DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Dvt and still flying
Posted by Lucy
Last Reply September 19, 2013 at 05:43
Started September 19, 2013 at 05:43
Hi,
I'm scared I have dvt after taking a 14hour flight from Australia to LA. about 2
weeks after arriving my left leg felt dead and like concrete, the pain was coming
from the upper thigh area. 2 days later I couldn't walk at all it hurt that much. I
saw a 2 seperate doctors, one who thought maybe a clot, and the other just said it
was muscular. My left leg ended up being about 3-4cm shorter than the right. I
saw a chiropractor for this and it was sorted. My lower back and right cheek
became really saw aswell, I put it down to over compensating from limping.
Which is also what the chiropractor said.
However, it has been over 2 weeks now and I'm still in so much pain in my upper
left leg and also my knee (what feels like joint pain). The pain in my upper thigh
feels like someone is pressing into me with their elbow on a knot or something.
I've been taking ibuprofen and it seems to really help. The pain isn't so bad
anymore during the day, but about 4 hours af... read more

0 replies...

Anyone had - Catheter-directed Thrombolysis
Posted by Bob
Last Reply September 18, 2013 at 12:36
Started May 27, 2013 at 19:59
Having this done later this week on Bupa.
Has anyone else had this procedure?
Thanks.

7 replies...

Having a Few Beers
Posted by Tim L
Last Reply September 17, 2013 at 20:25
Started September 14, 2013 at 17:37
Hi, All
I have been on coumadin for a little over a year now. (DVT/PE Aug. of 2012)
During that time I have not touched a drop of alcohol. I thought I would only be on
coumadin for 6 months to a year. It's starting to look like its going to be a lot
longer, maybe even permanent. They still have not found a reason for my clot and
my leg has not improved. Well it doesn't swell as much and the pain is minimal so
it has improved in that way, but the clot is unchanged. Anyway if this is going to
be a life long thing I would like to have a few Beers now and then the problem is
I'm scared. Lol I'm 6'4 240 pounds and I'm scared of a tiny pill. Any advice?

3 replies...

enteric aspirin vs warfarin
Posted by rob
Last Reply September 16, 2013 at 20:26
Started September 16, 2013 at 16:25
Have DVT liver and spleen. Spleen removed. Wondering if
enteric aspirin could be used instead of warfarin to
maintain therapeutic pt/inr. I hate talking warfarin
because of the side effects

1 replies...

31 yr old female dvt from birth control
Posted by Christina Scroggins
Last Reply September 15, 2013 at 13:17
Started June 29, 2010 at 19:24
im a 31 old female who had a DVT in my left leg it has been horrible:(
The Drs say it was from my birth control pills is there anyone with a similar situation?

12 replies...

Should i go see doctor?
Posted by Lena
Last Reply September 13, 2013 at 18:56
Started September 11, 2013 at 17:51
HEllo everyone. I have been having issues with the pain in my right calf. Pain is located on the back of my calf. Its worth when i sit or lay down. IT comes and goes. I have had a buldge below my knee to the left for about 4 years now. Its soft, but not red or painful or hot to the touch. ALso i had random swelling around my ankle which went away. I have tingly /numb feeling if i run fingers up and down the front of my entire leg. Also my hip joint is hurting if i sit certain way. Pain comes and goes but numb/tingly feeling is pretty much always there. Just wanted to see if i should check this out. THank you

4 replies...

Time to get Medical Advice?
Posted by Margo
Last Reply September 12, 2013 at 19:10
Started September 9, 2013 at 08:55
I've had pain/discomfort in my left calf for about a week now. It's definitely more discomfort than pain and comes and goes. Much worse after I've been sitting, tends to ease off when I'm standing/walking. No redness or warmth.My left ankle is slightly swollen, no pitting. Don't want to waste the doctor's time but I am a little spooked by this, especially as I'm due to fly in the next couple of weeks (only short-haul) Many thanks for any advice. Additional info: I am overweight, 59 years old female, light smoker and I spend a lot of time sitting as I'm a writer and also somewhat lazy!

6 replies...

Pain relief???
Posted by Donnafromcolorado
Last Reply September 11, 2013 at 07:33
Started September 9, 2013 at 20:50
I really need to know what relieves pain when recovering from DVT. I am on 7.5 mg. warfarin and currently taking percocet twice a day for pain relief. I know that won't be prescribed for me again and am at a loss to figure out what to do. The pain still gets bad enough to knock me down after 6 months, and being inactive feels just like punishment. I've been told to just push through the pain, and I really do try, and sometimes even win the battle. But then there are times when I am literally dragging my leg behind me and have to sit out the day. I used to take ibuprofen for arthritis pain and it worked so well. What do I do now?

1 replies...

warfarin inr
Posted by martineden
Last Reply September 11, 2013 at 07:27
Started September 10, 2013 at 16:07
My question, and I can't find anything about this, is whether or not the warfarin is doing any good at all when inr is below 2?


