DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4456) - Page 59 of 223
When does the pain stop?
Posted by Jo
Last Reply June 2, 2013 at 08:42
Started September 28, 2010 at 07:50
Hi - diagnosed yesterday with 3 clots just below knee and whacked straight on warfarin and daily injections. There are 10 Clexane injections in the box with a repeat on them. I'm on crutches with a broken foot in a cast which is how I got into this mess in the first place. The DVT pain is much worse than the broken foot. It hurts as soon as I stand up - I can't even brush my teeth so the most I can bear being vertical is only a few minutes at a time. Then I've got to sit down in a hurry.

My work is cool with me taking as much time off as necessary - I've got about 60 days sick leave so that's not an issue at the moment. I have no idea when I'll be back at work. Doctor says we will deal with this week first and then see where we are at. At this point, it would take me forever on my crutches to get from my desk to the toilet at work anyway. I'd be grimacing with pain at that sort of distance.

Has anybody been in a similar situation with the pain? The last three days have been th... read more

7 replies...

what type of Dr. should i see for dvt issues
Posted by jen
Last Reply June 1, 2013 at 18:57
Started June 25, 2010 at 01:19
I have Kaiser insurance and I am only getting help from my primary care Doctor. After being on coumadin for months, another thrombus has formed in my right upper posterior tibial veins. My Doctor doesn't seemed concerned. The only treatment I have received is the blood thinners. I am concerned about PTS.

I would like to request a referral, but am unsure exactly what to ask for. Please help!

5 replies...

Post Clexane Pain
Posted by Paul
Last Reply May 31, 2013 at 02:17
Started May 31, 2013 at 02:17
Hi guys, I have recently become therepeutic on Warfarin for 2 x 10cm clots below
right knee. Hence my GP has taken me off the Clexane injections. I am finding
that my leg is hurting mor now since stopping the Clexane. Has anybody else had
similar experience upon stopping Clexane?

0 replies...

INR Test and Doctors Response Time
Posted by Patartsy in VA
Last Reply May 30, 2013 at 18:39
Started January 15, 2011 at 13:37
My sister has her INR checked on a weekly basis. Her levels are never consistant so she has to either up or lower her Warfarin. The thing that bothers her most is that she doesn't have confidence in her doctor's staff to call her in a timely manner with the results. This week she had her levels checked on early Tuesday morning. She never heard from anyone so midday Friday she called and asked for the results. As searching another staff member gave her last weeks level and she question that and then the staff person looked a little more and said you are right that was last weeks. Finally she was able to find out that her levels had dropped all the way to 1.2. So she needed to increase her warfarin that day. Is this common to have doubts about your doctor and staff keeping you in the loop. After all this is a life threatening situation. Any thoughts?

9 replies...

dvt
Posted by paula
Last Reply May 30, 2013 at 18:34
Started May 30, 2013 at 18:34
Hi all iv never been on here b4 but wud be greatfull 4 any advice ,a year ago after a straight forward op I develop 2 dvts in my left leg 1 in my calf and 1 behind my knee ,iv been takin warfrin 4 over a year now but am still having problems with my leg it swells all the time and my feet burn and go bright red ,iv eventually seen a consultant and had a scan on my leg last week ,it seems my legs still blocked behind my knee so my bloods not circulating as it shoud be ,this is what's causing my feet 2 swell and burn ,iv been told I mite have 2 have surgery 2 remove the clot ,has any 1 had such procudure ? Am really nervous ,thanx in advance 2 any1 who replies x

0 replies...

New DVT
Posted by Nate
Last Reply May 28, 2013 at 21:30
Started May 21, 2013 at 03:46
Experienced Firsr DVT and multiple and PE's 6 months ago. Off coumadin for
about a week now. Noticed swelling around my ankle a few days ago this
morning the pain was unbearable. Didn't want to make a trip to the ER but
figured better be safe than sorry. Found out I have 2 new clots ER doc was very
vague and uninterested felt like he just blew me off. Is it unusual to develop clots
so quickly after being off coumadin for a little over a week? Was hoping to get a
little more information before I left the ER but that didn't happen.

2 replies...

dvt's due to iv drug use
Posted by maya
Last Reply May 25, 2013 at 02:46
Started October 19, 2007 at 17:16
is there anyone out there who has had dvt's through drug use and is afraid to go from Low weight molecular heparin (clexane) to walfarin because of the risks of internal bleeding if i relapse - in the last 4 months i've reduced from an average of 6 - 8 hits a day snowballing to an average of 6 hits a fortnight - i do want to keep on my script and go to rehab but i know if i'm on walfarin and i wanna use i'll just stop taking the walfarin - i'm too scared to tell my doctor why i don't want to go to walfarin - i feel guilty that i want to remain on clexane because i know it's 11 per day for them - i sometimes think i should just try and adapt my diet and stop wasting their time - i'm now afraid to post this - yeah i got this from my own actions - is their anyone who's been where i am - should i just drink cranberry juice and have done??

