DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4136) - Page 59 of 207
IVC Filter
Posted by Khalid
Last Reply May 8, 2012 at 01:09
Started October 7, 2009 at 11:23
Hi All,

I have been in touch with this forum for more than a year now. I have sufffered 3 DVTs and PE twice, once it was extensive.
I have an IVC filter implanted on 29th March 2008.

I was wondering how many of us who visit this forum wear IVC filters.

I remember some times back one of the visitor had started a topic inviting all those who suffered DVT due APL syndrome.

Generally you don't get to meet people with IVC filter, is it OK to form a list of people who have IVC filter in this post?

If you think its OK, please mention your name, type of filter, when it was implanted and any special comment you want to share.

1.) Khalid - Gunther Tulip Retrievable filter, but now its permanent - 29th March 2008.

13 replies...

They have to be missing something?
Posted by Marcia
Last Reply May 7, 2012 at 18:19
Started May 2, 2012 at 03:49
Almost a month ago I noticed minor swelling in my leg, called my
doctor and he had me come in the next day, he said besides the slight
swelling, it didn't strike him as a blood clot so he sent me to the
lab to get a d dimer. This came back negative so he said to just ice
it and go from there.
A week later, swelling a little better, but I started getting pain.
Cramps on top of shin, groin pain, cramping behind knees, and a very
small warm spot that comes and goes on my lower calf. I called doctor
again, he immediately set me up for a doppler. Our hospital has
several offices in it, and it's not just one spot for ultrasounds like
most places (in imaging) but they have them in several places where
needed (Maternity, etc...) he sent me to the Cardio/pulmunary unit,
and whereas they aren't vascular surgeons, they do deal with a lot of
DVTs so I trust she knew what she was looking for. She did a full leg
scan and nothing was found.
2 weeks later, pain is still ... read more

2 replies...

symptoms of DVT?
Posted by Ellen
Last Reply May 7, 2012 at 18:18
Started May 6, 2012 at 20:37
Could I have a DVT if I have pain that varies and/or moves around and sometimes goes away? It's mostly in my calf but yesterday + this AM suddenly seemed to encompass my knee. It's usually worse when getting up. Right now it's barely noticeable.
I have plantars wart on my foot. Could that be sending nerve pain?



3 replies...

should I expect post-DVT complications?
Posted by Jen
Last Reply May 7, 2012 at 01:08
Started May 6, 2012
I'm 28 yrs old and got diagnosed with a DVT in my left thigh (just
above the knee) a month ago. The DVT was attributed to the use of
Yasmin OC pill and I had experienced pain for 12 days (after getting
the all clear from my GP). The pain had improved fairly quickly and
my warfarin therapy seems to be going well with no side effects. My
Uncle (Dad's side) had a PE and was on warfarin permanently and my
Granddad (Mum's side) had a DVT after breaking his leg. My Uncle and
Granddad were left with reddened legs due to post-DVT complications
and so I'm left wondering about the possibility of this happening to
me. I have not been given any advice about avoidance of complications,
apart from "don't run any marathons!". I'd obviously like to do the
best for my leg but my internet research indicates that there is no
clear way to prevent complications, which seem to affect 30-50% of DVT
sufferers. A nurse told me my leg should feel back to normal within 6
months. I... read more

2 replies...

Musicians Dead from Heart Attack. Why?
Posted by John
Last Reply May 7, 2012
Started May 7, 2012
Over the years some of my favorite musicians have died from heart attacks and I was just wondering today if perhaps these attacks were brought on by DVT. Grover Washington Jr., a great jazz/pop saxophonist. Joe Schermie, original bass player for the highly successful band Three Dog Night and Robert Palmer (Simply Irresistible, Addicted to Love etc.). These three men died relatively young from heart attacks. One of the biggest causes of DVT is being immobile due to traveling. Ian Anderson of Jethro Tull is a DVT sufferer as well.

Just wondering............

0 replies...

Quickly Approaching Magic "6 Month Mark"
Posted by Sam
Last Reply May 7, 2012
Started May 1, 2012 at 21:07
I have been reading and posting on this forum since shortly after diagnosis last Fall. It has been a vast source of knowledge. I am quickly approaching the 6 month mark when the doctors will make a decision about further coumadin treatment.Scary time.
Clot was/is knee to groin (multiple PEs) and hadn't dissolved at all at 2 month mark (haven't been checked since). Getting around fine, wearing compression hose, INR very stable. Still swelling (above the knee is swollen more becuase I just can't find thigh high hose that don't bunch and hurt behind my knee)
So... my question is: has anyone come off the coumadin when they still had large residual clot? (mine was still completely occluded from knee to groin last time checked). If so, how did it go?
Or.. did your doctor recommend longer coumadin therapy because of the residual clot?
I'd like to hear other's experinces coming off the stuff, before dealing with the docs. Unfortunately, the varying specialists rarely agree and I an... read more

5 replies...

