DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4564) - Page 59 of 229
Ache in non-DVT leg
Posted by MummyNic
Last Reply October 3, 2013 at 17:20
Started June 10, 2010 at 21:48
Hi, I had a right calf DVT diagnosed a week ago, and since Monday my left shin/calf have been aching.

I asked the haematology nurses about it today and if I could get it scanned, and they said there was no point as treatment would be the same even if it was a 2nd DVT. The nurse told me in her 10 years she had only seen 1 case of bilateral dvt.

I wanted to know as it would (a) give me peace of mind and (b) may help with identifying the reason.

Have many others had the 'good' leg aching shortly after starting meds ?



6 replies...

Help with DVT/PE
Posted by Denise
Last Reply October 3, 2013 at 13:10
Started October 2, 2013 at 14:46
My husband had neck surgery and in the days after surgery he didn't get up and move around. He ended up in the hospital with clots in his lungs, and was put on xarelto. He had a DVT ultrasound done before we left the hospital and they said there were no signs of clots. Upon discharge from the hospital, the Dr said he should stay on the thinners for 90 days, but our primary care physician wants to keep him on this drug for 6 month to a year. The thinners are making him very drowsy, and weak and he isn't able to take his anti-inflammatory medicine for his arthritis. He now has piriformis syndrome which is crippling him. Out of desperation one day he took one of his anti-imflammamatory medication and the pain from the piriformis syndrome was gone. He's been on the Xarelto for 4 months and he wants to quit taking the Xarelto so he can get back on his anti-inflammatory meds. Are there tests i should request to see if
he can safely stop this medicine? any advice will be greatly ... read more

2 replies...

Lovenox and Hand Cramping?
Posted by Becky M.
Last Reply October 2, 2013 at 14:27
Started October 2, 2013 at 14:27
Hi - last week they found a small clot that they believe was caused by a large baker's cyst i have behind my knee. have now been on lovenox 80 mg/ 2x a day for the past few days.

In the last day, I've started having cramps in my hands - it almost looks like some of the veins in my palm are bulging a bit. Not super uncomfortable, but definitely a little weird. Am wondering if it's a 'get thee to the hospital' side effect or one that I should just mention to my doc next time I'm in?

Thanks!

0 replies...

PE & DVT INR 1.5...scared
Posted by SueM
Last Reply September 30, 2013 at 07:32
Started September 27, 2013 at 09:02
Hi there everyone. To give a brief history - I was diagnosed with large PE and DVT
approx 5 weeks ago, I spent 12 days on hospital as there was a struggle to get my
INR between 2-3. I left hospital on 8mg of warfarin, but since I left, I have been
checked weekly. Over the weeks, my INR has decreased, and today it was
worryingly just 1.5. So...should I be worried - they've increased dose to 9mg?
Also, how does everyone cope with their recovery? Is it just a case of doing what
your body tells you? Feel a little 'on my own'. I'm 44 and female and pretty darn
fed up! Thanks everyone

3 replies...

Feeling pretty darn low
Posted by donnafromcolorado
Last Reply September 29, 2013 at 14:36
Started September 29, 2013 at 14:36
Hello all. I usually make an effort to be positive and helpful, but I'm not feeling that way today. I woke up with bad pain in my leg this morning. As I lay there feeling the hurting, I thought "I'll just get up and take some ibuprofen. Why not?" I've also been having a side effect from warfarin of baking heat and sweating like a lumberjack. I don't know if I can take this much longer. I think this depression has been brewing a long time, but I was unaware. I keep myself busy and involved with life as much as possible. I really do have people to live for that I love and who love me. I have a good life apart from this DVT demon, and there's the rub. I'm so tired of living with the pain and discomfort. I'm tired of trying to be upbeat so people won't have to feel involved in this horror show with me. I've had counseling: breathing exercises, positive visualization, count my blessings, let my Dr. know how I feel, blah, blah... I want the pain to stop.

0 replies...

DVT in calf
Posted by Lisa
Last Reply September 26, 2013 at 17:12
Started September 25, 2013 at 18:00
I've had plantar faciitis in my right foot for about 6 weeks now. I was
advise to stay off of that foot as much as possible, so I've been doing
a lot more sitting than normal for me. At one point, I massaged my right
calf pretty deeply to try to alleviate the PF pain. From that point on,
my calf was sore in that spot. It has been about 2 weeks and my calf is
now extremely sore and slightly swollen. I don't see any bruising, but
it really hurts in that one spot when I flex my foot. I am now kind of
concerned I have a DVT.