6 replies...

DVT In Chest
Posted by Harry
Last Reply May 24, 2013 at 09:04
Started May 23, 2013 at 08:46
Hi there,

2 years ago i was found to have a blood clot in my Thorax (upper
chest), did all the treatment, and have been off the warfarin for a
year and a half.
Im a guitarist and im finding that when i play my arm swells up and
restricts my playing quite a bit.
Can anyone recommend what i can do?? i know this is probably wrong,
but i have been taking a handful of asprins and a few pints before
gigs to help me get through them.

Any suggestions would be appreciated.

Cheers


7 replies...

Can i wear my compression stockings twice ?
Posted by Taibat
Last Reply May 23, 2013 at 16:28
Started May 22, 2013 at 23:59
I am new to compression stockings. My doctor prescribed knee high
compression stockings for my odema/venous problems. I have started using
Sigvaris compression stockings but I am not quite sure how to use them. I was
instructed to wear the stockings when i wake up every morning and off them at
night. I realise that one has to wear a new pair of socks daily. I wake up very early
in the morning to observe my prayers and have my bath about four hours later.
This is my normal daily routine. My problem is that If i wear the compression
stockings as soon as i wake up, can i remove the stockings four hours later to
enable me have my bath and then wear the same pair of stockings after the bath
since it is still the same morning or am i suppose to wear another pair of
stockings? Is it better for me to delay wearing the compression stockings for four
hours until i have my bath? I am really confused because i want to ensure that i
use the stockings correctly so that i c... read more

1 replies...

Yaz Lawsuit
Posted by Rose
Last Reply May 22, 2013 at 10:39
Started April 1, 2010
Since I've tested abnormal for APC Resistance and have to have further testing later this month, when I saw one of those commercials for a class action lawsuit against the maker of Yaz, I called and had my info taken. The law firm is taking my case and fedexed me paperwork to sign. They were interested in the fact that I tested abnormal for a genetic clotting disorder.

Initially, I held off contacting any law firm until I had the result of my genetic testing. However, something told me to give them a call anyway and I'm glad I did. They are trying to push for the drug manufacturer to add to the Yaz prescription instructions that patients should be tested for genetic clotting disorders that they may not be aware of before being put on Yaz. Somehow having the disorder, although possibly dormant coupled with the Yaz is what may be causing DVTs and the associated problems.

Just wanted to share this with everyone. I'll keep you posted as this develops.

Other side effect ... read more

8 replies...

How does congestive heart failure fall
Posted by pandra bozeman
Last Reply May 21, 2013 at 17:50
Started May 21, 2013 at 01:00
I have congestive heart failure my doctor told me it because of the blood clots
how is that?

1 replies...

Menstrual cycle after DVT
Posted by Leona
Last Reply May 20, 2013 at 11:43
Started May 20, 2013 at 11:43
First thanks for all the great information on this forum, I have been reading for a
few years now.

About 3 years ago I was diagnosed with DVT in my leg and had a few minor PE's,
it was misdiagnosed at first so by the time I made it to hospital things were pretty
bad, after a few weeks in hospital and 2 years on warfarin, I am almost back to
normal now. Other than the constant ache in my leg my biggest worry in that my
menstrual cycle has still not returned to normal. I live in a country where English
is not the first language so it is a little difficult to talk to my doctors about this.
Wondered in anyone else has had a similar problem or has any ideas about this.

Thanks in advanced for any help

0 replies...

Torn Meniscus, DVT
Posted by Tom
Last Reply May 19, 2013 at 06:42
Started May 19, 2013 at 06:42
I had an accident while playing basketball of March 2012. I do not
have insurance, so I was forced to heal and rehab the knee myself.
With much research, I've realized I had torn my meniscus. I wore a
brace for the following months with light exercise, until I felt
strong enough for heavier exercise such as playing basketball again 3
months later. My knee has felt fine for the most part, although me
knee does shift and feel unstable, for the most part it is strong.
During January 2013, I had increased pain in my thigh, which lead to
my calves. The pain subsided a month later and I felt fine. During
February, I have noticed that a bump was forming from the back of my
knee. I researched what it might be and it turned out to be a Baker's
cyst. During this time, my calves were swelling up. I thought it was
due to the fact that my body was producing more muscles to support my
knee. Well long story short, I checked into the hospital with a severe
DVT from my ca... read more

0 replies...