Multipl small pe, no sign of dvt
Posted by Pete
Last Reply May 6, 2012 at 09:00
Started May 6, 2012 at 09:00
I am a 42 year old, 6ft 3,100 mile a week male cyclist. Went to Lanzarote in Dec
2011, had diarrhoea before getting on plane and had drunk half bottle of
champagne, then slept in a cramped position for 3 hours.
5 days later I had pain in my rib cage, felt like I had pulled a muscle. Lived with it
for 3 days, went to docs,he thought muscle pull or wind! Day after visiting doc, I
coughed up a small amount of blood. Went to see another doc, he did a blood
test and told me I had a clot, rushed into emergency, given a shot of herapin and
a ct scan showed multiple pe in both lungs.
I am know on warfarin for 6 months.
I had no sign of a dvt, the hospital say that I may have had a silent dvt in my
pelvis or a partial dvt that threw bits of clot into my lungs.
The doctor that diagnosed the embolism doesn't seem to think that the flight has
caused the pe, so I'm having lots of other tests so am obviously still worried.


0 replies...

Please help question dvt in arm
Posted by oscar
Last Reply May 4, 2012 at 22:04
Started May 4, 2012 at 22:04
im currently taking warfarin for a dvt in my left arm,just got my pt/inr in good range this week(2.2)
was wondering if the clot could somehow affect my lymph nodes in my armpits on the same side,no lumps but a tad bit of swelling on the top inside of my arm near pit,and constant discomfort there and my armpit last 3 or 4 days.any advise or thoughts?

0 replies...

Please help question dvt in arm
Posted by oscar
Last Reply May 4, 2012 at 22:03
Started May 4, 2012 at 22:03
im currently taking warfarin for a dvt in my left arm,just got my pt/inr in good range this week(2.2)
was wondering if the clot could somehow affect my lymph nodes in my armpits,no lumps but a tad bit of swelling on the top inside of my arm near pit,and constant discomfort there and my armpit last 3 or 4 days.any advise or thoughts?

0 replies...

Warfarin alternatives?
Posted by Rob, UK
Last Reply May 4, 2012 at 21:24
Started January 15, 2011 at 10:14
I have been advised to stay om warfarin until I retire (it's a job thing!), so I have been looking at possible alternatives to warfarin. Like many on this site, I am struggling with the side-effects of warfarin, especially the 'vagueness', headaches, hair loss and short-term memory loss.So I was wondering if anyone on here has any info/experience of either rivaroxaban and dabigatran? My local vascular surgeon has been quoted in the national press as stating that these are the next generation of oral anticoagulants.
Thanks.

8 replies...

DVT vein removal
Posted by Sarah
Last Reply May 4, 2012 at 21:16
Started May 4, 2012 at 21:16
Has anyone had a DVT that just stayed clotted and decided to have the
vein removed??
Just wondering because I am 2 years out of an extensive DVT and there
are no veins growing to replace the clotted one. Would removing the vein
altogether help other veins to grow?

0 replies...

socks in the summer!!!
Posted by cookalina
Last Reply May 3, 2012 at 22:33
Started April 30, 2012 at 13:52
Hi ,why do manufacturers make compression socks thick and in black or furniture brown only!!!.My legs are big enough without emphasising the fact. It is only April and already I am feeling the heat and have to say feeling pretty miserable at the thought of wearing them with summer dresses and open toed sandals or does one have to look like Nora Batty s Grandma!!!!!At present I wear open toe ones but am wondering that if I wear closed toe so that I cant see my pretty painted toenails I may feel a little better.!!!or not.......
It has got to the point where I hate getting up in the morning as THEY are waiting for me,how sad is that.Anyway you all take care and thanks for listening,I must be having a bad day.

2 replies...

DVT and massage ?
Posted by Patty
Last Reply May 3, 2012 at 22:21
Started May 2, 2012 at 19:00
Hi there, I fractured my ankle 2 months ago and got a DVT from the
fracture. I have been on coumadin since the fracture and will not go in
for a scan until end of May. Started physical therapy for my ankle last
week and wanted to know if anyone knew if its safe to get a massage on
my ankle? My therapist massaged it just a little bit to get the
swelling and circulation going, but Im not sure if its safe since I have
a clot in my calf ?? They are only massaging the ankle, not the calf.
Any replies would help. Thanks.

1 replies...

If you had a choice?
Posted by Phil - Spalding - UK
Last Reply May 3, 2012 at 22:19
Started May 3, 2012
A big hello to all on these forums. Just wanted to share my story and
ask for some advice. I know this post is long, but like a lot of
people on here, i have no one to talk to who have been through what i
have just suffered.

My first DVT was some 8 years ago after an 9 hour flight. Woke up 6
days into my holiday with pain in my right leg. Resort doctor said to
rest. It wasn't until i got back to UK 8 days later that i got rushed
to hospital, ultrasound scan picked up 3 clots.

I was placed on warfarin for 6 months. At that time, i had no idea on
the side effects of warfarin. Felt like crap for a while but i soon
got used to it. What i wasn't expecting was the hair loss.

Oh my god, in the space of 1 month, my hair was falling out all over
the place. At first, i thought it was hereditary but couldn't find any
history in my family. Visits to the doctors for help and advice were a
waste of time. In the end, the swollen leg, hair loss and warfarin
sent m... read more

1 replies...

