DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 80 of 236
New Meds instead of Warfarin
Posted by Lizzie
Last Reply October 5, 2012 at 12:28
Started October 5, 2012 at 11:04
Hi what a fab site this is. Great to know we are not alone and that helps dosn't it. My hubby had dvt and pe 2 years ago and is a warfarin lifer. All in all the side effects have mellowed out or indeed we have just got used to them. We are both retired.
We moved from UK to Spain and I have to say the medical here is superb . The attention he gets here is much superior to UK.

Our problem, and yes I know you all will agree, it is our problem not just my hubby, is that the docs here are wanting to take him off of warfarin and put him on some new medication at just one tablet a day.

I did some research and the only meds I could find that would substitute for warfarin had been banned in a couple of countries. Has anyone got any advice, it would be really helpful as our appointment is coming round and we need to make a decision whether to stay on the warfarin or change.

God bless you all, hang on in there. We play the cards we are given never ever give up hope.x

1 replies...

PTS - pain in leg, what can I do with it ?
Posted by Jacob
Last Reply October 4, 2012 at 22:38
Started October 2, 2012 at 20:36
Hello. Im 30 and I have had couple of DVTs, 1st when I was 17, then
around 22, then 30 - I had twice, and they decided to put me on
Warfarin for a lifetime. Ocasionally I had more or less pain in my
left calf, but now it is too painful! After work I cannot do anything
else rather than just resting. It's been 10 months since my last DVT.
I go to gym, I was quite fit and could do fairly lot excercises. It
always was improving my blood circulation. But now nothing helps. Legs
is swollen even more and hurts. I wear obviously compression stocking
and take warfarin regularly, and nothing helps. Pain pain pain. What
to do? And do you think I will be able to work by 65? I don't ! Please
help. Shall I go to doctors? They will say that it is normal when you
have PTS and that's it!

Sorry for my English, Im not native British.

2 replies...

Blood thining Injection before flight
Posted by Zippy
Last Reply October 4, 2012 at 20:00
Started October 11, 2010 at 14:24
My mumis flying from UK to USA but has to have blood thining injection approx 1-2 hours before flight. As she has to be at the airport 3 hours before and it takes a couple of hours to get there the injection will have to be done at the airport.
Has anyone any experience of this, any help she can get with it, I have contacted Heathrow but found no help so far. It looks like she will be ok on the return journey as the medical centre at the USA airport will do it for her.

7 replies...

burning and pain in right leg
Posted by Nikki
Last Reply October 4, 2012 at 10:00
Started November 13, 2011 at 14:53
Hi i am 35 years old . Since Monday i have had a burning sensation in my lower right
leg. On Wednesday evening when i went to bed i experienced excrutiating pain in my
right knee. This then moved back down to my calf. I didn't really sleep because I was
in so much pain and I went to A & E in the early morning. blood pressure etc was fine
,doc said it didnt sound like anything serious and sent me home telling me to take 2
paracetamol every 4 hours. These worked in taking the pain away ,but I still felt an
extreme burn inside my leg. It hasn't at any time made my leg hot to touch!!!!.I carried
on as much as it would allow me too .I walked again a on Friday and I noticed the
pain was totally gone!!! Friday night I started experiencing pain and burn again
around 8pm so I went to out of hours gp. They said all observations were fine and
didn't think it was anything serious so I went home . later that night I went to bed
and the whole thing got worse going from seve... read more

3 replies...

Posted by John Davidson canada
Last Reply October 4, 2012 at 08:11
Started June 10, 2012 at 17:17
Great forum. I am a fit 50 yr old MD with leg dvt after a long haul flight. Had pneumonia prior to flight which I later found out contributed to my dvt. In medical school we were never taught about alot of these risks and I was surprised how many fit people get a dvt. Initial symptoms leg swelling and pain. Removal of clot in my case discouraged for it went only half way up my thigh. Also removal of clot not available in my city so I had to call interventional physicians in the states who also confirmed no need to remove the clot. Still not convinced this was a wise choice. On coumadin and as many others inr varies. Shots inohep caused bruising at injection site. Different opinions from specialists as to whether shots or pills are better. I decided to stay with the coumadin. Bad headaches daily and 2 months out still tired end of day and calf still swollen. I am up to 4 km walk per day but painful near the end of the walk. Running at this point no way. Blood tests revealed APS and... read more

8 replies...

