DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Sharp twings after stent procedure
Posted by Lori
Last Reply February 7, 2015 at 19:47
Started February 5, 2015 at 02:00
My son recently had a stent put in for his DVT. He is now having sharp pain twinges in that area. Is this normal?

2 replies...

Mum has Extensive DVT - worried daughter
Posted by Tracey
Last Reply February 7, 2015 at 19:16
Started February 2, 2015 at 04:26
my mum has just been diagnosed with an extensive occlusive thrombus in her left common illiac vein, left external illiac vein, left common femoral vein and left popliteal vein.
Her symptoms came on suddenly and she noticed a slightly swollen left leg and it was reddish. She left it for a night, and by the next morning she could barely walk and her groin was very painful (and still is)
She is deeply concerned as to why she has developed this. Mum had been ill 2 weeks prior with a flu that pretty much knocked her out for a whole week. On the 7th day, she thought she was feeling better, got up and had a shower but suddenly became faint, and fainted. She had hurt her left side and her lower left back, she pretty much squealed if they moved her. Urine test and blood work was done but came back as all normal and they put it down to dehydration and the flu. They also did a chest xray and CT scan of her head to ensure no concussion.

Since fainting she said she hasn't felt righ... read more

6 replies...

Curcumin and blood clots
Posted by Margaret
Last Reply February 3, 2015 at 22:09
Started February 22, 2009 at 07:09
I read a fascinating article yesterday in Science Daily ( http://tinyurl.com/449vm3 ) about curcuminís ability to reduce the size of blood clots. Curcumin "may reduce the size of a hemorrhagic stroke, say Medical College of Georgia researchers. They are using animal models to study curcuminís effect on intracerebral hemorrhages, bleeding in the brain caused by ruptured vessels."

You learn something every day. I didnít know that patients suffering from hemorrhagic strokes are treated for symptoms (nausea etc.) but not for the actual cause. The reason is that the blood clot must usually be removed surgically, a procedure that is not advisable, for obvious reasons, in the case of hemorrhagic strokes, which account for about 17 percent of all strokes.

The researchers are studying how to solve this problem using animals (sigh). And here is the interesting part. They dissolved curcumin in corn oil, injected it into the abdome... read more

9 replies...

repeat lower leg swelling with 2 month old DVT
Posted by Elaine
Last Reply February 2, 2015 at 14:50
Started February 2, 2015 at 14:50
Is anyone aware of why my lower leg would return to normal only to swell again 2 months later? The doppler did not show any new clots, in fact no real change from the 1st one. The swelling and pain have been much reduced from the initial onset. I have been taking Warfarin for 2 months. Coagulation studies will be done in the next few weeks.

0 replies...

DVT and insurance
Posted by William
Last Reply February 2, 2015 at 10:29
Started February 2, 2015 at 10:29

Do I need to declare to insurance companies that I've had a DVT/PE?

0 replies...

Sharps Safety? Injection Advice?
Posted by Maddie
Last Reply February 2, 2015 at 09:44
Started February 2, 2015 at 09:44
Hi all!

I'm 17 and was diagnosed a month ago with a massive DVT. I'm on 70 mg of
Lovenox twice a day; I have to inject subcutaneously. I will be on this medication
for the next five months or longer! Since I am on a strict schedule of shots at 7
am and 7 pm, I started stressing about going out and such; I tend to be forgetful
until the alarm on my phone sounds.
My friend made me this really cute case to carry my shots in recently; I keep two
in there at all times with my alchohol wipes; it really helps me breathe easier, I
can just grab it when I head out the door, and it looks like a clutch, very discreet.
However, the "style" of my syringes just changed...now the measurements of the
package are completely different.
I was wondering if I could take the syringes out of the package and transport
them that way? They have very secure little caps over the needle area, which
don't come off easily at all. I know never to just toss a used disposable shot in the ... read more

0 replies...

post DVT ski holiday
Posted by Shaun
Last Reply February 2, 2015 at 06:08
Started February 2, 2015 at 06:08

I had a DVT & PE mid December 2014, I've been put on Warfarin for six months.

As a family we ha planned to go skiing December 2015, 12 months after the DVT/PE, assuming I won't get another on will it be safe to ski and be at altitude in 12 months time?

Has anyone else on the forum skied after a DVT?

Thanks for looking.

0 replies...

Compensation / Solicitors
Posted by Bob
Last Reply January 30, 2015 at 03:44
Started January 30, 2015 at 03:44
Hi, Has anyone sued NHS for late diagnosis / negligence for DVT. If so can anyone recommend a good solicitor / claims company. Thanks, Bob

0 replies...

Venowave and Post Thrombotic Syndrome
Posted by Rayah
Last Reply January 28, 2015 at 10:57
Started September 22, 2010 at 17:07
I was hoping to find anyone else who is using the Venowave to help treat
Post Thrombotic Syndrome. I love my device and it has helped so much.
I believe it is the only medical device approved to reduce the symptoms
of PTS and ALSO prevent new DVTs. I was hoping that this be a place
where we can share our thoughts, complications etc with this device.

24 replies...

post natal DVT
Posted by CherBee
Last Reply January 28, 2015
Started January 23, 2015 at 01:20
My daughter gave birth to her 3rd child, first daughter, a month ago and a
few days ago went to the ER with a swollen and pinkish left leg. She was
diagnosed with a DVT in her femural vein in her upper left leg near the
groin. She is on shots and coumidin right now. She is also part time nursing
her baby. They want to give her something new that is stronger but said she
would have to stop nursing as they don't know the side effects. She is
pretty stressed about all of this. Any advice? Anyome have this experience.I
am so worried about her on so many levels. She is 34 and slightly
overweight. This was after her 3rd C section.

