DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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PE pain 2 years later!?!?!
Posted by Tyler
Last Reply December 29, 2013
Started December 29, 2013
I had bi-lateral PE's 2 years ago and had the normal symptoms (9/10
pain, shortness of breath, etc...). I had a lot of residual pain from
the PE's with something abnormal. Out of nowhere 100% of my PE
symptoms would return for a short period and then disappear as quick
as they appeared. My Doc said that this would be gone in a few weeks.
However, here it is several years later and I still get these attacks.
I've searched the internet for answers as to why this happens but
cannot find anything. It is debilitating when I have these attacks and
am getting tired of them. Has anyone had similar symptoms or heard of
such a thing? It isn't fun and I'd like to close that chapter in my
life and move on but these phantom PE's don't like to go away. I'm at
a loss and don't know what to do. ANY HELP would be greatly
appreciated!!!

0 replies...

How long will my leg remain "swollen"?
Posted by Amanda
Last Reply December 27, 2013 at 16:27
Started February 17, 2010 at 06:42
Back in May of '09 I had a clot in my right leg, from hip to ankle. I've recovered and have been taken off of all of my medications. But it seems my right leg is still slightly bigger than my left leg. It's mostly noticeable around the ankle and calf area. I was wondering if this will ever go away? From what I've read most recently recovered people still experience pain and swelling in the effected limb.

9 replies...

clot in MV
Posted by charbel
Last Reply December 24, 2013 at 03:08
Started December 24, 2013 at 03:08
hello everyone im a 25 years old unfortunate guy who had to have a mitral valve repair open heart surgery 3 weeks ago . the good thing is that the surgery was perfect and i was recovering well until tody while having my regular echo the doctor told me i had a blood clot on the left side of the mitral valve he said i should nt give it any importance because it is caused by me not moving in the first period of recovery and that my heart will clean this as well as i taking asprirne and moving now .
i also called my surgeon and he told me the heart will clean it dont worry but the thing is i cant get it out of my mind especially after i read on the web that it caused strokes ...
so wht do you think am i caring so much has anyone been in my shoes before i mean my surgery was perfect but this ... should i worry or the aspirin will do the trick and with me exercising now the clot will be gone later on????? please help

0 replies...

Injections of Arixtra
Posted by James
Last Reply December 23, 2013 at 10:26
Started December 23, 2013 at 10:26
I have been administering Arixtra to my wife over the past few months. I want to tell you of something I discovered that may help others who have had similar results. The syringes as you know, have an air bubble in them. On the instructions, they advise to leave the air in the needle and inject. Doing so has caused a lot of bruising and lumps the size of a chicken's egg. If you are having an issue with this, then clean spot with alcohol and let dry, Holding needle at eye level, tap syringe with fingernail till all air rises to the top. Slowly push up on plunger with other hand and expel all air. A small amount may come out and then STOP. Pinch skin easily at injection sight and slowly insert needle, then slowly push down plunger till it bottoms out. Remove needle and do not rub area. Hope this helps!

0 replies...

Site saved my life THANK U ALL
Posted by Nona
Last Reply December 23, 2013 at 02:16
Started December 23, 2013 at 02:16
I like to once again thank this forum and the men and women on it that never gave up on themselves and shared their experiences, and offered advice and assistance to others.
Finding this forum was a true heaven sent to me. IT SAVE MY LIFE. Although I was ignored by the doctors and even after the fact and results present to them they still were in denial. But the women and men on here were correct. Please do not take this as ever thing is correct simply don't give up on yourself or a friend who may need you when all else and every one fails them.
Mine issue was concerning the IVC Filter. And the it migrated right away after it was in.

0 replies...

Medicine You Take
Posted by Nona
Last Reply December 23, 2013 at 02:10
Started December 23, 2013 at 02:10
Has or does any one take the medicine DEXILANT? It is a medication for your stomach for either a peptic ulcer, stomach problems, heartburn and so on. I am discovering that this medicine may be the reason for my blood clots. Has any one taken this medicine and got blood clots (dvt's) with no explanation as to why

0 replies...

compression stockings 30-40; pain in toes
Posted by peter
Last Reply December 19, 2013 at 13:25
Started December 19, 2013 at 13:25
Hi, I was diagnosed with a dvt about three months ago; taking warfarin and wearing compression stockings (20-30) for 2 months; run every morning; have been lucky thus far b/c little pain and swelling is almost gone; have been advised to switch after about 2 months to 30-40 compression stockings; Have other persons been given similar advice and has it helped ? since onset of dvd get sharp pain in big toe several time a week if feet have been elevated for a few hours (e.g., when sleeping at night without stockings) and big toe is tender for a few hours a day. Anyone else have similar pain and did anything work to relieve it? Thanks for any help you can provide. Best, Peter

0 replies...

