DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4627) - Page 59 of 232
Improvement over how much time?
Posted by Sarah M
Last Reply January 4, 2014 at 12:53
Started January 3, 2014 at 10:18
Hi all,
In a previous post on residual clotting Sam mentioned that he has a reduction in
his clot between 6 and 10 months after diagnosis and significant improvement in
symptoms between 10 and 12 months.

Has anyone else had clot reduction and/or significant symptom improvements if
your clot and or symptoms were still present at 6 months?

2 replies...

Who Else Has Antiphospholipid Syndrome (APS)?
Posted by Sharon
Last Reply January 3, 2014 at 18:31
Started May 20, 2008 at 05:36
This is also known as 'Lupus Anticoagulant' but does not necessarily mean you have lupus or 'Hughes Syndrome'. If you have it, have you had any of these symptoms:

--Multiple Miscarriages
--Neurological Symptoms (muscle weakness, falling, balance/vertigo issues, numbness, etc.) or other symptoms that mymic Multiple Sclerosis
--Stroke or TIA's (transient eschemic attacks--mini strokes)
--Frequent, intense migraine headaches
--Clotting when young, or
--Any other symptoms your doc attributes to this disorder?

In hindsite, every medical issue I've ever had (that is not attributable to an accident or a snakebite) is attributable to this disorder and my FVL. I read that chronic gallbladder problems or early removal of it is common in FVL sufferers, but no connection has been made to know why. I had mine out at 24 y/o!

I'd like to hear from any and all of you w/ APS!

48 replies...

Warfarin, How to live with it
Posted by gingermeggs48
Last Reply January 3, 2014 at 16:07
Started January 3, 2014 at 16:07
The ANSWER to Warfarin issues.
Since being fitted with an artificial aortic valve back in 2001, I have been on Coumadin
ever since and experienced a whole range of negative effects during the first 9 years. No
effective answer or solution was ever recommended to me by a doctor so after 9 years
of that. I decided to work out for myself what the real problem causing issue is with
Warfarin. I found the solution for me and the answer is in my book -

Available on Amazon Kindle ;- Warfarin, How to live with it and reclaim your health,
vitality and your life.
Check it out, the simplicity of the solution will amaze you!
But no doctor will ever tell you what you will read here

0 replies...

Last Reply January 3, 2014 at 04:10
Started January 2, 2014 at 08:41
Does anyone know or have experience with the VA's rating of Factor V lieden. I was DX 6 months ago and will be med boarded out due to life long anticoagualnt therapy. Was wondering if anyone knew what the story is.

2 replies...

Stent replacement?
Posted by Missy
Last Reply December 31, 2013 at 20:26
Started August 10, 2008 at 02:40
I had my dvt/PE when I was 17 years old(March 2007) I also have MTS and I was on birth control plus I have 2 blood clotting disorders, all of those reasons leading to why I developed a blood clot that ran from my left foot to my belly button. I had a three day procedure done by my Interventional Radiologist, where a cathader was in my leg for 3 days dispursting clot busting medicine and then I would go for procedures once a day where my I.R. would remove some of the clot. I also had a stent put in to keep open my vein. I now am 18&1/2 years old and my leg still kills me all the time. I am recently am feeling the same symptoms that I had before I got my DVT and I am wondering if my stent is closing up. Has anyone ever had a stent replacement and if so what were your signs? Last October I had a venogram because I was feeling pain in my leg and my doctors wanted to make sure that my stent was still working fine. But this time I have pain in my upper left butt and lower back, m... read more

3 replies...

Stopping Xarelto after 90 days
Posted by Charles G
Last Reply December 30, 2013 at 19:56
Started December 30, 2013 at 18:18
I had a DVT/PE episode. The doctor in the hospital suggested either Xarelto or Coumadin until my lab results were reviewed by a pulmonary physician. I selected Xarelto for this temporary treatment (15mg twice a day for 15 days then 20mg once a day for 90 days). My Pulmonary physician reviewed my lab results and has concluded that my DVT/PE was an isolated event with no genetic or environmental reason. He suggested stopping the Xarelto after the 90 days. Does anyone have a transition program to stop taking Xarelto? Would it be prudent to take an antiplatelet (low dose aspirin) after discontinuing Xarelto? I am concern about the stroke potential of stopping Xarelto?

1 replies...

clot in leg
Posted by William
Last Reply December 30, 2013 at 18:20
Started December 30, 2013 at 18:20
Hello, I recently had knee surgery and was put on Arixtra. My question
is there someone that has or had a clot in the calf and it bothered you
when you took therapy? I can bend good so far then it feels like there's
a brick under my knee. Will this clot ever go away and will I ever have
the streach that I have in the other leg? Hope I have described enough
for you to understand.

