DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4239) - Page 59 of 212
sciatia and dvt
Posted by julia
Last Reply July 1, 2012 at 23:25
Started July 1, 2012 at 23:25
Hi everyone, Im 50 and have recently been told i have a blood clot at the back of my knee, and that probably a bit has broken off and gone to my lung. I have had heparin injections and am now on warfarin. I also suffer from sciatica and am finding that the sciatica pain is much more severe. Has anyone else noticed this?

0 replies...

sciatia and dvt
Posted by julia
Last Reply July 1, 2012 at 23:23
Started July 1, 2012 at 23:23
Hi everyone, Im 50 and have recently been told i have a blood clot at the back of my knee, and that probably a bit has broken off and gone to my lung. I have had heparin injections and am now on warfarin. I also suffer from sciatica and am finding that the sciatica pain is much more severe. Has anyone else noticed this?

0 replies...

Claiming ESA benefit due to Side Effects
Posted by Tracy - Hampshire UK
Last Reply July 1, 2012 at 20:14
Started June 4, 2012 at 17:08
Hi to all you fellow Warfarin sufferers out there. Has any of you successfully claimed a benefit, due to losing your job/unable to work because of the debilitating effects of Warfarin? I don't need to go into great detail about my side effects of 7mg/8mg daily, I'm sure you all suffer the same horrible side effects, but I am now unable to work due to the awful side effects I suffer every day, and I wondered, if anyone has tried to make an ESA claim. How do they measure each individual person? Everyone has different levels of 'feeling ill'. Any advice would be a big help - Thanks, and Take Care.

2 replies...

Warfarin and Period
Posted by Mhorag
Last Reply June 30, 2012 at 17:14
Started June 27, 2012 at 10:21
Could someone please advise me? I have congenital anti thrombin 3 deficiency.
I have been taking 8mg of warfarin since July 2011. I have two children (3 years
and 15 months and was anticoagulated with heparin during both pregnancies
and 8 weeks post delivery and was administered thrombin concentrate during
labour and for 4 days post delivery with both my children). I didn't start
menstruating until my daughter was one and I have had two very heavy (and
unpleasant!) periods in starting 15th April and 23rd May and both lasting about
5 days. Just now I am experiencing brown discharge and yesterday some red
blood when I wiped. My husband and I have been practicing safe sex (mini pill)
and a hpt yesterday was negative. Any advice for the massive change in my
periods or is this expected? My Hemetologist and GP told me to expect very
heavy bleeding but not very light or brown! Many thanks in advance :-)

1 replies...

Any Indian diet site for Dvt patients??
Posted by Priya
Last Reply June 30, 2012 at 09:56
Started February 27, 2009 at 03:41
hii
i ll be greateful if u suggest me the site which contains the indian diet specially for DVT patients? I need Low Vitamin K diet [ which suits Indian food habits mainly rice and other veggies ]
THanks in advance.

2 replies...

Does pts worsen over time?
Posted by jade
Last Reply June 30, 2012 at 03:49
Started April 27, 2012 at 22:51
I got an extensive dvt 2 years ago folliwing childbirth and have never recovered.
My leg is still bigger than the other and swells when walking, i cant walk up hills it
is painful, i get cramps, its itchy, heavy and have started developing varicose
veins now. My doctor didnt seem to care and discharhed me basically saying put up
with it just be glad ur alive (which i am)! I am wondering if pts eorsens over time
or is this as bad as it gets? Im only 27 years old a and im worrued that by time im
fifty ill have trouble walking anywhere. Is there nothing that can be done?? On
another note when i have been walking for a while and my leg gets really swollen
i feel very dizzy is thanyobe ever experienced this??

3 replies...

Warfarin has stopped - pain has started...
Posted by Christel
Last Reply June 29, 2012 at 13:41
Started June 29, 2012 at 13:27
I have now been off warfarin for just over a week and today I am experiencing pain in my calf and behind my knee where i had the DVT. I am just a bit anxious and wondered if this is fairly normal after stopping warfarin or if I should follow this up with my doc? Thanks

1 replies...

Low Blood pressure while on medicines
Posted by Hyfia
Last Reply June 29, 2012 at 11:51
Started June 29, 2012 at 11:51
A month ago I had a PE. It was the third time I was diagnosed with thrombosis/PE. In the US people are put on Warfarin, in the EU (where I live - in the Netherlands ) we use Acenocoumarol. It's about the same. Now I started to use the new drug Rivaroxaban. I have none of the side effects that are known for this medicine. But I recently found that my blood pressure has dropped quite a bit. It's now daily around 110/70 (used to be around 130/90). That's not a problem, except when I have eaten. After 30-60 minutes the pressure drops to 90/58 and my heart beats very strong. I found one other person in this forum on Pradaxa who had the same problems. See "anyone heard of the new drug pradaxa??" the answer of Lynn January 6, 2011. Is there any one else who experiences the same problem with their blood pressure?