Recently diagnosed with DVT
Posted by Markus
Last Reply December 19, 2013 at 13:07
Started December 18, 2013 at 10:44
Hey everyone, just a bit of background on me.

I had severe pain in my left calf and ankle which moved around for about 5 weeks. I was originally told by GP and out of hours docter it was muscle strain and maybe nerve damage so i got a physio to work on it. Last week my left leg swole up so i went to a&e where it was confirmed i had a DVT in my left thigh. I start rivaroxban immediately and the swelling has started to go down.

But the the pain has moved up my leg to the groin area (it feels like muslce strain, not sharp pain but constantly there and dull) sometimes, maybe 3-4 times a day i'll get a pain in my chest, again not really sharp but i can feel it, and sometimes even a pain down my arm. I can take a deep breath without any pain, it's this pain comes and goes randomly. Is it something i need to get seen urgently?

many thanks.

3 replies...

leg pain 1yr 5 mos post DVT/PE
Posted by Rleslie
Last Reply December 16, 2013 at 10:17
Started October 26, 2010 at 07:32
Hi all, I was wondering if pain post DVT lasts forever? I have been having pain in my
DVT leg for the last 8 mos. Had DVT june 09..then PE both lungs 3 wks later...I was on
coumadin for 7 mos....I have severe bouts of leg pain and chest pains since then. I
have been to the ER about 6 times since January...all times get ultrasound and d
dimer...all negative...and my primary dr doesn't seem to know too much about this....Is
this normal? When I get the pains, which are almost constant...I wait to go to dr until
my level of pain is uncontrollable....then I go into ER because that is where dr says to
go because of my history with DVT/PE.....I am very frustrated, some of the dr's I've
seen, seem to just brush it off, like I'm crazy...one of them even told me that I have too
much anxiety...of course i do, I almost died......
sorry for the long text, but I need to know that i am not crazy....should I see a
specialist and if so, vascular surgeon? I feel soo lost....... read more

14 replies...

Need advice...URGENTLY
Posted by babyblueallstar
Last Reply December 11, 2013 at 20:46
Started November 1, 2013 at 22:39
Hi everyone.

I'm not going to go into my long DVT story...but will give a brief backstory and bring you up to why I'm writing.

Back in 2006, almost died from a DVT that broke off from my right calf (ankle to bottom of thigh) into both lungs.

Had repeated DVT's even on Coumadin/Warfarin. I would say since that original episode in May 2006, I was hospitalized with 5 additional DVT's.

Finally in 2009 or 2010 I was cleared and taken off blood thinners.

It is now 2013 and I have what appears to be an UNPROVOKED DVT in September. Had a lot of pain, felt like all the previous clots in my right calf...but this time in my left. I swear I got it while doing Zumba and came down too hard and felt pain in my ankle. My PCP doesn't think so.

Anyway...got 3-4 ultrasounds in a 3 week period and the clot was there...

It is now November and I've been having pain I haven't had since the new DVT was found in Sept...and it makes me wonder if the clot is enlarging itself or ther... read more

4 replies...

Numbess in foot
Posted by Amber Schultz
Last Reply December 11, 2013 at 20:38
Started August 22, 2011 at 14:36
I was diagnosed about 6 months ago with a DVT in my right leg behind the knee after having heart surgery. I am 27 years old and have already had bypass surgery on my heart due to diabetic complications. I have seen a vascular surgeon and will be having surgery to do an artery bypass in my leg Sept 12th to increase the blood flow in my leg and foot. I was wondering if its common to have numbness and a little bit of pain in the foot with a DVT in the leg or if this numbness is caused by something else? Also, after surgery will I be able to return to work or will I permanently be disabled from the numbness?

5 replies...

New DVT - Paranoid?
Posted by Tanya
Last Reply December 11, 2013 at 11:45
Started December 11, 2013 at 10:11
Greetings!

I am newly diagnosed (4 weeks ago)with a DVT in my right leg. The reason suspected is pregnancy, I gave birth 4 months ago. I was put on Lovenox for 10 days and Warfarin...my INR numbers never budged so now I am taking 100mg Lovenox shots twice daily. This leads me to my two questions:

My doctor told me my clot was in the superficial fenerous (sp)but was still a deep vein. However she said I can resume my daily walks that were up to an hour. What has been your experiences?

Second, this whole situation has been more mentally challenging than physical and now after putting on our Christmas tree and bouncing my heavy 4 month old up and down as I carried her back and forth to the tree I woke up this morning with pain in my LEFT hip and butt...please tell me I'm being paranoid and this is not another DVT issue.

Also, I have been reading this forum since being diagnosed and I hav learned so much and had my spirits lifted on numerous occasions - so for that I just w... read more

2 replies...