I really appreciate finding this forum and would welcome any thoughts,
especially if anyone out there has had a similar experience.

P.S. Does DVT always require hospitalization? I have no insurance.

3 replies...

Antiplatelet meds
Posted by Tim
Last Reply September 26, 2013 at 15:47
Started September 26, 2013 at 15:47
Hi all, I am recovering from a DVT/PE. I was diagnosed in Aug. Of 2012. I was
tested for all the different clotting factors lupus anticoagulant came back
borderline the rest were normal. I have since been retested for LA and again it
was borderline. I had a rescans in Feb. And April That showed no PE but the DVT
was unchanged. I recently had a scan that showed partial flow but it looks like the
clot is chronic. Anyway my question is has there doctor bring up antiplatelet
meds instead of warfarin? My Hemo suggested that might be his
recommendation. My Vascular DR. Say there is no proof that will help. Any
thoughts? Thanks, Tim

0 replies...

Thinners for life?
Posted by Boeha
Last Reply September 26, 2013 at 14:03
Started September 26, 2013 at 13:10
I had my first DVT episode 6 years ago. Took me over a month and a half to finally
get it diagnosed (thought is was a strained calf musle). Did the 6 month warfin but
clot did not dissolve and had PTS. Went through all the blood test but found
nothing. Got it probably after running long distances with a knee string (boy was I
an idiot). Now probably have a second DVT in the same leg (once again from
strainious training) - my question is does this necessarily mean I need thinners
for life? Any one had two DVTs but not on thinners permanently?

2 replies...

Old age DVT
Posted by Jesun
Last Reply September 25, 2013 at 08:25
Started September 24, 2013
Dear All,
My father age 70+ has been diagnosed with DVT in his right lower limb, For his age , Is surgery or angioplasty is the only resolution?
or can we control on medication?
Out of 6 score he has is 1 calf muscle swelling only as of now.
He is fit and has normal physical activities not bed ridden.
Can anyone suggest about precautions ? diet ? can be controlled through medication? etc

5 replies...

bolouke dissolves dvt
Posted by terry
Last Reply September 23, 2013 at 14:39
Started December 8, 2010 at 11:05
has anyone had sucess with an enzyme product called bolouke for
dissolving dvt.bolouke is an propriety earth worm extract(lumbrokinase)which is supposed to attack fibrin and dissolve the clot

4 replies...

home use INR machines
Posted by Chris Jones
Last Reply September 22, 2013 at 12:04
Started April 30, 2008 at 10:17
Morning all.

Just purchased a INR machine from coaguchek.co.uk

Has any one heard of this site/product?
Anyone using an individual INR machine?

I will be using this machine for holidays etc but will focus on the anti coagulant clinic which i attend locally for the real dosage etc.
Please if you have one of these or know of them, any advice etc will be appreciated.

Be Safe

Chris Jones

17 replies...

I need help and advice from fellow sufferers
Posted by Scared_man
Last Reply September 19, 2013 at 18:39
Started September 18, 2013 at 08:32
Hello to everyone here! I am 32, male, work sedentary job. I would lke to ask for valuable advice and support, since I am on the edge of despair and major depression! Any advice and help wll be appreciated! Everything has begun three years ago, in 2010 when I received sharp stabbing nerve pain n my left leg. After an MRI has been made, it turned out to be a disc herniation, pressing on nerve roots, thus creating the pain. Few months later I was diagnosed with a dvt clot in the same leg. The pain was so intense that I could not sleep at nght and could barely walk. I was put on initial boost of heparin treatment for the clot and on warfarin (called Sintrom here in Europe) afterwards. However the pain did not subside and every doctor said that the reason is in the disc herniation. In the end of 2010 I discountinued the warfarn intake, following a conclusion of the doctor. In 2011 I underwent a minimally invasive non-operative treatment of the disc herniation and the sharp nerve pain v... read more

3 replies...

