DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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specialists for blood clot
Posted by peter
Last Reply October 14, 2013 at 09:44
Started October 4, 2013 at 08:35
Hi, diagnosed with ultrsound with blood clot; 69 in good shape, freq exercise, not smoke or overweight; calf swells up and warm; put on warm and injections; GP has not provided much info; are there specialists who deal with blood clots on a regular basis; what are they called; I am in Kaiser health plan in California; Thanks

5 replies...

Blue veins appearing on foot?
Posted by Simon
Last Reply October 13, 2013 at 05:14
Started September 20, 2007 at 15:32
Hi,

I was diagnosed with DVT in my right calf about 4 months ago. I've had the normal treatments (injections in the stomach, Warfarin, stockings etc etc) but I've recently noticed thin blue veins appearing just below and above the ankle that hurt slightly. I've got an appointment with the docs in a few days because I'm due an INR test anyway, but has anyone else had these veins appear after/during treatment? I'm beginning to wonder if my stockings are too tight!

Si.

19 replies...

Warfarin and Supplements
Posted by Andrew
Last Reply October 10, 2013 at 14:14
Started October 10, 2013 at 14:14
I have been on Warfarin now for just over 3 weeks and was just wondering what
supplements are safe/recommended to take whilst on course.

I started a topic moments ago, and being into keeping fit/gym - I took a number of
supplements/protein shakes. I want to avoid taking a multi-vit due to the Vit K content,
but i've read B12 is good, something I was told to take for life as I had glandular fever
when I was 18. Any others good/bad

Thanks

0 replies...

anyone help with my symptoms?
Posted by Pam
Last Reply October 9, 2013 at 18:53
Started September 16, 2013 at 11:51
Ive had right leg/hip pain for about 2 years now, keep going back to docs and they say Sciatica, had a scan on my back and they could only see degeneration from age, now recently after Iwalk a 100 yrds my leg goes really heavy and I have pain in my calf, have told the doc and he still says Sciatica,

Im getting quite concerned now that this maybe DVT, can anyone relate to it being Sciatica with these symptoms? also I get restless leg syndrome all the time.

I have made yet another apointment for tomorrow, but they will just say Sciatica again!

Thanks

2 replies...

High Levels INR from Warfarin
Posted by Sheree
Last Reply October 9, 2013 at 18:24
Started September 24, 2013 at 18:10
I got a DVT in my leg after foot surgery this month, but also have Blood Cancer
(Essential Thrombocytosis,) & take 1000mg. Hydrea a day for the rest of my life. I
have also lost my kidney as a result if the Blood Cancer in 2008.
I have been in and out of the hospital regarding this DVT situation & now my INR
level is 8.0. Does anyone know what is normally done when it's that high???

1 replies...

Venowave, UK supplier sought?
Posted by Alan Butterworth
Last Reply October 7, 2013 at 09:49
Started May 23, 2011 at 15:03
Hi,

About 6 months ago I looked into buying a Venowave device and came across a UK supllier, Kingsland Medical Ltd. At the time I'd had another scan to try to found a solution to my on-going Post Thrombotic Syndrome and the consultant suggested I try a full length stocking which I've been wearing for about 4 months. As anyone who's tried full-length stockings will tell you, they're a bitch to keep up. I've tried one's with elasticated bands, ones with a waistband and none of them are comfortable. I've gone back to wearing a knee length stocking today, but already can feel PTS back in my thigh and calf. I logged onto Kingsland to find that the company is no longer trading. After speaking to the MD, he suggested contacting Venowave in Canada which I've just done.

While waiting for a reply from Canada, I thought I'd ask here and see if any UK residents had bought one recently and from where?

Cheers,

Al

9 replies...

Xarelto
Posted by Char
Last Reply October 4, 2013 at 13:39
Started January 16, 2009 at 17:57
Video from the Bayer Group concerning a new anti coagulant already approved in Europe and now Canada. Waiting for the FDA to stop protecting me from this new medication. It is OK with the FDA that others and I take rat poison daily.
http://www.webvideo.bayer.com/module/player/player-bayer.aspx?folderid=10157&application=bayer

13 replies...

DVT and Collateral Veins
Posted by Hannah
Last Reply October 3, 2013 at 23:38
Started October 3, 2013 at 16:30
Hey all,

I had a DVT diagnosed Jan 2013 (I was 24 at the time, from IVC to mid
thigh) and about a month ago had surgery to remove the clot. The
surgery was unsuccessful (the clot was too hard). The doctor says
while trying to angioplast the veins, he messed up one of my
collateral veins, which is causing increased swelling/pain, esp in my
calf.

