DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4544) - Page 59 of 228
Exercise with DVT and 2 PEs
Posted by Jessica
Last Reply September 1, 2013 at 22:35
Started June 15, 2013 at 12:43
Hey everyone... I am 23 years old and last Easter I was diagnosed with a massive
dvt from my ankle to my groin. The next day I went to the ER and was told that I
had 2 PEs. I am currently in the army and am constantly getting the run around by
the doctors. I have been seeing a PA and they don't really know if I should
workout or not. My INR levels finally hit the therapeutic range (2.6) this week. I'm
still trying to get a referral to see a specialist but am having difficulty since I'm
dealing with military health care. I just want to know if I can start working out and
what my limitations/restrictions are since I can't seem to get any answers?

4 replies...

Better results with aggressive treatments
Posted by Sarah M
Last Reply September 1, 2013 at 01:44
Started August 31, 2013 at 11:43
To anyone who finds this blog, the best advice I can give you is to visit with an interventional radiologist ASAP. I'm hoping my experience can help others because I went from doctor to doctor that told me it might clear up and to wait and see whether I'd end up with PTS.

DVT is an undertreated condition, especially in younger people who are active and otherwise healthy. The chances of your veins clearing on their own is EXTREMELY small - and permanent vein damage occurs quickly.. in as little as 30 days, so even if your occlusions do resolve the chance of having PTS or CVI is very high. There are therapies that interventional radiologists and vein specialists can perform such as catheter-directed thrombolysis and ultrasound accelerated thrombolysis (for older clots) which report good success. The doctors prefer to do this within 14 days for the best results (you can have a COMPLETE recovery with early intervention!!!) Even with delayed treatment, however, this type of ther... read more

1 replies...

Big Thank you to all on this forum
Posted by Nona
Last Reply September 1, 2013 at 01:01
Started August 20, 2013 at 18:09
Recently I had a IVC Filter put in in June 2013. I was in bad pain when I woke up after the placement and I was ignored. Thereafter I suffered so much pain I was not able to walk or move for 57 days. To make a long story short I was lost and suffering in ways that are imaginable. After many visits to the ER's and being ignored time and time again I was getting worse. While laying in bed as I have been I googled my pain and came upon this forum. I had read other people posting exactly what I was feeling and I was really bad. I then continued my fight for help. Here I was right all along and so were many on here and without this forum I would be walking or anything today. This past Friday I had the filter removed. One doctor listened to me and took the chase. They were shocked to see how bad the filter was and filled with scar tissue on a filter that was just placed in. Regardless this forum and those that post helped me very much and made me not give in. It needs to be known. Well th... read more

1 replies...

lv5-sv1 disc herniation
Posted by ahmed mohy
Last Reply September 1, 2013
Started December 5, 2011 at 11:39
my name is ahmed mohy im 26 yrs old ,, i really need ur fast reply asap , i went to 4
drs with no usefuel advice and my case is as follows : i did the MRI scan and its
results is as follows : disc herniation is indenting the ventral surface of the thecal sac
and compromising the SV1 nerve roots notably more at the right reduce lv5-Sv1 disc
height with degenerative loss of its hyperintense hydartion signal .b- normal
aligmnet of the lumbar spine c-normal narrow signal of the lumbar vertebrea d-
normal site , shape , intensity of the conus medullaris e-no signifcant bony canal
tightness seen , normal pre and paravertebral soft tissue .
at the beginning there was no pain in my leg it was only in my back and i took apain
relieve and it was ok ,, these days i felt pain in my buttlock then it travels now to the
beginning of the calves it was severe at the beginning i cant walk probably on my
right leg but by passing on the days the pain become mild but the walking is... read more

2 replies...

Stents for DVTs
Posted by Liesa Phillips
Last Reply September 1, 2013
Started August 21, 2013 at 13:33
I recently had stents placed in my left common iliacfemoral vein for a chronic DVT
caused by MTS. I am 8 days out from the placement and am feeling like I can feel the
stents when I move in certain directions. Does anyone know if this is common and if
these feelings are permanent.

1 replies...