Dvt and still flying
Posted by Lucy
Last Reply September 19, 2013 at 05:43
Started September 19, 2013 at 05:43
Hi,
I'm scared I have dvt after taking a 14hour flight from Australia to LA. about 2
weeks after arriving my left leg felt dead and like concrete, the pain was coming
from the upper thigh area. 2 days later I couldn't walk at all it hurt that much. I
saw a 2 seperate doctors, one who thought maybe a clot, and the other just said it
was muscular. My left leg ended up being about 3-4cm shorter than the right. I
saw a chiropractor for this and it was sorted. My lower back and right cheek
became really saw aswell, I put it down to over compensating from limping.
Which is also what the chiropractor said.
However, it has been over 2 weeks now and I'm still in so much pain in my upper
left leg and also my knee (what feels like joint pain). The pain in my upper thigh
feels like someone is pressing into me with their elbow on a knot or something.
I've been taking ibuprofen and it seems to really help. The pain isn't so bad
anymore during the day, but about 4 hours af... read more

0 replies...

Anyone had - Catheter-directed Thrombolysis
Posted by Bob
Last Reply September 18, 2013 at 12:36
Started May 27, 2013 at 19:59
Having this done later this week on Bupa.
Has anyone else had this procedure?
Thanks.

7 replies...

Having a Few Beers
Posted by Tim L
Last Reply September 17, 2013 at 20:25
Started September 14, 2013 at 17:37
Hi, All
I have been on coumadin for a little over a year now. (DVT/PE Aug. of 2012)
During that time I have not touched a drop of alcohol. I thought I would only be on
coumadin for 6 months to a year. It's starting to look like its going to be a lot
longer, maybe even permanent. They still have not found a reason for my clot and
my leg has not improved. Well it doesn't swell as much and the pain is minimal so
it has improved in that way, but the clot is unchanged. Anyway if this is going to
be a life long thing I would like to have a few Beers now and then the problem is
I'm scared. Lol I'm 6'4 240 pounds and I'm scared of a tiny pill. Any advice?

3 replies...

enteric aspirin vs warfarin
Posted by rob
Last Reply September 16, 2013 at 20:26
Started September 16, 2013 at 16:25
Have DVT liver and spleen. Spleen removed. Wondering if
enteric aspirin could be used instead of warfarin to
maintain therapeutic pt/inr. I hate talking warfarin
because of the side effects

1 replies...

31 yr old female dvt from birth control
Posted by Christina Scroggins
Last Reply September 15, 2013 at 13:17
Started June 29, 2010 at 19:24
im a 31 old female who had a DVT in my left leg it has been horrible:(
The Drs say it was from my birth control pills is there anyone with a similar situation?

12 replies...

Should i go see doctor?
Posted by Lena
Last Reply September 13, 2013 at 18:56
Started September 11, 2013 at 17:51
HEllo everyone. I have been having issues with the pain in my right calf. Pain is located on the back of my calf. Its worth when i sit or lay down. IT comes and goes. I have had a buldge below my knee to the left for about 4 years now. Its soft, but not red or painful or hot to the touch. ALso i had random swelling around my ankle which went away. I have tingly /numb feeling if i run fingers up and down the front of my entire leg. Also my hip joint is hurting if i sit certain way. Pain comes and goes but numb/tingly feeling is pretty much always there. Just wanted to see if i should check this out. THank you

4 replies...

Time to get Medical Advice?
Posted by Margo
Last Reply September 12, 2013 at 19:10
Started September 9, 2013 at 08:55
I've had pain/discomfort in my left calf for about a week now. It's definitely more discomfort than pain and comes and goes. Much worse after I've been sitting, tends to ease off when I'm standing/walking. No redness or warmth.My left ankle is slightly swollen, no pitting. Don't want to waste the doctor's time but I am a little spooked by this, especially as I'm due to fly in the next couple of weeks (only short-haul) Many thanks for any advice. Additional info: I am overweight, 59 years old female, light smoker and I spend a lot of time sitting as I'm a writer and also somewhat lazy!

6 replies...

Pain relief???
Posted by Donnafromcolorado
Last Reply September 11, 2013 at 07:33
Started September 9, 2013 at 20:50
I really need to know what relieves pain when recovering from DVT. I am on 7.5 mg. warfarin and currently taking percocet twice a day for pain relief. I know that won't be prescribed for me again and am at a loss to figure out what to do. The pain still gets bad enough to knock me down after 6 months, and being inactive feels just like punishment. I've been told to just push through the pain, and I really do try, and sometimes even win the battle. But then there are times when I am literally dragging my leg behind me and have to sit out the day. I used to take ibuprofen for arthritis pain and it worked so well. What do I do now?

1 replies...

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