DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Damaged Veins W/O reocurrance?
Posted by Amerimex
Last Reply April 4, 2014 at 03:25
Started March 22, 2014 at 19:50
Has anyone had vein damage without reoccurance of dvt? My peroneal vein is
now smaller, though no longer blocked. Just wall thickening that makes blood
pump harder through other veins. Coming off xarelto in a week. Scared the small
vein will clot again as soon as it can because it is thinner now.

Any success stories of a few years out with a damaged vein?

11 replies...

Problems 12 years on
Posted by Jo
Last Reply March 31, 2014 at 17:51
Started March 31, 2014 at 11:04
Hi there, I had a DVT in my right calf 12 years ago. Once i'd stopped
my treatment I had flare ups where my leg swelled and hurt which I
presume was from the damaged artery.

For the first time in 4 years my leg swelled last week, and although
the swelling went down the pain was sufficient to go and get checked
out. My bloods were checked and cam back fine but I am so anxious as
4 days later I still have the pain in my leg and am feeling short of
breath (I think that may be the anxiety). When do I get worried? Do
I accept it's just the leg playing up?

I was only 20 when I developed the original DVT and it came as a bit
of a shock.

Any advice greatly appreciated.

1 replies...

DVT Petition for Government Funding
Posted by Amerimex
Last Reply March 30, 2014 at 21:13
Started March 30, 2014 at 21:13
The government has not set aside any money for Blood Clot Awareness and
Research yet has set aside $30 billion for HIV/AIDs. More people die from PE that

Please help sign a petition asking that money be set aside for DVT Awareness
and pass along to your friends and family to help our patient community.

1 replies...

Compression stockings - what is the future
Posted by Someone_there
Last Reply March 28, 2014 at 15:28
Started February 24, 2014 at 13:08
Dear fellow sufferers.

First of all I want to thank you all for the support you are providing
- this forum is an excellent source for any topic, related to vein

Here is my short story and some questions follow.

In 2010 I was experiencing sudden sharp electrical pain in my left
leg. An MRI was made that revealed massive disk herniation. I was
treated with conservative treatment methods initially but nothing
happened and I was referred to some kind of microsurgery, which solved
the problem with the acute pain. However, some pain inmy leg remained
and everybody, inclusive of doctors thought that it was due to the
herniation unless one day i was diagnosed with dvt in my left
femoropopliteal vein. Treatment immediately followed and then i was on
blood thinning medication for some time. Howver the symptoms (pain,
tingling, heaviness) persisted and it was until recently (imagine -
more than two years) until one respected doctor in our country (I ... read more

7 replies...

Asthma Or PE??
Posted by Kelsey
Last Reply March 27, 2014 at 23:13
Started March 6, 2014 at 12:44
Hi all! I Recently had a DVT in January caused from Pregnancy. I have had on and off
asthma for the last 10 yrs. I recently had what I think is a flare up of asthma and when I
take my albuterol inhaler the systems go away as they should. I am afraid it could be a
PE but wasn't sure that my inhaler would actually stop the symptoms if it was? Has
anyone experienced this? I am currently on Coumadin and have been therapeutic for
almost 2 months. Thanks

5 replies...

Further surgery after a dvt
Posted by Brian
Last Reply March 17, 2014 at 20:28
Started March 14, 2014
I had a dvt and pe after a recent turp operation. It turns out that I have prostate
cancer and I need to make a decision about what treatment to follow. I would
prefer surgery but I am concerned about further dvt/ pe . I have had various
advice concerning how long one should wait prior to another operation. Anyone
out there who has had a similar dilemma?

2 replies...

Pain in calf and thigh
Posted by James
Last Reply March 17, 2014 at 20:11
Started March 15, 2014 at 21:10
Hello for two weeks now i been having this pain in my calf and thigh on left leg i mainly only feel it if i bend down to pick somthing up on ground on that side and get up from sitting down or laying down pain in back of my thigh down in my calf feels like cramp pain some times feel pain on my foot too it dont hurt when i walk or run only when sitting or gettin up i had two ultrasounds done within a week both came back negtaive im just worried about it thanks

1 replies...

