DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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been in pain for a month, still not sure
Posted by snoo
Last Reply February 18, 2014 at 21:51
Started February 13, 2014 at 23:30
tried to convince myself it's maybe nerve pain or something but it
just seems so unlikely.

my left leg started hurting again and the pain is back in my calf,
too.

the calf pain feels like a muscle cramp in the back, and shin splints
in the front. the upper leg pain is on the outside of my thigh
(intermittent, feels like an ache) and also on my inner thigh and up
into my groin, both of which often feel burning, stabbing or shooting,
occasionally vibrating (? donít know if that's a good description).
the groin discomfort has been the most recent and long-lasting, but
usually it's more of a sensation that doesn't hurt.

I had legitimate muscle cramps in the back of my thigh and butt the
other day, after standing in the garage for over two hours, but
they've gone away. when I was doing that, though, I sat down once and
saw a spot on my calf pulsing/throbbing through my leggings. I showed
my brother and he was kind of disturbed by it. :/

itís been a mo... read more

7 replies...

Pantoprazole and Warfarin
Posted by Christine
Last Reply February 18, 2014 at 20:46
Started January 20, 2011 at 20:37
I am a 44 year old female who is on life time warfarin.
I had 5 pulmonary embolisms from a DVT in 2007 and
have been on warfarin since then.
Currently, I was prescribed Pantoprazole.
I am looking to hear from individuals who have taken
this pill long term or short term alongside warfarin/coumadin.
Did it effect your INR's? if so, were you too high or too low?
Also, did you take your warfarin at the same time as your pantoprozole
or seperately? has this medication helped you ? Last question: has anyone developed GERD/acid reflux/ SINCE taking warfarin?
Thank you!
Christine/Canada

2 replies...

Flying
Posted by donna
Last Reply February 17, 2014 at 12:08
Started June 14, 2007 at 09:04
Hi, my husband David was diagnosed as having 2 clots one in his calf and the other in this inner right thigh. He had Heparin for first 5 days followed by Warfarin. He is currently on 10mg/day and his INR fuctuated between 1.8 and 2.6. Currently at 2.1 (he forgot to take one of his doses last week) whch affected his INR. His company now want him to fly on a short haul flight from Aberdeen to Teeside. I am very alarmed about the thought of his flying again especially with his INR not having been consistantly stable. Any advice would be greatly appreciated. We are at loggerheads about this as he wants to go and I don't want him to go!!!

57 replies...

Can you get a clot while on innohep
Posted by EmmaRaw
Last Reply February 17, 2014 at 06:22
Started February 15, 2014 at 15:06
Hi I am currently 16 weeks pregnant and on innohep as I had clod in my last
pregnancy. I am experiencing bad leg pain in both my calfs. Can I get dvt while in
heparin?

1 replies...

Period after menopause on warfarin
Posted by DB
Last Reply February 16, 2014 at 22:17
Started February 1, 2014
I haven't had a period since October 2012. Had knee surgery the day after Christmas and a PE in both lungs the day after that. I've been on warfarin for exactly a month and started my period again! What the heck? Anybody know if this happens? I went to the ER and they referred me to a gyno. The period is a little heavier that normal would have been, but what would have made me start again after more than a year?!

2 replies...

DVT Problems
Posted by Chris
Last Reply February 15, 2014 at 17:43
Started July 19, 2012 at 03:43
Hi, new to this forum. I am a 21 year old college student. I was your typical college kid. I played lacrosse for most of my life and was very active. September of 2011 was when my life changed forever. I was at college when I was diagnosed with a bilateral dvt. I underwent a procedure to dissolve most of the clot and was placed on bloodthinners for 6 months. The reason for developing the dvt is still a mystery. I had no injuries, no genetic problems (factor v) or anything that they check for. The only thing I can think of is that I was chronically dehydrated and didn't realize it. They said that the clot had been building up for quite some time. For lacrosse I was on a lot of 5-6 hour car drives one way and 5-6 back home. That could have also contributed. The only other thing my specialist pointed out is that I have narrow veins that are a congenital issue. Also those that know me know that I sit in a lot of awkward positions that may limit blood flow, don't know if this causes clot... read more

7 replies...

Father died of DVT/PE Am I at risk?
Posted by Mark
Last Reply February 14, 2014 at 23:51
Started February 14, 2014 at 22:13
Hello

My father died 9 years ago from a pulmonary embolism/DVT

My father had an operation to remove his gangreous appendix

He had internal bleeding and required extensive surgery 6 times due to
complications

My father lived 4 years after his operations, he died suddenly and the
blood clots (PE) was found to be the cause

I am trying to find out if I am at risk, I had my ruptured appendix
removed when I was 10 years old, I am now 28

I suffer from bipolar disorder and take a fairly high dose of seroquel
XR and I understand this medication has been linked to blood clots. I
also suffer from chronic pain for which I take morphine and fentanly
pain patches

Could anyone inform me if I have an increased risk of developing blood
clots?

Thanks

Mark

1 replies...