Use of EKOS EnoWave on 5 month old DVT
Posted by Don
Last Reply August 31, 2013 at 11:56
Started June 25, 2008 at 19:04
Was diagnosed 1/30/08 with DVT in mid Femoral down to and including some of the popliteal. It is said to be "non-compressibe" meaning very hard. I have been to a Vascular Sugeon in May who basically told me keep taking Warfarin for total of 6 months, then aspirin and use stockings and do another dopper in 1 year. I was devastated...I was led to beleave I was getting better...but now I know the story...I now have PTS in left foot/ankle. I recently went to another Vascular Surgeon in Dallas that uses the EKOS system to ask if I could be helped. He said he wish I had come just after the diagnoses...that probably too late now. I pushed it and he agreed to do the treatment and said he may have some success if he could get the guidewire through the clot in order to treat it.
I'm trying to decide to do it or not. I asked what was the down side other than the relatively low risk of major bleeding and brain hemorage and he said nothing more, that it works and helps me or it doesn't work. I... read more

24 replies...

is there any spl diet for DVT patients?
Posted by bharati
Last Reply August 31, 2013 at 11:14
Started February 3, 2009 at 04:05
hi
pls suggest me the proper diet. which vegetables i should avoid n fruits also. totally confusing and dont know what to take not to take my doctor told do not eat cauliflower n cabbage. like this any particular diet is there for dvt patients i have clot in my thighs. in treatment since one month. me at home only. pls friends if someone knows about the diet n do's n donts also for keeping me in safer side.
thanks in advance
bharati

14 replies...

finally an answer two femoral veins, anyone?pl
Posted by michelle
Last Reply August 30, 2013 at 21:58
Started October 15, 2010 at 21:05
Please respond if you can, my daughter is only 11, and was diagnosed on Aug.24th with dvt in femoral vein, all genetic tests came back negative and we did not know why this would happen at such a young age. i had a protein S deficiency but only when I was pregnant and was on lovenoux. She has been on lovenoux, but the leg has stayed approx. i inch bigger than the normal one. They did a repeat ultrasound today and discovered she has a duplicate femoral vein, and Dr. says when you are born with two(he says 1 in 100 are) the extra vein has limited blood flow and at risk of developing a clot, he says it has to eventually clot and die off, and sometimes the clot never fully goes away, it just remains, she has complete flow in the other femoral vein, so thats good, I just wonder if her leg will always be an inch bigger than the other one, if that is the worst of it, I'm okay. he took her off lovenoux after 2 months, because he feels these type of clots are not dangerous and might remain, ... read more

12 replies...

drastic one week INR fluctuation
Posted by LAW13
Last Reply August 30, 2013 at 18:45
Started August 30, 2013 at 18:45
Hello. I am a 30 year old female taking 8.5 mg of Warfarin per day for treatment of
Factor II. I threw my back out last Thursday and started steroids. My INR was 4.2
last Saturday. Today, after being instructed to hold Warfarin on Sunday, my INR was
1.7. I have been on Prednisone since last Thursday and was told today by the lab
that Prednisone actually elevates an INR. So, with me being 1.7 today, should I be
worried about a new PE or DVT? I increased my Warfarin to 10mg today but am still
worried that I am actually lower than 1.7 (factoring in the Prednisone elevation).
What are the odds I get a new PE or DVT this weekend? Any advice? Thank you!

0 replies...

Some questions about PTS
Posted by Ava
Last Reply August 30, 2013 at 17:39
Started August 29, 2013 at 17:13
Hi all, I am so grateful that I have found this site. I've learned so many things from
you guys experience.

I was diagnosed with DVT (external iliac and common femoral vein) back in the end
of March this year. It's been five month post diagnose now. I feel I have recovered a
lot ever since. My pain in the groin was long gone and swelling has been reduced a
lot (it used to be 1 1/2 inch in circumference mid thigh, and now it is down to 1/2
inch mid thigh). My ability to walk and stand has improved a lot also. My experience
is that the very acute symptom didnt take that long to be gone, but the swelling is
going away super slowly..... It took me 3 months to go from 1 1/2 inch to 1/2 inch!