0 replies...

low sex drive while on clexane
Posted by tess
Last Reply December 30, 2013 at 06:58
Started June 11, 2011 at 15:51
Has anyone on clexane noticed a dip in there sex drive i was diagnosed month ago with blood clots on leg and have been getting injections but i seem to be tired all the time and lost my libido and im terrified my husband bumps me in bed n the clots move please tell me im just being silly ?

2 replies...

Cold Season & on Coumadin
Posted by Michelle
Last Reply December 30, 2013 at 04:45
Started October 12, 2006 at 01:16
OYE! I Have the worst head cold!

I have been taking coumadin for DVT / PE for almost 3 months now. I just started getting sick two days ago and it's really awful... feels like I've been beat up something awful.

Does having thinner blood make it so that colds/flu are harder to fight? My PT/INR tests need to be around 2.5 - 3.0 (roughly 3 times thinner than normal pple).

6 replies...

PE pain 2 years later!?!?!
Posted by Tyler
Last Reply December 29, 2013
Started December 29, 2013
I had bi-lateral PE's 2 years ago and had the normal symptoms (9/10
pain, shortness of breath, etc...). I had a lot of residual pain from
the PE's with something abnormal. Out of nowhere 100% of my PE
symptoms would return for a short period and then disappear as quick
as they appeared. My Doc said that this would be gone in a few weeks.
However, here it is several years later and I still get these attacks.
I've searched the internet for answers as to why this happens but
cannot find anything. It is debilitating when I have these attacks and
am getting tired of them. Has anyone had similar symptoms or heard of
such a thing? It isn't fun and I'd like to close that chapter in my
life and move on but these phantom PE's don't like to go away. I'm at
a loss and don't know what to do. ANY HELP would be greatly

0 replies...

How long will my leg remain "swollen"?
Posted by Amanda
Last Reply December 27, 2013 at 16:27
Started February 17, 2010 at 06:42
Back in May of '09 I had a clot in my right leg, from hip to ankle. I've recovered and have been taken off of all of my medications. But it seems my right leg is still slightly bigger than my left leg. It's mostly noticeable around the ankle and calf area. I was wondering if this will ever go away? From what I've read most recently recovered people still experience pain and swelling in the effected limb.

9 replies...

clot in MV
Posted by charbel
Last Reply December 24, 2013 at 03:08
Started December 24, 2013 at 03:08
hello everyone im a 25 years old unfortunate guy who had to have a mitral valve repair open heart surgery 3 weeks ago . the good thing is that the surgery was perfect and i was recovering well until tody while having my regular echo the doctor told me i had a blood clot on the left side of the mitral valve he said i should nt give it any importance because it is caused by me not moving in the first period of recovery and that my heart will clean this as well as i taking asprirne and moving now .
i also called my surgeon and he told me the heart will clean it dont worry but the thing is i cant get it out of my mind especially after i read on the web that it caused strokes ...
so wht do you think am i caring so much has anyone been in my shoes before i mean my surgery was perfect but this ... should i worry or the aspirin will do the trick and with me exercising now the clot will be gone later on????? please help

0 replies...

Injections of Arixtra
Posted by James
Last Reply December 23, 2013 at 10:26
Started December 23, 2013 at 10:26
I have been administering Arixtra to my wife over the past few months. I want to tell you of something I discovered that may help others who have had similar results. The syringes as you know, have an air bubble in them. On the instructions, they advise to leave the air in the needle and inject. Doing so has caused a lot of bruising and lumps the size of a chicken's egg. If you are having an issue with this, then clean spot with alcohol and let dry, Holding needle at eye level, tap syringe with fingernail till all air rises to the top. Slowly push up on plunger with other hand and expel all air. A small amount may come out and then STOP. Pinch skin easily at injection sight and slowly insert needle, then slowly push down plunger till it bottoms out. Remove needle and do not rub area. Hope this helps!

0 replies...

Site saved my life THANK U ALL
Posted by Nona
Last Reply December 23, 2013 at 02:16
Started December 23, 2013 at 02:16
I like to once again thank this forum and the men and women on it that never gave up on themselves and shared their experiences, and offered advice and assistance to others.
Finding this forum was a true heaven sent to me. IT SAVE MY LIFE. Although I was ignored by the doctors and even after the fact and results present to them they still were in denial. But the women and men on here were correct. Please do not take this as ever thing is correct simply don't give up on yourself or a friend who may need you when all else and every one fails them.
Mine issue was concerning the IVC Filter. And the it migrated right away after it was in.

0 replies...

