DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Are there any MOM with DVT?
Posted by Marcia
Last Reply June 1, 2012 at 06:04
Started June 1, 2012 at 06:04
Hello I have a blood clot on my right leg since I was 18 and been taking coumadin since then now I am 29 years old and I have never been pregnant before but now my husband and I are planning on having a baby by next year but I am afraid and I'm not familiar with the treatment of getting pregnant in my condition and before getting pregnant I would like to know if there are any women with the same situation as me, with dvt prior to a pregnancy not a dvt during pregnancy than can give me advice and tell me your experience I would be so grateful if someone can help me I am so excited to be a mom for the very first time but at the same time I am so afraid to go through a pregnancy without knowing the risk and the treatment

0 replies...

Compression Stockings
Posted by Annette
Last Reply June 1, 2012 at 05:44
Started May 30, 2012 at 22:18
Thigh highs or knee highs? I was prescribed thigh highs after my last bilateral
sub massive DVTS...but OMG what an ordeal, the don't stay up. Would be fine if I
had slim legs but I don't, plus my right thigh is still about 2 inches thicker than
my left and we are now 3 years on. I also found I couldn't tolerate knee highs as
the pain was too much at the top of them....what's a girl to do? Iam sure my
haematologist and obstetrician will recommend stockings for this pregnancy but I
know thigh highs don't work for me...unless I am doing it all wrong and the knee
highs don't deal with the problem above the knee....is any of this making sense?
;)

2 replies...

DVT and moving forward
Posted by teelaweela
Last Reply May 31, 2012 at 21:02
Started May 24, 2012
Hello everyone, 5 weeks ago I was diagnosed with a DVT in my popliteal vein that
also extends into my thigh a couple of inches. To say my life has been turned
upside down is an understatement. I have had a roller coaster of emotions from
shock to depression to high and confident and back down to feeling defeated.

I have many questions, mostly due to the conflicting information from a number
of different health professionals that I have seen at various appointments.

I have read numerous posts from this forum and believe its a great community of
people who wish to combat the position we have found ourselves in.

My DVT was originally misdiagnosed and only through my persistence a day later
did A&E take me seriously. I could rant on about a number of issues relating to
my negative experiences with the NHS but I want to keep upbeat for myself and
others.

The majority of pain has now gone, and my INR seems to be consistent, although
I am yet to dare eat a... read more

11 replies...

Facial Hair
Posted by Petra
Last Reply May 31, 2012 at 20:29
Started May 31, 2012 at 20:29
Posted by Petra Last Reply May 31, 2012 at 20:28
Started May 31, 2012 at 20:28

2nd posting due to typo...

After reading the posts I have discovered Coumadin (Warfarin) has caused facial hair in many. My question is..will this stop once the medication is stopped?

Please e-mail the response to startep@aol.com.

Thanks so much



0 replies...

Facial Hait
Posted by Petra
Last Reply May 31, 2012 at 20:28
Started May 31, 2012 at 20:28
After reading the posts I have discovered Coumadin (Warfarin) has caused facial hair in many. My question is..will this stop once the medication is stopped?

Please e-mail the response to startep@aol.com.

Thanks so much

0 replies...

DVT & PE 2 years ago
Posted by Jackie
Last Reply May 31, 2012 at 03:13
Started May 30, 2012 at 19:18
Hi,
I am a female who had DVT and PE 2 years ago and they found out I had the gene to get them again so Im on Wafrin for life.
Its been two years now as I said but I still notice if Im on my feet alot my leg will swell a bit and my legs will feel achy and tired. My last trip to London where I was walking alot I wore the stockings, and while it did help on the swelling my legs ached. Im only 45 and in average shape. I never had this before my clots. Any feedback would be appreciated.

2 replies...

Natural Anticoagulants
Posted by Jaz
Last Reply May 30, 2012 at 22:28
Started February 9, 2010 at 11:52
I was told today i could stop taking warfarin, after being on it for 6 months due to a DVT & PE after childbirth. I (like a lot of you, as i have read through the forum) am a bit anxious about stopping the warfarin.. Even though i've been told everything seems fine and my clot was most likely due to a combination of childbirth and a severe flare up of my Ulcerative Colitis, i still feel worried that being off Warfarin may possibly lead to another clot. I have just been reading up on natural anticoagulants in foods and supplements, such as garlic, ginger and Vitamin E to name a few. I was wondering if anyone had any experiences using these natural products??? (even if its only for peace of mind).