Please HELP. Newly diagnosed with DVT
Posted by KC
Last Reply May 3, 2012 at 19:34
Started April 25, 2012 at 22:27
My husband was just diagnosed with DVT 2 days ago. He has 2 major clots in his
calf. He is on 10 days of lovenox and also on warfarin. It is killing me because he
is in SO much pain. He has been taking 2 tylenols twice a day and also Tramadol
three times a day for pain. He will start screaming after about 3 hours if not
sooner of taking the pain pills. Is there any relief in sight soon or can anyone help
me? I am stressing out about this.

17 replies...

Ultrasound after warfarin for a year?
Posted by CK
Last Reply May 3, 2012 at 19:15
Started May 3, 2012 at 15:34
Hey fellow DVT sufferers!

I've been on warfarin for almost a year now. The doctors told me a one year
course of warfarin therapy is normal for men with a DVT with no known causes.

My concern is: If I am to stop warfarin soon, how can I get my doctor to order a
follow up ultrasound to know my clot is dissolved of absorbed by my body???

He says that it is not typical to have a follow up ultrasound, but I want to Know for
certain that the clot is gone!

Help!!!!!!!!!!!!'

2 replies...

Just getting started, I have questions
Posted by Brandon
Last Reply May 2, 2012 at 21:52
Started May 2, 2012 at 03:14
Hello my name is Brandon and Im 28yrs old. I take karate and had initially
strained my gastrinemius muscle. So it been two weeks since being diagnosed
with DVT (after about a month walking around thinking it was a simple strain). It's
been tough but Im comming around. (I still get HUGE bouts of anxiety). I have
questions for others, who have been through and are experiencing this.
1. Does the 'wiggling' / 'bubbling' sensation continue even after blood thinning
medication?
2. Do blood thinners 'really' keep the clot from moving? As my Doctor has said.
3. (I know everyone's situations different) but when you got your DVT what level
of work/activity did your doctor put you on?
4. (This is more a matter of opinion), but is removing the clot/getting a vena cava
filter really that much more risky than waiting/hoping to see if your clot will
dissolve on its own and not embolize? It just doesn't seem to be much assurance,
I almost feel like their (the doctors) are le... read more

3 replies...

Is there an alternative to daily clexane injec
Posted by Michelle
Last Reply May 2, 2012 at 10:52
Started May 2, 2012 at 10:52
I wonder if someone can help me - my elderly mother is on 40mg of daily clexane injections for blood clots she had in her leg (all clear now). She has cancer and lymphedaema and has been told she'll need to inject for the rest of her life. Because she lives abroad she's in NZ, I'm in UK) I can't ask her doctor or specialist any questions but perhaps someone here will know........is it possible to change the frequency of the injections, i.e. to every 2nd day or even a higher dose once a week? I'm sorry to all of you who have to inject if this question seems stupid or ignorant but the only reason I ask is because my sister is caring for my mum and she's absolutely terrified of needles! Mum was doing her own injections at first (since the latter part of 2011) but she can't cope with doing it anymore and my sister is starting to have panic attacks at the thought of injecting. The district nurse won't do it and there don't seem to be any other avenues open for help. I imagine daily... read more

0 replies...

Is there an alternative to daily clexane injec
Posted by Michelle
Last Reply May 2, 2012 at 10:50
Started May 2, 2012 at 10:50
I wonder if someone can help me - my elderly mother is on 40mg of daily clexane injections for blood clots she had in her leg (all clear now). She has cancer and lymphedaema and has been told she'll need to inject for the rest of her life. Because she lives abroad she's in NZ, I'm in UK) I can't ask her doctor or specialist any questions but perhaps someone here will know........is it possible to change the frequency of the injections, i.e. to every 2nd day or even a higher dose once a week? I'm sorry to all of you who have to inject if this question seems stupid or ignorant but the only reason I ask is because my sister is caring for my mum and she's absolutely terrified of needles! Mum was doing her own injections at first (since the latter part of 2011) but she can't cope with doing it anymore and my sister is starting to have panic attacks at the thought of injecting. The district nurse won't do it and there don't seem to be any other avenues open for help. I imagine daily... read more

0 replies...

Just getting started, I have questions
Posted by Brandon
Last Reply May 2, 2012 at 03:18
Started May 2, 2012 at 03:18
Hello my name is Brandon and Im 28yrs old. I take karate and had initially
strained my gastrinemius muscle. So it been two weeks since being diagnosed
with DVT (after about a month walking around thinking it was a simple strain). It's
been tough but Im comming around. (I still get HUGE bouts of anxiety). I have
questions for others, who have been through and are experiencing this.
1. Does the 'wiggling' / 'bubbling' sensation continue even after blood thinning
medication?
2. Do blood thinners 'really' keep the clot from moving? As my Doctor has said.
3. (I know everyone's situations different) but when you got your DVT what level
of work/activity did your doctor put you on?
4. (This is more a matter of opinion), but is removing the clot/getting a vena cava
filter really that much more risky than waiting/hoping to see if your clot will
dissolve on its own and not embolize? It just doesn't seem to be much assurance,
I almost feel like their (the doctors) are le... read more

0 replies...

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