Dvt? Ultrasound negative
Posted by Gibbs
Last Reply February 14, 2014 at 16:51
Started February 14, 2014 at 14:12
Any advice if you had or have dvt? Ultrasound negative but right leg so tender
touch I cry like a baby and it is hip, upper leg front, knee, calf both in and out,
ankle, and top of foot. Hurts to walk, drive, sit unless legs are elevated. Also leg
weakness, 'gives out' on stairs. 3rd spinal surgery in mid December with fusion
and the longest I have had to be on rest which also means weight gain and that
doesn't help any body parts. My surgeon suggested X-rays and I think he meant
the veneography. Right now they increased the pain killers, increased the muscle
relaxers, and increased the neurontin. My back feels better but that foot still
hurts like heck when I try to walk and if I standfor five minutes it goes upwards
past the knee. Not mild pain, throbbing and stabbing. This was my 4th surgery
overall this year. I welcome any opinions on if I should wait it out and see how
the meds do or if I should ask my doc to pursue

1 replies...

Dvt pain
Posted by April
Last Reply February 14, 2014 at 02:06
Started February 10, 2014 at 19:00
I'm wondering if anyone can tell me how long they had pain before finding out it
was a dvt?

6 replies...

Feeling weak, off balance
Posted by rachel
Last Reply February 12, 2014 at 13:10
Started February 6, 2014 at 10:10
I had subclavain stent surgery a few months back and was diagnosed a week later with a blood clot in my jugular was put on warfarin and have been on it for 5 monhts. I have notied hair loss and have the runs but the last few weeks I have had several episodes of feeling off balance and almost like I have had a couple of drinks. Not dizzy but sort of lightheaded. Doctor said that isnt a side effect of coumadin. I disagree totally. Has anyone else felt like this?

3 replies...

i think it's something more than cramps
Posted by snoo
Last Reply February 11, 2014 at 03:27
Started February 1, 2014 at 23:40
hi,

I'm female, 20 years old and I'm pretty overweight and I've been just
kind of hanging out in my bed for a while, laying in the same position
for hours every day (anxiety and depression is fun!!!). a few weeks
ago I started getting a tightness in my left calf, sometimes it would
feel stabbing or sharp, sometimes it throbs. later on it felt like
there was glass in there.

I called a nurse hotline that my insurance company provides, they kind
of said 'it's probably dvt, see a doctor if it gets worse' and it did
get worse. I felt the pain in my knee, the back of it, and my knee
would kind of 'bubble' in a visible way, like my vein was ?? clogged
up or something. then I started feeling the pain in the back of my
thigh, sometimes under my butt and sometimes in the inner part. so I
went to see a doctor at a clinic for this, and another issue, a couple
of days ago. they said 'it can't be dvt because it hurts all over your
leg and you're also too young' and... read more

29 replies...

Stopping Xeralta
Posted by Linda
Last Reply February 11, 2014 at 01:57
Started February 11, 2014 at 01:57
I am Day 1 minus my daily 20mg Xeralto tablet after 12 months 2 weeks.
Excited but also terrified. The haematologist was very nonchalant about it, the blot clots
have dissolved and I am more mobile.
But I feel as though my Life's security blanket has been lifted and I want natural
alternative ideas please to keep the blood flowing?
What R other's experiences with stopping Xeralto?


0 replies...

Post thrombectomy
Posted by Ttill04
Last Reply February 10, 2014 at 19:17
Started February 9, 2014 at 13:14
I had a thrombectomy in my right leg on Monday, which was 6 days ago. The
doctor was able to remove the clot which was quite extensive. Apparently it was
caused by family history and the fact that I had been taking birth control pills for
14 years. I was doing better with the pain in walking until yesterday. I probably
walked a little too much just trying to bring some normalcy back into my life.
Today, I can barely out any pressure on my foot without pain. I'm 34 year old
female. I'm on 7.5mg of Coumadin. Can anyone tell me how long it takes to walk
normally, and what I should do for the pain? I'm keeping it elevated and taking
Tylenol. I see my doctor tomorrow. I'm just looking for some relief in the mean
time.

1 replies...

Concerned
Posted by JEM
Last Reply February 10, 2014 at 14:32
Started February 7, 2014 at 17:09
Hey everyone, I'm just feeling a little concerned. I'm 24 years old, healthy, not on birth
control and I don't smoke. I've had this deep ache (like a sore muscle) feeling in my
calf for a few days now. I took a long trip in the car this past weekend, but during the
car ride I was pretty active with my legs (stretching, resting in different positions,
getting up and rotating my ankles) not just in a sitting position for several hours. Its
not terribly painful, but just enough to recognize it's there and annoy me. My calf isn't
swollen or reddened, and I'm not experiencing any numbness. The achiness seems to
get better when I'm sleeping and worsens when I'm up on my feet moving around all
day. Could this be a DVT? At first I thought maybe It was just a sore muscle from
walking around so much during my trip but it's been 5 days and it doesn't seem to be
improving.

