DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4520) - Page 59 of 226
IVC - additional clots
Posted by Nona
Last Reply August 5, 2013 at 20:03
Started August 5, 2013 at 20:03
Hi everyone, approx. 45 days ago I had a IVC Filter (Celect by Cook) place. After awaking from the surgery I was experiencing extreme back pain and groin pain. I was told the groin pain is common and will go away within 2 to 3 days. No one every address my back pain and I didn't even get of the hospital bed yet. Thereafter that day my groin to my hip to my back was killing me and I mean killing me where I could not walk a step and when I tried I would collapse from the extreme pain. I also had chest pain, belching, breathing problems, intestinal pain with abdominal pain. I have been bed ridden for 45 days. I can only lay flat on my back unable to move. I telephoned the IR people asap that following Monday and everyday thereafter with no response. I went to the ER 3 times not able to walk etc.. as described above and I was told to go home. I went back again for it all had gotten even worse. Than I was told I had a bulging disc. Well I had a disc bulging sine 1995. It did not bother m... read more

0 replies...

DVT From 2 years ago
Posted by Valerie Jenkis
Last Reply August 5, 2013 at 19:45
Started August 5, 2013 at 16:19
I got DVD 2 years ago due to a fracture in my foot. I wear the
compression stockings as I was to told to for at least 2 years. I still
get pain in my calf and have had doplar scan a bbc d seems veins all
running good. Pain possibly is post traumatic syndrome due to the damaged
vein.my calf seems swollen and more so and aching with the stockings on.
Will this ever go. I do leave stockings off occasionally when it's hot
weather. I,m always anxious it will return. Ankle also sometimes swells
and fluid which I'm to look d is all to do with the DVT. Can you advise.

1 replies...

Anyone have MRV - subclavian vein
Posted by Christine
Last Reply August 4, 2013 at 19:44
Started August 4, 2013 at 19:44
Hi all - I am having severe pain in my subclavian vein and armpit/axilla. I had
bilateral PE after trauma to right arm and subsequent shoulder surgery. I have
been off warfarin 4 months now after being on it 6 months. I have been to ER
bc of pain and swelling in right arm. Ct scan shows no new PE and Doppler is
also negative for clots. Recently went to new vascular doc and she told me I
have diseased subclavian vein and will need MRV. I am so scared because have
been complaining of pain under clavicle and all docs ignored me and I might
need to go back on blood thinner. Please let me know if you have had magnetic
resonance venography and what I should expect. Thanks

0 replies...

shivers up leg
Posted by Jennifer
Last Reply August 4, 2013 at 12:31
Started August 4, 2013 at 12:31
Hi I have antithrombin deficiency and have a clot in my femeral and ilac
vein - happened 17th June whilst on holiday! I am currently on warfarin
and will be for life and am wearing the strongest compression stocking -
I get shivers up my dvt leg regularly does anyone else get these
feelings and if so do you know what it is?? I have searched on-line but
can't find anything!

0 replies...

Dvt shoulder surgery
Posted by Christine
Last Reply August 3, 2013 at 10:03
Started August 3, 2013 at 10:03
It's a year ago today I had arthroscopic shoulder surgery due to a violent trauma
i suffered involving a ladder. It almost took my life as I wound up with a
bilateral pulmonary embolism. I (and some of my docs in NYC) believe the clot
was in my arm/shoulder area after the trauma went undiagnosed and orthopedist
performed surgery. I am still suffering in pain and have been to many many
specialists in NYC. I have been tested for every blood coagulation disorder by
different hematologists and they all confirm I do not have a blood clotting
disorder. I am finally off warfarin (rat poison) but the pain in my arm, shoulder
and clavicle have gotten worse!! Yesterday, I saw a new vascular specialist and
a Doppler revealed diseased/swollen subclavian vein. The doctor believes this
could be remnants of the old clot? I've had dopplers in that area before and they
were normal. I was on blood thinner for previous dopplers. Would it change the
way a vein looks? I ... read more

0 replies...

Factor V Leiden and factor VIII levels
Posted by Feelgood
Last Reply August 2, 2013 at 03:39
Started July 22, 2008 at 09:55
The association between high factor VIII:C levels and venous thrombosis has been confirmed in several independent studies.
There are several studies reporting that high levels of factor VIII are associated with an increased risk of recurrences of thrombosis.

To have blood types A, B, or AB puts a person at higher risk for deep vein thrombosis (DVT) or pulmonary embolism (PE) than to have blood type O. The people with blood types A, B, or AB have about double the risk for DVT and PE than people with blood type O. This is probably mostly due to people with blood type A, B and AB having higher factor VIII levels than people with blood type O; and high factor VIII levels are a known risk factor for DVT and PE.

