DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Measuring INR at home
Posted by Teresa
Last Reply September 14, 2012 at 13:56
Started August 9, 2012 at 07:39
Does anyone know if there is an affordable machine to be able to monitor INR at home, or when I travel?

6 replies...

The rollercoaster that is INR
Posted by Jane
Last Reply September 14, 2012 at 03:49
Started September 12, 2012 at 13:48
I was diagnosed last week with a DVT in the left politeal vein behind the knee. They started me on Coudmadin and Lovenox. When I was admitted my INR was 1.0 They tested it on Monday and it was 1.6. I was happy and felt better about things and thought I might make 2.0 by Wednesday. They raised my Coudmadin from 5 to 7. So yesterday they did the INR again and it was 1.4....why? I thought I would be up since they raised the Coudmadin. I am taking the same same vitamins, everything.

1 replies...

blood clot and where they form
Posted by jolly
Last Reply September 13, 2012 at 15:01
Started September 17, 2009 at 03:25
yes i was told i dont have a blood clot but my leg swells really big and hurts i have been for times to rule out blood clot all which are negative i say it swells big it gets about 2 cm bigger then the other but it goes down when i set. but my pain is in the calf and back behind the knee and on the left side of my leg not on the inside of the leg what should i think

44 replies...

Arm compression
Posted by Julie
Last Reply September 13, 2012 at 11:47
Started February 16, 2009 at 19:33
I was diagnosed with a DVT in my Jugular vein, subclavian vein and into my left arm in December. It was mentioned that if my swelling continued I should wear a compression sleeve. I just wondered if anyone else with arm DVT has been advised to wear one and if anyone in the UK knows where I could get one? I am no longer under the care of the Vascular Surgeon who advised this, and Anti-Coagulation Nurse is not sure where to get one from! Thanks for any help.

6 replies...

Does the clot return after treatment?
Posted by Carl
Last Reply September 13, 2012 at 11:30
Started January 4, 2011 at 20:18
I had a dvt extensive to mid thigh and had 6 months on Warfarin. I am very anxious after being off it for a month, I am getting tingling feelings from the start to the end of the supposably cured dvt, which isn't allowed to be re scanned after treatment - we are told that by the GPs that they assume it has gone and there is no need for further tests - so this is making me want to go to A&E to get assurance tests by way of scanning.
I am paranoid that the dvt could re develop in the same place from where it left off and travel upwards towards the groin. So this poses a few questions:
If there is a reoccurence can it be in the same place and follow extensively further from where it stopped?
Can a reoccurence happen this quickly after stopping medication?
How would I know if it is happening and going to my groin or pelvic vein?

Many Thanks in advance!

Carl, Bridlington, UK

7 replies...

Posted by sian
Last Reply September 10, 2012 at 03:31
Started December 5, 2010 at 23:01
Hi All,

I'm struggling to get some info on whether I should/could be surfing with my DVT. I have DVT in left leg from ankle to above the knee, PE's throughout both lungs. Initially got the pain in July but was continually misdiagnosed until October. Finally have been on Warfarin for 7 weeks now. I have been walking and swimming/body surfing and my lung capacity is definitely improving. But I tried to surf yesterday with sports compression tights on and my leg is in the most pain since I've been on the Warfarin. It's also hot and swollen again (which I've not had for a couple of weeks).

I'm mainly scared about making things worse or dislodging the clot again. I don't mind the pain so much as I did some surfing, snorkelling etc before I was diagnosed- and the pain was excruciating then.

Does anyone know if I'm at risk of dislodging the clot? I have a surf helmet now to protect my head so apart from fin cuts I'm not too worried about the bleeding.


4 replies...

Newbie with DVT
Posted by Jane
Last Reply September 9, 2012 at 22:57
Started September 9, 2012 at 14:26
Hi - I broke both my ankles in July. The left was in a hard cast and the right in an aircast boot. They gave me Lovenox in the hospital for 3 days and then in rehab for 4 days. I got my cats off lst Tuesday late in the day. Wednesday morning I noticed my left eg was like twice the size of my right. I called my MD who told me to watch it for a day as it migh tbe from exercis. It was still the same on Thurs so I called again and he had me come in. Took one look and sent me off for an ultrasound which showed a clot behind the left knee. They admitted me overnight and started me back on Lovenox and added Coumadin. I came home Friday and I have to admit I am very frightened of this. I keep thinking the clot is going to break off and kill me (my brother died of a pulmonary embolism). They tell me it would be unlikely. I got different answers from the MD's as to whether to rest or be somewhat active now - is there not one general rule? Are there things I should be doing to preven... read more

1 replies...