Residual Clotting
Posted by Sarah M
Last Reply March 17, 2014 at 12:16
Started December 18, 2013 at 21:47
Hi all,
So I'm almost 6 months into my DVT ..and 3 months post thrombolysis, which
was able to restore some blood flow to my leg. However my most recent
ultrasound shows there is still some residual clotting in my popliteal vein and I
am still getting some good swelling, though no pain. I am wearing stockings
every day. My vascular surgeon has kept me on anticoagulants (Xarelto) and
seems to think that I may still get some improvement in the next 3-6 months.. But
everything I'm reading doesn't seem too positive in that respect. Can anyone
with residual clotting share whether there is any chance of improvement after 6
months and what other steps you have taken? Do you have to wear stockings for
life? Any help... Much appreciated

14 replies...

Cronic Hip Pain
Posted by Lisa
Last Reply March 14, 2014 at 23:57
Started July 6, 2007 at 05:44
I'm not sure if this is for everyone, but I had an extensive DVT in my left leg that extends above my hips. Luckily the doctors cleared what they could, however my calf and thigh are still slightly more swollen. I did have a stent put into place in my lower abdomen about 3 or 4 inches above my hip joint on my left side. My question is that, it's been a 1 year and my hip joint is still tender and I have continuous pain. Not throbbing pain but an ache pain inside. Also my hip feels tight. I would like to say that I do workout almost daily and I am on my feet most days for long periods of time. But this pain is persistant even when I sit. I can't sit in the car for more than 30 mins at a time and I cannot sit indian-style. Does anyone have this same problem? If so what would you recommend.

10 replies...

Stopping my Coumadin
Posted by Mark
Last Reply March 14, 2014 at 22:04
Started March 10, 2014 at 16:51
Hi, about a onth ago I was diagnosed with DVT in upper left leg. All the blood
tests show that there are no predisposing factors. After a week on Heparin I am
now on 13 mg of Coumadin and my INR is steady at 2.6. Apart from some slight
discolouration of my lower leg I have no symptoms. The DVT came two days after
I returned from a car trip (5 hours) with a 10 minute break. Before the car trip I
went for a 10 km run and did not rehydrate. My doctor said that this was a
possible cause but insists the DVT is "unprovoked" which means 6 months on
Coumadin, whereas if it had a definite cause eg operation or long flight it would
be a 3 month course. If you were me would you stop after 3 months if the scan
shows the DVT has cleared?

4 replies...

Heterozygous and HRT
Posted by Jan
Last Reply March 10, 2014 at 21:16
Started March 10, 2014 at 20:12

I am 36, heterozygous for factor 5 leiden and may need a complete hysterectomy for endo/adeno. I do not wish to go through menopause this early in my life due to a host of life-threatening conditions menopause will cause at my age further down the line (ie: heart disease, osteoporosis, dementia, etc.). My current gyn (who is hysterectomy happy) believes I can take a low dose of HRT. My gp sent referral to a hematologist who denied setting up an appointment as he stated this is contraindicated and I have no alternatives. Who should I believe? Oh, I was on the pill from 13 - 25 (and was a smoker) with no problems. However, my mother who is homozygous got her first clot within weeks of taking BCP's at 20. She had another when she broke her leg in her 20's and in her 40's she had 2 DVT's and a PE until she was put on warfarin when they discovered the gene mutation. I now know I carry one gene as I requested to be tested when I was pregnant at 31. I found out during the second trim... read more

1 replies...

I'm really scared
Posted by Ash
Last Reply March 10, 2014 at 17:27
Started March 10, 2014 at 02:38
For the past 10 days or so I've had calf pain and pain in the sole of
my foot. Kinda just all over my left lower leg and achinees behind
knee. Strange constant burping. It goes from achy to crampy to
twitching. Worse while at rest. I've always heard calf pain is DVT and
deadly so I'm terrified of a PE. Monday and then again on Friday I had
a leg ultrasound and two d-dimer test all negative. But I still have
pain with slight swelling and read that lower leg clots are hard to
diagnosis. Would you trust the Doctors? I read so many stories online
about those tests being wrong. I'm 25 F, don't smoke, no air travel.
Do sit around at desk with feet under me and crossed. Thanks for the
help! Does this sound like a DVT?

5 replies...

Pain only when resting or sitting
Posted by Jay88
Last Reply March 9, 2014 at 22:08
Started March 9, 2014 at 22:08
hello I been having pains in my lowe leg for a week now I mainly only feel it when I sit down or lay down I can run and walk fine no problems at all after getting up tho I get these pains in back of my thigh and leg but go away after walking a bit feels like a cramp I have no redness no swelling in my leg been going on for a week

0 replies...

Posted by Kay
Last Reply March 9, 2014 at 13:28
Started February 25, 2014 at 06:59
Hi to all. I am looking for some advice/help if possible.

