DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT/PTS and Running (Advice?)
Posted by Rob A.
Last Reply August 16, 2015 at 02:02
Started August 9, 2015 at 17:40
Hi all,

I was diagnosed with a DVT in May of 2015. When I try to run, I go roughly 1/2 mile and my leg is swollen, tight and difficult to run. Does anyone have any suggestions? Thanks!

3 replies...

Calf Pain After Warfarin
Posted by Karen
Last Reply August 15, 2015 at 16:27
Started February 24, 2011 at 22:42
I had a DVT in my left thigh back in October. I spent 4 months on Warfarin and stopped taking it just 2 weeks ago. At the time of the DVT, I had a horrible pain in the calf. A blood test and ultrasound were done and the clot discovered. Now, 2 weeks after stopping Warfarin, I'm experiencing some nagging cramping in my left calf. Certainly not the kind of pain I had at the time of the clot, but naggy enough to make me worry. I understand I will have some pain in the thigh from scar tissue and maybe some swelling and pain in the ankle from the poor circulation, but this feels different from those. Has anyone else experienced this? Thanks!

2 replies...

Question about dvt
Posted by Njoy704
Last Reply August 13, 2015 at 19:12
Started August 11, 2015 at 13:38
I've been having some pain in my left leg
for 5 days now. It started out as a very
mild calf cramp after waking. I figured it
could be due to dehydration so I drank a
lot of water and gatorade. The cramp
seemed to have gone away. I even went to
the gym the next day to walk on the
treadmill. The following day I had what
felt like sciatic pain... still was able
to walk around the mall but was limping
around. My leg felt better the next day
after resting but it's been getting random
pains from back of the knee , inner thigh,
groin, and on top of thigh. Muscles also
seem to twitch. I'm able to walk on it, no
swelling, no redness and can bear my
weight on the leg. I was worried so I
ordered a d dimer test for myself. The
results were negative at <0.2 the normal
reference range is <0.5 ... so I'm way
below. My worry is that I was on a 4 hr
plane ride 3 weeks before my leg pain. I
made sure I got up and stretched my legs
though every 30 mins to... read more

1 replies...

Timeline
Posted by Laura
Last Reply August 13, 2015 at 19:02
Started April 25, 2015 at 19:21
Two weeks ago, I woke with a leg double its size and toes turning blue. Since
then, the swelling is coming somewhat down because of the Lovenox and
Celebrex. I still cannot wear any of my previous shoes though since my foot and
leg are still huge. Question: for a healthy 34 year old woman with a blood clot out
of the blue, how long can I expect my leg and foot to go back to normal?

2 replies...

First DVT - How long to stay on warfarin?
Posted by Marie
Last Reply August 13, 2015 at 18:57
Started December 10, 2014 at 19:11
I've been diagnosed with my first DVT in my left leg, and I was wondering how long do people usually stay on blood thinners with their first DVT diagnosis? I am worried about possible future blood clots. And I would rather stay on warfarin than stop taking it and end up having to go through the process of diagnosing a new clot later on.

5 replies...

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Last Reply August 12, 2015 at 01:35
Started August 12, 2015 at 01:35
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0 replies...

Extensive DVT and PE question.
Posted by Jenny
Last Reply August 11, 2015 at 08:59
Started August 11, 2015 at 08:59
Hi everyone
This forum has really helped me in understanding more about DVTs. So thanks to
all of you! I was diagnosed with a DVT in my left leg, beginning at my knee and
extending all the way above my belly button, in oct 2014 (I was 30 yrs). It is
concerned to be a very large and extensive one. I was pregnant at the time, and
so couldn't recieve the standard intervention. My baby was also born very prem
so I was on clexane for about seven months (because I was breastfeeding). I then
moved over to warfarin. After about five weeks they could not achieve adequate
inr levels despite being on a very high dosage. I also had some pretty bad side
effects and so my doctor decided to stop all treatment as I had been treating the
Dvt for 9 months. The Dvt has healed in my leg, however it has stagnated and
remains from my groin upwards, showing no improvement. This past weekend I
had a "small PE". I had severe shortness of breath, felt as if someone was
standing on my... read more

0 replies...

bunching on ankles of compression socks
Posted by compression stocikings
Last Reply August 10, 2015 at 17:28
Started July 29, 2015 at 07:49
I was diagnosed with dvt in my left leg last
October but am only now getting compression
stockings. I was just looking for some advice..my
socks are bunching when I stand on the bend by
the ankle on top of the foot. Is this ok or have
I got incorrect sizing? Also I wear stockings on
both legs even though only my left was diagnosed
with dvt is this safe to do?
Many thanks


4 replies...

