DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4703) - Page 85 of 236
post surgery pain...
Posted by Angela
Last Reply August 7, 2012 at 16:55
Started August 7, 2012 at 11:04
Hey there everyone, I had surgery 3 and a half Weeks ago on my ankle. For a
while the pain and swelling were getting better. And I am now wearing a cast.
Then 5 days ago I lost my balance and fell, several times during the day. I didn't
appear to sustain any new injuries. We are experiencing a heat wave here. For
the last few days my foot has been hurting and swelling. Now my calf is also
swelling. The pain is bad enough I am not sleeping and have even started
taking the dilaudid again. The pain is not at the incision. The outside of the
ankle was operated on. The pain is in the instep arch area. Fairly nervy and
tight there. There is also pain in the back of my calf just below the knee. It is
increasing as the swelling. I can barely go to the restroom without the swelling
and pain becoming agonizing. Specifically because of the amount of time it is
not elevated. I am worried that it might be a dvt. I am 40.

Should I call my Dr about it, or wait till my app... read more

3 replies...

rivoraxaban
Posted by mae
Last Reply August 7, 2012 at 13:59
Started August 7, 2012 at 13:59
has anyone else been put onto this new drug?

0 replies...

Clot Filter Question
Posted by Darren
Last Reply August 6, 2012 at 17:08
Started August 5, 2012 at 04:55

In August 2009 after a back injury I developed a clot I was told was behind my right knee and landed in the hospital for three weeks, during which time I also had back surgery. But before surgery a filter "umbrella" was placed in my leg.(I was on Coumadin until November 2010).

It's been difficult dealing with and getting straight answers from the hospital, but I still get some swelling in my lower right leg and there is now a smooth darkened area on the inside of my leg just above my ankle the is almost completely numb to the touch.

I was finally told that the filter was the reason for the swelling and when I asked when it was going to be removed I was told that it had been too long and as a result it would be difficult to remove it now. And now i have to wait again for an appointment to speak with a specialist about the matter.:-(

I'm not at all happy about this and would like to know if there can be any future problems with the filter. And also if it could be the cause ... read more

2 replies...

Seen a vascular surgeon
Posted by Karen
Last Reply August 5, 2012 at 03:32
Started January 26, 2012 at 02:39
So I got to see a vascular surgeon today, I was anxious, nervous,
excited, to see him...
DVT: november 24th, I thought I might have been able to go for
surgery, but not looking like that's a road i'll go down....
note to everyone here that has suffered from a DVT recently or even
awhile ago : GO GET COMPRESSION STOCKINGS!
the surgeon was so impressed that I had my thigh high stockings on,
that he caught me off guard, he says people dont believe in them
enough. He told me the reason I will heal is because i've taken the
measurements necessary to get better....the stockings don't just help
with pain and swelling, but with post thrombotic syndrome.

On another note, leg still swollen, 2 months in, and am told I will
always have leg damage, yeah me, but I should heal...that being said I
have read in a lot of places that my leg will be a little bigger
well....forever....anyone out there 6 months later, a year later,
with compression stockings, that still hav... read more

15 replies...

warfarin
Posted by linda
Last Reply August 4, 2012 at 19:07
Started August 4, 2012 at 19:07
i have been on warfarin for over two years my inr is very stable am i ok to fly to australia and what chance is there of ever getting a blood clot

0 replies...

dvt and driving
Posted by daisy
Last Reply August 4, 2012 at 15:00
Started October 2, 2009 at 21:43
hello everyone, i am really new to this site as i have just been out of the hospital after a dramatic dvt.
i am feeling well no more pain apart from light headaches and tiredness.
how long did you drive again after the dvt?
any replies appreciated as i don't really want to take any chances...

thank you for your advice!!!!!!!!

3 replies...

What are the chances I would have a blood clot
Posted by Peter
Last Reply August 3, 2012 at 04:11
Started August 2, 2012 at 14:29
An expert's opinion or an experienced person's opinion would be
appreciated, but if not, anyone's will. So, to start off, I 143-151
pounds, I'm 5'2-5'5, and not a lot of my weight is muscle. I'm
somewhat chubby, and I am obese. Honestly, I have been spending most
of my time lately sitting and laying in bed. It's not like I don't
walk around or go out, but I still sit and lay more than I go out and
walk. I'm not extremely inactive. I go to the park sometimes, but not
everyday. I don't really see swelling or redness, but I do feel heat
in my upper thigh. Yesterday night is when I started feeling actually
pains. They were at the top of my upper thigh. I felt it a little
earlier today. What are the chances I would have a blood clot? Even
though I have been sitting a lot, am I too young? Doesn't this have to
go on for years? Or could I have one now? Right now, the pain feels a
little sore-like, but I don't think that it's actually lactic acid. Or
maybe it is.... read more

12 replies...

