DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Return to work with DVT
Posted by Susan
Last Reply July 22, 2012 at 21:10
Started July 22, 2012 at 18:33
Hi everyone

I developed a DVT in my right calf a couple of weeks ago after fracturing my ankle (fibula bone only). It was confirmed with a second doppler scan a few days ago. I have been told that I should not drive or have any physiotherapy for the next couple of weeks. I am wearing TED stockings whilst waiting for the compression ones and am gently mobilising with crutches as my ankle fracture is still painful at times. The orthopaedic surgeon says he is happy for me to return to my work as a community nurse in a couple of weeks time and has discharged me from their care. He also said I didn't have a DVT as my leg was not hot and swollen despite the scan and my continual cramp-like calf pain. I told him that DVTs differ and some are silent. Wouldn't an orthopaedic surgeon know that?!!!!!! Even in the DVT clinic the doctors and nurses all told me conflicting things about BASIC DVT care which makes me lose confidence in them all. Anyways, I am doing okay and no longer have... read more

1 replies...

Re-scanning
Posted by Claire Wood
Last Reply July 22, 2012 at 20:59
Started July 21, 2012 at 18:10
To anyone in the UK, were you re-scanned a few months after your diagnosis to see if your clot had gone?
My DVT clinic told me they have a policy of not re-scanning!! I would want to know if its gone or not to be honest

5 replies...

DVT and the Combined Pill
Posted by Claire Wood
Last Reply July 21, 2012 at 18:08
Started July 21, 2012 at 08:12
Hello, Im 28 and was diagnosed with a DVT in mid June. This was caused by a couple of things. I had knee surgery in May, the immobility caused by this and I am on the combined pill. I have been put on the usual meds, 3 months of warfarin but Im worried about when I come off this.
Would it be better to stop the combined pill altogether? I have been on it for ten years and Im also worried about the side effects when coming off it. But I suppose anything has to be better than getting another DVT.
Any info would be greatly appreciated.

5 replies...

Venowave and insurance
Posted by Teresa
Last Reply July 20, 2012 at 05:40
Started July 20, 2012 at 05:40
I have left leg DVT and PTS. Anyone had any luck with getting their insurance company to pay for the Venowave? If so, how did you do it? My insurance company couldn't answer if they would pay for it because they did not know the billing/ICD-9 codes that my doctor would assign. This is the list of codes I got from the Venowave people.any of them "better" than others?
451.2 Treatment of thrombophlebitis – leg
453.40 Venous embolism and thrombosis of unspecified deep vessel of lower extremity
459.10 Postphlebitic syndrome, treatment of posthrombotic syndrome (termed postphlebitic syndrome by ICD-9)
459.81 Venous (peripheral) insufficiency, unspecified chronic venous insufficiency


0 replies...

Natural or C-Section with DVT
Posted by Mel
Last Reply July 19, 2012 at 09:38
Started January 13, 2008 at 13:02
Hi All

I first had DVT in 2001, in both legs. I've gone through the whole compression stockings and tests etc.. I have to be on warfarin for the rest of my life though. The doctors did warn me that I should plan when I wanted to have a child. Anyway, had a bit of a whoops and am now pregnant.

I have stopped warfarin and am on clexane injections. At around 22 weeks pregnant I suffered another clot, but it was in the superficial vein, the Haematologist said he was not worried about it at all.

I am now 31 weeks pregnant, and the doctor STILL cannot tell me if I am going to be having a c-section or if its safe enough to have natural. I would like to have natural, but would obviously do what is safest for me and baby.

Can anyone give me some advice about what you have gone through with giving birth and what options you were offered, and what the procedure is during birth.

I am really panicking about it and would appreciate any input.

Thanks

8 replies...

What is this sharp pain???
Posted by Sharon
Last Reply July 18, 2012 at 20:36
Started July 5, 2008 at 05:32
Hey those of you who have had PE, I had really strange pain yesterday and almost went to the hospital, but it finally went away. It feels like it is in my back at or just above my kidney--very, very sharp stabbing pains. Seems too low to worry about PE. Kind of like a pluracy pain when it is stabbing and I can't breath or talk, but it isn't started by my breathing or talking. In between the sharp pains, it just kind of grumbles back there. Very strange. The worst part lasted maybe 15-20 minutes off and on, thankfully so I could get a breath. But the lower level pain maybe 30-45 minutes, but I was so grateful that the other was gone, I didn't care about that.

Later in the day, off and on, I did have a sharp pain here and there in the front under my right lower ribs. This is similar to what they called an acute gallbladder attack years ago at the end of my first pregnancy w/ my son--tho not nearly as prolonged or intense. I had the same kind of pains then at 23 y/o and had to call... read more

13 replies...

how long does it take for swelling to go down
Posted by carmel brigid
Last Reply July 18, 2012 at 19:11
Started July 18, 2012 at 18:29
hi can anyone tell me how long it takes for swelling to go down. i had a dvt 2 weeks ago, although my leg is not as hard it feels like there is fluid in it, when i press on the skin it feels squashy and takes a while for the impressin to go. is this normal when swelling is going down.

