DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Brandy
Last Reply May 15, 2013 at 16:14
Started May 15, 2013 at 16:14
So on march 9th of 2013 i had a baby all was fine went home then all of a sudden went in with excesive vaginal bleeding so had to get a dnc which led to me being diagnosed with dvt and pe still healing from having baby vaginally was fine for awhile after the dnc then started having excesive vaginal bleeding everyday once a day until one day i went in to get checked and never stopped bleeding was rushed to regina where i found out that my uterus wasn't doing it's job in contracting to get rid of the vessels that were attached to the placenta and some of these vessels were pumping out blood like crazy so had a procedure done where they went in through a punture hole in my groin and incerted mesh coils into these vessels to stop the heavy bleeding anyways this procedure happened near the end of april of 2013 and now it is may 15th and i am still bleeding not bad but having this bleeding for over 2 months and still going since my baby was born is getting to me and was just wondering if ... read more

0 replies...

Welcome back!
Posted by Chris
Last Reply May 14, 2013 at 18:24
Started May 3, 2013 at 20:36
Welcome back everybody. Rob and I worked together and got the system working
again. We are back up and running and will remain so. Look for some new
changes soon where we will have FAQ section for questions we see a lot of

9 replies...

Ultrasound Scans after Diagnosis
Posted by Bob
Last Reply May 14, 2013 at 18:20
Started May 11, 2013 at 02:44
Hi, Just been diagnosed with massive DVT after being fobbed off by Doctors for weeks. Have started Warfarin and daily Heparin until INR stabilised. Just wondering how often I should have scans to see if clot / clots are breaking down. Am in BUPA through work, so considering asking to be referred, as I have lost faith in NHS. Thanks

8 replies...

Off the Wall Question
Posted by Terry
Last Reply May 14, 2013 at 10:46
Started May 14, 2013 at 10:46
I know this is an off the wall question, but since I've been watching
some of the trials on television, and I have a blood clot in my leg
myself and the blood clot is on my mind 24/7, I was wondering, wouldn't
prisoners who are confined to their cells (especially those confined to
their cells 23 hours a day and only allowed out 1 hour a day) be more
prone to blood clotting?
Strange question, I know; Just curious.

0 replies...

surgeons in Canada
Posted by Karen
Last Reply May 13, 2013 at 15:30
Started August 21, 2012 at 23:59
Hey everyone, I'm looking for any help or direction in finding a
vascular surgeon in Canada that will help me with my old clot.
I had a DVT happen in left leg, knee to pelvis, and came off warfarin
around the 1st week of July. I was doing fine, but always suffered
from PTS, which unfortunately has gotten worse. I have chronic pain in
my leg now, and because of the swelling I tend to overcompensate with
my right leg which causes me pain in both. Fun times. Sarcasm.

So I live in Newfoundland, Canada, but am willing to travel anywhere
really to get someone to look deeper into my issues, and hopefully
find a solution for me whether surgery, or a valve to open up my
damaged veins. I can't seem to do anything hear so Im reaching out to
anyone here that lives in canada that has found anyone that will help
me. I don't care if its outside canada, but would like to stay within
if I can. So I guses that's it - Im a 34 year old otherwise healthy
female who got struck... read more

31 replies...

hallucinations on lovenox?
Posted by Lauren
Last Reply May 13, 2013 at 15:12
Started May 12, 2013 at 15:11
My friend is taking generic lovenox and has started having
hallucinations. She is taking no other meds except 10mg prednisone
every day. Has anyone heard of lovenox causing halluciations? People
living in the basement, children running through the house, movie shoots
in the living room at night...that sort of hallucination.

2 replies...

DVT Advice please please
Posted by Sarah
Last Reply May 13, 2013 at 14:45
Started May 13, 2013 at 13:12
Hi had right calf pain on outside of leg by a big vein for last few weeks pain
heightened when driving or sitting. Had an ultrasound today and have left feeling
very confused and a bit worried. The doctors (there was 2 present at the scan)
said they had never seen anything like it ( always encouraging) my Soliel ( not
sure how to spell it) vein was heavily dilated I asked them to explain basically
they said its not a DVT at the moment but it could turn into one. It's very painful
but no redness or swelling. They of course said come back if its more painful or
turns hot or red! Also was concerned because Gyne put me on hormone tabs and
have taken them for past six weeks but now stopped as was concerned! Any help
or advice greatly appreciated was referred from ER so at moment got no
specialist to refer back too. Thanks guys!