Blueish aching vein
Posted by Sam
Last Reply August 3, 2012 at 03:47
Started August 2, 2012 at 01:39
I'm 27, female, and I had DVT 18 month ago. doctors said it may be
because of Syproterone I used to take (1/2, for 10 days a month).
I took Warfarin for 6 months. Now, I wear Sigvaris compression
stockings, but a vein above my knee aches most of the time. (I know
it's not the vein with the clot, because it was above, but behind my
knee)
I also know that some veins are visible depending on the skin type,
but I can see the aching vein in a blueish color, while the symmetry
vein (on the other leg of mine) is not visible.
Does any one know whether the ache is normal or not, or shall I see
my doctor?
Thank you very much


2 replies...

Should I be worried?
Posted by Claire Wood
Last Reply August 3, 2012 at 03:10
Started July 26, 2012 at 18:01
More paranoia!

Im just over a month in on warfarin and experiencing pain in the chest.

I had no pain in the chest when I was diagnosed just the usual leg pain. These pains only seem to have started since I started the warafin.
They are just above the left breast and round to the armpit or just below the left breast. Some are short and sharp others are short and dull

Is this just a side effect of the warfarin (chest pain is listed as a side effect in the note that come with the tablets) or should I be more worried :( like I say I didnt have this before going on warfarin.
I have a doctors appointment on Saturday to let him know about it

6 replies...

any body else felt neglected with their care
Posted by melly in england
Last Reply August 2, 2012 at 21:51
Started August 2, 2012 at 11:00
I recently posted my story on here as a form of therapy I guess....I'm
so angry that when I was first diagnosed I was told clots could not be
removed and didn't get referred to a vascular surgeon for 9
months...he informs me its too late to fix the vein...I'm angry and in
constant pain from the pant pulmonary embolisms and post thrombotic
syndrome.....some days with all the pain and lack of having my life
now I wish I'd died back then.....

Does anybody else feel this way or has anybody felt this way and feel
better now

1 replies...

Contraceptive Pill
Posted by Claire Wood
Last Reply August 2, 2012 at 17:24
Started July 29, 2012 at 19:08
My DVT was diagnosed in mid June. It came about due to a knee arthroscopy and immobility. But I am also on the contraceptive pill.

I need peoples views on whether I should come off the pill before I come off Warfarin.
I have been on the pill for ten years and the doctors arent really that sure what I should do. They think I will be ok, but really I want to erase every factor in me getting another DVT. And this is the obvious factor.

I was put on it due to horrendous period pain when I was in my teens and it has helped. This actually frightens me as well, having that pain back, but I suppose Im going to know when it happens and can prepare myself for it. Dealing with that has to be better than getting another DVT

4 replies...

treated for DVT since yesterday
Posted by BRUCE GAIRN
Last Reply August 1, 2012 at 21:55
Started August 1, 2012 at 21:18
Had pain in calf for almost 3 weeks and thought it was calf strain, however, on attendance at ERU yesterday ,outcome was anticoagulant injections which I have to get for 7 days then a leg scan.
Highly likely that I have a DVT,,, the pain is excruciating and I an struggling to walk..can anyone advise when this shou;d subside
Also like to ask if people in similar situ had to take time off work.. I am a lorry driver and have had to take time off due to pain...

1 replies...

its just so unfair
Posted by melly
Last Reply August 1, 2012 at 16:07
Started August 1, 2012 at 15:56
I had a c-section at 35 weeks that seems to
be the catalyst to the dot...without post op
stockings and clexane injections (had 4
irregularly spaced doses out of ten supposed
doses) I developed week 3 a huge swollen leg
when I got kit of the bath....now I was still
recovering from the surgery....had badly
infected wound ....and was tired nursing my
10th baby....my gp immediately sent me to
hospital where the fo.losing day a dopler
scan (veinalgram failed due to swelling) I
was told my calf....poplateal...general and
illiac where totally blocked with continuous
clot...I started on warfarin.
The following day my baby was rushed to
hospital with breathing difficulties so it
was decided I should be discharged to be with
her....unable to walk I was discharged and
spent some time with her and luckily bad
taken an older daughter as I couldn't walk or
carry my baby....at 7pm I started with chest
pain....at 9it was unbearable so I went to
that hospit... read more

1 replies...

Could be a DVT?
Posted by Muffy
Last Reply August 1, 2012 at 06:49
Started July 31, 2012 at 15:57
Hi Guys. I'm in Cape Cod which is a couple of states away from my
doctor so I'm unable to actually go to him but I woke up with a
minor/faint paint when i bend my left foot upwards in my leg. My job
does have me sitting quite a bit throughout the day, 6 days a week
usually but I'm adamant about moving around & getting up if not just
for 2 minutes to move around. I know that DVT & PE could show up
without any symptoms but I can't go to the emergency based on lack of
symptoms. I feel no pain, no redness, no tenderness but this leg has
been giving me the runaround for about a month now.

Could this be DVT or DVT related? What were your symptoms?
Thank you so much - Muffy

1 replies...

