DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4126) - Page 59 of 207
DVT and massage ?
Posted by Patty
Last Reply May 3, 2012 at 22:21
Started May 2, 2012 at 19:00
Hi there, I fractured my ankle 2 months ago and got a DVT from the
fracture. I have been on coumadin since the fracture and will not go in
for a scan until end of May. Started physical therapy for my ankle last
week and wanted to know if anyone knew if its safe to get a massage on
my ankle? My therapist massaged it just a little bit to get the
swelling and circulation going, but Im not sure if its safe since I have
a clot in my calf ?? They are only massaging the ankle, not the calf.
Any replies would help. Thanks.

1 replies...

If you had a choice?
Posted by Phil - Spalding - UK
Last Reply May 3, 2012 at 22:19
Started May 3, 2012
A big hello to all on these forums. Just wanted to share my story and
ask for some advice. I know this post is long, but like a lot of
people on here, i have no one to talk to who have been through what i
have just suffered.

My first DVT was some 8 years ago after an 9 hour flight. Woke up 6
days into my holiday with pain in my right leg. Resort doctor said to
rest. It wasn't until i got back to UK 8 days later that i got rushed
to hospital, ultrasound scan picked up 3 clots.

I was placed on warfarin for 6 months. At that time, i had no idea on
the side effects of warfarin. Felt like crap for a while but i soon
got used to it. What i wasn't expecting was the hair loss.

Oh my god, in the space of 1 month, my hair was falling out all over
the place. At first, i thought it was hereditary but couldn't find any
history in my family. Visits to the doctors for help and advice were a
waste of time. In the end, the swollen leg, hair loss and warfarin
sent m... read more

1 replies...

Please HELP. Newly diagnosed with DVT
Posted by KC
Last Reply May 3, 2012 at 19:34
Started April 25, 2012 at 22:27
My husband was just diagnosed with DVT 2 days ago. He has 2 major clots in his
calf. He is on 10 days of lovenox and also on warfarin. It is killing me because he
is in SO much pain. He has been taking 2 tylenols twice a day and also Tramadol
three times a day for pain. He will start screaming after about 3 hours if not
sooner of taking the pain pills. Is there any relief in sight soon or can anyone help
me? I am stressing out about this.

17 replies...

Ultrasound after warfarin for a year?
Posted by CK
Last Reply May 3, 2012 at 19:15
Started May 3, 2012 at 15:34
Hey fellow DVT sufferers!

I've been on warfarin for almost a year now. The doctors told me a one year
course of warfarin therapy is normal for men with a DVT with no known causes.

My concern is: If I am to stop warfarin soon, how can I get my doctor to order a
follow up ultrasound to know my clot is dissolved of absorbed by my body???

He says that it is not typical to have a follow up ultrasound, but I want to Know for
certain that the clot is gone!

Help!!!!!!!!!!!!'

2 replies...

Just getting started, I have questions
Posted by Brandon
Last Reply May 2, 2012 at 21:52
Started May 2, 2012 at 03:14
Hello my name is Brandon and Im 28yrs old. I take karate and had initially
strained my gastrinemius muscle. So it been two weeks since being diagnosed
with DVT (after about a month walking around thinking it was a simple strain). It's
been tough but Im comming around. (I still get HUGE bouts of anxiety). I have
questions for others, who have been through and are experiencing this.
1. Does the 'wiggling' / 'bubbling' sensation continue even after blood thinning
medication?
2. Do blood thinners 'really' keep the clot from moving? As my Doctor has said.
3. (I know everyone's situations different) but when you got your DVT what level
of work/activity did your doctor put you on?
4. (This is more a matter of opinion), but is removing the clot/getting a vena cava
filter really that much more risky than waiting/hoping to see if your clot will
dissolve on its own and not embolize? It just doesn't seem to be much assurance,
I almost feel like their (the doctors) are le... read more

3 replies...

Is there an alternative to daily clexane injec
Posted by Michelle
Last Reply May 2, 2012 at 10:52
Started May 2, 2012 at 10:52
I wonder if someone can help me - my elderly mother is on 40mg of daily clexane injections for blood clots she had in her leg (all clear now). She has cancer and lymphedaema and has been told she'll need to inject for the rest of her life. Because she lives abroad she's in NZ, I'm in UK) I can't ask her doctor or specialist any questions but perhaps someone here will know........is it possible to change the frequency of the injections, i.e. to every 2nd day or even a higher dose once a week? I'm sorry to all of you who have to inject if this question seems stupid or ignorant but the only reason I ask is because my sister is caring for my mum and she's absolutely terrified of needles! Mum was doing her own injections at first (since the latter part of 2011) but she can't cope with doing it anymore and my sister is starting to have panic attacks at the thought of injecting. The district nurse won't do it and there don't seem to be any other avenues open for help. I imagine daily... read more

0 replies...