My question is: does anyone have tips on how to build collateral veins
bigger/faster? I try to walk on the leg as much as possible, but it
is very painful. Does anyone know exercises that might help in
addition to walking?

Thanks!

3 replies...

Ache in non-DVT leg
Posted by MummyNic
Last Reply October 3, 2013 at 17:20
Started June 10, 2010 at 21:48
Hi, I had a right calf DVT diagnosed a week ago, and since Monday my left shin/calf have been aching.

I asked the haematology nurses about it today and if I could get it scanned, and they said there was no point as treatment would be the same even if it was a 2nd DVT. The nurse told me in her 10 years she had only seen 1 case of bilateral dvt.

I wanted to know as it would (a) give me peace of mind and (b) may help with identifying the reason.

Have many others had the 'good' leg aching shortly after starting meds ?



6 replies...

Help with DVT/PE
Posted by Denise
Last Reply October 3, 2013 at 13:10
Started October 2, 2013 at 14:46
My husband had neck surgery and in the days after surgery he didn't get up and move around. He ended up in the hospital with clots in his lungs, and was put on xarelto. He had a DVT ultrasound done before we left the hospital and they said there were no signs of clots. Upon discharge from the hospital, the Dr said he should stay on the thinners for 90 days, but our primary care physician wants to keep him on this drug for 6 month to a year. The thinners are making him very drowsy, and weak and he isn't able to take his anti-inflammatory medicine for his arthritis. He now has piriformis syndrome which is crippling him. Out of desperation one day he took one of his anti-imflammamatory medication and the pain from the piriformis syndrome was gone. He's been on the Xarelto for 4 months and he wants to quit taking the Xarelto so he can get back on his anti-inflammatory meds. Are there tests i should request to see if
he can safely stop this medicine? any advice will be greatly ... read more

2 replies...

Lovenox and Hand Cramping?
Posted by Becky M.
Last Reply October 2, 2013 at 14:27
Started October 2, 2013 at 14:27
Hi - last week they found a small clot that they believe was caused by a large baker's cyst i have behind my knee. have now been on lovenox 80 mg/ 2x a day for the past few days.

In the last day, I've started having cramps in my hands - it almost looks like some of the veins in my palm are bulging a bit. Not super uncomfortable, but definitely a little weird. Am wondering if it's a 'get thee to the hospital' side effect or one that I should just mention to my doc next time I'm in?

Thanks!

0 replies...

PE & DVT INR 1.5...scared
Posted by SueM
Last Reply September 30, 2013 at 07:32
Started September 27, 2013 at 09:02
Hi there everyone. To give a brief history - I was diagnosed with large PE and DVT
approx 5 weeks ago, I spent 12 days on hospital as there was a struggle to get my
INR between 2-3. I left hospital on 8mg of warfarin, but since I left, I have been
checked weekly. Over the weeks, my INR has decreased, and today it was
worryingly just 1.5. So...should I be worried - they've increased dose to 9mg?
Also, how does everyone cope with their recovery? Is it just a case of doing what
your body tells you? Feel a little 'on my own'. I'm 44 and female and pretty darn
fed up! Thanks everyone

3 replies...

Feeling pretty darn low
Posted by donnafromcolorado
Last Reply September 29, 2013 at 14:36
Started September 29, 2013 at 14:36
Hello all. I usually make an effort to be positive and helpful, but I'm not feeling that way today. I woke up with bad pain in my leg this morning. As I lay there feeling the hurting, I thought "I'll just get up and take some ibuprofen. Why not?" I've also been having a side effect from warfarin of baking heat and sweating like a lumberjack. I don't know if I can take this much longer. I think this depression has been brewing a long time, but I was unaware. I keep myself busy and involved with life as much as possible. I really do have people to live for that I love and who love me. I have a good life apart from this DVT demon, and there's the rub. I'm so tired of living with the pain and discomfort. I'm tired of trying to be upbeat so people won't have to feel involved in this horror show with me. I've had counseling: breathing exercises, positive visualization, count my blessings, let my Dr. know how I feel, blah, blah... I want the pain to stop.

0 replies...