So people with blood types A, B, and AB have a higher risk for DVT PE than people with blood type O, and having factor V Leiden at the same time increases the risk for clots even further.

Elevated Factor VIII Levels and the Risk of Thrombosis:
read more

3 replies...

Suppliers of Compression Stockings in UK
Posted by Essie
Last Reply August 1, 2013 at 20:24
Started June 5, 2011 at 16:17
Hi guys

I was just looking for some new Mediven compression stockings and found the following website, which may help some of us. Finally found some open-toe stockings in black, so can wear flip-flops for a while on hot days (how sad that this making me excited lol!!)

http://www.daylong.co.uk/home/home.html

Bye for now :)






2 replies...

Recent diagnosis, very confused
Posted by Kory
Last Reply August 1, 2013 at 18:37
Started August 1, 2013 at 12:02
I am 36 weeks pregnant, and about 2 weeks go I started experiencing pain/swelling in my right thigh. My OB sent me to the ER to have an ultrasound done to rule out blood clots - and it was ruled out. Nothing was found.

Over the last two weeks it went from bad pain to completely unbearable. I have 4 young kids to take care of and ended up getting wheelchair to get around because I couldn't even make it to the bathroom without tears. 2 days ago my OB sent me back to the ER, where the same test showed a clot from groin to knee. I stayed in the hospital until yesterday afternoon, and am now on Lovenox twice a day. They told me it's probably strictly pregnancy-related and not likely to continue after this is initially resolved.

I definitely consider myself a research fiend when something strikes an interest, so I've been on the web for the past two day trying to understand my diagnosis. I'm only more confused by what I'm finding.

It looks like the general rate of developing PE ... read more

1 replies...

DVT and its quiet effects
Posted by rachel
Last Reply August 1, 2013 at 06:07
Started August 1, 2013 at 06:07
I had a DVT, but prior to it going bang, I suffered with stomach pains and problems with pains in my botty! So bad that only a bath would ease (sorry for being blunt) I would suffer with chest pains, lower jaw pain on the left side as well as headaches. Had anyone else suffered with similar? Don't be shy just say. I know now when my blood is getting to thick and the Warfarin is not working as my previous symptoms start to come back. 9th September is my end date, don't see it happening as my INR jumps around like a kangaroo for some reason. Must be the brain op I had and the severe Varicose veins with Thrombophlebitis!!! Just keep on smiling.

0 replies...

Fruit / herbal teas- can I drink them?
Posted by H
Last Reply July 30, 2013 at 16:27
Started October 19, 2009 at 09:05
I'm aware that green tea should be avoided whilst on warfarin but was
wondering if fruit teas (obviously excluding cranberry and grapefruit) can be
drunk without any interactions? The key ingredient other than fruit seems to be
hibiscus and I can't find any record of this causing problems....?

11 replies...

Compression devices study
Posted by Chris
Last Reply July 30, 2013 at 09:45
Started July 30, 2013 at 09:43
This is interesting. Like some of us I've been using a compression device on my
leg had the blood clot. I use it fairly often at night while I sleep. I find it helps
keep the leg feeling good and the swelling down. I have suspected that it is a
major part of my leg not re clotting. Basically here are some studies showing that
compression devices seem to help prevent reclotting better than some other
therapies. The situations studied are a bit different from many of our situations
but I believe they may may be applicable, largely because they match many of our
experiences on this board.
"
Two recent studies show a similar reduction in DVT among stroke patients and
those in the ICU from the use of intermittent pneumatic compression devices. Dr
Goldhaber discusses the relevance of these trials and the importance of up-to-
date clinical-trial data."

http://ww... read more

1 replies...

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Last Reply July 30, 2013 at 06:18
Started July 30, 2013 at 06:18
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0 replies...

OMG ANXIETY NEEDS TO GO AWAY CAN'T EVEN DRIVE
Posted by J Morey
Last Reply July 29, 2013 at 15:50
Started July 27, 2013 at 15:16
it's bin two months now since i was rushed to the hospital with a dvt
and PE i spent a majority of them two months glued to the couch in pain
now finally starting to feel a little better and starting to walk around
alot and sleep on a matress would really love to drive around be
developed this odd severe anxiety even driving to the hospital to get my
inr cheked seems to make me suffer a major attack anyone else suffering
from this??? how do you make it go away

2 replies...

Will i ever get over this DVT
Posted by Anna
Last Reply July 29, 2013 at 10:22
Started July 29, 2013 at 10:22
Hello all
I was developed a DVT after surgery a few months back. I'm wondering will the DVT go away in 3 month to 6 months of being on Warfarin? And how does a clot desolve on it's own?