Is there an alternative to daily clexane injec
Posted by Michelle
Last Reply May 2, 2012 at 10:50
Started May 2, 2012 at 10:50
I wonder if someone can help me - my elderly mother is on 40mg of daily clexane injections for blood clots she had in her leg (all clear now). She has cancer and lymphedaema and has been told she'll need to inject for the rest of her life. Because she lives abroad she's in NZ, I'm in UK) I can't ask her doctor or specialist any questions but perhaps someone here will know........is it possible to change the frequency of the injections, i.e. to every 2nd day or even a higher dose once a week? I'm sorry to all of you who have to inject if this question seems stupid or ignorant but the only reason I ask is because my sister is caring for my mum and she's absolutely terrified of needles! Mum was doing her own injections at first (since the latter part of 2011) but she can't cope with doing it anymore and my sister is starting to have panic attacks at the thought of injecting. The district nurse won't do it and there don't seem to be any other avenues open for help. I imagine daily... read more

0 replies...

Just getting started, I have questions
Posted by Brandon
Last Reply May 2, 2012 at 03:18
Started May 2, 2012 at 03:18
Hello my name is Brandon and Im 28yrs old. I take karate and had initially
strained my gastrinemius muscle. So it been two weeks since being diagnosed
with DVT (after about a month walking around thinking it was a simple strain). It's
been tough but Im comming around. (I still get HUGE bouts of anxiety). I have
questions for others, who have been through and are experiencing this.
1. Does the 'wiggling' / 'bubbling' sensation continue even after blood thinning
medication?
2. Do blood thinners 'really' keep the clot from moving? As my Doctor has said.
3. (I know everyone's situations different) but when you got your DVT what level
of work/activity did your doctor put you on?
4. (This is more a matter of opinion), but is removing the clot/getting a vena cava
filter really that much more risky than waiting/hoping to see if your clot will
dissolve on its own and not embolize? It just doesn't seem to be much assurance,
I almost feel like their (the doctors) are le... read more

0 replies...

Indigestion and Lack of Apetite
Posted by Joe
Last Reply May 2, 2012
Started April 26, 2012 at 21:56
I have not seen either of these as side effects to Warfarin however I have been on it since late October and in the last 8 weeks I never get hungry and I have a full feeling or indigestion and or heartburn. The docs can't find anything and antacids don't seem to help. Anyone else had this happen?

5 replies...

DVT Scare
Posted by haimia
Last Reply May 1, 2012 at 21:43
Started April 30, 2012 at 18:46
I was diagnosed in March 2012 with a DVT in R ankle and L thigh and a PE in lung. I spent two days in hospital and six weeks regulating INR. I had all the genetic blood disorders checked and a liver scan and now am having thyroid checked (liver and thyroid showed problems on CT scan for PE). My DVT's and PE are considered provoked by laser vein surgery I had 10 days prior to diagnosis and being on Depo Provera (which family doctor said was perfectly safe as there was no estrogen in it - WRONG!). I am on warfarin and having the usual side effects and fun that involves compression hose. Since I am looking at a possible thyroid biopsy (FNA); I am wondering how easy it is to stop warfarin, go on the lovenox shots and restart the warfarin and maintaining my INR at a 2.0 - 3.0?

1 replies...

Work? What work . . .
Posted by John B
Last Reply May 1, 2012 at 21:17
Started May 1, 2012 at 14:44
Hi People - bit of back history first, and believe me, I know what
you're going through.
I'm a 56-year-old Mac operator and this is my second round of DVT. I
was first diagnosed New Years Day 2011, clot full length of the right
leg (put on Warfarin, had a month off work, went back) and given the
all clear July 2011 (though I was told I'd have to wear short
compression stockings for about 2 years - not a problem).
August Bank Holiday 2011, the DVT was back - full length clot in the
right leg (again) and the added bonus of one in the right lung. It's
also taken a lot longer to get the INR balanced this time.
Been off work ever since - to add insult to injury, I've been made
redundant. I've been told I'll be on Warfarin for the rest of my life,
and I have to wear full-length compression stockings (I have both day
and night versions).
My Doctor now says I'm fit for work - my question is, what kind of
work can we do?
According to the information I've found, we'... read more

1 replies...

Tubal ligation after DVT
Posted by Karen
Last Reply May 1, 2012 at 21:01
Started May 1, 2012 at 03:02
Hey Everyone, post DVT 5 months now, and am still on the mend :)
Getting better day by day, but have spoken to doctors, and vascular
surgeons for over a month now on my clot and birth control. I was hit
from knee to pelvis with big DVT, lucky that it didn't go any further.
Either way both doctors have decided that no form of birth control is
okay for me, and I am to remain off it forever. I was told condoms,
but I really get super irritated from them, and it's not a pleasant
experience. I have been warned to not get pregnant anyway for it would
be a high risk pregnancy....but I have been blessed to have a little
2.5 year old daughter as well.

So alas I have been scheduled to have my tubes tied in 5 weeks time.
i'm nervous, and a little scared, I'm 34 years old, and well I was
wondering if there's anyone else out there in the same boat, or anyone
who has had it done due to having a DVT. Any help would be greatly
appreciated....thanks....

1 replies...