1 replies...

Treatment for Post Phlebitic Syndrome
Posted by Micheal Munro
Last Reply May 13, 2013 at 14:43
Started April 29, 2011 at 18:40
Does anyone know if there is any surgical treatment for Post Phlebitic Syndrome?

7 replies...

Posted by Denise
Last Reply May 11, 2013 at 13:56
Started May 6, 2013 at 19:45
I had my kidney removed last week and have been prescribed Clexane for 28
days, no problem. However I have also been advised to wear compression
stockings 24 hours a day fro two weeks. One week one, the weather is warm and
at night they are very uncomfortable. Does any one know if I really need them if I
am taking blod thinning medication?

3 replies...

possible 2nd dvt after pe?
Posted by Von
Last Reply May 9, 2013 at 13:46
Started May 8, 2013 at 20:52
4 years ago, I was diagnosed with dvt to my left leg, after 2+ weeks in hospital released, but on Warfrin for 1 year.
After 2 years from the dvt, I had multiple PE in my lungs. I was then tested for blood disorders. I am factor V positive.
I have been on 11 mg of warfrin for the past 3 years. Yesterday, after a day of being out with my daughter, I have the most severe pain in my right leg, just under the knee. I am concerned as to whether or not if it is possible blood clot. It hurts if I move the leg slightly, and almost impossible to put weight on it.

1 replies...

Dabigatran (Pradax) - Info Needed
Posted by DianneH
Last Reply November 20, 2012 at 06:47
Started January 10, 2010 at 15:30
Hi all,

Is there anyone out there taking PRADAX®(dabigatran etexilate) and or anyone with knowledge about this new drug?

I first found out about dabigatran, from a friend, who's mother-in law was recently prescribed it after surviving a clot induced stroke. She said it has no side effects and requires no INR monitoring.

From what I was able to find on line, here in Canada, dabigatran has been prescribed for people who have hip and knee replacement surgery to ward off DVT/PE and is all the information I can find.

So why am I stuck with Warfarin and all it's wonderful side effects?

I'll be asking my GP about this next week and will post what he tells me asap.

40 replies...

Blood clot removal possibilities in the UK
Posted by Chris Mellor
Last Reply November 20, 2012 at 03:34
Started November 19, 2012 at 11:50
I'm a recent DVT sufferer researcher possible clot removal possibilities o=in
the UK and norther Europe. Any advice would be much appreciated.
Best wishes,
Chris Mellor

3 replies...

chest pain
Posted by sue
Last Reply November 19, 2012 at 20:23
Started November 19, 2012 at 17:58
I finished 6 month of warfarin 2 weeks ago,id
had dvt,pe due to broken tib and fib,i am
having the same chest pain today as i had
when i was diagnosed,i am finally due to have
surgery to fix leg now off warfarin,is it
possible i have got a new pe,anyone had this
problem? Thanks

1 replies...

Drugs that cost less than Lovenox?
Posted by Kristi
Last Reply November 19, 2012 at 20:21
Started November 19, 2012 at 18:36
My husband doesn't qualify for assistance with the cost of Lovenox because you must earn no more than $37,825 for a family of 2. They look at Gross Income. We're self-employed & our monthly insurance premium is $1,200/month - and that's with a $10,000 deductible. Once we meet that, the insurance pays 100%. We paid $920 for his 1st week of Lovenox. So, if he ends up being on it for 11 weeks, the insurance should pay 100% after that...unless there is some clause that allows them to weasel out of paying. The box of supplies he was given only list the generic name for Lovenox...not sure if that means he's on the generic version of it. Is it even available as a Generic? He was recently diagnosed and hospitalized for the first time. The hospital uses "hospitalists", so he did not see his Primary Care Physician until he was discharged. She was disappointed that he wasn't seen by a Hematologist while in the hospital. We live in a town of 30,000 so there aren't many Hematologists in our area... read more

1 replies...