Update - now on Lovenox
Posted by Bob
Last Reply May 18, 2013 at 12:47
Started May 18, 2013 at 12:47
The last 18 months as I worked through the broken healthcare system in America,
I feel once again that I dodged another bullet. I spent several hours in the ER last
night only to find the rat poison, Coumadin, is not working. Well its working and
keeping my blood thin, but I find now I need Lovenox.

So why does it take an ER doctor to find this stuff and take action?

Lately, I've been having problems with my leg and foot wanting to fall asleep.
Feels achy, heavy, tingling, numb, hot. Feels like it did when I got the first DVT 18
months ago. No swelling. Pulse in my leg is excellent.

Not sure exactly why - my INR was 3.2 a month ago, and yesterday read 4.4 at the
Coumadin Clinic.

Maybe the sharp increase in INR was due to my orthopedic surgeon shooting
cortisone into my shoulder two weeks ago? I guess the surgeon is perplexed why
the two packs of steroids he ordered back in March to knock out the inflammation
from the rotator cuff and bicep tendon su... read more

0 replies...

Natural sleep without pain
Posted by Karen
Last Reply May 16, 2013 at 21:18
Started May 29, 2012 at 04:20
I had knee surgery on 26th April this year and 5 days later was rushed to the Er with a clot that had travelled from my ankle to my groin. The pain I had in my calf I though was due to the bandages, unfortunately not. Since then I have been having Clexine 2 x daily along with Warafin. INR levels peaked at 3.2 then have gradually dropped backed with the latest being back down to 1.3 on Monday. I wear a compression stocking and have been told that I will need to wear it for the next 2 years. I was just wondering if anyone had any suggestions for sleep. I sometimes go for up to 2-3 days without sleep due to the throbbing in my legs and the headaches brought on by the Warafin. My doctors have given me Mersyndol Forte for the headaches that the warafin is bringin on and Oxazepam to help me sleep, but I am concerned about becoming dependant upon the oxazepam so I try to use it sparingly. Add to this that the warafin akes me pee so much that just when I do manage to get to sleep my... read more

1 replies...

Gym help
Posted by Diane
Last Reply May 15, 2013 at 18:29
Started May 14, 2013 at 19:18
Hi,

My DVT is 2 years old and veins still about 50% occluded. I have fragile control on PTS. I'm looking at joining a gym and wondering if there is any equipment to avoid/specifically use. Has anyone any advice/experiences to share?

I was thinking of the treadmill to measure distance and speed and avoiding cross trainer/bikes because of pressure on calf/thigh muscles.

Thanks in advance

Diane

3 replies...

PROLONGED VAGINAL BLEEDING
Posted by Brandy
Last Reply May 15, 2013 at 16:14
Started May 15, 2013 at 16:14
So on march 9th of 2013 i had a baby all was fine went home then all of a sudden went in with excesive vaginal bleeding so had to get a dnc which led to me being diagnosed with dvt and pe still healing from having baby vaginally was fine for awhile after the dnc then started having excesive vaginal bleeding everyday once a day until one day i went in to get checked and never stopped bleeding was rushed to regina where i found out that my uterus wasn't doing it's job in contracting to get rid of the vessels that were attached to the placenta and some of these vessels were pumping out blood like crazy so had a procedure done where they went in through a punture hole in my groin and incerted mesh coils into these vessels to stop the heavy bleeding anyways this procedure happened near the end of april of 2013 and now it is may 15th and i am still bleeding not bad but having this bleeding for over 2 months and still going since my baby was born is getting to me and was just wondering if ... read more

0 replies...

Welcome back!
Posted by Chris
Last Reply May 14, 2013 at 18:24
Started May 3, 2013 at 20:36
Welcome back everybody. Rob and I worked together and got the system working
again. We are back up and running and will remain so. Look for some new
changes soon where we will have FAQ section for questions we see a lot of

9 replies...

Ultrasound Scans after Diagnosis
Posted by Bob
Last Reply May 14, 2013 at 18:20
Started May 11, 2013 at 02:44
Hi, Just been diagnosed with massive DVT after being fobbed off by Doctors for weeks. Have started Warfarin and daily Heparin until INR stabilised. Just wondering how often I should have scans to see if clot / clots are breaking down. Am in BUPA through work, so considering asking to be referred, as I have lost faith in NHS. Thanks

8 replies...

Off the Wall Question
Posted by Terry
Last Reply May 14, 2013 at 10:46
Started May 14, 2013 at 10:46
I know this is an off the wall question, but since I've been watching
some of the trials on television, and I have a blood clot in my leg
myself and the blood clot is on my mind 24/7, I was wondering, wouldn't
prisoners who are confined to their cells (especially those confined to
their cells 23 hours a day and only allowed out 1 hour a day) be more
prone to blood clotting?
Strange question, I know; Just curious.

0 replies...

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