But in our study, we were able to show why this
is so." GLP-1 (glucagon-like peptide-1) is a hormone which is.....


0 replies...

dvt-sign of cancer
Posted by John
Last Reply March 13, 2016 at 14:08
Started March 6, 2016 at 17:21
Had extensive dvt in calf in December. Now feeling breathless and have a
constant dull ache in my right lung. I have read that dvts can be due to
cancer of the lung. Now I'm starting to panic (been a smoker for 30yrs)
I also feel as if my heart is fluttering which ironically actually gives
me hope It's a small pulmonary embolism and not the dreaded C. I suppose
you have to laugh.
Anyone else with a dvt for no reason worried? I read that in 10% of over
40's a dvt is due to an underlying cancer (especially lung). It's scared
the hell out of me.

2 replies...

Low blood pressure
Posted by Marlene
Last Reply March 12, 2016 at 14:28
Started March 12, 2016 at 14:28
Can wearing compression stockings help to increase blood pressure? If so, what
should compression of stockings be?

0 replies...

DVT and PE? Self-diagnosis...
Posted by Mr. Scared
Last Reply March 11, 2016 at 20:48
Started March 11, 2016 at 20:48
I'm scared. Im only 38 but I work
from home and am very physically
inactive. I smoke. I don't drink, but
I'm otherwise normal. I'm 6'0" and
about 165lbs. I first noticed a mild
sensation-very mild-pain in my left
lung. I think. Otherwise my breathing
is fine. Oxygen fine. Etc. But last
week I noticed both legs from below
the knee are swollen. And they feel
weird, and go numb if sitting or
sleeping or still for too long. You
know, that pins and needles
sensation. Anyway I'm sure at the
least I have PE and dvt. I'm going to
see doc asap. Because I can no longer
pretend it's just a mild ulcer. Now I
know its my lung, and this is all
related. Seeing your feet and legs
20% thicket is frightening.

0 replies...

DVT Treatment
Posted by Mark Garcia
Last Reply March 11, 2016 at 16:16
Started April 2, 2015 at 08:58
For those of you (or anyone you know)who are suffering from chronic DVT and Post Thrombotic Syndrome, there is hope and a new study that is actively enrolling patients to evaluate a minimally invasive technique to open up the veins and improve the quality of life. For more information, please visit www.chronicdvtstudy.com. Please share and spread the word, that "living with it" is no longer the answer.

16 replies...

Diagnosed: Post-thrombotic Syndrome
Posted by Michelle
Last Reply March 7, 2016 at 04:18
Started April 3, 2007 at 03:13
Hello everyone: had a very depressing appt. with my Hematologist today - not sure if you all know what PTS is - but that's what I have, as a result of my DVT (knee to groin - lead to many PE's as well). I'm so angry! Ahh!

I am offically finished coumadin therapy (after 8 months). but I always thought that that would mean I am better. Not so! I'm 26, and I will have to wear compression stockings and deal with the pain, swelling, tingling/numbness forever (or so the Specialst says) - part of me still thinks there are more answers out there.

I'm trying to stay positive, but it's hard. This is a disability now - can't stand OR walk OR sit with my knees bent longer than 30 minutes without symptoms. She said it's too late to refer to a Vascular specialist - the damage to my veins is done.

Any tips / advice from others with PTS? For those who don't know it's basically complications that may follow deep vein thrombosis (DVT) (includes, persistent swelling, pain, purpura ... read more

57 replies...

put it back into something that the
Posted by donald mowbray
Last Reply March 7, 2016 at 01:09
Started March 7, 2016 at 01:09
PC itself appreciate hence for that we need something we'regonna
contact organize a compiler is a job that takes source system code
like you just saw as information and it creates 0's and ones as
generate furthermore known as item system code and itís those 0's
and ones that might look absolutely like this that certainly are
understood by your Mac or your PC in the event that you've ever
observed the marketing appearance Apple within


0 replies...

Fine teen years and we went
Posted by ammad roy1495
Last Reply March 7, 2016
Started March 7, 2016
Fine teen years and we went on aroid trip to New Balance by my house
and at first I was really excited to got the cosmetic companies store
or also known and a few CL which and really get might want to see
elements cosmetic company store but Copy Buffett


0 replies...

Xarelto and exercise
Posted by CJ
Last Reply March 4, 2016 at 04:41
Started July 20, 2015 at 15:20
I have been on Xarelto for 4 months. I am trying to exercise but still
feel so fatigued. I was very active before my DVT/PE ( 1/2 marathons,
cycling, lifting) and just having a hard time feeling normal when
exercising. Feel very out of breathe when only running 3-5 miles. Can't
seem to run more than 5 miles now! Anyone else experience this? Also I
have gained about 10 lbs and can't seem to lose it! Feeling very

2 replies...

Intentional weight loss on Rivoraxaban
Posted by nasturitium
Last Reply March 4, 2016 at 04:35
Started March 4, 2016 at 04:35
Has anyone had any issue intentionally trying to lose weight on Rivorazaban?

I just became a lifer to blood thinners due to a dvt 20 years ago from birth control and a unprovoked pe last Oct.
I was in the process of losing weight when I got the pe, since recovery I have not been able to shift any more weight. I exercise 3-4 times a week high intensity and am watching what I eat.

I have also noticed water retention in my legs, but not really around my abdomen like a lot of people mention.
Thank you

0 replies...

DVT Experience and Looking for Advice
Posted by Tanya
Last Reply March 4, 2016
Started February 12, 2016 at 17:44
Diagnosed with a DVT Feb 10th. Have arthritis so thought the pain I was experiencing was simply my sciatica. By day two I felt a tightening in my thigh. On Feb 10th my leg appeared normal. After doing some light work, I realized it felt swollen. It was twice the size of my other leg and purple. Rushed to ER. Series of tests determined I had a large clot from my pelvis to knee. Prescribed Xarelto after a lengthy discussion with the MD on duty. I was released and told I would receive a call from a heart doctor for an appointment in 4 months. They simply said keep the leg elevated and if shortness of breath or chest pains occur, to get my self back to the hospital. After day 3 of taking the blood thinner, the swelling in the ankle and foot has decreased substantially. The knee is at about 50% but the upper thigh remains tight and sore. Cannot walk or stand for more than a few minutes. Have determined there is a family history of a blood clotting disorder prothrombin gene m... read more

1 replies...

Alternative Med post DVT?
Posted by Rassega
Last Reply February 21, 2016 at 10:42
Started May 5, 2007 at 19:00
Is there any one out there who like me would rather not take so much med? I am an athlete and try very hard to take care of my body. The massive DVT I got durning my pregnancy sent me for a loop. It has changed the way I do everything (I would do it a hundred times over for my little angel). However I still suffer from residual clot and some PDVT syndrom (swelling...) I am thinking of going to an alternative Dr. for accupuncture or even some type of herbal meds to reduse the effects of my DVT. I am a 1.4 yrs from my first symptom. I am in great shape, but would like to be whole again, any suggestions?

5 replies...

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