DVT Study Now Enrolling-1-866-974-CLOT
Posted by Dr. Suresh Vedantham
Last Reply November 19, 2012 at 17:49
Started November 19, 2012 at 17:49
Hello. My name is Dr. Suresh Vedantham. I am a board-certified physician and I specialize in the care of people who have DVT (blood clots). I am a Professor of Radiology & Surgery in the Interventional Radiology Section at the Mallinckrodt Institute of Radiology at the Washington University School of Medicine in St. Louis, MO. It is a pleasure to contribute to this forum. If you would like to round out your knowledge about DVT with additional information from national physician DVT experts, then I encourage you to visit www.attract.wustl.edu, where you will find useful information about DVT including a description of what DVT is, a list of common risk factors, common symptoms and signs of DVT, ways to prevent DVT, short-term and long-term complications of DVT including pulmonary embolism (PE) and post-thrombotic syndrome (PTS), and conventional and newer treatment options for DVT. You will also find information about the ATTRACT Study that is being performed to evaluate new clot... read more

0 replies...

Rash - 8 days Post Op
Posted by Crystal
Last Reply November 19, 2012 at 13:58
Started April 1, 2010 at 19:28
I had arthroscopic knee surgery on 3/24/10. Surgery went fine and my knee is feeling great. I developed a rash on my thigh and lower calf on 3/28/10 and the rash is only on my surgical leg. My calf is becoming sore. I have no swelling and the pain is not worse in my calf when I bend my foot. The Physical Therapist looked at it yesterday and agreed that it was not the redness from a clot but redness from a rash. However - Has anyone else ever had a rash with DVT?

10 replies...

Post warfarin/clexane symptoms
Posted by Sam N
Last Reply November 19, 2012 at 05:46
Started November 19, 2012 at 05:46
I was diagnosed with a large blood clot in my calf and was prescribed warfarin which made me feel very ill with fatigue, drowsiness,confusion and lost a lot of IQ! and felt just generally miserable. After several months, I was prescribed clexane/lovenox injections and began to feel somewhat better. However, I have been off the medication for 6 weeks and the fatigue, slowness of mind persists.
Is there anyone who has similiar experiences after you have ceased taking the medication?

0 replies...

Blood Disorders caused PE
Posted by Kage
Last Reply November 19, 2012 at 01:53
Started November 16, 2012 at 06:15
I was diagnosed with PE in June 2011 when I started coughing up
blood. After a huge amount of poking and prodding they realised it was
sue to 2 blood disorders I have (generously passed on one from my
mother and one from my father) neither of my parents blood disorder
effects them but apparently the combination is the sticky part. So now
I have joined the warfarin lifers.
I would like to know if anyone knows what the long term side effects
can be when on marevan warfarin? The Doctors cant really tell me if it
has side effects after 10, 20, 30 years..I am only 29.has anyone been
on it that long? Also, if there are side effects, how have you
treated them? I am fair skinned and live in Australia so I am used to
wearing sunscreen etc but for some reason I have developed what I
think they call melasma, which is hyper pigmentation just above my
cheek bones around my eye sockets...the same on both sides and a
couple of random patches on my forehead. This ... read more

1 replies...

Perscribed Lovenox Once Daily???
Posted by Tony
Last Reply November 18, 2012 at 16:35
Started November 15, 2012 at 22:03
Hello All,

My Vascular surgeon said i have a very small clot below my knee and gave me a prescription for once daily shot of Lovenox. Im a 150 pound male and was told to take 100mg shot in the morning once daily. She said she would adjust the meds based on my next ultrasound next week.

Has anyone given Lovenox for once a day to treat a DVT?

4 replies...

2nd DVT :(
Posted by Tony
Last Reply November 18, 2012 at 13:50
Started November 13, 2012 at 20:21
Got scanned today because my leg felt a bit stiff and what do you know they discovered a Dvt. I am 26/m athletic and i had a previous Dvt 2yrs ago in almost the exact same spot (lower left calf). It was treated with lovenox andd coumadin over 3months and it dissolved. The technician said the clot is small and is right below the knee. The doctor said if i wanted i could use aspirin to treat it... But I opted to go the lovenox/coumadin route being that its what i used before which worked to dissolve the clot.

I work a desk job and i felt my leg tight after a long session of work where i stayed in my chair for about 3hrs straight. I should of taken aspirin and walked around more...too late for that now.

I luckily caught this very early because i recognized the exact pain behind my knee from my first dvt.

Thought id share this. Il update this thread throughout this tedious process.

My main doctor was not in so this new doctor told me to take

3 replies...

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