DVT in calf
Posted by Lisa
Last Reply September 26, 2013 at 17:12
Started September 25, 2013 at 18:00
I've had plantar faciitis in my right foot for about 6 weeks now. I was
advise to stay off of that foot as much as possible, so I've been doing
a lot more sitting than normal for me. At one point, I massaged my right
calf pretty deeply to try to alleviate the PF pain. From that point on,
my calf was sore in that spot. It has been about 2 weeks and my calf is
now extremely sore and slightly swollen. I don't see any bruising, but
it really hurts in that one spot when I flex my foot. I am now kind of
concerned I have a DVT.

I really appreciate finding this forum and would welcome any thoughts,
especially if anyone out there has had a similar experience.

P.S. Does DVT always require hospitalization? I have no insurance.

3 replies...

Antiplatelet meds
Posted by Tim
Last Reply September 26, 2013 at 15:47
Started September 26, 2013 at 15:47
Hi all, I am recovering from a DVT/PE. I was diagnosed in Aug. Of 2012. I was
tested for all the different clotting factors lupus anticoagulant came back
borderline the rest were normal. I have since been retested for LA and again it
was borderline. I had a rescans in Feb. And April That showed no PE but the DVT
was unchanged. I recently had a scan that showed partial flow but it looks like the
clot is chronic. Anyway my question is has there doctor bring up antiplatelet
meds instead of warfarin? My Hemo suggested that might be his
recommendation. My Vascular DR. Say there is no proof that will help. Any
thoughts? Thanks, Tim

0 replies...

Thinners for life?
Posted by Boeha
Last Reply September 26, 2013 at 14:03
Started September 26, 2013 at 13:10
I had my first DVT episode 6 years ago. Took me over a month and a half to finally
get it diagnosed (thought is was a strained calf musle). Did the 6 month warfin but
clot did not dissolve and had PTS. Went through all the blood test but found
nothing. Got it probably after running long distances with a knee string (boy was I
an idiot). Now probably have a second DVT in the same leg (once again from
strainious training) - my question is does this necessarily mean I need thinners
for life? Any one had two DVTs but not on thinners permanently?

2 replies...

Old age DVT
Posted by Jesun
Last Reply September 25, 2013 at 08:25
Started September 24, 2013
Dear All,
My father age 70+ has been diagnosed with DVT in his right lower limb, For his age , Is surgery or angioplasty is the only resolution?
or can we control on medication?
Out of 6 score he has is 1 calf muscle swelling only as of now.
He is fit and has normal physical activities not bed ridden.
Can anyone suggest about precautions ? diet ? can be controlled through medication? etc

5 replies...

bolouke dissolves dvt
Posted by terry
Last Reply September 23, 2013 at 14:39
Started December 8, 2010 at 11:05
has anyone had sucess with an enzyme product called bolouke for
dissolving dvt.bolouke is an propriety earth worm extract(lumbrokinase)which is supposed to attack fibrin and dissolve the clot

4 replies...

home use INR machines
Posted by Chris Jones
Last Reply September 22, 2013 at 12:04
Started April 30, 2008 at 10:17
Morning all.

Just purchased a INR machine from coaguchek.co.uk

Has any one heard of this site/product?
Anyone using an individual INR machine?

I will be using this machine for holidays etc but will focus on the anti coagulant clinic which i attend locally for the real dosage etc.
Please if you have one of these or know of them, any advice etc will be appreciated.

Be Safe

Chris Jones

17 replies...

I need help and advice from fellow sufferers
Posted by Scared_man
Last Reply September 19, 2013 at 18:39
Started September 18, 2013 at 08:32
Hello to everyone here! I am 32, male, work sedentary job. I would lke to ask for valuable advice and support, since I am on the edge of despair and major depression! Any advice and help wll be appreciated! Everything has begun three years ago, in 2010 when I received sharp stabbing nerve pain n my left leg. After an MRI has been made, it turned out to be a disc herniation, pressing on nerve roots, thus creating the pain. Few months later I was diagnosed with a dvt clot in the same leg. The pain was so intense that I could not sleep at nght and could barely walk. I was put on initial boost of heparin treatment for the clot and on warfarin (called Sintrom here in Europe) afterwards. However the pain did not subside and every doctor said that the reason is in the disc herniation. In the end of 2010 I discountinued the warfarn intake, following a conclusion of the doctor. In 2011 I underwent a minimally invasive non-operative treatment of the disc herniation and the sharp nerve pain v... read more

3 replies...

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