8 Months after DVT and new pain
Posted by Lori
Last Reply December 11, 2013 at 11:10
Started September 16, 2009 at 22:29
I had a DVT 8 months ago, which is now chronic. My doctor said to stop Coumadin (which I did about 6 weeks ago). I now take an aspirin every day. This week I have noticed a familiar pain/ache in my DVT leg which eases when I have my stocking on. My leg is not red or swollen more than usual. I did do a lot of walking last week. I try to remember if I had these aches before, but every little thing makes me wonder. Do you think this is normal? I know I should expect some pain/discomfort, but I'm just not sure. Thank you.

4 replies...

36 weeks pregnant with DVT in groin
Posted by Jen
Last Reply December 6, 2013 at 19:36
Started June 26, 2010 at 14:12
Hi,

I'm hoping someone can help. I have struggled to find much information
and the doctors and midwives etc seem to be a bit confused by my
situation too.

I am 36 weeks pregnant and had a DVT in my groin confirmed this week
just gone. I'm in a lot of pain and am struggling to walk and to even
move from the sofa or in bed. With only a couple of weeks to go before
I'm due to give birth, this has completely thrown me off track as
there is still plenty to do, but I can't do anything!

I'm on clexane injections, and am having to take 2 paracetamol's and a
codine every 4 hours just to take the edge of the pain, but I don't
think this is something I should be doing every 4 hours for the next 4
weeks. Especially only a small about of codine is ok for the baby.

No one seems very clear as to what my birth will be like and whether
or not I can or can't be induced or whether or not I can have a C-
section. My initial birth plan was a home birth with no pain kill... read more

11 replies...

what is a safe cumadin level with a DVT
Posted by rona altschuler
Last Reply December 4, 2013 at 14:10
Started July 18, 2008 at 14:17
post arthroscopic surgery I developed a clot in the calf. Also a staph infection in the knee. I am post antibiotics for the infection and am dealing with knee inflamation and pain. I take 7.5 mg. of cumadin daily and my INR is usually 1.0. My doctor does not want to increase the dose. Am I ok. I am becoming more active and exercise with weights daily and walking.
Also can one fly on cumadin safely?
rona

16 replies...

Dvd and PE
Posted by Carol
Last Reply December 2, 2013 at 16:15
Started December 1, 2013 at 14:09
Hi I am soooo pleased to find a
site that talks about what I am
suffering from. I have over
the years suffered many clots
that have sometimes even gone to
my lungs. I have been on
warferin this time for 5 years
and have just development
another clot. So I have been
taken of warferin and put on
another drug. They now think
that I have a form of
trombophillia I have had a load
of blood taken, I find out next
week. But does anyone know if my
hair will grow back I am so thin
at the front. As I have always
loved my thick hair, and now it
has gone!!!!!

1 replies...

time to take warfarin
Posted by sue
Last Reply December 2, 2013 at 14:24
Started October 24, 2008 at 13:46
I know this is a really silly question but with the clocks going back this weekend do you still take the warfarin at 6 oclock as i usually do, or does it make a difference if it was taken 5 oclock. Think ive got that the right way around.

11 replies...

Farewell
Posted by John in Dallas
Last Reply November 29, 2013 at 18:36
Started November 16, 2013 at 21:52
I have posted on this forum several times and really gone out of my
way to help individuals. However, I am not going to post anymore
because it seems no one really wants to discuss their condition, and
they just want a miracle cure. If I answer members posts, and ask an
earnest question about their condition with the possibly of maybe
giving them some help, rarely is it responded to.

That is not to say I have met several people in the forum and told
them of my experiences with dvt intervention surgery. Two of these
individuals I spoke to over the phone. They listened to my
experiences and sought treatment, and the outcomes were very
successful. However, don't post your phone number in the forum crying
for help, and when I respond to you I get completely dissed. I just
may have info that might help you, because you are completely ignorant
of dvt intervention surgery and do not have a clue.

I have had three dvts and intervention surgery on all three wit... read more

3 replies...

Compression stockings due to DVT (TKR Patients
Posted by VISHWANATHA.s.iNAMATI
Last Reply November 27, 2013 at 01:10
Started November 27, 2013 at 01:10
Hi...
My father has got DVT after TKR, he is now advised to wear compression stockings to the right knee(DVT) at the day time and to take it off at the night time while sleeping. Since from 15days he is wearing the compression stocking to the right knee, now he is getting some unavoidable pain above the thigh. Please anyone can advise us whether this pain is normal or we should concern the Doctor for the clarification?????

0 replies...

Getting another clot while on warfarin
Posted by Sue
Last Reply November 25, 2013 at 14:29
Started January 18, 2010 at 12:08
I've been told that it's possible to get another clot whilst taking warfarin.
Has anyone experienced this and if so, what is the treatment ?

10 replies...

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