Aches and swelling 2 years on
Posted by Dawn
Last Reply September 9, 2012 at 20:39
Started September 9, 2012 at 20:39
In june 2010 I was diagnosed with a DVT behind my right knee at the end of my pregnancy. I was prescribed clexane injections for 6 months, but ended up taking them over a year due to a seocnd pregnancy. Since then I have had the occassional ache in that leg if I've bee stood up too long, walked too far. I was warned about this by the DVT nurse as they said I will always have scar tissue there now. However this last week or so I have noticed it is aching a lot more. I am on the floor a lot playing with my daughter , so probably sat on my legs too much, which I know is a stupid thing to do. My leg also seems to swell a little which I've never noticed before unless I've been on them too much. I'm not too worried about other DVTs as after going to bed my legs are fine the next day, and I know the other symptoms, colour, temp etc to watch out for. But just wondered if aching and swelling 2 years on is actually common to anyone else who has suffered a DVT. THank you.

0 replies...

can coumadin damage your blood
Posted by martin
Last Reply September 8, 2012 at 12:34
Started September 8, 2012 at 12:34

is anyone able to help me with this question?
can the use of coumadin (warfarin) do damage to your blood?
had blood tests when went on the treatment initially.
the tests were all within normal ranges, all levels OK.

this pill causes allergic reactions to some people or they are not able to metabolize it without getting ill feelings.

0 replies...

Knee arthroscopy and DVT
Posted by christel
Last Reply September 8, 2012 at 01:02
Started September 7, 2012 at 18:08
I had a knee arthroscopy 6 weeks ago and things were quite good after 2/3 weeks. I felt the swelling going down but was still limping a bit. At the start of this week I felt pain in my again and it has started swelling up a bit. I had a DVT following the knee injury to the meniscus and was on warfarin for 6 months which ended in june. I am just worried that I may have another DVT!! I had a few false alarms following the DVT in the other leg and was told to stop worrying so I don't want to rush to A and E too quickly with this swollen knee and appear totally over anxious again.It just seems strange that after the op I got better and the swelling went down and now 6 weeks later it is sore and swollen. Not sure what to do?

3 replies...

DVT specialist in DC-Baltimore area?
Posted by Astra
Last Reply September 7, 2012 at 20:16
Started September 7, 2012 at 03:44
After experiencing pain, swelling, and warmth in one leg, my father has been
diagnosed with DVT in his calf. His primary care physician (internal medicine) has
done an ultrasound and put him on anticoagulants to manage the clot. She also
referred him to a vascular specialist who was, quite frankly, rude and completely
disinterested in consulting on my father's condition. He didn't even want to look at
the affected leg, and sent my dad right back to the primary physician to manage his

While his physician may be perfectly capable of managing anticoagulant therapy and
periodic monitoring of the clot, the rude and useless consultation with the vascular
specialist has left my dad feeling more depressed and hopeless about his DVT. I have
encouraged him to try again with a specialist, just to get a second, specialized
opinion on his particular DVT situation and any possible options for treatment and
future prevention. (I'd like to find a doctor with be... read more

1 replies...

subclavian vein Chances of warfarin for life
Posted by Janine
Last Reply September 6, 2012 at 12:45
Started September 6, 2012 at 12:45
Hi all, Im hoping you can all help me!
Im 24 and after a slightly swollen arm doctors discovered I've got a
dvt in my subclavian vein and ive been on warfarin for about a month. I'm apparently not going to be seeing any doctors or going to the
hospital for about 6 months. After that i see a specialist who
determines what caused it i think. What i wanted to know was if anyone
has any insight into the chances of me being on warfarin for the rest
of my life? I was working on a cruise ship when they disembarked me
because of this and i cant go back if im on anticoagulants. Has anyone
had this type of clot and returned to normal and off the warfarin
after 6 months? I feel like im stuck in limbo at the moment because i
dont really know anything and i cant go back to work!


0 replies...

DVT in calf after ankle fracture
Posted by Patty
Last Reply September 6, 2012 at 05:56
Started March 9, 2012 at 23:39
Hi there, Im new to this forum and wanted some advice. I fractured my
ankle 3 weeks ago and I developed a blood clot in my right calf. I am
currently on lovenox shots until I get coumadin starting next week.
My hemotologist says that Ill be on it only for 3 to 4 months, but has
anyone else had this happen? How quickly will the clot go away? Im
super scared because Ive never had issues before. My calf was pretty
swollen after the fracture, but exactly 10 days later I went to the
hospital and they gave me lovenox after finding the clot. The pain
has totally gone away, but when I touch my calf I can tell its still
there, a little bit of pain, but nothing major. Any advice?

6 replies...