0 replies...

legs aching after swimming
Posted by Claire
Last Reply June 29, 2012 at 03:02
Started April 8, 2010 at 15:26
i've started excersizing again since my dvt in August last year,walking mainly- about 3 miles around my subdivision several times a week,but just last week finally it was warm enough to go swimming,i did a fair bit,but boy do my legs ache now.Is this normal ??

5 replies...

Compression Hose-How they make leg feel...?
Posted by KJen
Last Reply June 28, 2012 at 09:45
Started June 14, 2012 at 16:40
I didn't know about wearing compression hose to lessen the chance of post thrombotic syndrome until after I got off a year of Warfarin. I had been diagnosed with a small clot in my lower inner calf in June of 2011. I was curious about some aches I had in my legs, a heavy sensation and what felt like swelling around the knees.

The feelings would go away after I elevated my legs and when I got up in the mornings. They were inconsistent, happening every few days and being more or less noticeable at times. I started looking for reasons as to why, after my doctor told me I probably had arthritis in my knee, but that didn't explain the rest of the feelings.

I've worn the compression hose when I flew last year, but this is the first I've tried wearing it daily. What have other people felt when wearing them? I can feel the most pressure at my lower calf and at the top of my knees. I was measured to get the right fit so don't know if that's normal or if I pulled/stretched th... read more

9 replies...

Dizzy, feeling of faint, unbalanced,(HELP)
Posted by Tara 2012
Last Reply June 27, 2012 at 15:57
Started June 27, 2012 at 15:57

HELLO EVERYONE,

IT’S BEEN A WHILE SINCE I LAST VISITED, AT ANY RATE; RECENTLY I’VE EXPERIENCED DIZZY SPELLS ALONG WITH UNBLANCED AND FEELINGS OF FAINT, AND SOMETIMES NAUSEA.NOT TO MENTION THE OTHER SIDE EFFECTS WHICH I'VE LEARNED TO DEAL WITH, (FORGETFULNESS, UNABLE TO SLEEP AT NIGHT, MOODY, TROUBLE CONSENTRATING, ETC). I HAVE BEEN ON WARFRIN SINCE MARCH OF THIS YEAR. ASIDE FROM THAT I TESTED POSITIVE 3 TIMES (ANA).WHATEVER THAT MEANS.
I WAS ADMITTED TO HOSPITAL AS AN OBSERVATION PATIENT. THE ONLY THING THE ATTENDING PHYSICIAN DISCOVERED MY CALCIUM AND POTASSIUM LEVELS WERE LOW. I WAS GIVEN POSTASSIUM INTRAVENOUSLY AND TOLD TO EAT A BANNANA EVERYDAY.
A VENOUS DOPPLER WAS DONE ON BOTH LEGS WAS TOLD THERE WERE NO SIGNS OF DVT,THAT THE CLOT HAD DISSOLVED.ALTHOUGH,I HAPPY THE CLOTS ARE GONE BUT THERE IS STILL SOME SKEPTICISM, ITS LIKE YOU GET RID OF ONE THING AND ATTRACT ANOTHER. I TRY MY BEST TO REMAIN POSITIVE AND UPBEAT, RECENTLY, RETURNED BACK TO WORK AND WORKING OUT. I MUST... read more

0 replies...

Treatment of Chronic DVT
Posted by David
Last Reply June 27, 2012 at 12:41
Started September 30, 2008 at 03:42
Our 16 Year old daughter was struck by a 4WD while crossing a pedestrian crossing 8 months ago. After 14 days in ICU and a further 8 weeks in hospital she is slowly rebulding her life. Unfortunately she developed a DVT in the Iliac vein that extends from just above her knee to just below the renal vein. Fortunately they had put a IVC filter just below the renal vein whilst she was in ICU, which prevented the clot from getting to the heart and lungs.
She now injects herself with Clexane daily and wears thigh length pressure stocking during the day. Given that she is looking at living with the consequences for the next 70-80 years we are looking for solutions that will give her the best quality of life. Without any further treatment the prognosis is leave the filter in and be in warfarin for the rest of her life. It will also limit air travel and present problems with child birth. We are hoping for something better. We are looking for ways of removing the clot and have seen there are... read more

32 replies...

How long does it take to stabalize the clot?
Posted by Christina
Last Reply June 27, 2012 at 07:06
Started September 2, 2008 at 01:56
Does anybody know for certain how long after you get a clot it stabalizes? In other words, how long before it is less likely to break off?

I was diagnosed with arm clot last week from my August 20th surgery. Currently taking aspirin as he said "coumadin" would be over kill in my situation. I return this coming Friday for another ultrasound and for another consultation with same vascular surgeon. They first said it was in superficial vein and then just last week the vascular doctor said it looked more like deep vein but hadn't moved.

