DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4345) - Page 59 of 218
post DVT issues
Posted by Karen
Last Reply September 29, 2012 at 09:41
Started August 18, 2012 at 02:06
Hey everyone, came off warfarin 1st week of July 2012 - treated for 8
months total, dvt in left leg thigh to pelvis.

I'm just wondering if anyone can tell me some of the post issues
they've had or are having - can't really seem to see much online.
I get tinges of pain in my leg still, prinkly sensations, and
sometimes it still swells and i get pain around the back of my knee.
Scary because i think it might be another clot....

can anyone shed any light on this? i know i suffer from PTS as the
surgeon seen it just from the discoloration in my leg (pinkish tint)
but would that explain the prinkly sensations, the pains?

5 replies...

How high has your INR gone?
Posted by Judy
Last Reply September 28, 2012 at 22:03
Started September 28, 2012 at 21:07
Hello, I recently had to stop taking warfarin so that I could have surgery. After 10 days of clexane, they started me back on warfarin and my INR is currently 6.4, having been 6.0, then 4.8. I've never had anything so high - I know that if it gets really high they can do something medically to bring it down - but how high would it have to get before they do that?

I've been told to take no warfarin for three days, then start again and test on Tuesday. I'm trying to keep everything consistent, amount of other drugs I'm taking, diet, exercise till Tuesday in the hope that it comes down.

How high have you gone?

1 replies...

Dvt & PE
Posted by Ann
Last Reply September 28, 2012 at 08:08
Started September 28, 2012 at 08:08
I was experiencing pain in my right calf and went to the ER on August 29th where
they did an ultrasound and sent me home after telling me it was just superficial
fibrosis. Three days later, my foot began to swell so I returned to the ER. They
did a CT scan of my lungs and an ultrasound on my leg and found two DVT's in
my leg and PE's in both lungs. I was admitted to the hospital for 6 days and was
on lovanox and Coumadin therapy.
I am 39 years old. After several blood tests, the results showed that I have factor
five liver deficiency, and will have to be on blood thinners for the rest of my life. I
have expierencied headaches with the warafin, but the alternative isn't good
either. The worst part for me has been the anxiety that I have felt after coming
home. Every pain scares me and the knowledge that one of the clots in my leg
could break loose or the warafin could cause internal bleeding has been a very
humbling expierence. At this point, I just hope ... read more

0 replies...

Any cabin crew with DVT/PEs
Posted by ANDREW
Last Reply September 27, 2012 at 19:02
Started August 13, 2011 at 07:58
Hi everyone I am a longhaul cabin crew member and have been for 10+ years up until a few months ago I was a healthy man, then I suffered a PE which nearly killed me. My doctors attributed the PE to DVT caused by longhaul flying and my job as all other test and reasons were negative and eliminated. I applied for workers compensation to help with my medical cost relating to the PE the company doctor assessed me and stated that there was no way my work contributed to my PE as DVT is caused by immobility on longhaul flights and flight attendants in their job capacity are not immobile and he had heard of no cabin crew or pilots suffering DVT/PE. Are then any cabin crew out there that have suffered DVT/PE due to our work. Am I the only one? I cant believe that, I want to fight for my right to help

2 replies...

Everything you wanted to know about PTS ...
Posted by Bob
Last Reply September 26, 2012 at 20:37
Started August 29, 2012 at 06:06
Good read...

http://bloodjournal.hematologylibrary.org/content/114/21/4624.long#F1

.

17 replies...

Does the brand for compression socks matter?
Posted by Cindy
Last Reply September 26, 2012 at 18:53
Started May 6, 2008
Does the brand for compression socks matter? What brand do you use and have you tried other brands?

I was given Mediven while I was in the hospital and they seem to be one of the more expensive brands. I have to wear the thigh high socks and the Mediven do stay up for me where I have read that others have problems with the thigh highs not staying up (I don't know if that's a brand issue, though). Do you prefer one brand over another and why?

Thanks!!

7 replies...

Just looking for opinions/past experiences!
Posted by Haimia
Last Reply September 26, 2012 at 17:06
Started September 20, 2012 at 16:28
In March 2012, I had bilateral DVT (blood clots) in my legs and a PE (pulmonary embolism) in my lungs. I was put on heparin in hospital and discharged with lovenox and warfarin. It took me 5 weeks to have my INR at level with warfarin to stop the lovenox (bridge therapy until INR level reached).

During some of the tests, my thyroid showed a problem. Ultrasound and FNA done. Took another 5+ weeks to get my INR at level after FNA (had to stop and cover with lovenox due to bleeding risks). Long story short, I had a TT on August 8, 2012. Again, using lovenox to bridge and taken off warfarin due to bleeding risks. I was discharged from hospital and had to return within 24 hours due to hematoma in my incision. Removed from ALL blood thinners and had IVC filter put in to help avoid PE's. Returned to warfarin, etc. after 10 days and I reached INR level in one week.