1 replies...

Previous dvt in pelvis and 2nd pregnancy
Posted by Carol5
Last Reply September 11, 2013 at 07:17
Started June 2, 2010 at 10:23
I have had so many conflicting opinions from medical specialists regarding my risks in undertaking a 2nd pregnancy after getting a dvt in my pelvic area 10 days after the birth of my first child. The issue is that a scan revealed the clot never completely dissolved and the vein is likely to be narrower and damaged as a result. My leg does cause me quite a bit of grief (swelling, pain, esp at the end of the day) even two years post dvt. Am I mad to consider another pregnancy or is it possible with the help of clexane to do this safely?

8 replies...

INR & Swelling
Posted by Donna - Scotland
Last Reply September 6, 2013 at 20:24
Started October 30, 2007 at 23:01
This website is so helpful but I still need some answers if anyone can help, I had a DVT behind my right knee 7 weeks ago along with 3 blood transfusions anyway first of all my INR started at 1.2 then went along at 2.3 for a while so I then had to go in 2 weeks rather than every week to get blood tests so I went last week and to my horror it had dropped to 1.7 I am a little worried about this or can anyone tell me Im I being silly or can this be quite normal they have upped my warfrin to 5mg then 6mg on alternative days. The next question is to how long does the swelling take to go down on my leg is about 3 inches bigger than my other leg or will it stay like this for good, I have also noticed that my leg is slightly a different colour again is this an after effect of DVT.
Now this is a real question for the girlies out there when having a night out are you able to go out without these surgical stockings on and hopefully put on a pair of heeled shoes more so with Xmas arriving soo... read more

44 replies...

Peroneal distal dvt
Posted by Trinity
Last Reply September 6, 2013 at 09:38
Started September 3, 2013 at 21:38
I was working on a ship in Singapore. Thought I had pulled a muscle in my calf.
Continued to work everyday. I was wearing a pedometer and was walking 12000
steps a day and doing 40-50 flights of stairs. Every night I used a blood flow
stimulation device along with ice. Pain was finally gone after about a week. Still
working every day throughout.

I flew home. 25 hours total air time. I got up and moved around. Within two days
of being home I had pain in the same calf (left) . Pain was different. Went the er
and had an ultrasound. Found a clot in the peroneal vein . They said all the others
were clear, and prescribed me xeralto. Pain continued to get worse for three
days. Since then it has been getting better everyday. I guess it takes a few days
for the thinners to take effect.

Questions:

1. Has anyone had a similar dvt as mine? If so , how was you experience.

2. My doctors seem to feel like my dvt is not that big of a deal. They didn't tell me... read more

1 replies...

Surgery after Dvt
Posted by Linda
Last Reply September 4, 2013 at 07:55
Started September 4, 2013 at 07:55
Hi All;
I had an injury to my knees which resulted in a non surgical fracture to one as well as
a torn meniscus in the same which does. 5 weeks later after increasing excruciating
pain in that same leg & pins & needles in my foot & several toes, I was diagnosed
with DVT of the medial gastrocnemius vein over a length of 4cm that extended to the
knee crease & to the popliteal vein over a length of 7mm as well as a further DVT
involving the posterior tibial vein. A CT scan was also done which found multiple
bilateral pulmonary emboli present. Taken to hospital, overnight stay, released by the
Haematologist on Rivaroxaban 20mg daily initially, now down to 15mg + a class 2
compression stocking. Knee surgery was to be postponed for 3-4 months but it has
taken me a little longer to feel up to it. It is now 7 months later & I have booked the
arthroscopy next week!! I will cease the blood thinners 48 hours B4 & then commence
on a low dose of clexane for 7-10 days pos... read more

0 replies...

DVT in calf after knee surgery
Posted by Megan
Last Reply September 2, 2013 at 16:20
Started November 28, 2011 at 22:00
Hello..I am new to this forum. I recently underwent surgery of the
right knee to get rid of some calcifications that had grown inside. Was
suppose to be a simple surgery, but 4 days later, I was in the hospital
with a blood clot in my lower calf. Spent 4 days in the hospital,
taking shots and coumaden. It has been a little over 2 weeks, and now I
cannot straighten my leg...it is stuck in a bent position. And, I am
swollen so bad in the calf and ankle/foot. Very bruised as well. How
long will it take to get back to normal?? Very frustrated!!!

3 replies...

4 Weeks Post PE
Posted by Debbie
Last Reply September 2, 2013 at 16:04
Started August 25, 2013 at 05:15
Hello everyone.

4 weeks ago I had a massive PE while on a visit to London. As I got
off the train I realised I couldn't breath and suddenly I collapsed!
Turned out that I had an undiagnosed DVT for several months which had
resulted the PE.

Several days in hospital and treatment with Heparin and Warfarin and
I'm on the slow road to recovery.