1 replies...

short haul flight & clots
Posted by L
Last Reply July 18, 2012 at 09:49
Started July 18, 2012 at 09:11
My husband has clots in his left calf, knee,
groin area and lower abdomen (below his
navel). These have been in existence since
2008. We are due to fly tomorrow, short haul
(2.5 hours) and I wondered due to cabin
pressure changes etc, if there was any risk of
the clots breaking up, especially the one in his
abdomen? He is on 9mg warfarin daily & has a
consistent inr of around 2.5. We flew for 5
hours in 2009 but at that point he didn't have
the clot in his abdomen. Help!?

1 replies...

Permanent DVT/Pradaxa/Weather=more pain?
Posted by Jan
Last Reply July 17, 2012 at 18:17
Started May 29, 2012 at 20:48
Hi All, I have just discovered this forum and think it is a great source of information. I had a large DVT in my groin which extended up to my naval last July even when on Warfarin. I had an IVC filter fitted. I have had scans since and the clot is still there, just as big and has now hardened so is now permanent. I am wondering if anyone else has a permanent DVT and that continual 'pulling a ball and chain' feeling? Also...is anyone else pushing to be put onto Pradaxa instead of warfarin? That way regular INR checks wouldn't be needed. Lastly, is anyone experiencing more pain in the warm weather? My leg is killing at the moment and as the clot is so high it effects my stomach and back too. I get pain in my left side and also stomach cramping. Is anyone else experiencing anything similar? It would be great to hear from someone in a similar situation. Thanks, Jan

2 replies...

Elevated D-Dimer
Posted by Tami
Last Reply July 17, 2012 at 16:13
Started July 17, 2012 at 05:34
I have had left calf pain on and off for over a year and now my left
foot tingles when I walk on it. I went to the ER a couple of days ago.
They did an ultrasound from groin to below the knee that came back
negative for a dvt. I also had a VQ scan that was negative but my d-
dimer came back elevated. The Doctor said there is no evidence of a
blood clot and just keep an eye on it. Should I still be worried? Can
you have an elevated d-dimer test and not have anything wrong?

1 replies...

Should he stop warfarin?
Posted by Billybags
Last Reply July 16, 2012 at 13:17
Started July 10, 2012 at 14:04
My husband had another heart attack 16 months ago, his heart is badly damaged and was prescribed Clopidogral and small aspirin, he was doing fine until 5 weeks ago. He was told to stop taking the clopidogral, you are only supposed to take it for a year.2 weeks later he ended up in A&E with supposed small heart attack and has been put on warfarin. The last 2 weeks on warfarin he has had blinding headaches,tiredness, his speech can be a little slow, itchiness and he feels thoroughly shattered. I understand drugs take a while to get into your body but when we tell the nurse she says it is not the warfarin it must be another drug he is taking. I don't believe this.He is thinking of stopping this and taking his chances.and going back to aspirin.What makes me smile is the doctors do not put this down to stopping clopidogral.

3 replies...

clotting while on warfarin
Posted by shaz
Last Reply July 15, 2012 at 20:38
Started June 18, 2008 at 18:34
I will try and word this post right without trying to go into too much detail as part of my problem involves menstruation. i am 4 months since getting my dvt's and been on warfarin for 4 weeks now. 2 weeks ago my inr was 3.2 so been taking 7mg 5 days, 8mg 2 days. blood test yesterday and my inr is down to 2.0 and been told to continue with same dose warfarin and test again in 3 weeks. Im having my monthlies at the moment and for most of the day i have been passing small bits of clot and not long ago passed a fairly big clot, sorry i know some people don't want to hear this kind of thing but i am worried as i thought being on warfarin i wouldn't clot. i don't know if i should phone the warfarin clinic tomorrow and tell them or if i am worrying about nothing. I thought on Friday night i might be developing another clot in my leg as the lower half of my calf went very red and very hot to the touch and swollen and i couldnt do anything to relieve the discomfort i was in ( the only sign ... read more

25 replies...

dvt
Posted by thakkar
Last Reply July 15, 2012 at 16:38
Started August 12, 2011 at 10:27
Hi..
I have spinal cord injury from last 5 years, so i am on wheelchair and
from last one year,I am having of deep venous thrombosis (DVT) and
having tablets warfarin 10 mg every night but there is still colt in
my left leg , i wanted to know for how many months still i have to
continue with this tablet and second thing is my INR ratio is not in
range some times it goes up till 5.96 and sometimes it goes down till
1.01.

Can any one suggest how to maintain my INR ratios?