DVT And Worry..
Posted by Carly
Last Reply October 4, 2012 at 03:22
Started October 2, 2012 at 08:02
Hi, I was diagnosed with a DVT at the age of sixteen and the doctors think it was
due to contraception, The clot went from my upper thigh right down to the bottom
of my knee. A year on Warfarin and a few months on Clexane injections and the
doctors said it was okay to come off the medication and start living normally
again. Three years later at the age of eighteen and I've just been told that part of
the clot is still laying in my upper thigh. Has this happened to anybody else?
Worrying myself sick.

3 replies...

Dealing with the pain of DVTs
Posted by Annie
Last Reply October 3, 2012 at 23:34
Started October 2, 2012 at 20:21
I'm at a loss. Pain killers make me extremely ill but my arms, chest and shoulder
hurt so bad I'm in tears. Anyone have anything they do that they find relieves the
pain? I am trying to avoid going back on strong pain meds because They make
me so ill.

Thanks so much for your time and any suggestions.

6 replies...

Blood-Thinners Feeling COLD
Posted by Beck
Last Reply October 3, 2012 at 21:55
Started October 3, 2012 at 21:55
Hi all,

DVTx2 & PEx2 reason not fully known but the suspicion is that it maybe a result of a stomach issue like mild Irritable Bowl Disease (IBD). This nightmare for me began early 2011. I have been on Warfrin and recently Xarelto for treatment. I was absolutely freezing cold all time on Warfrin and although not as bad am still feeling cold on Xarelto. I have heard that many others also complain of being cold on blood-thinners. Do any of you suffer from this side-effect?

0 replies...

Birth control and blood clots.
Posted by Kelsie
Last Reply October 3, 2012 at 21:36
Started September 23, 2012 at 04:50
Hi, what are your ideas on birth control whilst being diagnosed with a DVT. It
seems the contraceptive pill is what has given my an extensive DVT in my right

4 replies...

how long on warfarin
Posted by jerry
Last Reply October 2, 2012 at 16:10
Started July 3, 2012 at 23:39
I am on warfarin for a blood clot in my left leg which I believe I got when I had pneumonia.I have a clot in deep vein and my superficial vein. The clot in the deep vein goes from my middle thigh to my middle calve.

My doctor said she wants me to come of warfarin after 3 months.

Is this a normal time?
I would like to stay with warfarin longer but am afraid of the side effects. I know some people take warfarin for live so I was wondering what effects I could receive if I stay on longer?

7 replies...

Posted by Zeb
Last Reply October 2, 2012 at 04:27
Started October 2, 2012 at 04:27
Folks Xarelto is so much better than Warfrin! Less side effects no INR checks ever! It has been shown to be more effective at preventing specifically DVT's than Warfrin or Lovenox. It is approved in Canada all of Europe and most of Asia for DVT prevention. I hated Warfrin so bad I convinced my doctor to put me on Xarelto. Best decision ever. Ask/beg your doctor for Xarelto you will be happy you did!

0 replies...

Taking asprin
Posted by Sarah
Last Reply October 2, 2012 at 04:22
Started September 29, 2012 at 03:04
Have stopped taking wafarin (9mg) after 12 months, am now on 100mg asprin daily , have heard that taking fish oil supplements can help also, any one offer advice on how much to take and if they would recommend it??
Many Thanks

3 replies...

Diagnosed 5 days ago
Posted by Sam T
Last Reply October 1, 2012 at 21:30
Started October 1, 2012 at 21:30
Hi , new to forum and dvts !
I am 39, 11 weeks postnatal and usually fit and healthy .
Last week I caught my heel in a grid and really jolted my leg trying to free my foot
from the grid . Over the next couple of days my left leg was tingly , then became
painful . I wasn't alarmed until my whole left leg went blue and cold ! I
immediately went to the hospital and it took a few hours to get any sort of
diagnosis . I had the d-dimer blood test that confirmed the clot , the doctors said
that dvts are usually in the calf , which produces a red and hot area around the
clot . My symptoms didn't fit into this description and my pain was more in the
thigh and groin area. The nurses said that once I started on the fragmin
injections I should notice and improvement within a couple of days . Other than a
slight colour improvement , my leg remains extremely painful and swollen . Have
a venogram in 3 days so hoping that will reveal more . Didn't really get much
informat... read more

0 replies...