What to ask the Doctor
Posted by Lore
Last Reply August 6, 2015 at 15:47
Started May 2, 2008 at 07:41
Hi,

I had multiple DVTs in my left leg and a PE at the beginning of March after a flight and while on low estrogen birth control pills. I am going to a follow up appointment with the cardiologist from the hospital tomorrow in order to get the results from all the tests they ran. I would like to make sure to check that they have covered all the testing I need. If anyone has suggestions as to what I should ask about please let me know.

So far I plan to be sure that they checked for:

May-Thurner syndrome
Factor V Leiden

Anything else?
Thanks,
Lore



7 replies...

Leg swelling and diet.
Posted by Jeff
Last Reply August 3, 2015 at 21:17
Started August 3, 2015 at 21:17
Hi, I had four clots in my left leg back in 2007. I eat a very healthy
diet and get regular exercise from strenght training and cardio. On the
rare occasions I don't eat healthy ( holidays,receptions, or party's) I
get swelling in my left leg. Mostly in my foot and ankle. For the next
day or two it feels like I am walking on a pillow. My diet is normally
pretty low in sodium, I can only link this swelling to higher sodium
days and only in my left leg. Can anyone relate or have ideas of what it
could be?


0 replies...

2nd DVT in 11 Months & Possible PE? Grrr...
Posted by Brian S
Last Reply August 3, 2015 at 19:27
Started August 3, 2015 at 19:16
Hi all,

I am 30yrs old and my dad (63) & brother (33) have both had blood
clots and were tested positive for Leiden Factor V, so last year at
the end of August when I was getting my blood drawn I mentioned to the
Physician's assistant that I'd like him to order a test for Leiden
Factor V as my brother and father both had it so I just wanted to see
if I had it or not.

That was a Monday I believe. The next morning I woke up with the worst
"Charlie horse" I'd ever experienced in my left calf. I figured the
pain would go away and on thurday afternoon when it was still there
and had swelled quite a bit I made an appointment for friday
afternoon. The new PA I saw for the first time got freaked out when
she saw my leg and said I believe you have a Clot, I'm sending you
straight to the emergency room.

It ended up being a DVT in my left calf and I was put on Xarelto. Oh
and BTW, I did have leiden factor V which I found out from the DR a
week after the DV... read more

1 replies...

warfarin tablets
Posted by marino
Last Reply July 29, 2015 at 23:47
Started December 5, 2010 at 01:19
I was diagnosed with DVT 6 days ago and put on clexane 80 mg. twice a day for 10 days. i do not trust the doctor who saw me because twice he wanted to send me home for a leg pain and slight swelling. If my wife did not push for an ultrasound the DVT would not have been found and i might have just ended up dead. I will have another appointment to my regular doctor this monday.
when should the doctor put me on warfarin treatment? in the leaflet it says within 72 hours with clexane but the stupid doctor told me it means 72 hours before the last dose of clexane. also how about the blood test monitoring? i know it is very important because i might have too much and bleed.

17 replies...

Normal Post-DVT Condition?
Posted by Bryan
Last Reply July 29, 2015 at 23:22
Started January 28, 2011 at 05:14
I had deep vein thrombosis in one of my legs six years ago. I have been quite active, aerobically, since that time -- as I certainly was before the clot. I run several miles a week, and have for years. But there is still a problem.

I was told, by health care professionals, that my leg would "probably" never be the same again, after the clot. And, well, my leg hasn't been the same, either. My leg will "shrink" back to its normal size when I go to bed at night; but then, after I wake and am up and about for just a little while, my leg starts to swell -- and the bruising, which I've also had since the clot, starts to darken (and may even be expanding).