I woke up 2 mornings ago with a niggling pain in my right calf
slightly towards the inner side about 2 inches up from my ankle, the
pain goes up to about an inch below the knee. It is very very painful
to walk on its not so bad if i stay flat footed and not bend ankle but
still painful, and flexing foot upwards is near on impossible -
extreme pain when trying. If I cup the back of my calf and squeeze
gently it is unbearable. It has gradually worsened over the last few
days despite taking painkillers and resting it. I went to my GP last
night (waited 3 hours) and was told that there is no swelling no
discolouration - hence there is nothing wrong. I have also been
feeling very nauseas, lethargic and light headed this past week or so,
and a general feeling of something doesnt feel quite right. Doctor
gave NO diagnosis at all, just told me to continue taking pain killers
and rest it. A little previous... read more

12 replies...

Pain in lower leg & swelling on pelvic area
Posted by James
Last Reply March 8, 2014 at 22:37
Started March 8, 2014 at 21:41
hello for past week now been having pains in my lower left leg I get these pains in back of my thigh when get up afer sitting and moving doesn't hurt walking or any swelling in legs I went to er they did a ultrasound on my leg and saw no DVT but I got home saw swelling in my left side of my pelvic area side of butt area on left side same side as pain I have no clue what could be I only get pains there if I move sometimes but not always it just werid got me worried

1 replies...

Compression Hose Discomfort
Posted by Nancy Houtz
Last Reply March 7, 2014 at 06:52
Started March 1, 2014 at 12:29
Many people who must wear Compression Hose have heavy thighs and/or
legs and find the hose is miserable to wear at the top -- cutting into
the leg/pinching and/or rolling down.

After this happened to me I invented a product that stops this and put
it on the market a few years ago with limited funds. The buyers
feedback shows for 90% of these people, they work! Only sell from
website at www.ComPfys.com. Plan to change and reduce pricing in near
future, so don't buy now. I'm 77 yrs old and built my own website and
have to figure out how to change the shopping cart prices!

3 replies...

Posted by OG
Last Reply March 7, 2014 at 03:47
Started March 7, 2014 at 03:47
WOW! Don't know where to begin. Other then it
really stresses n scares me to b going threw this.
All because of a car accident. I'm to young to b
going threw this n a family to take care if. Don't get
me wrong I'm glad God gave me a second chance n
I'm still here with my kids n hubby. But just going
threw this stress n worries about taking my meds
is to much for me... I'm glad I caught my PE on
time. It put me in ICU again after being in ICU
already because of the accident. But it could have
been worse... I just hope things get better soon.
I'm not a fan of taking meds. But after reading the
previous post know I know how important it is to
take my Warfarin meds. I will say I'm so glad that I
don't have to do the Lovanox shots anymore thank

0 replies...

Lung capacity post PE
Posted by JamesNY
Last Reply March 4, 2014 at 14:35
Started March 2, 2014 at 16:29
I am 47 male and 3 months post PEs and still my lung function is only about
1700ml (on that lung exerciser they give ya in the hospital). I don't exercise much.
Myndoc suggests walking but it's too cold. Was wondering if people could share
how long it takes to get full lung capacity or is this the way it's gonna be from
now on.


4 replies...

Insurance and testing for clotting disorder
Posted by James NY
Last Reply March 4, 2014 at 14:26
Started February 14, 2014 at 23:44
I have Cigna PPO. For some reason the 2nd time now I brought up asking
about getting tested for clotting disorder I was told "It's very
expensive". My reply was that is what I have insurance for. Does
anyone have any info on whether insurance companies do not cover this?
I can see no reason why they would not. Personally, I don't care how
much it costs. I will just pay them 5.00 a month for every to keep
myself out of collections if need be.

5 replies...

Volunteers for video programmes
Posted by Richard Cobourne
Last Reply March 4, 2014 at 07:01
Started March 4, 2014 at 07:01
Do you have or have you had DVT (Deep Vein Thrombosis) or PE (Pulmonary Embolism)?

Are you prepared to talk about it on-camera for the internet, not for TV.

'OSP Healthcare' is producing case study type, educational video programmes to help others to understand DVT and PE what they really mean and how they affect you, your family and your life.

All responses will be treated in strict confidence. Please do not post replies here.

If you would like to help please send a brief overview, telling me a little about yourself and your life (including your contact details) to: Richard [at] OSPHealthcare.com

NOTE: No fees are payable. Reasonable expenses only will be reimbursed.

0 replies...

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