2 replies...

awareness of unwanted pain
Posted by from india
Last Reply February 9, 2014 at 22:44
Started February 9, 2014 at 22:32
Dear friends,
even i have DVT problem. which treated by indian doctors and still his
monitor i'm surviving. but some of my close relative she is from
cinema industry and they have set of panel with some doctors who plays
with american or indian doctor's ebility which i hate most and got
shock bec i suffered alot bec of this problem and sepereted from my
husband and daughter. lot of mental tension. started my life who
really gives support for me and accepted me with this life threatening
disease.

y i want to alert you in cinema industry means they are back of money
and they just monitor our thoughts and pain and how we running our
life to use in their movies or for trainee doctors through telepathy
or some unauthorise moneyminded third rate fellow's selfishness, so i
really worry howmany died in this way. still tinnitus people may also
got problem through this kind of unauthorised money minded agents. so
please you verify with your doctors and authorised... read more

1 replies...

DVT in pregnancy (experience)
Posted by mummy27
Last Reply February 9, 2014 at 08:58
Started January 15, 2014 at 18:24
Hello everyone

I'm a student midwife looking for someone who has (had) DVT during pregnancy (either
who had a history of previous DVT before pregnancy or DVT that happen for the 1st time
during your pregnancy).
I would really appreciate if you could give me a few minutes of your time to talk to me
about your experience, feelings and everything that happen to you during the wonderful
time that pregnancy is.

I'm about to write a case study on this medical condition so that would be wonderful if
someone would reply to this post.



Thank you so much for reading! :)

Katie :)


2 replies...

Pregnant with possible clot
Posted by Tiffany
Last Reply February 9, 2014 at 01:14
Started February 9, 2014 at 01:14
I am I'm desperate need of some help and answers.
I'm five months pregnant. 3 weeks ago I developed awful burning and chest pains
when I breathed in. It was so bad I went to the ER at my doctors request. They
performed and EKG and did a d dimer test. EKG was normal as was the d dimer
test for clots.

I went back to my doc for a follow up and she basically told me it was probably
heartburn or anxiety. I started feeling better and had zero symptoms for a week or
so. All of a sudden today out of nowhere the right side my chest/lung area began
hurting. It feels like a pulled muscle whenever I take a deep breath or move a
certain way or laugh. Once again I'm worried that since I am high risk due to
being pregnant this is a clot. On a side note, I've been experiencing leg pain in the
back of my right thigh for 3 months now that I chalked up to sciatica as the pain
comes and goes. No swollen leg, no hot to the touch area on my leg, but I have to
wonder if it's rel... read more

0 replies...

Cough/Mucus after a DVT/PE
Posted by LeoDN, 44, NY
Last Reply February 7, 2014 at 15:35
Started February 7, 2014 at 15:35
Hello, I had a DVT in the beginning of January that made spend 2 days
in the hospital. After the Heparin/Lovenox/Warfarin welcome cocktail
was put on Xarelto by GP 4 days after I left the hospital. Although no
significant PE was found during the stay in the hospital, I
experienced mild short of breath and pointy pleurisy-type pains for
months before having the DVT that took me to the hospital, so I assume
my lungs were also under stress. I also experience and still
experience, one month after leaving the hospital, some mild no
productive cough and cold-type mucus coming out of throat once a
while, specially in the mornings. Have anybody felt the same thing
after DVT/PE/VTE? Good Luck to All and Thanks.

0 replies...

Protein C Deficiency?
Posted by Robert
Last Reply February 6, 2014 at 23:55
Started March 28, 2010 at 19:04
I've been told that I have protein C deficiency based on some blood tests that were done in the hospital during my PE episode. My Protein C level appears to be slightly below the recommended range (I believe my test result was about 59). Also read somewhere that Protein C results are skewed downward during a clotting episode (which was my situation).

Couple questions...

1. For those that have Protein C deficiency, have your doctors indicated that you need to be on Warafin for life?

2. Did you have your Protein C level checked/re-tested once you were certain you had no clotting conditions?

I understand that in order to have it re-checked, I would need to come off of Warfin for a while to get an accurate result.

I would like to know to get a better understanding if I in fact have this condition (and for my kids as well) and to confirm if I should stay on Warafin for life :(.

Thanks in advance for your responses...



9 replies...

My Doppler Reports
Posted by Bob
Last Reply February 6, 2014 at 20:01
Started February 5, 2014 at 05:39
Patricia, et al.. I can use some help with interpretation. This was 30 days from the onset.. 15 days from start of Coumadin therapy. This was from the center involved in the ATTRACT study.

Maybe my clot was too severe and high risk, thoughts?


Date of Study: 9/21/2011

Reason for Study: Follow up of left leg deep vein thrombosis and assessment for possible thrombolytic therapy.

Procedure: The bilateral lower extremity veins were examined with high-resolution B-mode imaging and pulsed wave Doppler.

Findings: Doppler velocity waveforms show absent respiratory variation at all levels distal to the common femoral vein in the deep system. Duplex ultrasound shows absent flow in the left posterior tibial, popliteal, superficial femeral, common femeral, and profunda femeris veins. There is peri-thrombus flow in the proximal portion of the left common femoral vein.

.

9 replies...

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