Medicine You Take
Posted by Nona
Last Reply December 23, 2013 at 02:10
Started December 23, 2013 at 02:10
Has or does any one take the medicine DEXILANT? It is a medication for your stomach for either a peptic ulcer, stomach problems, heartburn and so on. I am discovering that this medicine may be the reason for my blood clots. Has any one taken this medicine and got blood clots (dvt's) with no explanation as to why

0 replies...

compression stockings 30-40; pain in toes
Posted by peter
Last Reply December 19, 2013 at 13:25
Started December 19, 2013 at 13:25
Hi, I was diagnosed with a dvt about three months ago; taking warfarin and wearing compression stockings (20-30) for 2 months; run every morning; have been lucky thus far b/c little pain and swelling is almost gone; have been advised to switch after about 2 months to 30-40 compression stockings; Have other persons been given similar advice and has it helped ? since onset of dvd get sharp pain in big toe several time a week if feet have been elevated for a few hours (e.g., when sleeping at night without stockings) and big toe is tender for a few hours a day. Anyone else have similar pain and did anything work to relieve it? Thanks for any help you can provide. Best, Peter

0 replies...

Recently diagnosed with DVT
Posted by Markus
Last Reply December 19, 2013 at 13:07
Started December 18, 2013 at 10:44
Hey everyone, just a bit of background on me.

I had severe pain in my left calf and ankle which moved around for about 5 weeks. I was originally told by GP and out of hours docter it was muscle strain and maybe nerve damage so i got a physio to work on it. Last week my left leg swole up so i went to a&e where it was confirmed i had a DVT in my left thigh. I start rivaroxban immediately and the swelling has started to go down.

But the the pain has moved up my leg to the groin area (it feels like muslce strain, not sharp pain but constantly there and dull) sometimes, maybe 3-4 times a day i'll get a pain in my chest, again not really sharp but i can feel it, and sometimes even a pain down my arm. I can take a deep breath without any pain, it's this pain comes and goes randomly. Is it something i need to get seen urgently?

many thanks.

3 replies...

leg pain 1yr 5 mos post DVT/PE
Posted by Rleslie
Last Reply December 16, 2013 at 10:17
Started October 26, 2010 at 07:32
Hi all, I was wondering if pain post DVT lasts forever? I have been having pain in my
DVT leg for the last 8 mos. Had DVT june 09..then PE both lungs 3 wks later...I was on
coumadin for 7 mos....I have severe bouts of leg pain and chest pains since then. I
have been to the ER about 6 times since January...all times get ultrasound and d
dimer...all negative...and my primary dr doesn't seem to know too much about this....Is
this normal? When I get the pains, which are almost constant...I wait to go to dr until
my level of pain is uncontrollable....then I go into ER because that is where dr says to
go because of my history with DVT/PE.....I am very frustrated, some of the dr's I've
seen, seem to just brush it off, like I'm crazy...one of them even told me that I have too
much anxiety...of course i do, I almost died......
sorry for the long text, but I need to know that i am not crazy....should I see a
specialist and if so, vascular surgeon? I feel soo lost....... read more

14 replies...

Need advice...URGENTLY
Posted by babyblueallstar
Last Reply December 11, 2013 at 20:46
Started November 1, 2013 at 22:39
Hi everyone.

I'm not going to go into my long DVT story...but will give a brief backstory and bring you up to why I'm writing.

Back in 2006, almost died from a DVT that broke off from my right calf (ankle to bottom of thigh) into both lungs.

Had repeated DVT's even on Coumadin/Warfarin. I would say since that original episode in May 2006, I was hospitalized with 5 additional DVT's.

Finally in 2009 or 2010 I was cleared and taken off blood thinners.

It is now 2013 and I have what appears to be an UNPROVOKED DVT in September. Had a lot of pain, felt like all the previous clots in my right calf...but this time in my left. I swear I got it while doing Zumba and came down too hard and felt pain in my ankle. My PCP doesn't think so.

Anyway...got 3-4 ultrasounds in a 3 week period and the clot was there...

It is now November and I've been having pain I haven't had since the new DVT was found in Sept...and it makes me wonder if the clot is enlarging itself or ther... read more

4 replies...

Numbess in foot
Posted by Amber Schultz
Last Reply December 11, 2013 at 20:38
Started August 22, 2011 at 14:36
I was diagnosed about 6 months ago with a DVT in my right leg behind the knee after having heart surgery. I am 27 years old and have already had bypass surgery on my heart due to diabetic complications. I have seen a vascular surgeon and will be having surgery to do an artery bypass in my leg Sept 12th to increase the blood flow in my leg and foot. I was wondering if its common to have numbness and a little bit of pain in the foot with a DVT in the leg or if this numbness is caused by something else? Also, after surgery will I be able to return to work or will I permanently be disabled from the numbness?

5 replies...

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