Since this time, I have had issues with INR being too high and have been reducing the warfarin dosage. I am curious to ... read more

4 replies...

DVT Side Effect
Posted by Margie
Last Reply September 26, 2012
Started March 19, 2010 at 01:34
I've read many here; however this one seems to be 'new'. DVT from behind to foot first week of Dec. 2009. In hospital 3 days and then sent home to lie on couch with leg elevated for over two months with a very ill fitting sock. Swelling is much better but still in calf, ankle/foot areas. Problem: top of foot from about middle of foot to end of toes is totally NUMB. Also other leg is swelling up and asked Doc about it. He touched my ankle and shrugged his shoulders and said "Dunno". I sorta think this may be a DVT in the other leg too - as to numbness not a clue. My INR is stable at 2.1

5 replies...

Worsening swelling of leg
Posted by Peace
Last Reply September 25, 2012 at 23:12
Started September 25, 2012 at 17:24
I was diagnosed with dvt for a second time in 3 months. I had my first
dvt in end of May, was on warfarin for 3 months. I stopped taking
warfarin for 2 weeks and got another dvt. This second one is so painful
and my leg is continuing to swell after being on treatment for 1 week.
Has anyone had the same problem as mine? Peace

1 replies...

Recovery time from DVT
Posted by Lisa
Last Reply September 25, 2012 at 03:28
Started January 3, 2008 at 15:58
Hello, everyone - I am not sure how this all works. My husband had back surgery two weeks ago and now has what they call "extensive deep vein thrombosis" starting at the top of his thigh and extending down to just above his knee. They have him on the self-injectable Lovenox and oral warfarin for now. His family doctor is going to put him on long-term anticoagulant therapy after that. My question is, how long does it take for any improvement in symptoms to appear? Only because I want to be able to follow his progress to know if things are not going as they should so I can get the appropriate care - and also because if I can tell him that he will start to feel better after so many days or whatever, he will have something to work for as he is very blue about all of this. Can anyone help? Thanks so much.

74 replies...

Newly diagnosed
Posted by Amy
Last Reply September 24, 2012 at 23:43
Started September 23, 2012 at 21:19
I am 27 years old and was recently diagnosed with DVT in Rt calf after having pretty
intense calf pain. My fall wardrobe consists of leggings, skinny jeans and knee-high
boots - am I still able to wear these with a DVT??

4 replies...

Venous insufficiency
Posted by pamela
Last Reply September 24, 2012 at 17:03
Started October 26, 2010 at 22:59
I got an answer to why certain things are still uncomfortable for me more than a
year out, and why I still have some edema in my ankle/foot after more than a year.
Two spots of venous insufficiency where the valves aren't closing properly, one just
above and one just below my knee, the one below my knee is the one causing pain
at times. He also doppler'd my feet, and discovered the vein on the top of my foot
is kinda weak, which I suspected... it is bothered by the pressure of compression
stockings late in the day, as well as shoes on too tight that press there.

I really liked the Physician Assistant who spent more than an hour with me today.
Some recommendations are obvious, such as get exercise, lose weight, wear my
compression stockings, don't stand all day, etc. It was not so much heard it all
before as let's make sure all of his patients know what and how each help.

One was interesting... he recommended exercise that used my calf muscles more
tha... read more

5 replies...

Wounds on DVT leg...
Posted by jen
Last Reply September 24, 2012 at 01:50
Started September 13, 2012 at 22:24
It's been almost 2 1/2 years after first being diagnosed with a DVT in
my right leg. I am still experiencing occasional leg pain.
I notice it mostly when I drive, stand in one position for long, walk
up hill, walk up stairs, or walk more than a few miles. I have
basically just learned to live with it, it is not terrible. My leg
still swells occasionally, and it looks like my lower leg was in a
boxing match.

I have noticed ever since the DVT, my leg is bruised, and when I cut
myself or get a sore on that leg, it takes months to heal. I am
thinking maybe there is some sort of circulatory issue. I got a few
mosquito bites 45 days ago, they have all healed, just fine, except
for the one on my lower right leg. It is still a huge scab. Is this
something I should be concerned with?

Any advice would be great.

PS... I am on warfarin for life due to Lupus Anticoagulant.

2 replies...

Boston specialist
Posted by Morgan
Last Reply September 22, 2012 at 19:55
Started September 22, 2012 at 15:21
Hello, I am a newly diagnosed 37yr old with no history of DVT, just
minor leg edema, some varicosities and spider veins. They came across
this by accident. I had the angiogram yesterday and they told us I
need a stent because I have high level of compression. I would like
to get a second opinion in Boston. Anybody know of a good vascular
surgeon in Boston who deals with this condition? We were thinking of
a second pregnancy so we need to figure out if the risk would be too
high too. They have me on blood thinners until I get the stent.
Thank you!

1 replies...