14 replies...

Pain from DVT in leg
Posted by Maya
Last Reply May 30, 2012 at 21:48
Started May 25, 2012 at 12:50
Has anyone else experienced the majority of pain from a leg DVT in the hip? I was
misdiagnosed because most of my pain was in the hip. My DVT was pregnancy
related. Doctors sent me home with stronger pain killers three times from the
hospital before I finally came back to the by ambulance. I was completely
immobile because of the clot before they did a second Doppler. The original
Doppler showed slow blood flow.

3 replies...

sick mother with DVT
Posted by Stefanie Kudarski
Last Reply May 30, 2012 at 15:38
Started May 30, 2012 at 15:38
I have a sick mother who went in for a routine hip replacement about 6 months ago in Nov of 2011. All seemed to have gone well until 3 weeks post-op she had tremendous pain and swelling in her left leg. The first doctor we seeked out told us that everything was fine and the pain was normal so we got a second opinion. We did a ultrsound and found out that my mother, who is now 70 years old developed a DVT as a complication of the surgery. The reason for this post is that the doctor recommended a device called the venowave which works as a compression pump to be worn on the affected leg. I've been asking around and others have said regular compression stockings will do but they dont seem to be working too well. The product is a bit expensive (around $500 bucks) but my mother's pains seems to be getting worse and I'm beginning to get a little worried. Does anyone have any information for me as this is all new territory for me.

0 replies...

mother has gotten a DVT
Posted by Stefanie Podolsky
Last Reply May 30, 2012 at 15:36
Started May 30, 2012 at 15:36
I have a sick mother who went in for a routine hip replacement about 6 months ago in Nov of 2011. All seemed to have gone well until 3 weeks post-op she had tremendous pain and swelling in her left leg. The first doctor we seeked out told us that everything was fine and the pain was normal so we got a second opinion. We did a ultrsound and found out that my mother, who is now 70 years old developed a DVT as a complication of the surgery. The reason for this post is that the doctor recommended a device called the venowave which works as a compression pump to be worn on the affected leg. I've been asking around and others have said regular compression stockings will do but they dont seem to be working too well. The product is a bit expensive (around $500 bucks) but my mother's pains seems to be getting worse and I'm beginning to get a little worried. Does anyone have any information for me as this is all new territory for me.

0 replies...

DVT Diagnosis
Posted by Juliet
Last Reply May 30, 2012 at 11:18
Started May 30, 2012 at 11:18
Hi everyone,

I was diagnosed three weeks ago today with a DVT in my left groin as well as pulmonary embolism in my left lung. The roller coaster ride of emotions has been almost unbearable. I am not new to pulmonary embolism, as I survived one 16 years ago that stopped my heart.

As of three days ago, I have stopped my coumadin as for me personally I don't want to live my life around my clots and INR. I have had bloodwork to determine if I have the Leiden 5 clotting factor, which I do not. Thankfully, I am feeling well and will be returning to work on Monday.

This should be an interesting day, as I have yet to tell my provider who I see this morning.

0 replies...

excessive bleeding
Posted by mike s
Last Reply May 29, 2012 at 22:42
Started May 25, 2012 at 22:11
My gums bleed for hours after flossing all of the sudden, my inr is good at 2.4
been on coumadin 4 months. Any ideas?

3 replies...

ivc filter clot migrating backwards
Posted by craig
Last Reply May 29, 2012 at 21:51
Started May 29, 2012 at 21:51
I had a ivc filter placed after having PE. Last August I had terrible back, hip, buttocks and leg pain with heaviness. My legs gave out from under me 3 times. I was admitted and discharged with the DX of muscle strains & sprains of the back. Being a medical person I told the Doctors that they were missing something. Sure enough after requesting my medical records I found the MRI showed a clot in my IVC filter but was not treated with anticoagulant therapy and was not even assigned a vascular consult. As one of my treatments for back strain & sprain I was told to get in a whirlpool. Well after doing that I woke up in the morning with a blue leg and incredible pain. I went to another hospital which gave me the DX of DVT from the IVC filter down to my knee on the Right side of my body. Can a clot that was in my IVC migrate backwards down to my knee after being in a whirlpool??

0 replies...