At the time I was admitted they did all the tests and the CTPA also
confirmed that my heart had been damaged and then last week I had a
call from my GP to say that they have rechecked the CTPA results and
they think the damage is worst that they first thought and I need to
see a cardiologist ASAP.

Is this why I can feel my heart beating and thumping a lot of the time
and why I have absolutely no stamina at all?

Has anyone else had heart damage because of a PC/DVT?

Any help of advise would be greatly welcome because I'm feeling a
little lost around doctors and medical processes just now :-(

Debs

2 replies...

Better results with aggressive treatments
Posted by Sarah M
Last Reply September 1, 2013 at 01:44
Started August 31, 2013 at 11:43
To anyone who finds this blog, the best advice I can give you is to visit with an interventional radiologist ASAP. I'm hoping my experience can help others because I went from doctor to doctor that told me it might clear up and to wait and see whether I'd end up with PTS.

DVT is an undertreated condition, especially in younger people who are active and otherwise healthy. The chances of your veins clearing on their own is EXTREMELY small - and permanent vein damage occurs quickly.. in as little as 30 days, so even if your occlusions do resolve the chance of having PTS or CVI is very high. There are therapies that interventional radiologists and vein specialists can perform such as catheter-directed thrombolysis and ultrasound accelerated thrombolysis (for older clots) which report good success. The doctors prefer to do this within 14 days for the best results (you can have a COMPLETE recovery with early intervention!!!) Even with delayed treatment, however, this type of ther... read more

1 replies...

Big Thank you to all on this forum
Posted by Nona
Last Reply September 1, 2013 at 01:01
Started August 20, 2013 at 18:09
Recently I had a IVC Filter put in in June 2013. I was in bad pain when I woke up after the placement and I was ignored. Thereafter I suffered so much pain I was not able to walk or move for 57 days. To make a long story short I was lost and suffering in ways that are imaginable. After many visits to the ER's and being ignored time and time again I was getting worse. While laying in bed as I have been I googled my pain and came upon this forum. I had read other people posting exactly what I was feeling and I was really bad. I then continued my fight for help. Here I was right all along and so were many on here and without this forum I would be walking or anything today. This past Friday I had the filter removed. One doctor listened to me and took the chase. They were shocked to see how bad the filter was and filled with scar tissue on a filter that was just placed in. Regardless this forum and those that post helped me very much and made me not give in. It needs to be known. Well th... read more

1 replies...

lv5-sv1 disc herniation
Posted by ahmed mohy
Last Reply September 1, 2013
Started December 5, 2011 at 11:39
my name is ahmed mohy im 26 yrs old ,, i really need ur fast reply asap , i went to 4
drs with no usefuel advice and my case is as follows : i did the MRI scan and its
results is as follows : disc herniation is indenting the ventral surface of the thecal sac
and compromising the SV1 nerve roots notably more at the right reduce lv5-Sv1 disc
height with degenerative loss of its hyperintense hydartion signal .b- normal
aligmnet of the lumbar spine c-normal narrow signal of the lumbar vertebrea d-
normal site , shape , intensity of the conus medullaris e-no signifcant bony canal
tightness seen , normal pre and paravertebral soft tissue .
at the beginning there was no pain in my leg it was only in my back and i took apain
relieve and it was ok ,, these days i felt pain in my buttlock then it travels now to the
beginning of the calves it was severe at the beginning i cant walk probably on my
right leg but by passing on the days the pain become mild but the walking is... read more

2 replies...

Stents for DVTs
Posted by Liesa Phillips
Last Reply September 1, 2013
Started August 21, 2013 at 13:33
I recently had stents placed in my left common iliacfemoral vein for a chronic DVT
caused by MTS. I am 8 days out from the placement and am feeling like I can feel the
stents when I move in certain directions. Does anyone know if this is common and if
these feelings are permanent.

1 replies...

Use of EKOS EnoWave on 5 month old DVT
Posted by Don
Last Reply August 31, 2013 at 11:56
Started June 25, 2008 at 19:04
Was diagnosed 1/30/08 with DVT in mid Femoral down to and including some of the popliteal. It is said to be "non-compressibe" meaning very hard. I have been to a Vascular Sugeon in May who basically told me keep taking Warfarin for total of 6 months, then aspirin and use stockings and do another dopper in 1 year. I was devastated...I was led to beleave I was getting better...but now I know the story...I now have PTS in left foot/ankle. I recently went to another Vascular Surgeon in Dallas that uses the EKOS system to ask if I could be helped. He said he wish I had come just after the diagnoses...that probably too late now. I pushed it and he agreed to do the treatment and said he may have some success if he could get the guidewire through the clot in order to treat it.
I'm trying to decide to do it or not. I asked what was the down side other than the relatively low risk of major bleeding and brain hemorage and he said nothing more, that it works and helps me or it doesn't work. I... read more

24 replies...

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