I didnt know about PTS until about two months ago (my doc didn't tell me because
she didn't want me to worry too much...). My question is how do I know if I am still
recovering from DVT or if I am already suffering from PTS, hence the remaining
swelling. How long do you have... read more

2 replies...

Is this DVT? (Check image)
Posted by Ramnath
Last Reply August 29, 2013 at 19:23
Started July 2, 2013 at 18:04
My father is 75+ years old. He is currently suffering from Dementia (not very alarming but yes there are clear signs) as confirmed by a Neuro sergent and has mild TSH problem.

An year ago we noticed that his legs (ankle part) are sometimes getting swollen. We have visited many doctors, did many tests but unable to get a clear verdict about what the problem might be. The situation has worsened over time and now his left ankle is somewhat blackish, swollen, crippled skins, etc. Severe fatigue can be noticed.

Can you pls tell me what might be the disease?

Regular tests shows no signs of sugar problem, liver problem, heart, kidney, or any other issues. He can walk properly, ascend/descend from our 2nd floor.

I have snaps that I am sharing for your understanding.

http://oi40.tinypic.com/szv31e.jpg

Thanks.

5 replies...

dvt n pe`s
Posted by ami
Last Reply August 29, 2013 at 19:17
Started August 29, 2013 at 14:36
Hi there iv recently hav a dvt in my leg and multiple pes in 2011 and
really poorly still with it all cnt sleep for pain I recently had
tests done and went for my results and told me they don't no what's
causing them just wantewd to noo what to do next xxx

1 replies...

post dvt pain
Posted by jaimie in luton
Last Reply August 29, 2013 at 09:53
Started August 23, 2007 at 01:15
hi, 3 years ago i had a dvt in my left leg, i was pregnant and i smoke, and as it has been in my family before ( my grandfather died of it) it was taken as high risk, well i did get over it, but back in january 2007 i had terrible pain in the same leg taking no chances i went straight to my doctor who sent me to hospital, i was put on tinzaparin injections and within the week the pain went, but two weeks ago i have suffered the same, i've had a scan done but no clot has been detected, so now being discharged from hospital i still have terrific pain i went back to my doctors he simply said it is post dvt pain, can anyone shed more light on this for me, will i be like this for ever? can i go abroad? i am 28 with a young child and i work in a casino so will this be affected? i am deeply concerned and cant get any information on this, my leg is constantly painful and i find it hard to do normal everyday things that i would normally do, my email is squidgelion@hotmail.co.uk i would be s... read more

79 replies...

DVT or not...? Unsure what to do!
Posted by KT
Last Reply August 28, 2013 at 18:29
Started August 22, 2013 at 19:50
Last Thursday I experienced pins and needles in my right leg during an 8 hour
flight followed by a pain in the top of my leg, by my knee.

By time we landed, the pain had travelled further down my leg
- it was a pulsating pain made worse when walking. This continued for 3 days and
walking was very difficult. I visited A&E during this time - they ran the blood test
and it came back negative.

On Monday my leg seemed okay but on Tuesday I woke up to really
bad pain in my calf. It is very tender to touch and I cannot put weight on my leg.

I spent yesterday in hospital - they took bloods again and carried out an
ultrasound on my leg. All came back negative. They were unable to offer an
explanation and sent me home.

I still cannot walk and the pain is the same. I also have a 1cm swelling. The pain is
now beginning to travel up the back of my thigh although I'm aware this could
be to do with me not walking properly.

I'm at an absolute loss as what to do next.
... read more

3 replies...

I NEED GOOD STORIES/HOPE: Post-Op DVT/PE
Posted by DVT Newbie
Last Reply August 27, 2013 at 17:45
Started August 27, 2013 at 17:45
Message board,
I am a post-op surgery DVT/PE victim. 1.2cm clot calf moved to Illiac after 1 week.
4 days hospital/Heparin
2x15mg Xarelto 3 weeks-1x20mg after that.
I used to love working out/don't drink/smoke. I feel cheated. What was supposed to be
a minor surgery changed my life.

I need hope/positive stories to stay uplifted. I may hope to get pregnant and would
need to go off blood thinners. Does ANYONE have any good stories on this board of
survivors that beat this thing, went off of blood thinners/ are DVT free after multiple
years, or who have gotten pregnant afterwards without issue?
I really need to hear this.