This is just scary for us new folks. Going in for surgery is horrible enough but coming out with a clot is mind bending!!!

I do know after reading all the Posts on this forum that arm clot is not as common as leg clot and that my situation is totally not as complicated or scary as others out there; however it doesn't make it any easier.

Thanks,
Christina

7 replies...

INR too low?
Posted by Ashley
Last Reply June 26, 2012 at 17:21
Started July 8, 2009 at 19:09
I have had a DTV for 2 1/2 months now. My INR has never been over 2, it has stayed at 1.99 and my last check was at 1.49 and they said that was fine. My leg still hurts so I would assume the clot is not gone. In the beginning I was told I needed to stay between a 2-2.5. Does this sound strange to anyone?


5 replies...

Anxiety over DVT
Posted by Mike
Last Reply June 26, 2012 at 15:24
Started November 18, 2008 at 22:44
It's normal to have anxiety while coping with DVT. Check out this
extensive list of anxiety systems.
Common anxiety symptoms include:
Body (anxiety symptoms commonly associated with the body in general):
Allergy problems, increase in allergies (number, sensitivity, reactions, lengthier reactions)
Back pain, stiffness, tension, pressure, soreness, spasms, immobility in the back or back muscles
Blanching (looking pale, loss of color in the face or skin)
Blushing, turning red, flushed face, flushed skin, blushing, red face or skin
Body jolts, body zaps, electric jolt feeling in body, intense body tremor or “body shake”
Body temperature increase or decrease, change in body temperature
Burning skin, itchy, “crawly,” prickly or other skin sensations, skin sensitivity, numbness on the skin
Burning skin sensation on the face, neck, ears, scalp, or shoulders
Chest pain, chest tightness
Choking
Chronic Fatigue, exhaustion, super tired, worn out
Clumsiness, feeling cl... read more

33 replies...

Itchy and dry scalp on warfarin
Posted by Karen
Last Reply June 26, 2012 at 11:33
Started March 18, 2012 at 22:56
I've been on warfarin now for 4 months, and I have noticed that I can
pick little dry patches off of my scalp and it gets really itchy
sometimes as well - is this a side effect that anyone else has felt?
thanks

1 replies...

Varicose veins DVT threat and C-section
Posted by Arshi
Last Reply June 26, 2012 at 08:23
Started June 26, 2012 at 08:23
During my second pregnancy 10 years back, I had varicose veins in my vulva area which ruptured at the time of vaginal delivery. But the doctors managed stopping the excessive blood flow, now I am pregnant with my 3rd child and I have bad varicose veins in my left leg and vulva area. I am presently taking innohep injections to avoid DVT and also scheduled for a c-section at 38 weeks to avoid rupturing of my veins.
I am very nervous as I heard C-section is not a good option for DVT, but my doctor insists on one as she is concern about rupturing of my veins at the time of vaginal delivery.
Has any one under the same situation as I am? Please help…


0 replies...

big ankle
Posted by katie
Last Reply June 26, 2012 at 06:46
Started June 26, 2012 at 06:46
ok so my coumadin level looked high and so the dose was dropped.. long story short the "high" level was most likely a fluke and then my level dropped under 1 in 2 days.. during that week - really a couple days by ankle looked like i had slouch socks on super super big ankle and foot, i had to cram my foot into my shoe.
OK so my level went back up after a couple dose changes and now my swelling is back to normal. I officailly come off of the coumadin in 1month and start one aspirin a day instead. now I am thinking crap am i doomed to have a huge swollen ankle/foot for ever? !!!
I had an u/s done and it appears that nothing is going away :(

0 replies...

Misdiagnosis?
Posted by Shirley
Last Reply June 25, 2012 at 18:44
Started April 10, 2011 at 20:24
I am worried that I might have been misdiagnosed. I have been in constant excruciating pain for four months in mostly my left leg but also in my right leg to a lesser extent. The doctor just gave me tramadol and naproxen and wants to blame it on arthritis but the pain is nothing like anything I've ever felt before, I walk with a stick because I can't walk properly, I have pain in my calves, thighs, hips and groin area. How would I know if this is a DVT and what happens if it doesn't get diagnosed?

16 replies...

Lasix/HCTZ
Posted by latrejm
Last Reply June 25, 2012
Started October 8, 2011 at 02:50
I was recently diagnosed with another clot. I have extreme swelling in my right leg (were the clot is located), my doctor put me on Lasix and HCTZ today to help with the swelling. I was wondering if anyone else is taking anything for swelling and/or how can you reduce the swelling. I just got my compression stockings today also, so I have had it on all day, hoping that the swelling will start to go down.

4 replies...

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