2 replies...

Unknown Cause of DVT and PE
Posted by Amber
Last Reply January 27, 2015 at 02:50
Started January 23, 2015 at 11:13
My husband has been in and out of the hospital 6 times from the last day
of August 2014 to Thanksgiving day 2014......it started as a small blood
clot in leg.....which they say caused his PE's....then the small blood
clot grew into to a DVT that runs the entire length of his leg. They
have him on coumidon 15mg and 10mg alternating.....they say they do not
know what has caused any of his problems and can not run any blood tests
until he is off blood thinners but cant get off of them because of
DVT....there is no history of blood clots in his family, he has Crohns
also....does anyone have any info that could help us out?

1 replies...

Go to doc or not?
Posted by Luz
Last Reply January 26, 2015 at 18:34
Started January 26, 2015 at 13:34
Hi all- I was hoping to get the opinions of some people who have experience with

I have a protein C deficiency, so I'm at a heightened risk of developing clots. Last
night I got a pain in my left calf that hurt worse when I stood up and made me
limp. I don't remember hitting my leg on anything. The pain is still there today
plus my thigh feels achy.

I have no other symptoms- no redness or swelling.

I would normally wait at least a while longer before thinking about going to see a
doc (who I think will send me to the ER). But, I'm we're expecting a big blizzard
here so If I don't go within the next few hours it may be another 24 hours before I
could get to a doctor. This changes my risk calculus a bit.

What would you do? Thanks!!!!

1 replies...

septic pencil
Posted by nell
Last Reply January 23, 2015 at 18:14
Started January 23, 2015 at 18:14
can you use a septic pencil to stop bleeding from tooth extraction
Has anyone tried that?

0 replies...

Is the Willow Curve laser o.k.?
Posted by Marilyn S.
Last Reply January 23, 2015 at 16:26
Started January 23, 2015 at 16:26
After a fall on my arthritic knee 1 mo. Ago, I got a small DVT in that calf. I was taken
off xeralto after blood pooled in leg. No longer swollen but knee pain. Would the
clot be affected if I tried a Willow Curve Anti-infllammatory Smart Laser? Could it
make it break loose and travel? Please answer asap. THANK YOU! MARILYN

0 replies...

Is the Willow Curve laser o.k.?
Posted by Marilyn S.
Last Reply January 23, 2015 at 16:20
Started January 23, 2015 at 16:20
After a fall on my arthritic knee 1 mo. Ago, I got a small DVT in that calf. I was taken
off xeralto after blood pooled in leg. No longer swollen but knee pain. Would the
clot be affected if I tried a Willow Curve Anti-infllammatory Smart Laser? Could it
make it break loose and travel? Please answer asap. THANK YOU! MARILYN

0 replies...

Clot in inner vena cava
Posted by Ryan
Last Reply January 23, 2015 at 03:29
Started January 22, 2015 at 23:49
42 year old male with a 8" clot,(solid as bone), in the inner vena cava starting just
above the illeac. Can a filter be placed in and clot removed?

1 replies...

How aggressively should I start exercising?
Posted by Fred Doors
Last Reply January 21, 2015 at 19:23
Started January 7, 2015 at 14:31
After "muscle pain" that wouldn't go away over xmas, 2 days ago I got
diagnosed with DVT, a nonocclusive clot in the popliteal vein, right
behind the knee.

I started warfarin yesterday, and am 48 hours into the lovenox
injections. So far, I see pretty much no improvement: I can't walk,
only limp around (can't fully extend my leg), and anything but
sitting or lying down with my leg in the air quickly becomes painful
because of the pooling blood.

I guess that's normal, reading around I don't see any people talking
about improvements until at least a week has gone by. My question is,
how aggressively should I start exercising my legs? Should I wait
until I can walk mostly normally again, or should I take "limps
around the block" now?

What about activities that involve bending the knee? Given the
position of the clot, I'm scared that anything that requires a lot of
knee bending (e.g. cycling) might cause the clot to break, and I'd
very very much like ... read more

15 replies...

Inr dropping
Posted by Mayra
Last Reply January 17, 2015 at 15:15
Started January 14, 2015 at 07:35
So I went into the er 4 days ago for a faint leg pain my gp shrugged off after a
negative d dimer result. I wanted to clear my concern with a cat scan and lo and
behold I have a dvt on my left leg. I was admitted to the hospital and have been
on lovanox shots and cuomodin. However my pain since being here has
worsened and is now in my right leg. They're not concerned bc I'm on treatment,
and my levels went up 1.8 the second day, and 2.1 yesterday. However this
morning I'm at 1.5! What does this mean yes my clot is getting bigger and
developing more?? I'm so scared right now and just don't trust what the doctors
are telling me, which is that I'll be fine.

3 replies...

clexane lifelong
Posted by karen
Last Reply January 17, 2015 at 03:02
Started January 22, 2012 at 01:05
hi every1, im 38 yrs old was on warfarin for 4 yrs as i get recurrent p.e but discontinued it due 2 bad side effects "tiredness, coldness and weight gain" they have now put me on clexane injections 4 life, does any1 who is longterm on clexane experience of any side effects simalar 2 the ones i was getting on the warfarin?

4 replies...

Compression socks lose effectiveness?
Posted by patrick
Last Reply January 16, 2015 at 18:48
Started January 16, 2015 at 13:23
I have a prescription pair of compression socks that are about 5 years old. Do they their
effectiveness (meaning, do the socks themselves lose the ability to 'compress' as well as
they did when they are new)?

Thanks in advance.

2 replies...

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