1 replies...

pain and swelling
Posted by sue
Last Reply July 15, 2012 at 08:46
Started July 15, 2012 at 08:46
I broke tibula &
fibbula 3 months
ago then
developed dvt
and pe, could not
operate because
of clots so bones
just healed
although not
totally in line
which i was
warned
about.just had
pot off and are
intotal agony
start physio next
week,cannot get
a shoe on even
very a loose sock
digs into me and
causes pain i am
worried ill stay
like this i am
limping really
badly im hoping
this will imprve
after physio,i
have had no
follow up about
clots 6 month on
warfarin and
thats it, but im
worried incase
the pain and
swelling will
go,anyone had
similar?


0 replies...

Natural Blood Thinners after Warfarin
Posted by Evanna
Last Reply July 13, 2012 at 15:14
Started July 10, 2012 at 10:48
Hi everyone, I had a DVT in my right leg (calf and lower thigh) 4 months ago and have
been on warfarin since. Today I had another ultrasound and my doc told me the clot
had dissolved completely and I could go off the warfarin.

Good news, however I'm a bit worried that I might get another DVT once my blood
thickens again. They didn't find any genetic blood thinning issues and blame the DVT
on the birth control pill that, of course, I'm not taking anymore. Still, I'm
apprehensive...

Does anyone know of or have experience with any natural blood thinners? I think
having a natural replacement would give me some peace of mind after going off the
warfarin.

Thanks a lot for your help!

6 replies...

inr fluctuation
Posted by jarrad
Last Reply July 13, 2012 at 09:53
Started July 13, 2012 at 09:53
Hi all

I am 23 years old and suffered a fractured knee cap went to the doctor to book an operation,the operation was booked for a months time and three days later had a DVT in my calf.Im on warfarin for three months now and have never been thereuputic.. i would just like to know is it possible my INR was low before my knee cap and is it bad to be so young and have these kind of issues with my blood,i have never taken any drugs!

0 replies...

inr fluctuation
Posted by jarrad
Last Reply July 13, 2012 at 09:52
Started July 13, 2012 at 09:52
Hi all

I am 23 years old and suffered a fractured knee cap went to the doctor to book an operation,the operation was booked for a months time and three days later had a DVT in my calf.Im on warfarin for three months now and have never been thereuputic.. i would just like to know is it possible my INR was low before my knee cap and is it bad to be so young and have these kind of issues with my blood,i have never taken any drugs!

0 replies...

Bloodshot eyes and flushed face
Posted by Judy
Last Reply July 13, 2012 at 07:36
Started April 29, 2012 at 20:44
Hi
On Friday night I had over half of one of my eye balls was completely red. It was only the white bit, not the iris. I wasn't doing anything unusual or eating differently. It didn't hurt and only knew about it when a friend told me. Googled it and apparently normal and nothing to worry about. Its fading already. Then this morning, I woke up and my face is really flushed, a bit like roseacha. Again, I haven't been doing anything out of the ordinary to have caused this.
Could it be a warfarin side effect? Or a problem with bleeding? My last IRN was 2.6 a couple of weeks ago. Anyone had anything similar?
Judy

4 replies...

Intervention surgery on old clot
Posted by John in Dallas
Last Reply July 12, 2012 at 06:21
Started April 23, 2008 at 23:20
Has anyone had intervention surgery on an older clot like myself? My clot was two and a half months old at the time of my procedure. I like reading the discussions about recovery times and think that intervention surgery would be the way to go, but it doesn’t seem like anyone else is having it done on an older clot. I feel like I am all by myself and would like to compare notes with someone else.

I just want to get information out to everyone that interventions are being performed on older clots despite traditional treatment methods with anticoagulants. There are individuals doing other than this “gold standard” of treatment with an older dvt. Complete recanalization or opening of the vein rarely occurs with the body absorbing the clot such as the one I had in my upper leg.

My surgeon made it real clear that without the surgery I could have a myriad of problems down the road that might be avoided if I had the surgery. However, there were no real guarantees with such a... read more

12 replies...

Gunther Tulip & Pain?
Posted by Jeff
Last Reply July 12, 2012
Started January 31, 2010 at 15:01
Greetings,
and thank you for this forum. I was diagnosed with DVT-PE Dec 21 and received a gunther tulip on Dec 22 in my groin area. The pain from the blood clots has slowly gone away but I got severe pain in my back/hip directly behind the filter. Has anyone experienced any pain with the filter? I also have shooting pain through my groin and down the front of my thigh. I couldn't even walk for a week, went to the dr - he checked for bleeding and said there wasn't any. Still tremendous pain so I went to a Chiropracter, he seemed to help me some howerever wasn't happy about working on me. The pain remains but not as stabbing and I can get around. I feel funny in my groin area and back/hip. Any info from someone with a filter would be greatly appreciated. We have searched the net to no avail and found no helpful information.

3 replies...

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