New to DVT
Posted by Claire
Last Reply May 29, 2012 at 20:51
Started May 29, 2012 at 13:31
DVT and moving forward
Reply #9 by Claire Posted: May 29, 2012 at 13:19

Hi, just found this forum and nice to hear from people going through similar. I am 45 and had my DVT four weeks ago, a large one from my groin to my ankle that appeared fairly quickly, I had a few back pains and a bit of an achy/pins and needles leg on and off for a few days but which came and went, then when I was out walking the dog my whole leg swelled up to double its size, all red and really, really sore, took me an hour to drag my damn leg home from a walk that normally takes five mins! Seems to have sarted for no reason at all, I am active, healthy, non smoker so no obvious cause so it was a bit of a shock to say the least.Just really finding out how long I am going to have to wear this stocking! a small price to pay I suppose but am investing in some long skirts. I was in a lot of pain at first, but thankfully the pains almost gone, especially this last week, I get the odd pounding in the shin ... read more

1 replies...

ATTRACT Trial - DVT
Posted by Chuck
Last Reply May 29, 2012 at 01:08
Started May 20, 2012
At the end of March, I was diagnosed with DVT accompanied by a small-
medium pulmonary embolism and immediately placed on Warfarin, which is
standard protocol therapy. After I was released from the hospital, I
found this website and discovered the ATTRACT Study through Mallinckrodt Institute of Radiology at the Washington University
School of Medicine.

The ATTRACT Study is comparing two commonly-used DVT treatment
strategies to determine which is best. If they get the answer from
this study, doctors will be better able to help the many thousands of
people who develop DVT each year. Therefore, participating in the
ATTRACT Study is a great way for a person with blood clots (DVT) to
receive an outstanding level of care while also helping other people
with DVT.

The Principle Investigator, Dr. Suresh Vedantham, M.D., replied to my
email the same day to help me find a study location in Orlando, FL.

Bottom line is that I am a participant in the study and h... read more

4 replies...

Excersising with dvt
Posted by Bradders
Last Reply May 29, 2012
Started May 23, 2012 at 20:52
I was diagnosed with dvt in my right femoral artery nine weeks ago. My octor
didn't seem to inform me that we'll regarding the swelling and use of
compression socks. I am on 5 mg of warfarin and my INR is 2.5 . I am also nine
weeks into stopping smoking. I have bought compression socks that have
stopped the swelling and need to get back to karate or some form of excersise as
I have put a stone on. Anyone advise on the best excersise and how much I can
do. Please.

3 replies...

Lovenox vs coumadin
Posted by Joe
Last Reply May 28, 2012 at 15:47
Started October 20, 2008 at 02:31
do we get the same blood thinning effect with Lovenox as with coumadin... It seems that 2 shots of lovenox is same as coumadin at theraputic INR...

would lovenox 80mg 2X resolve a clot.... and
coumadin does NOT resolve clots (right wrong)?

3 replies...

Developing a 2nd DVT while on Coumadin poss?
Posted by KC
Last Reply May 28, 2012
Started May 28, 2012
Is it possible to develop a 2nd DVT in the opposite leg while on warfarin and if so,
does it heal faster since you already have the warfarin already in your system?
Do they do anything different to treat one DVT as opposed to two?

0 replies...

Pain in legs & feet, but only have DVT n 1 leg
Posted by KC
Last Reply May 26, 2012 at 18:42
Started May 23, 2012 at 16:12
Hi everyone,
I wrote a while back about my husband that has DVT in 2 veins in his calf and up behind his knee. HE was diagnosed on April 23 and since then the swelling has gone down and the pain on his calf with the DVT is pretty much non existant but both of his feet and his other leg are VERY sore pretty much to where he cant walk anymore without screaming. We told nurses yesterday and they told us that it was from him using crutches or his cane and over compensating on the other leg and now using different muscles. Has anyone else came across this problem????? He is so tired of being in so much pain and has to be back to work in 2 months so we are getting nervous. Any comments will be appreciated! Thank you!

2 replies...

Fast changes
Posted by Steve
Last Reply May 25, 2012 at 02:13
Started May 25, 2012 at 02:13
. I had DVT in right leg 2003
My doctor missed it saying it was thibitus. So that was horrific. Was on warfarin
for 8 months then took straight off.

One year later I visit my doctor again as i had pain in the other leg and he tells me
it's. Of another DVT. 2 months later I have a much worse DVT in the other leg and
am lucky to be around.

Now lifelong on Warfarin.

Legs of a 60 year old, mood swings so bad I now plan how to combat each pole.

0 replies...

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