0 replies...

Pain & Swelling
Posted by David
Last Reply August 25, 2013 at 16:46
Started December 14, 2010 at 20:06
I was diagnosed with DVT in my left calf and PE on December 8th. I am presently taking 5 mg of coumadin daily. My question concerns the pain and swelling in my leg. I know ibuprofen, aspirin, and naprosyn are big no-nos, but is there anything I can do for the inflammation? The pain in my leg is actually worse now than when I was in the hospital.

2 replies...

Dvt blood clot
Posted by Sylvia
Last Reply August 23, 2013
Started August 17, 2013 at 17:37
Hi 4 months ago I was diagnosed with dvt am on warfarin a few days ago I have
started to get very bad pains in the back of my leg could I be getting another
blood clot as when I go to stretch my legs that's when it seems to lock its like
have'ng cramp but the pain is worse as at first the dr. Thought I had a trap nerve
but then it got worse then he sent me to the hospital I was diagnosed have'ng a
dvt could I be getting another one in the same leg can anyone tell me I have been
waiting to get appt to see a heametolgy & I have only just got my appt for sept
could anyone please give me some advice in what to do

3 replies...

2nd DVT in leg, age 27, warfarin for life
Posted by Liz
Last Reply August 21, 2013 at 17:39
Started August 21, 2013 at 17:22
Hello everyone, thanks for reading. Last year I had a blood clot, DVT in my left
leg, above the knee and was on warfarin for 6 months. I had no reason for getting
the clot the only thing they could link it too was a side effect of the contraceptive
pill I was taking, which I of course stopped right away. Of course getting the clot
was a shock and I was very upset at the time. I stopped the warfarin in February
2013. Had the blood tests a month after and all were fine, nothing in me that
would contribute to getting a clot. Life back to normal again. Then just a few
weeks ago I got that awful pain again in the same leg. Back to hospital, to find I
have another clot :( they have advised its definately a different clot, a second one.
And again, no reason for getting it that's jumping out. I am now back on warfarin I
have been referred to a haematologist but have been advised that ill have to stay
on warfarin for life now to prevent further clots. I am just after so... read more

1 replies...

2nd DVT in leg, age 27, warfarin for life
Posted by Liz
Last Reply August 21, 2013 at 17:22
Started August 21, 2013 at 17:22
Hello everyone, thanks for reading. Last year I had a blood clot, DVT in my left
leg, above the knee and was on warfarin for 6 months. I had no reason for getting
the clot the only thing they could link it too was a side effect of the contraceptive
pill I was taking, which I of course stopped right away. Of course getting the clot
was a shock and I was very upset at the time. I stopped the warfarin in February
2013. Had the blood tests a month after and all were fine, nothing in me that
would contribute to getting a clot. Life back to normal again. Then just a few
weeks ago I got that awful pain again in the same leg. Back to hospital, to find I
have another clot :( they have advised its definately a different clot, a second one.
And again, no reason for getting it that's jumping out. I am now back on warfarin I
have been referred to a haematologist but have been advised that ill have to stay
on warfarin for life now to prevent further clots. I am just after so... read more

0 replies...

Should warfarin be stopped ?
Posted by Neil Bennett
Last Reply August 20, 2013 at 18:19
Started August 15, 2013 at 13:26
Hi All,

My situation started about 4 years ago when i found some lumps
appearing in my left leg, they where situated on the inside of my knee
area. I visited doctor who said it was varicose veins.

In Nov 2012 I started to get pain and discomfort in the area which got
worse over the last week of November, I visited GP who gave me
ibruprofen cream to put on.

Throughout Dec it got worse, back to doctor who then gave pain
killers. On Dec 31st it started burning and the pain was much worse,
at doctors in morning then hospital in afternoon. Had Doppler scan and
was told that doctor would contact me about it.

Back to doctors throughout January for more pain killers and was told
that the scan was nothing serious.

On the 5th of February early hours I could not sleep and started to
get pain below my left ribs, Phoned doctors at 8am and got early
appointment, went to doctors who immediately phoned an ambulance.

After several hours I was admitted to hospita... read more

2 replies...

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