Tell me, please, if anyone can, is this truly a normal, post-DVT condition? Will I have this swollen, bruised leg for the rest of my life? Any light that can be shed on this will be greatly appreciated.


7 replies...

Thrombophilia screen/ Pradaxa
Posted by Rob- UK
Last Reply July 29, 2015 at 19:55
Started July 13, 2010 at 12:51
I have been on Warfarin since January this year, and it looks as if I will be kept on it until the haematologist decides it is 'safe' for me to come off it so he can undertake a thrombophilia screen. He believes that there may be a family history of clotting that needs to be investigated-however, if I come off warfarin totally, am I not then at risk if I do indeed have a clotting problem? Is there not another test that can determine this without the possible risk associated risk of coming off warfarin altogether ?
Also, I was wondering if any of you have changed over to Pradaxa as an alternative to warfarin. I have approached my GP about this possibility if I should have to stay on drugs for life, but was not given a definitive answer.
Many thanks .

5 replies...

Lifetime blood thinner prothrombin II mutatio
Posted by Wendy
Last Reply July 28, 2015 at 15:19
Started July 28, 2015 at 15:19
Five months ago, I had a DVT related to being in a cast for a
dislocated ankle. Further testing showed I have the Prothrombin
II mutation, heterozygous. I have now been prescribed a lifetime
of Xarelto, which makes me very uncomfortable. I don't feel well
at all since starting on the medication. Body aches, fatigue and
have gained 20+ pounds but haven't had an appetite. All of that
plus ther is no antidote in the case of excessive bleeding. I am
wondering if after only one event (I am 47 years old), what are
the chances of a reoccurrence if I stop the medication. Over the
years, I have had 12 knee surgeries, 2 abdominal surgeries and
have been on birth control pills and have never had a blood clot!
I have gone from being a very active former professional athlete,
to feeling like I am 90 years old! Help!!!!

0 replies...

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Last Reply July 28, 2015
Started July 28, 2015
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0 replies...

Sodium triiodo-L-thyronine
Posted by tcsgroupk
Last Reply July 27, 2015 at 05:59
Started July 27, 2015 at 05:59
Thyroid hormone drugs are natural or synthetic preparations containing tetraiodothyronine (T4, levothyroxine) sodium or triiodothyronine (T3, liothyronine) sodium or both. T4 and T3 are produced in the human thyroid gland by the iodination and coupling of the amino acid tyrosine. T4 contains four iodine atoms and is formed by the coupling of two molecules of diiodotyrosine (DIT). T3 contains three atoms of iodine and is formed by the coupling of one molecule of DIT with one molecule of monoiodotyrosine (MIT).

Both hormones are stored in the thyroid colloid as thyroglobulin.

Thyroid hormone preparations belong to two categories: (1) natural hormonal preparations derived from animal thyroid, and (2) synthetic preparations. Natural preparations include desiccated thyroid and thyroglobulin. Desiccated thyroid is derived from domesticated animals that are used for food by man (either beef or hog thyroid), and thyroglobulin is derived from thyroid glands of the hog. The United... read more

0 replies...

Enhance weight management
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Last Reply July 25, 2015 at 06:52
Started July 25, 2015 at 06:52
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0 replies...

Compare side effects of warfarin
Posted by Amandajane
Last Reply July 24, 2015 at 13:23
Started November 14, 2008 at 07:16
Hi everyone,
I read all the time how you guys dont feel well on warfarin. I have been on it for over 5 years and dont suffer from it. I am curious to know what your side effects are. I used to get alot of headaches in the first year or so but not so much any more. About the only side effect I have now is the fear of a brain bleed!
Amandajane Queensland

21 replies...

DVT Discovered last night!
Posted by Abbi Cooper
Last Reply July 22, 2015 at 13:01
Started September 5, 2007 at 17:57
Hello, I just found this site, I have had a very sore claf for 3 days and last night my partner came home from work and looked at it and said it could possibly be DVT, I phoned NHS Direct who asked questions and then advised me to go to A&E which I did and was seen immediately! They think its DVT as I had blood test which came back positive to thickening blood and have FRAGMIN to inject each day into my tummy, I have to go on Friday for a scan, can anybody tell me what will happen after the scan etc etc? Thanks very much, Abbi -

12 replies...

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