Dealing with the daily pain
Posted by Bob
Last Reply May 1, 2012 at 20:43
Started May 1, 2012 at 05:46
I passed my 6 month regiment of Coumadin and the ultrasound indicated I still have a DVT in a few days it will be eight months. This week I have a follow-up visit to get another ultrasound and will learn next week if my doctor will take me off this stuff. I've had an adverse reaction to the Coumadin with elevated uric acid. My INR was up to 4.0 at one point; I have that and the uric acid under control now.

The daily pain is difficult, my leg feels like tingling sensations from my foot to my thigh - cold and aches most of the time. Some days are better than others, this has me exhausted. I've had complications with my ankle, sometimes it feels like someone stabbed me with dagger.
Mostly I have a heavy feeling with sharp pains periodically, kind of like having torn ligaments or a very bad sprain. My leg turns color when I stand up has the appearance of being inflamed. Im not sure if this is PTS or the fact the clot hasn't improved since December.

I need some luck on my side... read more

1 replies...

compression stocking
Posted by Ben
Last Reply May 1, 2012 at 18:48
Started January 12, 2008 at 19:01
Hi all- I have a DVT in my right leg w/ factor 5. Thing is...I feel no pain, at least notlike some of the stories on this forum. Maybe I'm lucky? heh . Anyway, do you all wear the compression stockings? My doctor hasn't mentioned it yet, but I am wondering if he forgot or something. This is all very new to me, as i was just diagnosed about 3 weeks ago. I do have swelling in my leg, ad its worse after working all day.(I'm a construction worker) I'm on 5-7.5 mg of warfarin. nice to meet you all. I'm 37 and a non smoker. Thanks.

50 replies...

Where's the public outcry for DVT prevention?
Posted by Sharon
Last Reply May 1, 2012 at 17:26
Started December 5, 2007 at 06:12
One thing I can't understand, being a non-profit CEO myself, is why I have never heard of a single fundraiser or seen any medical education (other than internet info I've sought out myself) on the signs and symptoms of DVT. This kills more people than AIDS and breast cancer combined every year (I've seen numbers from 200,000 to 300,000 annually) and I think it is twice that number (600,000) that survive like us! That doesn't count all the people that die from PE suddenly and there is no autopsy to prove it--most are assumed to have had a stroke or heart attack. God only knows how many people that is--adults and children get DVT. A man in my church dropped dead from PE the first day I got out of the hospital before I reclotted the first time. I see lots of medical papers of case studies, but not a lot of new research for clotting disorders.

Where are the 'fun-runs' for research, the golf tournaments, the galas, the research foundations if money is raised? If money is made availabl... read more

24 replies...

walfarin and cholesterol
Posted by sherry143
Last Reply May 1, 2012 at 04:36
Started October 13, 2011 at 09:32
Ive been taking walfarin since sept 5th and now my cholesterol is very high=looked up walfarin and cholesterol and the cholesterol meds that I take dont work while on walfarin=so now im at rick of a stroke or heart attack=they may have to up the dosage of my cholesterol meds=(dont know yet)but if you are taking cholesterol meds,check with your doctor to make sure you are ok=GOD bless all of you!!

1 replies...

unstable INR
Posted by Sonya
Last Reply May 1, 2012 at 03:29
Started May 1, 2012 at 02:09
I need advice-I am new to coumadin. I was on Lovenox for almost 3 weeks for a dvt and the first night they put me on coumadin I woke up with a PE. I was hopsitalized for 5 days to get to theraputic levels.After the hospital stay I was a 1.7 and was told to take 7.5 of coumadin then 2 days later I was an alarming 8.11. I skipped coumadin for 1 day then went back for testing and was 1.5--what the heck is going on? I need help to understand all of this.

4 replies...

arm hurting dvt
Posted by glen
Last Reply May 1, 2012 at 01:17
Started May 1, 2012
Hi,39 year old male and new here and had a couple of questions someone may could answer.
I developed a dvt in my left arm from a IV after having my appendix removed and been trying to get my PT INR level straight last few weeks.
Dr.now has me on 5mg warfarin daily,started with 7.5 but was staying to high.Now Inr is 1.9 and he says this is good.My arm hasnt hurt in the last 2 weeks but now today has begun aching and hurting again.he has also put me on toprol 4 days ago for my blood pressure.was wondering if this is normal for my arm with the dvt to start hurting again or is it possible the blood pressure meds interacting with the warfarin causing the aching once again??seems to be hurting above where the dvt was at and in my bicep.Thanks

1 replies...

Call for media case studies
Posted by Katie Russell
Last Reply April 30, 2012 at 12:47
Started April 30, 2012 at 12:47
Lifeblood: The Thrombosis Charity (UK) will be running their annual awareness week in May 2012. This year we are focusing on work and computer-related DVT and we are looking for case studies.

Have you developed a blood clot due to long hours at work?
Did you get a DVT after putting in extra hours in front of the computer?

Please get in touch if you think you are suitable.

Thank you

The Lifeblood Team


0 replies...

How long can dvt last?
Posted by Ray
Last Reply April 30, 2012 at 02:21
Started March 14, 2012 at 20:36
Is it possible to have dvt for months? I've had some pretty bad pain in my calf etc.
but doctors seem to think it's muscular

2 replies...

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