DVT and alcohol
Posted by karen
Last Reply July 31, 2012 at 09:36
Started July 27, 2012 at 08:14
Hi guys ive read up on a few stories here as i am now siffering myself with a calf
DVT due to immobility from a broken ankle :-\ im on warfarin now and at the mo
my INR has been at a max of 3.6 and going down ever so slightly to 3 which is
around where doctors want it 2.5-3ish. ive been told i put myself at high risk of
internal bleeding if i drink more than 2 units of alcohol a day. im nt a big drinker
but i do have a wedding and a joliday to tenerife in the nxt 4 weeks. has anuone
any advice for me as i tested this whole 2units rubbish and had 6 drinks one night
and felt fine and my INR didnt shoot up...help x

4 replies...

angiojet in uk for dvt removal
Posted by joella
Last Reply July 31, 2012 at 03:03
Started July 30, 2012 at 13:14
Hi I have had a dvt since 2007 in my illiac femoral vien and have been on wharfrin 12mg ever since. I wear stockings daily. I am 37 and 120 pounds fit and healthy. I got my DVT during labour. I initially communicated with Patricia Thorpe in Arizona re: running clot busting drugs into the clot etc. she was very helpful unfortunately I didnt manage to get the time to visit her in Arizona (life was manic in London U.K ) and continues to be ...I struggle with my leg...I have 9 & 7 year old boys...I have seen many specialists in London all of which just treat the condition with wharfrin. Does anyone know if the angiojet procedure is available in the U.K or even in New York? is it successful with old clots? I understand that once the valves in your leg are dmamaged they are irrepairable. Can any one help? Kindest Regards
Joella

1 replies...

Part two-denial
Posted by AlisonK
Last Reply July 31, 2012
Started July 31, 2012
Husband is driving me to the ER.

The ENTIRE way there I am saying: "If my leg looks OK by the time we get there, can I go home?"

Arrive at the ER...EVERYONE seems quite impressed. I keep saying that I am fine & I just want to go home. I remember a VERY cute ER doc saying" "ladies with blue legs don't get to go home."

Ok, dopplar lady comes and the INSTANT she puts dopplar to leg, she says "Blood clot."

My response? Fix it, I have a REALLY important meeting in Mexico the next day! The ER staff basically says, not only am I not flying to Mx, I am going to be admitted...I'm going to ICU.

WTF? Is this a joke? I'm going home!!!

YES, this is denial!



0 replies...

blue leg? No need to be seen?
Posted by AlisonK
Last Reply July 31, 2012
Started July 31, 2012
Part one...

I have many tales to tell related to my rather dramatic DVTs.

First off the really crappy "care" I received at the hands of my clinic.

Background, I'm 47 and VERY active. While I do a variety of exercise, running is my love. After a weekend of crazy running times, I developed what I thought was a shin splint. After no exercise for a week, I had no improvement...NONE. Now I'm pretty sure this is a stress fracture. I finally give in and call the clinic. They do an X-ray (bad choice as X-ray often doesn't show stress fracture) My Nurse Practitioner says, no fracture & clears me to run. After a couple of days I'm in so much pain, I call back. She sends me to PT for "strength training." After a week of this, I just can't bear it anymore. I go for a second opinion (with an MRI)and YES,I have a fracture. I get a boot & crutches. I am non-weight-bearing.

Fast-forward 2 weeks. I just get home from work. I take off my boot and prop my leg up. I was sort of ... read more

0 replies...

Frustrated with derth of info
Posted by Bill
Last Reply July 30, 2012 at 01:16
Started July 29, 2012 at 15:15
Developed DVT a couple weeks ago. Left calf sore, discolored. US revealed clot
from hip to ankle. Started lovenox shots and warfarin. Still
On warfarin. Next finger stick is Monday. Supposed to be on warfarin six months.
I'm 52 but pretty healthy. No classic immobilization, surgery, or family history.

I have been very disappointed with the level of good info being offered on the
web and by my doc. She's been my family doc for 20 years, and she's great. But it
seems that there is a lot of outdated and incomplete info out there. I got a brief
talk on the vitamin k thing before I left the ER. Got a pamphlet that listed the
green leafys and a few other things--oils, cheddar cheese, etc. included oatmeal!
My wife makes me chicken salad with yogurt dressing rather than mayo. Loaded
with celery and green onions (scallions). A few minutes later after eating three
sandwiches of the stuff, I see green onions on the no-no list somewhere on the
web! Yesterday, had sinu... read more

1 replies...

Warfarin- side effect
Posted by John
Last Reply July 29, 2012 at 15:21
Started July 29, 2012 at 15:21
I have been on warfarin for about 3 months.. the last couple of days, I have noticed my
skin itchy , eyes, different parts of my body, scalp, etc. Is this a side effect that has
arisen all of a sudden, or is it something else, perhaps a sign of cancer? I would
appreciate your comments.

0 replies...

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