0 replies...

Airplane & Coumadin
Posted by me
Last Reply July 29, 2013 at 04:21
Started October 4, 2008 at 20:56
I have been on coumadin for 2 weeks since having a 2 foot long DVT from groin to thigh to knee to calf. I asked my doctor if i could travel on a plane and she said yes if i am therapeutic on coumadin.

I heard if you take coumadin you cannot travel on a plane at all.
I have google fo rinfo and find nothing.

can anyone help?

14 replies...

A new DVT patient 50 year old
Posted by Desiree
Last Reply July 28, 2013 at 12:23
Started July 28, 2013 at 12:23
Hello everyone
I was diagnosed with a DVT from my ankle to my groin July 7th after a broken abkle surgery back on May 7th. I was in the hospital for 6 days with 5 days of Lovenix and now 5mg warfarin. My level in the hospital was 2.3 but after a week and a half i finally had a blood test and it had shot up to a 6.1. My doctor reduced my Warfarin to 2.5mg.I'm not eating as well as i did in the hospital and just trying to eat like i normally did without the vitamin K foods but i'm worried i'm doing everything wrong and my swelled up leg will never go down but i'm trying to cut out salts now in my foods. I'm just starting to walk on healed ankle and wearing a compression stocking they gave me during my operation. Since my thigh is so swollen i'm not sure if i can ever wear compression on it. My doctor doesn't recommend it for now. I need to go back to work or i'll lose my job if i don't in a month in a half. I wonder if i can ever work in this condition at cash register job agian??? ... read more

0 replies...

DVT filter in groin gone wrong?
Posted by Nancy
Last Reply July 26, 2013 at 13:52
Started July 26, 2013 at 13:52
I pray that some can help me or give advice if they went through the same thing.
I had a IVC filter put in 5 weeks ago because I kept getting clots in both legs and the pills would not thin my blood out so I am also on lovenox every day now also. I don't have F-Factor V and no blood disorders they can not explain the clots. Anyway, the filter was place through the groin on the right side aprox. 5 to 6 weeks ago. When I awoke from surgery I informed them of the serious pain I was having in my back. Also I said my groin hurt mid way down my thigh aswell. They told me the groin will hurt for a few days and go away. Bed rest for the next two days following they said. Throughout my six hours of laying there they dismissed me telling them how bad my back hurt. Well to stay the least my groin is killing me still up through the fold to my hip and into my lower back. My groin has a burning sensation also and cool rags or ice is still being placed on it. Also my chest feels like I have food ... read more

0 replies...

New Stock of pretty Polly tights
Posted by Nancy
Last Reply July 26, 2013 at 05:42
Started July 26, 2013 at 05:42
Hello everyone
My name is Nancy. I am new on this topic and I was searching about some pretty Polly tights for myself. I get dozens of styles and colours at eBay store. They offered many styles of women’s tights in a variety of fibbers, textures and colours. Please check this out and tell me, what you think about their tights.?? I found their products (tights) beautiful and sexy.


0 replies...

DVT, DOMS, or...?
Posted by BrooklynGuy
Last Reply July 25, 2013 at 19:36
Started July 25, 2013 at 19:36
Hi, first post here. This seems like a very smart DVT community, so I thought I'd come
here to ask for help.

Me: 55 yr old male, 5'5", 143.5 lbs, BMI a little too high at 23.9, pretty healthy legs and
feet most of my life, 2 hernia repairs, no cancer or heart disease, lots of anxiety and
chest pain for years from PTSD/panic disorder, lots of psychiatric drugs, mostly off
them now but suffering withdrawal from Clonazepam. I bicycle when I can, but haven't
exercised (cardio) much this summer, tho I've been active physically.

Anyway... NYC had a long heat wave recently, something like 10 to 16 days, and I went
biking 3 days in a row in 90- and 100-degree heat. I get heat exhaustion really easily,
so I don't know what I was thinking.

Right after that I started getting a dull, aching, constant pain in my left calf—specifically
the entire length of either the Peroneus longus (nerve supply superficial fibular (L5-S1))
OR the Soleus (nerve supply tibial nerve (S1-... read more

0 replies...

Chronic DVT
Posted by Nichole
Last Reply July 25, 2013 at 08:04
Started July 24, 2013 at 23:33
Hi - My husband has had chronic DVT and now has developed a Venous Ulcer. We are
trying to find the top Vascular Surgeons in the country to see if they can help, because
his current doctor can't help. Does anyone have someone that has helped with chronic
DVT? He had a stint put in and it has blocked, he is on coumadin as well. Thanks for
any help!

2 replies...

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