Extensive DVT
Posted by Chloe
Last Reply September 22, 2012 at 17:07
Started September 22, 2012 at 08:33
hi, i am 22 years of age and 6 months ago i was diagnosed with an extensive dvt from
my ankle to my hip. I was hospitalised for 2 weeks with tummy injections and warfarin. I
was wondering as to how long until my swelling is gone and clothes start to fit me. I
recently had an ultra sound and found out from my ankle to knee pretty much has no
clots to show its just my knee to hip now. I still experience a lot of pain and swelling is
still very obvious. Its very depressing being a young girl and trying to hide this
especially in the summer time. Im always feeling very tired and sore. Please tell me your
thoughts on this?

6 replies...

New and Scared
Posted by skip
Last Reply September 22, 2012 at 16:45
Started September 22, 2012 at 05:02
Hi, I'm new to all of this so I'm sorry if I'm long winded. I was at work last week telling my co-workers that I had experienced right calf pain early in the week that wasn't severe and subsided after 2-3 days, but now my ankle was swelling. The swelling would come and go. I've known a little about DVTs and it even crossed my mind initially but when the calf pain went away I forgot about it. To make this complicated, I hurt my right knee several months ago playing soccer. Soon after, I hurt the left knee working in the yard. After tolerating the pain in both knees for long enough I went to the ortho doc. He ordered an MRI on the left knee because the symptoms I described sounded like a torn Meniscus. It was. Surgery for that was 2 months ago or so. Recovery was a breeze, no more pain and I've been back to work without any problems. My right knee still bothered me. About 3 weeks ago, at my 2nd post op appointment I told my doc that the right was still hurting so he drained the knee, ... read more

2 replies...

pelvic dvt
Posted by debra
Last Reply September 22, 2012 at 14:02
Started October 10, 2011 at 18:31
hi was diagnosed 5 weeks ago with a big clot in my external,inner and common iliac veins. i am on warfarin now but still have pain and swelling in my left leg and sometimes severe pain in my left pelvic side . i was wondering has anybody else had this kind of dvt and when i will i be well enough to return to work as iam a care assistant in a nursing home and work 12 hr shifts usually on my feet.there is no apparent reason for the dvt as i,m 45 yr female not taking the pill and no family history of dvt. i would find it helpful to talk to people in the same boat as myself thank you debra

9 replies...

Severe groin pain 5 yrs after resolved DVT
Posted by Koshka
Last Reply September 22, 2012 at 09:39
Started September 22, 2012 at 06:09
Hi, I had right femoral DVT 5 yrs ago.  Symptoms were shortness of breath and
aching leg, particularly ar night, which led me to get a work up, which led to cath
to check heart.  Heart was fine, but following procedure had severe pain in leg
and that is when they found 6 inch clot.  I have history of horrible headaches as
well and have tested on the low positive end off anti phospholipid antibodies.  
Also, the cath caused pseudo aneurism in adjacent artery.   Treatment was 1
week inpatient then 7 mos warfarin, all fully resolved.  Fast forward 5 years:  have
severe pain in right side pubic area of groin, and have noticed shortness of
breath and some intermittent chest pain and much more frequent headaches over
last few weeks.  Groin pain started last night only.  Head pain, chest Pain or
tightness and shortness of breath, I have been attributing to increased workload
and very high stress job, but now with bad groin pain, I am a bit concerned.  No
leg swelling... read more

1 replies...

New dvt while on warfarin
Posted by Sue
Last Reply September 22, 2012 at 09:24
Started September 20, 2012 at 07:25
Hello,
About 3 weeks ago i woke with a sore leg, i went to my local hospital, thinking i had a clot, my inr was 1.9 as i had tested the day before.I have been on warfarin sence 2007.The hospital sad it was unlikley,so i left, two days latter i went to enother hospital, and sure enouth after test i had a dvt.Has any body else had a clot while on warfarin?? i might say this is my third dvt, first one traveled to my lung, after six months i went off warfarin, six weeks latter i had enother dvt, so now on warfarin for life.I do not have the clotting factor as they tested me for that. Not feelin really safe now while on warfarin!!!!!

4 replies...

DVT in one leg -- now pain in other?
Posted by Victor
Last Reply September 21, 2012 at 13:52
Started December 16, 2008 at 03:19
Hi, not sure if I'm being too worried about this, but thought I'd check to see if anyone else has had this feeling. I am about six weeks into a DVT on my left side (due to a broken bone) and have been on Lovenox (10 days) and Warfarin (INR of around 2.0 for the past 4 weeks).

Last week I started feeling a tingling pain every few hours while walking in my right leg (non-DVT leg). Now, I feel it a little more often and a few times a day I feel a slight pinch in the thigh (I feel that on the other leg as well). The leg hasn't swelled at all, turned colors or temperature. And the feeling is much less than when I had the DVT on the left side.

I plan to get another Ultrasound done in the next 2 days to verify if a clot has developed there or not, though my doctor has told me already it's doubtful since I've been therapeutic already on Coumadin.

Has anyone else who has had a DVT in one leg noticed similar symptoms in the other leg? Could it be the Warfarin that is causing th... read more

27 replies...

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