Posted by Linda
Last Reply September 5, 2012 at 14:37
Started September 4, 2012 at 21:12
Clots in both legs, after finding with ultra sound, in Chemo, and clotting is a
problem, strange I know but can not take warfarin, , being supported with
platlets, and whole blood, IVC filter was placed after and embolisum in lung,
Should the use of alternation compression boots be used?

1 replies...

ivc temorary filter
Posted by Randy
Last Reply September 2, 2012 at 03:11
Started September 2, 2012 at 02:06
hello guys , i would like to know how long should i wait to get my
temporary ivc filter out & what are the risks of getting it out. by the
way i got this after having lower back surgery...:/ i'm worried.

1 replies...

Blood Clot
Posted by Margaret Painter
Last Reply August 31, 2012 at 22:25
Started August 31, 2012 at 21:56
I have had a blood clot in my left leg and have been being treated for it for a little over a month now. Both legs have extreme edema which still has not gone down. (It was for a while and then stopped.) I was unable to move my left leg at all and had (still have) absolutely no feeling from knee down. Now am able to move it. Am in a wheel chair. My husband was gone for awhile for business. He said when he gets back he expects to see me walking. Is walking safe? Whether I am able or not, is trying to wals safe? Also, does warfarin of neurotin keep the clot from moving? If it moves how can you tell? Please I have been trying to get answers. Help me!

1 replies...

On Coumadin still clotting
Posted by Megan
Last Reply August 31, 2012 at 19:53
Started August 30, 2012 at 18:01
Hi. My dad, age 59, was diagnosed with dvt in his legs two weeks ago. He was
put on Coumadin. He got worse. Had sono & discovered clots in his lungs. His
legs were swollen. He was hospitalized & put on lovenox. He went home. Put
back in Coumadin. Got worse. Went back in hospital & put on lovenox. Had
surgery (trellis procedure) in both legs & filter out in to keep clots from
spreading. He went home on Coumadin again. Had a PET scan which was
inconclusive. Now he's back in hospital with severe pain. Clots back in legs &
pelvis. What's going on? This seems to be ongoing w/o many answers. Thanks
you for any insight.

4 replies...

Inside ankle and heel pain
Posted by Marie
Last Reply August 31, 2012 at 19:35
Started August 31, 2012 at 18:46
Hi, I'm 11 months post full leg/thigh clot. It's been a ride I would not want to take
again. I finished warfarin 2 months ago and although in pain before since coming
off it I'm really struggling. The swelling I cn cope with with the aid of my full
length stocking, it's pain in my heel and inside ankle. Some days I can't put any
pressure on it..it aches and throbs, and is sometimes discoloured. I've recently
have a Doppler USS, which shows small channels opening in my thigh but small
occulsions..the valves seem to be ok..ish....Anyone got any ideas ? My consultant
is being a bit wispy washy and says PTS can be prolonged and painful...and may
order a venous Scan of the ankle and foot...I'm really fed up, the last year has
been horrible..and I can't seemed to see an end...any advice??

1 replies...

cause for concern?
Posted by Brad
Last Reply August 31, 2012 at 19:21
Started August 31, 2012 at 17:52
I woke up this morning and upon standing noticed a pain in my left inner thigh.
It feels like a bad bruise but I have not done anything I am aware of to bruise
it. It seems to go away after 30 seconds or so of moving around. It hurts the
same whenever I stand up and has gotten slightly worse thru the day. I had a
surgical proceedure on my pancreas 9 days ago and then came down with
colitis so have been mostly immobile for over a week. There is no noticable
swelling or redness and it is slightly tender to the touch in an area about the
size of a baseball. Any ideas if I should worry?

1 replies...

Cellfood prevents & helps unclot clotted blood
Posted by N
Last Reply August 31, 2012 at 02:37
Started March 14, 2010 at 11:25
General feedback from Health Practitioners:

Dr. Linet Stockdale, Hematologist:

"It doesn't matter what type of disease a person has. The addition of oxygen and hydrogen into the bloodstream, which Cellfood provides, will definitely bond in a better format to create a healthier cell."

Michel Coyle, Director of Research and Education, NuLife Sciences:

"The therapeutic effects of Cellfood are:

* Cellfood provides a steady flow of both oxygen and hydrogen-- by splitting water molecules-- to all parts of the body, thereby producing simultaneous oxidation and reduction.

* It enables the blood stream to deliver a minimum of 78 assimilable trace minerals and elements directly to each cell for complete and direct nutrition.

* It aids in the digestive process. It contains enzymes and also is catalytic to the activation of the digestive enzymes.

* It assists in the cleansing of upper and lower intestines, and in restoring normal bowel functions. This effect will be noti... read more

12 replies...

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