new DVT, swollen foot ok?
Posted by Mitch
Last Reply October 1, 2012 at 11:59
Started October 1, 2012 at 05:53
I was diagnosed with DVT 7 days ago, although I think I have had it much longer. My leg was huge, but now it's gone down after 7 days of the shots in my stomach and wharfarin. But as of yesterday my foot is gigantic and a lot bigger than it was. It's swollen with tons of red splotchy spots and a couple bigger blood spots right under the skin. Is that ok or should I go to the doctor now? I have a check up in a week, but this huge foot doesn't seem normal. It's so swollen it's like playdough. But strangely it feels better and I am walking a lot better than I was a few days ok. Thoughts? thanks.

2 replies...

Posted by Tiffany
Last Reply October 1, 2012 at 07:04
Started October 1, 2012 at 07:04
Go to the doctor/er right away. That is not normal. God bless you with
a quick recovery.

0 replies...

DVT and Venowave
Posted by Amiens80
Last Reply September 30, 2012 at 15:35
Started April 2, 2012 at 18:23
I was diagnosed with DVT in my right leg last January and have been under warfarin since. I have constant pain in my leg and was told last week that it could be post thrombotic symptom. Being in so much pain, I looked on line what treatments existed for PTS and the most successful one I found is the venowave. I received the device last Friday and it has been a miracle. I do not feel any pain when it is on. However I went to see my doctor today and he told me that I should not use it as I am still under treatment for DVT and that some residues of the clot could go up into my lungs. I would like to know if anyone has been advise not to use venowave under DVT.

1 replies...

Upper extremity Dvts and PEs
Posted by Annie
Last Reply September 30, 2012 at 13:42
Started September 30, 2012 at 13:42
Has anyone been told these are the result of a RVOTO (right ventricular outflow
tract obstruction) or Pulmonary stenosis? I am wondering if anyone else has had
this or if it is a result of the open heart surgery (tetralogy of phallot) I had as a
baby? If so, what course of action did your doctors take to repair this?

Thanks so much for your time.

0 replies...

post DVT issues
Posted by Karen
Last Reply September 29, 2012 at 09:41
Started August 18, 2012 at 02:06
Hey everyone, came off warfarin 1st week of July 2012 - treated for 8
months total, dvt in left leg thigh to pelvis.

I'm just wondering if anyone can tell me some of the post issues
they've had or are having - can't really seem to see much online.
I get tinges of pain in my leg still, prinkly sensations, and
sometimes it still swells and i get pain around the back of my knee.
Scary because i think it might be another clot....

can anyone shed any light on this? i know i suffer from PTS as the
surgeon seen it just from the discoloration in my leg (pinkish tint)
but would that explain the prinkly sensations, the pains?

5 replies...

How high has your INR gone?
Posted by Judy
Last Reply September 28, 2012 at 22:03
Started September 28, 2012 at 21:07
Hello, I recently had to stop taking warfarin so that I could have surgery. After 10 days of clexane, they started me back on warfarin and my INR is currently 6.4, having been 6.0, then 4.8. I've never had anything so high - I know that if it gets really high they can do something medically to bring it down - but how high would it have to get before they do that?

I've been told to take no warfarin for three days, then start again and test on Tuesday. I'm trying to keep everything consistent, amount of other drugs I'm taking, diet, exercise till Tuesday in the hope that it comes down.

How high have you gone?

1 replies...

Dvt & PE
Posted by Ann
Last Reply September 28, 2012 at 08:08
Started September 28, 2012 at 08:08
I was experiencing pain in my right calf and went to the ER on August 29th where
they did an ultrasound and sent me home after telling me it was just superficial
fibrosis. Three days later, my foot began to swell so I returned to the ER. They
did a CT scan of my lungs and an ultrasound on my leg and found two DVT's in
my leg and PE's in both lungs. I was admitted to the hospital for 6 days and was
on lovanox and Coumadin therapy.
I am 39 years old. After several blood tests, the results showed that I have factor
five liver deficiency, and will have to be on blood thinners for the rest of my life. I
have expierencied headaches with the warafin, but the alternative isn't good
either. The worst part for me has been the anxiety that I have felt after coming
home. Every pain scares me and the knowledge that one of the clots in my leg
could break loose or the warafin could cause internal bleeding has been a very
humbling expierence. At this point, I just hope ... read more

0 replies...

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